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Volumn 9, Issue 5, 2007, Pages 256-263

Research risks and benefits as perceived by persons with a terminal prognosis

Author keywords

End of life care; Informed consent; Research benefits; Research participation; Research risks

Indexed keywords


EID: 36649023087     PISSN: 15222179     EISSN: 15390705     Source Type: Journal    
DOI: 10.1097/01.NJH.0000289655.91880.29     Document Type: Article
Times cited : (10)

References (30)
  • 1
    • 0344884505 scopus 로고    scopus 로고
    • Nursing research
    • Ferrell B, Coyle N, eds, New York: Oxford University Press;
    • Ferrell B, Grant M. Nursing research. In: Ferrell B, Coyle N, eds. Textbook of Palliative Nursing. New York: Oxford University Press; 2001:701-709.
    • (2001) Textbook of Palliative Nursing , pp. 701-709
    • Ferrell, B.1    Grant, M.2
  • 2
    • 36649012945 scopus 로고    scopus 로고
    • Callahan D. Face it: We can't research death away. Washington, DC: The Washington Post; 2000:B.1.
    • Callahan D. Face it: We can't research death away. Washington, DC: The Washington Post; 2000:B.1.
  • 3
    • 36649021282 scopus 로고    scopus 로고
    • Okie S. Better cancer care urged: focus on cure hurts treatment of symptoms, study says. Washington, DC: The Washington Post; 2001:A.14.
    • Okie S. Better cancer care urged: focus on cure hurts treatment of symptoms, study says. Washington, DC: The Washington Post; 2001:A.14.
  • 5
    • 0028512834 scopus 로고    scopus 로고
    • Kristjanson LJ, Hanson EJ, Balneaves L. Research in palliative care populations: ethical issues. J Palliat Care. 1994;10:10-15.
    • Kristjanson LJ, Hanson EJ, Balneaves L. Research in palliative care populations: ethical issues. J Palliat Care. 1994;10:10-15.
  • 6
    • 0034707282 scopus 로고    scopus 로고
    • Consent for trials in palliative care
    • Hardy J. Consent for trials in palliative care. Lancet. 2000;356:S44.
    • (2000) Lancet , vol.356
    • Hardy, J.1
  • 7
    • 0032784936 scopus 로고    scopus 로고
    • Challenges in palliative care research, recruitment, attrition and compliance: Experience from a randomized controlled trial
    • Jordhey M, Kaasa S, Fayers P, Ovreness T, Underland G, Ahlner-Elmqvist M. Challenges in palliative care research, recruitment, attrition and compliance: experience from a randomized controlled trial. Palliat Med. 1999;13:299-310.
    • (1999) Palliat Med , vol.13 , pp. 299-310
    • Jordhey, M.1    Kaasa, S.2    Fayers, P.3    Ovreness, T.4    Underland, G.5    Ahlner-Elmqvist, M.6
  • 8
    • 0031065337 scopus 로고    scopus 로고
    • Caring about risks: Are severely depressed patients competent to consent to research?
    • Elliott C. Caring about risks: are severely depressed patients competent to consent to research? Arch Gen Psychiatry. 1997;54:113-116.
    • (1997) Arch Gen Psychiatry , vol.54 , pp. 113-116
    • Elliott, C.1
  • 9
    • 0033832080 scopus 로고    scopus 로고
    • Are special ethical guidelines needed for palliative care research?
    • Casarett D, Karlawish J. Are special ethical guidelines needed for palliative care research? J Pain Symptom Manage. 2000;20:130-139.
    • (2000) J Pain Symptom Manage , vol.20 , pp. 130-139
    • Casarett, D.1    Karlawish, J.2
  • 10
    • 0022710820 scopus 로고
    • The nurse as advocate for vulnerable persons
    • Copp L. The nurse as advocate for vulnerable persons. J Adv Nursing. 1986;11:255-263.
    • (1986) J Adv Nursing , vol.11 , pp. 255-263
    • Copp, L.1
  • 11
    • 0036772203 scopus 로고    scopus 로고
    • What's end of life got to do with it? Research ethics with populations at life's end
    • Phipps EJ. What's end of life got to do with it? Research ethics with populations at life's end. Gerontologist. 2002;42:104-107.
    • (2002) Gerontologist , vol.42 , pp. 104-107
    • Phipps, E.J.1
  • 12
    • 0030825050 scopus 로고    scopus 로고
    • Ethical issues in qualitative research in palliative care
    • Wilkie P. Ethical issues in qualitative research in palliative care. Palliat Med. 1997;11:321-324.
    • (1997) Palliat Med , vol.11 , pp. 321-324
    • Wilkie, P.1
  • 13
    • 0034055473 scopus 로고    scopus 로고
    • What influences participation in clinical trials in palliative care in a cancer center?
    • Ling J, Rees E, Hardy J. What influences participation in clinical trials in palliative care in a cancer center? Eur J Cancer. 2000;36:621-626.
    • (2000) Eur J Cancer , vol.36 , pp. 621-626
    • Ling, J.1    Rees, E.2    Hardy, J.3
  • 14
    • 0035668481 scopus 로고    scopus 로고
    • NHPCO task force statement on the ethics of hospice participation in research
    • Casarett D, Ferrell B, Kirschling J, et al. NHPCO task force statement on the ethics of hospice participation in research. J Palliat Med. 2001;4:443-449.
    • (2001) J Palliat Med , vol.4 , pp. 443-449
    • Casarett, D.1    Ferrell, B.2    Kirschling, J.3
  • 15
    • 0011388495 scopus 로고    scopus 로고
    • Clinical and health services research in palliative care
    • Doyle D, Hanks G, MacDonald N, eds, New York: Oxford University Press;
    • Calman K, Hanks G. Clinical and health services research in palliative care. In: Doyle D, Hanks G, MacDonald N, eds. Oxford Textbook of Palliative Medicine. New York: Oxford University Press; 1996:73-77.
    • (1996) Oxford Textbook of Palliative Medicine , pp. 73-77
    • Calman, K.1    Hanks, G.2
  • 16
    • 0037345679 scopus 로고    scopus 로고
    • Ethical considerations and barriers to research in surgical palliative care
    • Krouse RS, Easson AM, Angelos P. Ethical considerations and barriers to research in surgical palliative care. J Am Coll Surg. 2003;196:469-474.
    • (2003) J Am Coll Surg , vol.196 , pp. 469-474
    • Krouse, R.S.1    Easson, A.M.2    Angelos, P.3
  • 18
    • 0002654287 scopus 로고
    • Special subjects in human experimentation
    • Freund PA, ed, New York: George Braziller;
    • Lasagna L. Special subjects in human experimentation. In: Freund PA, ed. Experimentation with Human Subjects. New York: George Braziller; 1970:262-275.
    • (1970) Experimentation with Human Subjects , pp. 262-275
    • Lasagna, L.1
  • 19
    • 0027949006 scopus 로고
    • Ethical issues in palliative care research
    • de Raeve L. Ethical issues in palliative care research. Palliat Med. 1994;8:298-305.
    • (1994) Palliat Med , vol.8 , pp. 298-305
    • de Raeve, L.1
  • 21
    • 0032822198 scopus 로고    scopus 로고
    • Casarett D. Case presentation: Are dying patients too vulnerable to participate in research? J Pain Symptom Manage. 1999;18:143-145.
    • Casarett D. Case presentation: Are dying patients too vulnerable to participate in research? J Pain Symptom Manage. 1999;18:143-145.
  • 22
    • 0033191718 scopus 로고    scopus 로고
    • The origin and nature of informed consent: Experiences among vulnerable groups
    • Dennis B. The origin and nature of informed consent: experiences among vulnerable groups. J Prof Nurs. 1999;15:281-287.
    • (1999) J Prof Nurs , vol.15 , pp. 281-287
    • Dennis, B.1
  • 23
    • 0038476183 scopus 로고    scopus 로고
    • The experience of research participation for family caregivers of palliative care cancer patients
    • Hudson P. The experience of research participation for family caregivers of palliative care cancer patients. Int J Palliat Nurs. 2003;9:120-123.
    • (2003) Int J Palliat Nurs , vol.9 , pp. 120-123
    • Hudson, P.1
  • 24
    • 33747879001 scopus 로고    scopus 로고
    • Interest in research participation among hospice patients, caregivers, and ambulatory senior citizens: Practical barriers or ethical constraints?
    • Williams C, Shuster J, Clay O, Burgio K. Interest in research participation among hospice patients, caregivers, and ambulatory senior citizens: practical barriers or ethical constraints? J Palliat Med. 2006;9:968-974.
    • (2006) J Palliat Med , vol.9 , pp. 968-974
    • Williams, C.1    Shuster, J.2    Clay, O.3    Burgio, K.4
  • 25
    • 11344258352 scopus 로고    scopus 로고
    • Recruiting for research in hospice: Feasibility of a research screening protocol
    • Casarett D, Kassner CT, Kutner JS. Recruiting for research in hospice: feasibility of a research screening protocol. J Palliat Med. 2004;7:854-859.
    • (2004) J Palliat Med , vol.7 , pp. 854-859
    • Casarett, D.1    Kassner, C.T.2    Kutner, J.S.3
  • 27
    • 0033227258 scopus 로고    scopus 로고
    • Initiating research with doubly vulnerable populations
    • Moore LW, Miller M. Initiating research with doubly vulnerable populations. J Adv Nurs. 1999;30:1034-1040.
    • (1999) J Adv Nurs , vol.30 , pp. 1034-1040
    • Moore, L.W.1    Miller, M.2
  • 28
    • 0035322954 scopus 로고    scopus 로고
    • Preparation, information and liaison: Conducting successful research in palliative care
    • Daniels LE, Exley C. Preparation, information and liaison: conducting successful research in palliative care. Int J Palliat Nurs. 2001;7:192-197.
    • (2001) Int J Palliat Nurs , vol.7 , pp. 192-197
    • Daniels, L.E.1    Exley, C.2
  • 29
    • 0036284994 scopus 로고    scopus 로고
    • Are hospices ready to participate in palliative care research? Results of a national survey
    • Casarett DJ, Karlawish J, Hirschman KB. Are hospices ready to participate in palliative care research? Results of a national survey. J Palliat Med. 2002;5:397-406.
    • (2002) J Palliat Med , vol.5 , pp. 397-406
    • Casarett, D.J.1    Karlawish, J.2    Hirschman, K.B.3


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.