Beyond the disorder: One parent's reflection on genetic counselling

Journal of Medical Ethics

Volumn 25, Issue 2, 1999, Pages 195-199

  McGowan, Ruth ^a  

^a NONE

Author keywords

Adrenoleukodystrophy; Children; Genetic counselling; Lorenzo's Oil; Therapy

Indexed keywords

LORENZO OIL;

ADRENOLEUKODYSTROPHY; EMOTION; FAMILY; GENETIC COUNSELING; HUMAN; MEDICAL ETHICS; MOTHER; PRENATAL SCREENING; SHORT SURVEY;

EID: 0032945863     PISSN: 03066800     EISSN: None     Source Type: Journal    
DOI: 10.1136/jme.25.2.195     Document Type: Short Survey

References (3)

1. Lorenzo's Oil, a film directed by George Miller, starring Nick Nolte and Susan Sarandon, 1992, and made at Universal City Studios.
2. Moser HW. Adrenoleukodystrophy: phenotype, genetics, pathogenesis and therapy. Brain 1997;120:1485-1508.
3. Bezman L, Moser HW. Incidence of X-Linked adrenoleukodystrophy and the relative frequency of its phenotypes. American Journal of Medical Genetics 1998;76:415-19.