-
2
-
-
12444307076
-
Psychological consequences and predictors of adverse events in the first 5 years after predictive testing for Huntington's disease
-
Canadian Collaborative Study of Predictive Testing
-
Almqvist, E., Brinkman, R., Hayden, M., Wiggins, S., & Canadian Collaborative Study of Predictive Testing. (2003). Psychological consequences and predictors of adverse events in the first 5 years after predictive testing for Huntington's disease. Clinical Genetics 64: 300-309.
-
(2003)
Clinical Genetics
, vol.64
, pp. 300-309
-
-
Almqvist, E.1
Brinkman, R.2
Hayden, M.3
Wiggins, S.4
-
3
-
-
0004168559
-
-
American Medical Association. Chicago: American Medical Association
-
American Medical Association. (2001). Principles of medical ethics. Chicago: American Medical Association.
-
(2001)
Principles of Medical Ethics
-
-
-
5
-
-
34248370994
-
The Huntington's disease quality of life battery for carers: Reliability and validity
-
Aubeeluck, A., & Buchaman, H. (2007). The Huntington's disease quality of life battery for carers: Reliability and validity. Clinical Genetics 71(5): 434-445.
-
(2007)
Clinical Genetics
, vol.71
, Issue.5
, pp. 434-445
-
-
Aubeeluck, A.1
Buchaman, H.2
-
8
-
-
0008962585
-
Nonparticipation in Huntington's disease predictive testing: Reasons for caution in interpreting findings
-
Binedell, J., & Soldan, J. (1997). Nonparticipation in Huntington's disease predictive testing: Reasons for caution in interpreting findings. Journal of Genetic Counseling 6(4): 419-432.
-
(1997)
Journal of Genetic Counseling
, vol.6
, Issue.4
, pp. 419-432
-
-
Binedell, J.1
Soldan, J.2
-
9
-
-
33847268635
-
Managing genetic discrimination: Strategies used by individuals found to have the Huntington disease mutation
-
Bombard, Y., Penziner, E., Decolongon, J., Klimek, M., Creighton, S., Suchowersky, O., et al. (2007). Managing genetic discrimination: Strategies used by individuals found to have the Huntington disease mutation. Clinical Genetics 17(3): 220-231.
-
(2007)
Clinical Genetics
, vol.17
, Issue.3
, pp. 220-231
-
-
Bombard, Y.1
Penziner, E.2
Decolongon, J.3
Klimek, M.4
Creighton, S.5
Suchowersky, O.6
-
10
-
-
0035259897
-
Beyond consent: Ethical and social issues in genetic testing
-
Burgess, M. (2001). Beyond consent: Ethical and social issues in genetic testing. Nature Reviews 2: 147-151.
-
(2001)
Nature Reviews
, vol.2
, pp. 147-151
-
-
Burgess, M.1
-
11
-
-
0034770853
-
Categorizing genetic tests to identify their ethical, legal, and social implications
-
Burke, W., Pinsky, L., & Press, N. (2001). Categorizing genetic tests to identify their ethical, legal, and social implications. American Journal of Medical Genetics 106: 233-240.
-
(2001)
American Journal of Medical Genetics
, vol.106
, pp. 233-240
-
-
Burke, W.1
Pinsky, L.2
Press, N.3
-
12
-
-
0037607584
-
Ethical dilemmas in testing for late onset conditions: Reactions to testing and perceived impact on other family members
-
Chapman, E. (2002). Ethical dilemmas in testing for late onset conditions: Reactions to testing and perceived impact on other family members. Journal of Genetic Counseling 11(5): 351-367.
-
(2002)
Journal of Genetic Counseling
, vol.11
, Issue.5
, pp. 351-367
-
-
Chapman, E.1
-
13
-
-
0033181469
-
"there's this thing in our family": Predictive testing and the construction of risk for Huntington disease
-
Cox, S., & Mckellin, W. (1999). "There's this thing in our family": Predictive testing and the construction of risk for Huntington disease. Sociology of Health and Illness 21(5): 622-646.
-
(1999)
Sociology of Health and Illness
, vol.21
, Issue.5
, pp. 622-646
-
-
Cox, S.1
McKellin, W.2
-
14
-
-
0022504102
-
Ethics of predictive testing for Huntington's chorea: The need for more information
-
Craufurd, D., & Harris, R. (1986). Ethics of predictive testing for Huntington's chorea: The need for more information. British Medical Journal 293: 249-251.
-
(1986)
British Medical Journal
, vol.293
, pp. 249-251
-
-
Craufurd, D.1
Harris, R.2
-
15
-
-
2942639683
-
Living with Huntington's disease: Need for supportive care
-
Dawson, S., Krisitijanson, L., Toye, C., & Flett, P. (2004). Living with Huntington's disease: Need for supportive care. Nursing & Health Sciences 6(2): 123-130.
-
(2004)
Nursing & Health Sciences
, vol.6
, Issue.2
, pp. 123-130
-
-
Dawson, S.1
Krisitijanson, L.2
Toye, C.3
Flett, P.4
-
16
-
-
0037262015
-
Psychological distress in the 5-year period after predictive testing for Huntington's disease
-
Decruyenaere, M., Evers-Kiebooms, G., Cloostermans, T., Boogaerts, A., Demyttenaere, K., Dom, R., et al. (2003). Psychological distress in the 5-year period after predictive testing for Huntington's disease. European Journal of Human Genetics 11: 30-38.
-
(2003)
European Journal of Human Genetics
, vol.11
, pp. 30-38
-
-
Decruyenaere, M.1
Evers-Kiebooms, G.2
Cloostermans, T.3
Boogaerts, A.4
Demyttenaere, K.5
Dom, R.6
-
17
-
-
39749139380
-
You're one of us now: Young people describe their experiences of predictive genetic testing for Huntington disease (HD) and familial adenomatous polyposis (FAP)
-
Duncan, R., Gillam, L., Savulescu, J., Williamson, R., Rogers, J., & Delatycki, M. (2008). "You're one of us now": Young people describe their experiences of predictive genetic testing for Huntington disease (HD) and familial adenomatous polyposis (FAP). American Journal of Medical Genetics Part C (Seminars in Medical Genetics) 148C: 47-55.
-
(2008)
American Journal of Medical Genetics Part C (Seminars in Medical Genetics)
, vol.148 C
, pp. 47-55
-
-
Duncan, R.1
Gillam, L.2
Savulescu, J.3
Williamson, R.4
Rogers, J.5
Delatycki, M.6
-
18
-
-
0027491282
-
Ethical and social issues in presymptomatic testing for Huntington's disease: A European community collaborative study
-
European Community Huntington's Disease Collaborative Study Group
-
European Community Huntington's Disease Collaborative Study Group. (1993). Ethical and social issues in presymptomatic testing for Huntington's disease: A European community collaborative study. Journal of Medical Genetics 30: 1028-1035.
-
(1993)
Journal of Medical Genetics
, vol.30
, pp. 1028-1035
-
-
-
19
-
-
18244409105
-
Disclosing genetic test results to family members
-
Hamilton, R., Bowers, B., & Williams, J. (2005). Disclosing genetic test results to family members. Journal of Nursing Scholarship 37(1): 18-24.
-
(2005)
Journal of Nursing Scholarship
, vol.37
, Issue.1
, pp. 18-24
-
-
Hamilton, R.1
Bowers, B.2
Williams, J.3
-
20
-
-
0025285112
-
Ethical and legal dilemmas arising during predictive testing for adult-onset disease: The experience of Huntington disease
-
Huggins, M., Bloch, M., Kanani, S., Quarrell, O., Theilman, J., et al. (1990). Ethical and legal dilemmas arising during predictive testing for adult-onset disease: The experience of Huntington disease. American Journal of Human Genetics 47: 4-12.
-
(1990)
American Journal of Human Genetics
, vol.47
, pp. 4-12
-
-
Huggins, M.1
Bloch, M.2
Kanani, S.3
Quarrell, O.4
Theilman, J.5
-
22
-
-
33846672993
-
Young people's experiences of growing up in a family affected by Huntington's disease
-
Keenan, K., Miedzybrodzka, Z., Van Teijlingen, E., Mckee, L., & Simpson, S. (2007). Young people's experiences of growing up in a family affected by Huntington's disease. Clinical Genetics 71(2): 120-129.
-
(2007)
Clinical Genetics
, vol.71
, Issue.2
, pp. 120-129
-
-
Keenan, K.1
Miedzybrodzka, Z.2
Van Teijlingen, E.3
McKee, L.4
Simpson, S.5
-
23
-
-
33847694844
-
Short-term effects of tetrabenazine on chorea associated with Huntington's disease
-
Kenney, C., Hunter, C., Davidson, B., & Jankovic, J. (2007). Short-term effects of tetrabenazine on chorea associated with Huntington's disease. Movement Disorders 22(1): 10-13.
-
(2007)
Movement Disorders
, vol.22
, Issue.1
, pp. 10-13
-
-
Kenney, C.1
Hunter, C.2
Davidson, B.3
Jankovic, J.4
-
24
-
-
33749818862
-
Depression and suicidal ideation after predictive testing for Huntington's disease: A two-year follow-up study
-
Larsson, M., & Luszcz, M., Bui, T., & Wahlin, T. (2006). Depression and suicidal ideation after predictive testing for Huntington's disease: A two-year follow-up study. Journal of Genetic Counseling 15(5): 361-374
-
(2006)
Journal of Genetic Counseling
, vol.15
, Issue.5
, pp. 361-374
-
-
Larsson, M.1
Luszcz, M.2
Bui, T.3
Wahlin, T.4
-
25
-
-
49449101795
-
Mental health and quality of life after genetic testing for Huntington disease: A long-term effect study in Germany
-
Licklederer, C., Wolff, G., & Barth, J. (2008). Mental health and quality of life after genetic testing for Huntington disease: A long-term effect study in Germany. American Journal of Medical Genetics 146A: 2078-2085.
-
(2008)
American Journal of Medical Genetics
, vol.146 A
, pp. 2078-2085
-
-
Licklederer, C.1
Wolff, G.2
Barth, J.3
-
26
-
-
0033785340
-
Psychological impact of genetic testing for Huntington's disease: An update of the literature
-
DOI 10.1136/jnnp.69.5.574
-
Meiser, B., & Dunn, S. (2000). Psychological impact of genetic testing for Huntington's disease: An update of the literature. Journal of Neurology, Neurosurgery & Psychiatry 69: 574-578. (Pubitemid 30802079)
-
(2000)
Journal of Neurology Neurosurgery and Psychiatry
, vol.69
, Issue.5
, pp. 574-578
-
-
Meiser, B.1
Dunn, S.2
-
27
-
-
70449672889
-
Ethics in Health Administration, Sudbury, MA: Jones and Bartlett
-
2008. Retrieved February 20, 2009, from
-
Morrison, E. (2006). Ethics in health administration, Sudbury, MA: Jones and Bartlett. National Center for Biotechnology Information (NCBI). (2008). Huntington disease. Retrieved February 20, 2009, from http://www.ncbi.nlm.nih. gov/books/ bv.fcgi?highlight=huntington%20disease&rid=gnd.section.207
-
(2006)
Huntington Disease
-
-
Morrison, E.1
-
28
-
-
3342979584
-
Adaptation to being at risk for Huntington's disease and the availability of genetic testing: Application of a stress and coping model
-
Pakenham, K., Goodwin, V., & Macmillan, J. (2004). Adaptation to being at risk for Huntington's disease and the availability of genetic testing: Application of a stress and coping model. Psychology, Health and Medicine 9(3): 380-397.
-
(2004)
Psychology, Health and Medicine
, vol.9
, Issue.3
, pp. 380-397
-
-
Pakenham, K.1
Goodwin, V.2
MacMillan, J.3
-
29
-
-
38949116255
-
Living at risk: Concealing risk and preserving hope in Huntington disease
-
Quaid, K., Sims, S., Swenson, M., Harrison, J., Moskowitz, C., Stepanov, N., et al. (2008). Living at risk: Concealing risk and preserving hope in Huntington disease. Journal of Genetic Counsel 17: 117-128.
-
(2008)
Journal of Genetic Counsel
, vol.17
, pp. 117-128
-
-
Quaid, K.1
Sims, S.2
Swenson, M.3
Harrison, J.4
Moskowitz, C.5
Stepanov, N.6
-
30
-
-
33847043917
-
To know or not to know: A review of behavior and suicidal ideation in preclinical Huntington's disease
-
Robins Wahlin, T.-B. (2007). To know or not to know: A review of behavior and suicidal ideation in preclinical Huntington's disease. Patient Education and Counseling 65: 279-287.
-
(2007)
Patient Education and Counseling
, vol.65
, pp. 279-287
-
-
Wahlin, R.1
-
31
-
-
24044520387
-
Huntington's Disease: A nursing perspective
-
Skirton, H. (2005). Huntington's Disease: A nursing perspective. Medsburg Nursing 14(3): 167-173.
-
(2005)
Medsburg Nursing
, vol.14
, Issue.3
, pp. 167-173
-
-
Skirton, H.1
-
32
-
-
0034120841
-
Psychological model for presymptomatic test interviews: Lessons learned from Huntington's disease
-
Soldan, J., Street, E., Gray, J., Binedell, J., & Harper, P. (2000). Psychological model for presymptomatic test interviews: Lessons learned from Huntington's disease. Journal of Genetic Counseling 9(1): 15-31.
-
(2000)
Journal of Genetic Counseling
, vol.9
, Issue.1
, pp. 15-31
-
-
Soldan, J.1
Street, E.2
Gray, J.3
Binedell, J.4
Harper, P.5
-
34
-
-
0142186776
-
Predictive genetic test decisions for Huntington's disease: Context, appraisal and new moral imperatives
-
Taylor, S. (2004). Predictive genetic test decisions for Huntington's disease: Context, appraisal and new moral imperatives. Social Science & Medicine 58: 137-149.
-
(2004)
Social Science & Medicine
, vol.58
, pp. 137-149
-
-
Taylor, S.1
-
35
-
-
0026682523
-
Huntington's disease and the ethics of genetic prediction
-
Terrenoire, G. (1992). Huntington's disease and the ethics of genetic prediction. Journal of Medical Ethics 18: 79-85.
-
(1992)
Journal of Medical Ethics
, vol.18
, pp. 79-85
-
-
Terrenoire, G.1
-
36
-
-
0028034011
-
Psychological effects of presymptomatic DNA testing for Huntington's disease in the Dutch program
-
Tibben, A., Duivenvoorden, H., Niermeijer, M., Van Der Vlis, M., Roos, R., & Verghage, F. (1994). Psychological effects of presymptomatic DNA testing for Huntington's disease in the Dutch program. Psychosomatic Medicine 56: 526-532.
-
(1994)
Psychosomatic Medicine
, vol.56
, pp. 526-532
-
-
Tibben, A.1
Duivenvoorden, H.2
Niermeijer, M.3
Van Der Vlis, M.4
Roos, R.5
Verghage, F.6
-
37
-
-
41049088154
-
Estimating decreased risks for Huntington disease without a test
-
Timman, R., Bonke, B., Stijjnen, T., Tibben, A., & Maat-Kievit, A. (2008). Estimating decreased risks for Huntington disease without a test. Genetic Epidemiology 23: 281-287.
-
(2008)
Genetic Epidemiology
, vol.23
, pp. 281-287
-
-
Timman, R.1
Bonke, B.2
Stijjnen, T.3
Tibben, A.4
Maat-Kievit, A.5
-
38
-
-
36348978522
-
Psychopathology in verified Huntington's disease gene carriers
-
van Duijn, E., Kingma, E., & van der Mast, R. (2007). Psychopathology in verified Huntington's disease gene carriers. Journal of Neuropsychiatry & Clinical Neurosciences 19(4): 441-448.
-
(2007)
Journal of Neuropsychiatry & Clinical Neurosciences
, vol.19
, Issue.4
, pp. 441-448
-
-
Van Duijn, E.1
Kingma, E.2
Van Der Mast, R.3
-
39
-
-
33846225133
-
Huntington's disease
-
DOI 10.1016/S0140-6736(07)60111-1, PII S0140673607601111
-
Walker, F. (2007). Huntington's disease. The Lancet 369: 218-228. (Pubitemid 46107685)
-
(2007)
Lancet
, vol.369
, Issue.9557
, pp. 218-228
-
-
Walker, F.O.1
-
40
-
-
0026702252
-
The Tiresias complex: Huntington's disease as a paradigm of testing for late-onset disorders
-
Wexler, N. (1992). The Tiresias complex: Huntington's disease as a paradigm of testing for late-onset disorders. FASEB Journal 6: 2820-2825.
-
(1992)
FASEB Journal
, vol.6
, pp. 2820-2825
-
-
Wexler, N.1
-
41
-
-
0034244304
-
Redefinition: Coping with normal results from predictive gene testing for neurodegenerative disorders
-
Williams, J., Schutte, D., Evers, C., & Holkup, P. (2000). Redefinition: Coping with normal results from predictive gene testing for neurodegenerative disorders. Research in Nursing & Health 23: 260-269.
-
(2000)
Research in Nursing & Health
, vol.23
, pp. 260-269
-
-
Williams, J.1
Schutte, D.2
Evers, C.3
Holkup, P.4
-
42
-
-
0036849599
-
Behavioral complaints in participants who underwent predictive testing for Huntington's disease
-
Witjes-Ańe, M.-N., Zwinderman, A., Tibber, A., van Ommen, G.-J., & Roos, R. (2002). Behavioral complaints in participants who underwent predictive testing for Huntington's disease. Journal of Medical Genetics 39: 857-862.
-
(2002)
Journal of Medical Genetics
, vol.39
, pp. 857-862
-
-
Witjes-Ańe, M.-N.1
Zwinderman, A.2
Tibber, A.3
Van Ommen, G.-J.4
Roos, R.5
|