Living at risk: Concealing risk and preserving hope in Huntington disease

Journal of Genetic Counseling

Volumn 17, Issue 1, 2008, Pages 117-128

  Quaid, Kimberly A ^a   Sims, Sharon L ^b   Swenson, Melinda M ^b   Harrison, Joan M ^c   Moskowitz, Carol ^d   Stepanov, Nonna ^e   Suter, Gregory W ^f   Westphal, Beryl J ^g  

^a INDIANA UNIVERSITY SCHOOL OF MEDICINE   (United States)

^b INDIANA UNIVERSITY SCHOOL OF NURSING   (United States)

^c EMORY UNIVERSITY SCHOOL OF MEDICINE   (United States)

^d Och Spine at New York Presbyterian Hospitals   (United States)

^e OHIO STATE UNIVERSITY   (United States)

^f Hereditary Neurological Disease Centre   (United States)

^g HENNEPIN COUNTY MEDICAL CENTER   (United States)

Author keywords

Disclosure; Genetic disease; Genetic testing; Huntington disease; Risk

Indexed keywords

ARTICLE; EXPERIENCE; GENETIC RISK; GENETIC SCREENING; HOPE; HUMAN; HUNTINGTON CHOREA; OBSERVATIONAL STUDY; OPEN-ENDED QUESTIONNAIRE; QUALITATIVE RESEARCH; RISK ASSESSMENT; SCREENING TEST; SYMPTOM; UNITED STATES; UNSTRUCTURED INTERVIEW;

ADULT; COHORT STUDIES; FEMALE; GENETIC SCREENING; HUMANS; HUNTINGTON DISEASE; MALE; RISK FACTORS;

EID: 38949116255     PISSN: 10597700     EISSN: 15733599     Source Type: Journal    
DOI: 10.1007/s10897-007-9133-0     Document Type: Article

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