-
1
-
-
85010599311
-
Chromosomes and communication: The discourse of genetic counselling
-
Rapp, R. Chromosomes and communication: the discourse of genetic counselling. Med. Anthrop. Quart. 2, 143-157 (1988).
-
(1988)
Med. Anthrop. Quart.
, vol.2
, pp. 143-157
-
-
Rapp, R.1
-
2
-
-
6244232070
-
-
(ed. Overall, C.) The Women's Press, Toronto
-
Lippman, A. in The Future of Human Reproduction (ed. Overall, C.) 182-194 (The Women's Press, Toronto, 1989).
-
(1989)
The Future of Human Reproduction
, pp. 182-194
-
-
Lippman, A.1
-
3
-
-
0025998982
-
Is non-directive genetic counselling possible?
-
Clarke, A. Is non-directive genetic counselling possible? Lancet 338, 998-1001 (1991).
-
(1991)
Lancet
, vol.338
, pp. 998-1001
-
-
Clarke, A.1
-
4
-
-
0022548975
-
Suicide and attempted suicide in Huntington disease: Implications for preclinical testing of persons at risk
-
Farrer, L. A. Suicide and attempted suicide in Huntington disease: implications for preclinical testing of persons at risk. Am. J. Med. Genet. 24, 305-3111 (1986).
-
(1986)
Am. J. Med. Genet.
, vol.24
, pp. 305-3111
-
-
Farrer, L.A.1
-
5
-
-
0024635424
-
Social system responses to Huntington disease
-
Kessler, S. & Bloch, M. Social system responses to Huntington disease. Family Processes 28, 59-68 (1989).
-
(1989)
Family Processes
, vol.28
, pp. 59-68
-
-
Kessler, S.1
Bloch, M.2
-
6
-
-
0024573753
-
Predictive testing for Huntington disease: Description of a pilot study in British Columbia
-
Fox, S., Bloch, M., Fahy, M. & Hayden, M. R. Predictive testing for Huntington disease: description of a pilot study in British Columbia. Am. J. Med. Genet. 32, 211-216 (1988).
-
(1988)
Am. J. Med. Genet.
, vol.32
, pp. 211-216
-
-
Fox, S.1
Bloch, M.2
Fahy, M.3
Hayden, M.R.4
-
7
-
-
0028023974
-
Proceed with care: Direct predictive testing for Huntington disease
-
and the Canadian collaborative groups for predictive testing for Huntington disease
-
Benjamin, C. M. et al. and the Canadian collaborative groups for predictive testing for Huntington disease. Proceed with care: direct predictive testing for Huntington disease. Am. J. Hum. Genet. 55, 606-617 (1994).
-
(1994)
Am. J. Hum. Genet.
, vol.55
, pp. 606-617
-
-
Benjamin, C.M.1
-
8
-
-
0347956050
-
Presymptomatic testing for Huntington disease: Recommendations for counselling
-
Quaid, K. A. Presymptomatic testing for Huntington disease: recommendations for counselling. Am. J. Med. Genet. 39, 347-354 (1992).
-
(1992)
Am. J. Med. Genet.
, vol.39
, pp. 347-354
-
-
Quaid, K.A.1
-
9
-
-
0033021832
-
The future of genetic counselling: An international perspective
-
Biesecker, B. B. & Marteau, T. M. The future of genetic counselling: an international perspective. Nature Genet. 22, 133-137 (1999).
-
(1999)
Nature Genet.
, vol.22
, pp. 133-137
-
-
Biesecker, B.B.1
Marteau, T.M.2
-
10
-
-
0026310588
-
The ethical justification for minimal paternalism in the use of the predictive test for Huntington's disease
-
DeGrazia, D. The ethical justification for minimal paternalism in the use of the predictive test for Huntington's disease. J. Clin. Ethics 2, 219-228 (1991).
-
(1991)
J. Clin. Ethics
, vol.2
, pp. 219-228
-
-
DeGrazia, D.1
-
11
-
-
0030097492
-
Patients' rights to laboratory data: Trinucleotide repeat length in Huntington disease
-
Burgess, M. M. & Hayden, M. R. Patients' rights to laboratory data: trinucleotide repeat length in Huntington disease. Am. J. Med. Genet. 162, 6-9 (1996).
-
(1996)
Am. J. Med. Genet.
, vol.162
, pp. 6-9
-
-
Burgess, M.M.1
Hayden, M.R.2
-
12
-
-
0031854365
-
Genetic testing for BRCA1 and BRCA2: Recommendations of the Stanford program in genomics, ethics and society
-
Koenig, B. et al. Genetic testing for BRCA1 and BRCA2: recommendations of the Stanford program in genomics, ethics and society. J. Women's Health 7, 531-545 (1998).
-
(1998)
J. Women's Health
, vol.7
, pp. 531-545
-
-
Koenig, B.1
-
13
-
-
0034178819
-
On ambivalence and risk: Reflexive modernity and the new human genetics
-
Kerr, A. & Cunningham-Burley, S. On ambivalence and risk: reflexive modernity and the new human genetics. Sociology 34, 283-304 (2000).
-
(2000)
Sociology
, vol.34
, pp. 283-304
-
-
Kerr, A.1
Cunningham-Burley, S.2
-
14
-
-
0038574215
-
-
eds Caulfield, T. A. & Williams-Jones, B. Kluwer Academic/Plenum Publishers, New York
-
Burgess, M. M. in The Commercialization of Genetics Research: Ethical, Legal, and Policy Issues (eds Caulfield, T. A. & Williams-Jones, B.) 181-194 (Kluwer Academic/Plenum Publishers, New York, 1999).
-
(1999)
The Commercialization of Genetics Research: Ethical, Legal, and Policy Issues
, pp. 181-194
-
-
Burgess, M.M.1
-
16
-
-
0028921960
-
Direct marketing of cystic fibrosis carrier screening: Commercial push or population need?
-
Harper, P. S. Direct marketing of cystic fibrosis carrier screening: commercial push or population need? J. Med. Genet. 32, 249-250 (1995).
-
(1995)
J. Med. Genet.
, vol.32
, pp. 249-250
-
-
Harper, P.S.1
-
17
-
-
0026524216
-
Predictive testing for Huntington disease in Canada: Adverse effects and unexpected results in those receiving a decreased risk
-
Huggins, M. et al. Predictive testing for Huntington disease in Canada: adverse effects and unexpected results in those receiving a decreased risk. Am. J. Med. Genet. 42, 508 (1992).
-
(1992)
Am. J. Med. Genet.
, vol.42
, pp. 508
-
-
Huggins, M.1
-
18
-
-
0028957724
-
Scientific and ethical aspects of genetic screening of workers for cancer risk: The case of N-acetyltransferase phenotype
-
Vineis, P. & Schulte, P. A. Scientific and ethical aspects of genetic screening of workers for cancer risk: the case of N-acetyltransferase phenotype. J. Clin. Epidemiol. 48, 189-197 (1995).
-
(1995)
J. Clin. Epidemiol.
, vol.48
, pp. 189-197
-
-
Vineis, P.1
Schulte, P.A.2
-
19
-
-
0347325731
-
Ethics and genetics: Susceptibility testing in the workplace
-
submitted
-
MacDonald, C. & Williams-Jones, B. Ethics and genetics: susceptibility testing in the workplace. J. Business Ethics (submitted).
-
J. Business Ethics
-
-
MacDonald, C.1
Williams-Jones, B.2
-
20
-
-
1342319624
-
What about your genes? Ethical, legal and policy dimensions of genetics in the workplace
-
Lemmens, T. What about your genes? Ethical, legal and policy dimensions of genetics in the workplace. Politics and the Life Sciences 16, 57-75 (1997).
-
(1997)
Politics and the Life Sciences
, vol.16
, pp. 57-75
-
-
Lemmens, T.1
-
21
-
-
0008714938
-
-
National Institutes of Health, Bethesda, Maryland
-
Working Group on Ethical, Legal and Social Implications of Human Genome Research. Genetic Information and Health Insurance. Report of the Task Force: (National Institutes of Health, Bethesda, Maryland, 1993).
-
(1993)
Genetic Information and Health Insurance. Report of the Task Force
-
-
-
22
-
-
18344417038
-
Israel split on rights to genetic privacy
-
Abbott, A. Israel split on rights to genetic privacy. Nature 394, 214 (1998).
-
(1998)
Nature
, vol.394
, pp. 214
-
-
Abbott, A.1
-
23
-
-
0003853440
-
-
Springer, New York
-
McGleenan, T., Weising, U. & Ewald, F. (eds) Genetics and Insurance (Springer, New York, 1999).
-
(1999)
Genetics and Insurance
-
-
McGleenan, T.1
Weising, U.2
Ewald, F.3
-
24
-
-
0008714938
-
-
Human Genome Project, Washington DC
-
NIH-DOE Working Group on Ethical, Legal, and Social Implications of Human Genome Research. Genetic Information and Health Insurance (Human Genome Project, Washington DC, 1993).
-
(1993)
Genetic Information and Health Insurance
-
-
-
25
-
-
0002196107
-
-
ed. Knoppers, B. M. Les Editions Yvons-Blais Inc., Cowansville, Quebec
-
Lemmens, T. & Bahamin, P. in Socio-Ethical Issues in Human Genetics (ed. Knoppers, B. M.) 115-275 (Les Editions Yvons-Blais Inc., Cowansville, Quebec, 1998).
-
(1998)
Socio-Ethical Issues in Human Genetics
, pp. 115-275
-
-
Lemmens, T.1
Bahamin, P.2
-
26
-
-
0346064484
-
-
eds Kelves, D. J. & Hood, L. Harvard Univ. Press, Cambridge, Massachusetts
-
Greely, H. T. in The Code of Codes: Scientific and Social Issues in the Human Genome Project (eds Kelves, D. J. & Hood, L.) 274-280 (Harvard Univ. Press, Cambridge, Massachusetts, 1992).
-
(1992)
The Code of Codes: Scientific and Social Issues in the Human Genome Project
, pp. 274-280
-
-
Greely, H.T.1
-
27
-
-
0347325727
-
-
eds McGleenan, T. et al. Springer, New York
-
McGleenan, T. & Wiesing, U. in Genetics and Insurance (eds McGleenan, T. et al.) 116-117 (Springer, New York, 1999).
-
(1999)
Genetics and Insurance
, pp. 116-117
-
-
McGleenan, T.1
Wiesing, U.2
-
28
-
-
0026947245
-
Genetics and the moral mission of health insurance
-
Murray, T. Genetics and the moral mission of health insurance. Hastings Center Report 22, 12-15 (1992).
-
(1992)
Hastings Center Report
, vol.22
, pp. 12-15
-
-
Murray, T.1
-
29
-
-
0031687984
-
Genetics and insurance in Britain: Why more than just the Atlantic divides the English-speaking nations
-
Wilkie, T. Genetics and insurance in Britain: why more than just the Atlantic divides the English-speaking nations. Nature Genet. 20, 119-121 (1998).
-
(1998)
Nature Genet.
, vol.20
, pp. 119-121
-
-
Wilkie, T.1
-
30
-
-
0347325726
-
-
Dutch Health Council, The Hague
-
Dutch Health Council. Genetics, Science & Society (Dutch Health Council, The Hague, 1989).
-
(1989)
Genetics, Science & Society
-
-
-
31
-
-
0029076483
-
Genetic information and life insurance: A proposal for an ethical European policy
-
Sandberg, P. Genetic information and life insurance: a proposal for an ethical European policy. Social Sci. Med. 40, 1549-1559 (1995).
-
(1995)
Social Sci. Med.
, vol.40
, pp. 1549-1559
-
-
Sandberg, P.1
-
32
-
-
17544386060
-
News: Jewish leaders meet NIH chiefs on genetic stigmatisation fears
-
Collins, F. cited in Wadman, M. News: Jewish leaders meet NIH chiefs on genetic stigmatisation fears. Nature 392, 851 (1998).
-
(1998)
Nature
, vol.392
, pp. 851
-
-
Collins, F.1
Wadman, M.2
-
33
-
-
0031803438
-
Privacy matters
-
Editorial
-
Editorial. Privacy matters. Nature Genet. 19, 207-208 (1998).
-
(1998)
Nature Genet.
, vol.19
, pp. 207-208
-
-
-
34
-
-
0032721509
-
Protecting communities in research: Current guidelines and limits of extrapolation
-
Weijer, C., Goldsand, G. & Emanuel, E. J. Protecting communities in research: current guidelines and limits of extrapolation. Nature Genet. 23, 275-280 (1999).
-
(1999)
Nature Genet.
, vol.23
, pp. 275-280
-
-
Weijer, C.1
Goldsand, G.2
Emanuel, E.J.3
-
35
-
-
0033194471
-
Protecting communities in research: Philosophical and pragmatic challenges
-
Weijer, C. Protecting communities in research: Philosophical and pragmatic challenges. Cam. Q. Health Ethics 8, 501-513 (1999).
-
(1999)
Cam. Q. Health Ethics
, vol.8
, pp. 501-513
-
-
Weijer, C.1
-
36
-
-
1342303578
-
-
(ed. McDonald, M.) Law Commission of Canada, Ottawa
-
Burgess, M. M. & Brunger, F. in The Governance of Health Research involving Human Subjects (ed. McDonald, M.) 141-175 (Law Commission of Canada, Ottawa, 2000). Also see http://www.lcc.gc. ca/en/themes/gr/hrish/macdonald/macdonald.pdf
-
(2000)
The Governance of Health Research Involving Human Subjects
, pp. 141-175
-
-
Burgess, M.M.1
Brunger, F.2
-
37
-
-
0032231760
-
A model agreement for genetic research in socially identifiable populations
-
Foster, M. W., Berensten, D. & Carter, T. H., A model agreement for genetic research in socially identifiable populations. Am. J. Hum. Genet. 63, 696-702 (1998).
-
(1998)
Am. J. Hum. Genet.
, vol.63
, pp. 696-702
-
-
Foster, M.W.1
Berensten, D.2
Carter, T.H.3
-
40
-
-
0032721509
-
Protecting communities in research: Current guidelines and limits of extrapolation
-
Weijer, C., Goldsand, G. & Emanuel, E. J. Protecting communities in research: current guidelines and limits of extrapolation. Nature Genet. 23, 275-280 (1999).
-
(1999)
Nature Genet.
, vol.23
, pp. 275-280
-
-
Weijer, C.1
Goldsand, G.2
Emanuel, E.J.3
-
43
-
-
0346064482
-
-
ed. Knoppers, B. M. Les Editions Won Blais Inc., Cowansville, Quebec
-
Brunger, F. & Bassett, K. Culture and Genetics in Socioethical Issues in Human Genetics (ed. Knoppers, B. M.) 30-34 (Les Editions Won Blais Inc., Cowansville, Quebec, 1998).
-
(1998)
Culture and Genetics in Socioethical Issues in Human Genetics
, pp. 30-34
-
-
Brunger, F.1
Bassett, K.2
-
45
-
-
0031598316
-
The new genetics and health: Mobilizing lay expertise
-
Kerr, A., Cunningham-Burley, S. & Amos, A. The new genetics and health: Mobilizing lay expertise. Public Understanding of Science 7, 41-60 (1998).
-
(1998)
Public Understanding of Science
, vol.7
, pp. 41-60
-
-
Kerr, A.1
Cunningham-Burley, S.2
Amos, A.3
-
46
-
-
0032034939
-
Drawing the line: An analysis of lay people's discussions about the new genetics
-
Kerr, A., Cunningham-Burley, S. & Amos, A. Drawing the line: an analysis of lay people's discussions about the new genetics. Public Understanding of Science 7, 113-133 (1998).
-
(1998)
Public Understanding of Science
, vol.7
, pp. 113-133
-
-
Kerr, A.1
Cunningham-Burley, S.2
Amos, A.3
|