Dignified death for children: Concept analysis;La muerte digna del niño: Análisis de concepto

Revista da Escola de Enfermagem

Volumn 43, Issue 1, 2009, Pages 207-214

  Poles, Kátia ^a   Bousso, Regina Szylit ^a  

^a UNIVERSITY OF SÃO PAULO   (Brazil)

Author keywords

Concept formation; Pediatrics; Thanatology

Indexed keywords

EID: 69349097334     PISSN: 00806234     EISSN: None     Source Type: Journal    
DOI: 10.1590/S0080-62342009000100028     Document Type: Review

References (48)

1. Lago PM, Piva J, Kipper D, Garcia PC, Pretto C, Giongo M, et al. Limitação de suporte de vida em três unidades de terapia intensiva pediátrica do sul do Brasil. J Pediatr. 2005;81(2):111-7.
2. Moritz RD, Nasar SM. A atitude dos profissionais de saúde diante da morte. RBTI. 2004;16(1):14-21.
3. Souza DC, Troster EJ, Carvalho WB, Shin SH, Cordeiro AMG. Disponibilidade de unidades de terapia intensiva pediátrica e neonatal no município de São Paulo. J Pediatr. 2004;80(6):453-60.
4. Rotta AT. Cuidados no final da vida em pediatria: muito mais do que uma luta contra a entropia. J Pediatr. 2005;81(2):93-5.
5. Torreão LA, Pereira CR, Troster EJ. Ethical aspects in the management of the terminally ill patient in the pediatric intensive care unit. Rev Hosp Clin Fac Med S Paulo. 2004;59(1):3-9.
6. Ferrand E, Robert R, Ingrand P. Withdrawing and withholding life support in the intensive care units in France: a prospective survey. Lancet. 2001;357(9249):9-14.
7. Mota JAC. Quando um tratamento torna-se fútil? Bioética. 1999;7(1):35-9.
8. Kipper DJ, Piva JP, Garcia PCR, Einloft PR, Bruno F, Lago P, et al. Evolution of the medical practices and modes of death on pediatric intensive care units in southern Brazil. Pediatr Crit Care Med. 2005;6(3):258-63.
9. Garros D. Uma "boa" morte em UTI pediátrica: é isso possível? J Pediatr. 2003;79 Supl 2:S243-54.
10. Mateos LC, López PR, Díaz JIS, Casado MVR, Hofheinz SB, Fuente AL, et al. Cuidados al final de la vida en la unidad de cuidados intensivos pediátrica: revisión de la bibliografía. An Pediatr (Barcelona). 2005;63(2):152-9.
11. Glaser BG, Strauss AL. Time for dying. Chicago: Aldine Publishing; 1968.
12. Weissman DE. Decision making at a time of crisis near the end-of-life. JAMA. 2004;292(14):1738-43.
13. nd ed. Philadelphia: Saunders; 2000. p. 7-37.
14. Arrambide MS, Poc OG, Miravete JLM, Pérez-Yarza EG, Caro IA. El pediatra ante la muerte del niño: integración de los cuidados paliativos en la unidad de cuidados intensivos pediátricos. An Pediatr (Barcelona). 2005;62(5):450-7.
15. Johnson CB. Hospice: what gets in the way of appropriate and timely access. Holistic Nurs Pract. 1998;13(1):8-21.
16. Menossi MJ, Lima RAG. A problemática do sofrimento: percepção do adolescente com câncer. Rev Esc Enferm USP. 2000;34(1):45-51.
17. Donnelly JP, Huff SM, Lindsey ML, McMahon KA, Schumacher JD. The needs of children with life-limiting conditions: a healthcare-provider-based model. Am J Hosp Palliat Med. 2005;22(4):259-67.
18. Carter BS, Howenstein M, Gilmer MJ, Throop P, France D, Whitlock JA. Circumstances surrounding the deaths of hospitalized children: opportunities for pediatric palliative care. Pediatrics. 2004;114(3):e361-6.
19. Athabe M, Cardigni G, Vassallo JC, Allende D, Berrueta M, Codermatz M, et al. Dying in intensive care unit: collaborative multicenter study about forgoing life-sustaining treatment in Argentine pediatric intensive care units. Pediatr Crit Care Med. 2003;4(2):164-9.
20. Klopfenstein KJ, Hutchison C, Clark C, Young D, Ruymann FB. Variables influencing end-of-life care in children and adolescents with cancer. J Pediatr Hematol Oncol. 2001;23(8): 481-6.
21. Carvalho PRA, Rocha TS, Santo AE, Lago P. Modos de morrer na UTI pediátrica de um hospital terciário. Rev Ass Med Bras. 2001;47(4):325-31.
22. Burns JP, Mitchell C, Griffith JL, Truog RD. End-of-life care in the pediatric intensive care unit: attitudes and practices of pediatric critical care physicians and nurses. Crit Care Med. 2001;29(3):658-64.
23. Goh AY, Mok Q. Identifying futility in a paediatric critical care setting: a prospective observational study. Arch Dis Child. 2001;84(3):265-8.
24. Goh AY, Lum LC, Chan PW, Bakar F, Chong BO. Withdrawal and limitation of life support in paediatric intensive care. Arch Dis Child. 1999;80(5):424-8.
25. Purcell C. Withdrawing treatment from a critically-ill child. Intensive Crit Care Nurs. 1997;13(2):103-7.
26. Freyer DR, Kuperberg A, Sterken DJ, Pastyrnak SL, Hudson D, Richards T. Multidisciplinary care of the dying adolescent. Child Adolesc Psychiatr Clin N Am. 2006;15(3):693-715.
27. Matthews K, Gambles M, Ellershaw JE, Brook L, Williams M, Hodgson A, et al. Developing the Liverpool Care Pathway for the dying child. Paediatr Nurs. 2006;18(1):18-21.
28. Robinson MR, Thiel MM, Backus MM, Meyer EC. Matters of spirituality at the end of life in the pediatric intensive care unit. Pediatrics. 2006;118(3):e719-29.
29. Meert KL, Thurston CS, Briller SH. The spiritual needs of parents at the time of their child's death in the pediatric intensive care unit and during bereavement: a qualitative study. Pediatr Crit Care Med. 2005;6(4):420-7.
30. Hinds PS, Schum L, Baker JN, Wolfe J. Key factors affecting dying children and their families. J Palliat Med. 2005;8 Suppl 1:S70-8.
31. Andresen EM, Seecharan GA, Toce SS. Provider perceptions of child deaths. Arch Pediatr Adolesc Med. 2004;158(5):430-5.
32. Hilden JM, Emanuel EJ, Fairclough DL, Link MP, Foley KM, Clarridge BC, et al. Attitudes and practices among pediatric oncologists regarding end-of-life care: results of the 1998 American Society of Clinical Oncology survey. J Clin Oncol. 2001;19(1):205-12.
33. Severijnen R, Hulstijn-Dirkmaat I, Gordijn B, Bakker L, Bongaerts G. Acute loss of the small bowel in a school-age boy. Difficult choices: to sustain life or to stop treatment? Eur J Pediatr. 2003;162(11):794-8.
34. Sharman M, Meert KL, Sarnaik AP. What influences parents' decisions to limit or withdraw life support? Pediatr Crit Care Med. 2005;6(5):513-8.
35. Garros D, Rosychuck R, Cox P. Circumstances surrounding end-of-life in a pediatric intensive care unit. Pediatrics. 2003;112 (5):e371-e9.
36. Meyer EC, Burns JP, Griffith JL, Troug RD. Parental perspectives on end-of-life in the pediatric intensive care unit. Crit Care Med 2002;30(1):226-31.
37. Meert KL, Thurston CS, Thomas R. Parental coping and bereavement outcome after death of a child in the pediatric intensive care unit. Pediatr Crit Care Med. 2001;2(4):324-8.
38. McKinley D, Blackford J. Nurses' experiences of caring for culturally and linguistically diverse families when their child dies. Int J Nurs Pract. 2001;7(4):251-6.
39. Meert KL, Thurston CS, Sarnaik AP. End-of-life decision-making and satisfaction with care: parental perspectives. Pediatr Crit Care Med. 2000;1(2):179-85.
40. Nesbit MJ, Hill M, Peterson N. A comprehensive pediatric bereavement program: the patterns of your life. Crit Care Nurs Q. 1997;20(2):48-62.
41. Shevell M. Ethical issues in pediatric critical care neurology. Semin Pediatr Neurol. 2004;11(2):179-84.
42. Zawistowski CA, DeVita MA. A descriptive study of children dying in the pediatric intensive care unit after withdrawal of life-sustaining treatment. Pediatr Crit Care Med. 2004;5(3): 216-23.
43. Cook P, White DK, Ross-Russell RI. Bereavement support following sudden and unexpected death: guidelines for care. Arch Dis Child. 2002;87(1):36-9.
44. Wolfe J, Grier HE, Klar N, Levin SB, Ellenbogen JM, Salem-Schatz S, et al. Symptoms and suffering at the end of life in children with cancer. N Engl J Med. 2000;342(5):326-33.
45. Tonelli HA, Mota JA, Oliveira JS. Perfil das condutas médicas que antecedem ao óbito de crianças em um hospital terciário. J Pediatr. 2005;81(2):118-25.
46. Van Der Wal ME, Renfurm LN, Van Vught AJ, Gemke RJ. Circumstances of dying in hospitalized children. Eur J Pediatr. 1999;158(7):560-5.
47. Randolph AG, Zollo MB, Egger MJ, Guyatt GH, Nelson RM, Stidham GL. Variability in physician opinion on limiting pediatric life support. Pediatrics. 1999;103(4):e46.
48. Randolph AG, Zollo MB, Wigton RS, Yeh TS. Factors explaining variability among caregivers in the intent to restrict life-support interventions in a pediatric intensive care unit. Crit Care Med. 1997;25(3):435-9.