Circumstances surrounding the deaths of hospitalized children: Opportunities for pediatric palliative care

Pediatrics

Volumn 114, Issue 3, 2004, Pages

  Carter, Brian S ^a,b,d   Howenstein, Matthew ^b   Gilmer, Mary Jo ^a,c   Throop, Pat ^d   France, Dan ^d   Whitlock, James A ^a,b  

^a MONROE CARELL JR CHILDREN S HOSPITAL AT VANDERBILT   (United States)

^b VANDERBILT UNIVERSITY SCHOOL OF MEDICINE   (United States)

^c VANDERBILT UNIVERSITY   (United States)

^d VANDERBILT UNIVERSITY MEDICAL CENTER   (United States)

Author keywords

Children; Pain and symptom management; Palliative care

Indexed keywords

ACUPUNCTURE; ADOLESCENT; ADULT; ALTERNATIVE MEDICINE; ARTICLE; CHILD; CHILD DEATH; CHILD HOSPITALIZATION; CONTROLLED STUDY; FAMILY; FEMALE; FREQUENCY ANALYSIS; HEALTH SURVEY; HOSPITAL PATIENT; HUMAN; HYPNOSIS; INFANT; INTERDISCIPLINARY COMMUNICATION; MAJOR CLINICAL STUDY; MALE; MASSAGE; MEDICAL DOCUMENTATION; MEDICAL RECORD; MUSIC THERAPY; NEWBORN; NEWBORN INTENSIVE CARE; PAIN; PAIN ASSESSMENT; PALLIATIVE THERAPY; PRIORITY JOURNAL; RETROSPECTIVE STUDY; SYMPTOM; TEAMWORK; TERMINAL DISEASE; TOUCH; HOSPITALIZATION; LENGTH OF STAY; MORTALITY; PRESCHOOL CHILD; TERMINAL CARE; TERMINALLY ILL PATIENT; TREATMENT WITHDRAWAL; UNIVERSITY HOSPITAL;

ACADEMIC MEDICAL CENTERS; ADOLESCENT; CHILD; CHILD, HOSPITALIZED; CHILD, PRESCHOOL; FEMALE; HOSPITAL MORTALITY; HOSPITALIZATION; HUMANS; INFANT; INFANT, NEWBORN; LENGTH OF STAY; MALE; PAIN; PALLIATIVE CARE; RETROSPECTIVE STUDIES; TERMINAL CARE; TERMINALLY ILL; WITHHOLDING TREATMENT;

EID: 16544373898     PISSN: 00314005     EISSN: 00314005     Source Type: Journal    
DOI: 10.1542/peds.2003-0654-F     Document Type: Article

References (19)

1. National Center for Health Statistics. Deaths: leading causes for 1999. 2001. Available at: www.cdc.gov/nchs/data/nvsr/nvsr49/nvsr49_11.pdf. Accessed July 14, 2004
2. Hoyert DL, Freedman MA, Strobino DM, Guyer B. Annual summary of vital statistics: 2000. Pediatrics. 2001;108:1241-1255
3. Wolfe J. Suffering in children at the end of life: recognizing an ethical duty to palliate. J Clin Ethics. 2000;11:157-163
4. Committee on Palliative and End-of-Life Care for Children and Their Families, Board on Health Sciences Policy, Institute of Medicine. When Children Die: Improving Palliative and End-of-Life Care for Children and Their Families. Washington, DC: National Academies Press; 2003
5. Committee on Bioethics and Committee on Hospital Care, American Academy of Pediatrics. Palliative care for children. Pediatrics. 2000;106:351-357
6. Wolfe J, Grier HE, Klar N, et al. Symptoms and suffering at the end of life in children with cancer. N Engl J Med. 2000;342:326-333
7. Feudtner C, Christakis DA, Zimmerman FJ, Muldoon JH, Neff JM, Koepsell TD. Characteristics of deaths occurring in children's hospitals: implications for supportive care services. Pediatrics. 2002;109:887-893
8. Burns JP, Mitchell C, Outwater KM, et al. End-of-life care in the pediatric intensive care unit after the forgoing of life-sustaining treatment. Crit Care Med. 2000;28:3060-3066
9. Wall SN, Partridge JC. Death in the intensive care nursery: physician practice of withdrawing and withholding life support. Pediatrics. 1997;99:64-70
10. Lantos JD, Berger AC, Zucker AR. Do-not resuscitate orders in a children's hospital. Crit Care Med. 1993;21:52-55
11. Melltorp G, Nilstun T. Decisions to forego life-sustaining treatment and the duty of documentation. Intensive Care Med. 1996;22:1015-1019
12. Torreao LA, Reis AG, Troster EJ, Oselka G. Cardiopulmonary resuscitation: discrepancy between the actual cardiopulmonary resuscitation and the documentation in the medical record [in Portuguese]. J Pediatr (Rio J). 2000;76:429-433
13. Royal College of Paediatrics and Child Health. Withholding or Withdrawing Life Saving Treatment in Children: A Framework for Practice. London, United Kingdom: Royal College of Paediatrics and Child Health; 1997
14. Children's International Project on Palliative/Hospice Services. Compendium of Pediatric Palliative Care. Alexandria, VA: National Hospice and Palliative Care Organization; 2000
15. Partridge JC, Wall SN. Analgesia for dying infants whose life support is withdrawn. Pediatrics. 1997;99:76-79
16. Nelson LJ, Rushton CH, Cranford RE, Nelson RM, Glover JJ, Truog RD. Forgoing medically provided nutrition and hydration in pediatric patients. J Law Med Ethics. 1995;23:33-46
17. Carter BS, Leuthner SR. The ethics of withholding/withdrawing nutrition in the newborn. Semin Perinatol. 2003;27:480-487
18. Bartel DA, Engler AJ, Natale JE, Misra V, Lwein AB, Joseph JG. Working with families of suddenly and critically ill children. Arch Pediatr Adolesc Med. 2000;154:1127-1133
19. Levetown M. Palliative care in the intensive care unit. New Horizons. 1998;6:383-397