Evolution of the medical practices and modes of death on pediatric intensive care units in southern Brazil

Pediatric Critical Care Medicine

Volumn 6, Issue 3, 2005, Pages 258-263

  Kipper, Délio José ^a   Piva, Jefferson Pedro ^a   Ramos Garcia, Pedro Celiny ^a   Einloft, Paulo Roberto ^a   Bruno, Francisco ^a   Lago, Patrícia ^b   Rocha, Taís ^b   Schein, Alaor Ernst ^b   Fontela, Patrícia Scolari ^c   Gava, Débora Hendler ^c   Guerra, Luciano ^c   Chemello, Keli ^a   Bittencourt, Roney ^a   Sudbrack, Simone ^a   Mulinari, Evandro Freddy ^a   Duarte Morais, João Feliz ^a  

^a PONTIFICAL CATHOLIC UNIVERSITY OF RIO GRANDE DO SUL   (Brazil)

^b HOSPITAL DE CLÍNICAS DE PORTO ALEGRE   (Brazil)

^c HOSPITAL DA CRIANÇA SANTO ANTÔNIO   (Brazil)

Author keywords

Death; Ethics; Family centered care; Life support; Pediatric intensive care; Withholding or withdrawal of futility care

Indexed keywords

BRAIN DEATH; BRAZIL; CHILD; CHILD DEATH; FAMILY; FEMALE; HOSPITAL ADMISSION; HUMAN; INFANT; INTENSIVE CARE; LENGTH OF STAY; LONG TERM CARE; MAJOR CLINICAL STUDY; MALE; MEDICAL DECISION MAKING; MEDICAL PRACTICE; MEDICAL RECORD; MORTALITY; PRIORITY JOURNAL; RETROSPECTIVE STUDY; REVIEW;

DEATH AND EUTHANASIA; EMPIRICAL APPROACH;

BRAZIL; CARDIOPULMONARY RESUSCITATION; CHILD, PRESCHOOL; CRITICAL ILLNESS; CROSS-SECTIONAL STUDIES; DECISION MAKING; FEMALE; HUMANS; INFANT; INTENSIVE CARE UNITS, PEDIATRIC; LENGTH OF STAY; LIFE SUPPORT CARE; MALE; PATIENT CARE PLANNING; PHYSICIAN'S PRACTICE PATTERNS; RESUSCITATION ORDERS; TERMINAL CARE; WITHHOLDING TREATMENT;

EID: 21144454924     PISSN: 15297535     EISSN: None     Source Type: Journal    
DOI: 10.1097/01.PCC.0000154958.71041.37     Document Type: Review

References (38)

1. Piva JP, Carvalho PRA, Garcia PCR, et al. In: Terapia Intensiva em Pediatria. Fourth Edition. Piva JP, Carvalho PRA, Garcia PCR (Eds). Rio de Janeiro, MEDSI, 1997, pp 741-753
2. Pessini L: Distanásia: até quando prolongar a vida? São Paulo, Editora do Centro Universitário São Camilo, Loyola, 2001
3. The SUPPORT Principal Investigators: A controlled trial to improve care for seriously ill hospitalized patients: The study to understand prognoses and preferences for outcomes and risks of treatments (SUPPORT). JAMA 1995; 274:1591-1598
4. Hansot E: A letter from a patient's daughter. Ann Intern Med 1996; 149-151
5. Prendergast TJ, Claessens MT, Luce JMA: National Survey of end-of-life care for critically ill patients. Am J Respir Crit Care Med 1998; 158:1163-1167
6. Prendergast TJ, Luce JM: Increasing incidence of withholding and withdrawal of life support from the critically ill. Am J Respir Crit Care 1997; 155:15-20
7. Waal SN, Partridge JC: Death in the intensive care survey: Physician practice of withdrawal and withholding life support. Pediatrics 1997; 99:64-70
8. van der Heide A, van der Mass PJ, van der Wal G, et al: Medical end-of-life decisions made for neonates and infants in The Netherlands. Lancet 1997; 350:251-255
9. Smeidra N, Evans B, Grais L, et al: Withholding and withdrawal of life support from the critically ill. N Engl J Med 1990; 322: 309-315
10. Guidelines on the Termination of Life-Sustaining Treatment and the Care of the Dying. Briarcliff Manor, NY, The Hasting Center, 1987
11. Keenan HT, Diekema DS, O'Rourke PP, et al: Attitudes toward limitation of support in the pediatric intensive care unit. Crit Care Med 2000; 8:1590-1594
12. BRASIL, Conselho Federal de Medicina: Resolução CFM no. 1,246/88. Código de Ética Médica. Fifth Edition. Brasília, CFM, 2000
13. BRASIL, Código Penal Brasileiro: Decreto-Lei no. 2848/1940
14. Kipper DJ, Martin L, Fabbro L: Decisões médicas envolvendo o fim da vida-o desafio de adequar as leis às exigências da ética. Jornal de Pediatria 2000; 76:403-406
15. Carvalho PRA, Rocha TS, Santo AE, et al: Modos de morrer na UTI Pediátrica de um hospital terciário. Rev Ass Med Brasil 2001; 47:325-331
16. Torreão LA, Reis AGAC, Troster EJ, et al: Ressuscitação cardiopulmonar: discrepância entre o procedimento de ressuscitação e o registro no prontuário. J Pediatr (Rio J) 2000; 76:429-433
17. A definition of irreversible coma. Report Ad Hoc Committee of Harvard Medical School to examine the definition of brain death. JAMA 1968; 205:337-340
18. Conselho Federal de Medicina (Brasil): Resolução no. 1480, de 8 de agosto de 1997. Estabelece critérios para a caracterização da parada total e irreversível das funções encefálicas em pessoas com mais de dois anos. Available at: http://www.cfm.org.br. Accessed September 25, 2002
19. Classificação Estatística Internacional de Doenças e Problemas relacionados à Saúde. Décima Revisão. Volume 1. Organização Mundial de Saúde, 1998
20. Althabe M, Cardigni G, Vassallo JC, et al: Dying in the intensive care unit: Collaborative multicenter study about forgoing life-sustaining treatment in Argentine pediatric intensive care units. Pediatr Crit Care Med 2003; 4:164-169
21. Levetown M, Pollack MM, Cuerdon TT, et al: Limitations and withdrawals of medical intervention in pediatric critical care. JAMA 1994; 272:1271-1275
22. Gol AYT, Lum LCS, Chan PWK, et al: Withdrawal and limitation of life support in pediatric intensive care. Arch Dis Child 1999; 80:424-428
23. Vernon DD, Dean M, Timmons OD, et al: Modes of death in the pediatric intensive care unit: Withdrawal and limitation of supportive care. Crit Care Med 1993; 21:1978-1802
24. Balfonn-Lynn IM, Tasker RC: Futility and death in paediatric medical intensive care. J Med Ethics 1996; 22:279-281
25. van der Heide A, Deliens L, Faisst K, et al: End-of-life decision-making in six European countries: Descriptive study. Lancet. Published online June 17, 2003. http/imagethelancet.com.extras/03art3298web.pdf
26. Truog RD, Cist AFM, Brackett SE, et al: Recommendations for end-of-life care em the intensive care unit: The Ethics Committee of the Society of Critical Care Medicine. Crit Care Med 2001; 29:2332-2348
27. Levin PD, Sprung CL: Cultural differences at the end of life. Crit Care Med 2003; 31(suppl):S354-357
28. Degenhotlz HB, Thomas SB, Miller MJ: Race and the intensive care unit: Disparities and preferences for end-of-life care. Crit Care Med 2003; 31(suppl):S373-375
29. França GV: Comentários ao Código de Ética Médica. Rio de Janeiro, Editora Guanabara Koogan AS, 1994
30. Frader JE: Global paternalism in pediatric intensive care unit end-of-life decision. Pediatr Crit Care Med 2003; 4:257-258
31. Roig CG: Art of communication. Pediatr Crit Care Med 2003; 4:259-260
32. Pithan LH: A dignidade da pessoa humana como limite da intervenção médicoterapêutica em pacientes irreversíveis: o fundamento das 'ordens de não-ressuscitação.' São Leopoldo, Universidade do Vale do Rio dos Sinos, Dissertação de Mestrado, 2001
33. Pessini L: Distanásia: até quando investir sem agredir? Bioética 1996; 4:31-43
34. Meisel A, Synder L, Quill T: Seven legal barriers to end-of-life care. JAMA 2000; 284: 2495-2501
35. Luce JM, Alpers A: Legal aspects of withholding and withdrawing life support from critically ill patients in the United States and providing palliative care to them. Am J Respir Crit Care Med 2000; 162:2029-2032
36. Way J, Back AL, Curtis JR: Withdrawing life support and resolution of conflict with families. BMJ 2002; 325:1342-1345
37. Winter B, Cohen S: ABC of intensive care. Withdrawal of treatment. BMJ 1999; 319: 306-308
38. Garros D: Circumstances surrounding end of life in a pediatric intensive care unit. Pediatrics 2003; 112:e71-2379. Available at: www.pediatrics.org/cgi/content/full/112/5/e371. Accessed November 14, 2003