The pediatrician and child death: Integration of palliative care in the pediatric intensive care unit;El pediatra ante la muerte del niño: Integración de los cuidados paliativos en la unidad de cuidados intensivos pediátricos

Anales de Pediatria

Volumn 62, Issue 5, 2005, Pages 450-457

  Salas Arrambide, M ^a,b   Gabaldon Poc O ^b   Mayoral Miravete, J L ^b   Perez Yarza E G ^b   Amayra Caro, I ^a  

^a UNIVERSITY OF DEUSTO   (Spain)

^b HOSPITAL DONOSTIA   (Spain)

Author keywords

Attitudes to death; Palliative care; Pediatric intensive care units; Pediatricians; Quality of health care

Indexed keywords

ATTITUDE; BEREAVEMENT; BURNOUT; CHILDHOOD MORTALITY; COPING BEHAVIOR; DISEASE PREDISPOSITION; EMOTION; FOLLOW UP; HUMAN; INTENSIVE CARE; MEDICAL DECISION MAKING; MEDICAL STAFF; MORTALITY; PALLIATIVE THERAPY; PRACTICE GUIDELINE; REVIEW; SOCIAL PSYCHOLOGY; SYSTEMATIC REVIEW;

EID: 20444449597     PISSN: 16954033     EISSN: None     Source Type: Journal    
DOI: 10.1157/13074619     Document Type: Article

References (37)

1. Salas Arrambide M, Gabaldón Poe O, Mayoral Miravete JL, Gonzalez Pérez-Yarza E, Amayra Caro I. Los cuidados paliativos pediátricos: un modelo de atención integral al niño gravemente enfermo y a su familia. An Pediatr (Barc). 2004;61: 330-5.
2. Couceiro Vidal A. ¿Es ético limitar el esfuerzo terapéutico? An Esp Pediatr. 2002;57:505-7.
3. Levetown M, Liben S, Audet M. Palliative care in the pediatric intensive care unit. En: Carter BS, Levetown M, editors. Palliative care for infants, children, and adolescents. A practical handbook. Baltimore. Maryland: The John Hopkins University Press; 2004. p. 273-91.
4. Danis M, Federman D, Fins JJ, FOK E, Kastenbaum B, Lanken PN, et al. Incorporating palliative care into critical care education: principles, challenges and opportunities. Crit Care Med. 1999;27:2005-13.
5. Levetown M. Palliative care in the intensive care unit. New Horizons. 1998;6:383-97.
6. Truog RD. Cist AFM, Bracket SE. Burns JP, Curley MA. Danis M, et al. Recommendations for end-of-life care in the intensive care unit: The Ethics Committee of the Society of Critical Care Medicine. Crit Care Med. 2001;29:2332-48.
7. Hawrylick L, Harvey W, La Mieux-Charles L, Singer P. Consensus guidelines on analgesia and sedation in dying intensive care unit patients. BMC Medical Ethics. 2002;3:3.
8. Trenchs Sáinz de la Maza V, Cambra Lasaosa FJ, Palomeque Rico A, Balcells Ramírez J, Seriñá Ramírez C, Hermana Tezanos MT. Grupo de Trabajo en Limitación Terapéutica. Limitación terapéutica en cuidados intensivos. An Esp Pediatr. 2002; 57:511-7.
9. Gilmer MJ. Pediatric palliative care: a family-centered model for critical care. Crit Care Nurs Clin North Am. 2002;14:207-14.
10. Masri C, Farrell CA, Lacroix J, Rocker G, Shemie SD. Decision making and end-of-life care in critically ill children. J Palliat Care. 2000;16 Suppl:S45-52.
11. Garros D. A "good" death in pediatric ICU: is it possible? J Pediatr (Rio J). 2003;79 Suppl 2:5243-54.
12. Levetown M, Pollack MM, Guerdon TT, Ruttiman UE, Glover JJ. Limitations and withdrawals of medical intervention in pediatric critical care. JAMA. 1994:272:1271-75.
13. Burns JP, Mitchell C, Outwater KM, Geller M, Griffith JL, Todres ID, et al. End-of-life care in the pediatric intensive care unit after the forgoing of life-sustaining treatment. Crit Care Med. 2000;28:3060-6.
14. Devictor DJ, Nguyen DT, Groupe Francophone de Reanimation et d'Urgences Pediatriques. Forgoing life-sustaining treatments: how the decision is made in French pediatric intensive care units. Crit Care Med. 2001;29:1356-9.
15. Garros D, Rosychuk RJ, Cox PN. Circumstances surrounding end of life in a pediatric intensive care unit. Pediatrics. 2003; 112:e371-9.
16. Keenan HT, Diekema DS, O'Rourke PP, Cummings P, Woodrum DE. Attitudes toward limitation of support in a pediatric intensive care unit. Crit Care Med. 2000;28:1590-4.
17. Vernon DD, Dean JM, Timmons OD, Banner W Jr, Allen-Webb EM. Modes of death in the pediatric intensive care unit: withdrawal and limitation of supportive care. Crit Care Med. 1993; 21:1798-802.
18. Burns JP, Truog RD, Ethical controversies in pediatric critical care. New Horiz. 1997;5:72-84.
19. Burns JP, Mitchell C, Griffith JL, Truog RD. End-of-life care in the pediatric intensive care unit: attitudes and practices of pediatric critical care physicians and nurses. Crit Care Med. 2001;29:658-64.
20. Randolph AG, Zollo MB, Wigton RS, Yeh TS. Factors explaining variability among caregivers in the intent to restrict life-support interventions in a pediatric intensive care unit. Crit Care Med. 1997;25:435-9.
21. Mink RB, Pollack MM. Resuscitation and withdrawal of therapy in pediatric intensive care. Pediatrics. 1992;89:961-3.
22. Meyer EC, Burns JP, Griffith JL, Truog RD. Parental perspectives on end-of-life care in the pediatric intensive care unit. Crit Care Med. 2002;30:226-31.
23. Meert KL, Thurston CS, Thomas R. Parental coping and bereavement outcome after the death of a child in the pediatric intensive care unit. Pediatr Crit Care Med. 2001;2:324-8.
24. American Academy of Pediatrics. Guidelines on forgoing life-sustaining medical treatment. Pediatrics. 1994;3:532-6.
25. Bracegirdle KE. A time to die: Withdrawal of paediatric intensive care. Br J Nurs. 1994;3:513-7.
26. López-Herce Cid J, Rodríguez Núñez A, Hermana Tezanos MT. Grupo Español de Reanimación Cardiopulmonar Pediátrica y Neonatal. Recomendaciones de reanimación cardiopulmonar pediátrica básica, avanzada y neonatal: ética y reanimación cardiopulmonar. An Esp Pediatr. 2000;52:464-9.
27. Jellinek MS, Todres ID, Catlin EA, Cassem EH, Salzman A. Pediatric intensive care training: confronting the dark side. Crit Care Med. 1993;21:775-9.
28. Peebles-Kleiger MJ. Pediatric and neonatal intensive care hospitalization as traumatic Stressor: implications for intervention. Bull Menninger Clin. 2000;64:237-80.
29. Bustinza A, López-Herce J, Carrillo A, Vigil MD, De Lucas N, Panadero E. Situación de burnout de los pediatras intensivistas españoles. An Esp Pediatr. 2000;52:418-23.
30. Bartel DA, Engler AJ, Natale JE, Misra V, Lewin AB, Joseph JG. Working with families of suddenly and critically ill children: physician experiences. Arch Pediatr Adolesc Med. 2000;154: 1127-33.
31. Grain N. Dalton H, Slonim A. End-of-life care for children: Bridging the gaps. Crit Care Med. 2001;29:695-6.
32. Studdert DM, Burns JP, Mello MM, Puopolo AL, Truog RD, Brennan TA. Nature of conflict in the care of pediatric intensive care patients with prolonged stay. Pediatrics. 2003;112: 553-8.
33. Fields AI, Guerdon TT, Brasseux CO, Getson PR, Thompson AE, Orlowski JP, et al. Physician burnout in pediatric critical care medicine. Crit Care Med. 1995;23:1425-29.
34. Heffernan P, Heilig S. Giving "moral distress" a voice: ethical concerns among neonatal intensive care personel. Camb Q Healthcare Ethics. 1999;8:173-8.
35. Cook P, White DK, Ross-Russell RI. Bereavement support following sudden and unexpected death: guidelines for care. Arch Dis Child. 2002;87:36-8.
36. Small M, Engler AJ, Rushton CH. Saying goodbye in the intensive care unit: helping caregivers grieve. Pediatric Nursing. 1991;17:103-5.
37. Rashotte J, Fothergill-Bourbonnais F, Chamberlain M. Pediatric intensive care nurses and their grief experiences: A phenomenological study, Heart Lung 1997;26:372-86.