Measuring Participation as Defined by the International Classification of Functioning, Disability and Health: An Evaluation of Existing Measures

Archives of Physical Medicine and Rehabilitation

Volumn 90, Issue 5, 2009, Pages 856-866

  Resnik, Linda ^a,b   Plow, Matthew A ^c  

^a VETERANS AFFAIRS MEDICAL CENTER   (United States)

^b BROWN UNIVERSITY   (United States)

^c UNIVERSITY OF ILLINOIS AT CHICAGO   (United States)

Author keywords

Disability evaluation; Outcomes assessment (health care); Questionnaires; Rehabilitation

Indexed keywords

ARTICLE; CONTENT ANALYSIS; EVALUATION; INTERNATIONAL CLASSIFICATION OF FUNCTIONING, DISABILITY AND HEALTH; MEDLINE; OUTCOME ASSESSMENT; SELF REPORT; SOCIAL PSYCHOLOGY;

ACTIVITIES OF DAILY LIVING; DISABILITY EVALUATION; DISABLED PERSONS; FEMALE; HEALTH STATUS; HUMANS; MALE; QUESTIONNAIRES; SENSITIVITY AND SPECIFICITY;

EID: 65249151904     PISSN: 00039993     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.apmr.2008.11.010     Document Type: Article

References (102)

1. Ustun T.B., Chatterji S., Bickenbach J., Kostanjsek N., and Schneider M. The International Classification of Functioning, Disability and Health: a new tool for understanding disability and health. Disabil Rehabil 25 (2003) 565-571
2. World Health Organization. International classification of functioning, disability, and health (2001), World Health Organization, Geneva
3. Whiteneck G. Conceptual models of disability: past, present, and future. In: Field M., Jette A., and Martin L.M. (Eds). Workshop on disability in America: a new look-summary and background (2006), The National Academies Pr, Washington, DC
4. McConachie H., Colver A.F., Forsyth R.J., Jarvis S.N., and Parkinson K.N. Participation of disabled children: how should it be characterised and measured?. Disabil Rehabil 28 (2006) 1157-1164
5. Perenboom R.J., and Chorus A.M. Measuring participation according to the International Classification of Functioning, Disability and Health (ICF). Disabil Rehabil 25 (2003) 577-587
6. Dijkers M.P., Whiteneck G., and El-Jaroudi R. Measures of social outcomes in disability research. Arch Phys Med Rehabil 81 12 Suppl 2 (2000) S63-S80
7. Stamm T.A., Bauernfeind B., Coenen M., et al. Concepts important to persons with systemic lupus erythematosus and their coverage by standard measures of disease activity and health status. Arthritis Rheum 57 (2007) 1287-1295
8. Geyh S., Cieza A., Kollerits B., Grimby G., and Stucki G. Content comparison of health-related quality of life measures used in stroke based on the international classification of functioning, disability and health (ICF): a systematic review. Qual Life Res 16 (2007) 833-851
9. Stucki A., Stucki G., Cieza A., Schuurmans M.M., Kostanjsek N., and Ruof J. Content comparison of health-related quality of life instruments for COPD. Respir Med 101 (2007) 1113-1122
10. Zochling J., Bonjean M., Grill E., Scheuringer M., Stucki G., and Braun J. Systematic review of measures and their concepts used in published studies focusing on the treatment of acute inflammatory arthritis. Clin Rheumatol 25 (2006) 807-813
11. Sigl T., Cieza A., Brockow T., Chatterji S., Kostanjsek N., and Stucki G. Content comparison of low back pain-specific measures based on the International Classification of Functioning, Disability and Health (ICF). Clin J Pain 22 (2006) 147-153
12. Stucki A., Borchers M., Stucki G., Cieza A., Amann E., and Ruof J. Content comparison of health status measures for obesity based on the international classification of functioning, disability and health. Int J Obes (Lond) 30 (2006) 1791-1799
13. Scheuringer M., Grill E., Boldt C., Mittrach R., Mullner P., and Stucki G. Systematic review of measures and their concepts used in published studies focusing on rehabilitation in the acute hospital and in early post-acute rehabilitation facilities. Disabil Rehabil 27 (2005) 419-429
14. Brockow T., Cieza A., Kuhlow H., et al. Identifying the concepts contained in outcome measures of clinical trials on musculoskeletal disorders and chronic widespread pain using the International Classification of Functioning, Disability and Health as a reference. J Rehabil Med 44 Suppl (2004) 30-36 Jul
15. Brockow T., Wohlfahrt K., Hillert A., et al. Identifying the concepts contained in outcome measures of clinical trials on depressive disorders using the International Classification of Functioning, Disability and Health as a reference. J Rehabil Med 44 Suppl (2004) 49-55 Jul
16. Brockow T., Duddeck K., Geyh S., et al. Identifying the concepts contained in outcome measures of clinical trials on breast cancer using the International Classification of Functioning, Disability and Health as a reference. J Rehabil Med 44 Suppl (2004) 43-48 Jul
17. Geyh S., Kurt T., Brockow T., et al. Identifying the concepts contained in outcome measures of clinical trials on stroke using the International Classification of Functioning, Disability and Health as a reference. J Rehabil Med 44 Suppl (2004) 56-62 Jul
18. Wolff B., Cieza A., Parentin A., et al. Identifying the concepts contained in outcome measures of clinical trials on four internal disorders using the International Classification of Functioning, Disability and Health as a reference. J Rehabil Med 44 Suppl (2004) 37-42 Jul
19. Salter K., Jutai J.W., Teasell R., Foley N.C., Bitensky J., and Bayley M. Issues for selection of outcome measures in stroke rehabilitation: ICF participation. Disabil Rehabil 27 (2005) 507-528
20. Grill E., Ewert T., Chatterji S., Kostanjsek N., and Stucki G. ICF core sets development for the acute hospital and early post-acute rehabilitation facilities. Disabil Rehabil 27 (2005) 361-366
21. Grill E., Huber E.O., Stucki G., Herceg M., Fialka-Moser V., and Quittan M. Identification of relevant ICF categories by patients in the acute hospital. Disabil Rehabil 27 (2005) 447-458
22. Grill E., Stucki G., Boldt C., Joisten S., and Swoboda W. Identification of relevant ICF categories by geriatric patients in an early post-acute rehabilitation facility. Disabil Rehabil 27 (2005) 467-473
23. Weigl M., Cieza A., Andersen C., Kollerits B., Amann E., and Stucki G. Identification of relevant ICF categories in patients with chronic health conditions: a Delphi exercise. J Rehabil Med 44 Suppl (2004) 12-21 Jul
24. Geyh S., Cieza A., Schouten J., et al. ICF Core Sets for stroke. J Rehabil Med 44 Suppl (2004) 135-141 Jul
25. Cieza A., Chatterji S., Andersen C., et al. ICF Core Sets for depression. J Rehabil Med 44 Suppl (2004) 128-134 Jul
26. Brach M., Cieza A., Stucki G., et al. ICF Core Sets for breast cancer. J Rehabil Med 44 Suppl (2004) 121-127 Jul
27. Stucki A., Stoll T., Cieza A., et al. ICF core sets for obstructive pulmonary diseases. J Rehabil Med 44 Suppl (2004) 114-120 Jul
28. Stucki G., Cieza A., Geyh S., et al. ICF Core Sets for rheumatoid arthritis. J Rehabil Med 44 Suppl (2004) 87-93 Jul
29. Stucki A., Daansen P., Fuessl M., et al. ICF Core Sets for obesity. J Rehabil Med 44 Suppl (2004) 107-113 Jul
30. Ruof J., Cieza A., Wolff B., et al. ICF Core Sets for diabetes mellitus. J Rehabil Med 44 Suppl (2004) 100-106 Jul
31. Cieza A., Stucki A., Geyh S., et al. ICF Core Sets for chronic ischaemic heart disease. J Rehabil Med 44 Suppl (2004) 94-99 Jul
32. Cieza A., Schwarzkopf S., Sigl T., et al. ICF Core Sets for osteoporosis. J Rehabil Med 44 Suppl (2004) 81-86 Jul
33. Dreinhofer K., Stucki G., Ewert T., et al. ICF Core Sets for osteoarthritis. J Rehabil Med 44 Suppl (2004) 75-80 Jul
34. Cieza A., Stucki G., Weigl M., et al. ICF Core Sets for low back pain. J Rehabil Med 44 Suppl (2004) 69-74 Jul
35. Cieza A., Stucki G., Weigl M., et al. ICF Core Sets for chronic widespread pain. J Rehabil Med 44 Suppl (2004) 63-68 Jul
36. Cardol M., Brandsma J.W., de Groot I.J., van den Bos G.A., de Haan R.J., and de Jong B.A. Handicap questionnaires: what do they assess?. Disabil Rehabil 21 (1999) 97-105
37. Stucki G., Reinhardt J.D., Grimby G., and Melvin J. Developing "Human Functioning and Rehabilitation Research" from the comprehensive perspective. J Rehabil Med 39 (2007) 665-671
38. Jette A.M., Tao W., and Haley S.M. Blending activity and participation sub-domains of the ICF. Disabil Rehabil 29 (2007) 1742-1750
39. Cieza A., Geyh S., Chatterji S., Kostanjsek N., Ustün B., and Stucki G. ICF linking rules: an update based on lessons learned. J Rehabil Med 37 (2005) 212-218
40. Badley E.M. Enhancing the conceptual clarity of the activity and participation components of the International Classification of Functioning, Disability, and Health. Soc Sci Med 66 (2008) 2335-2345
41. Cicerone K.D., Mott T., Azulay J., and Friel J.C. Community integration and satisfaction with functioning after intensive cognitive rehabilitation for traumatic brain injury. Arch Phys Med Rehabil 85 (2004) 943-950
42. Parkerson Jr. G.R., Gehlbach S.H., Wagner E.H., James S.A., Clapp N.E., and Muhlbaier L.H. The Duke-UNC Health Profile: an adult health status instrument for primary care. Med Care 19 (1981) 806-828
43. Guillemin F., Paul-Dauphin A., Virion J.M., Bouchet C., and Briancon S. [The DUKE health profile: a generic instrument to measure the quality of life tied to health]. Sante Publique 9 (1997) 35-44
44. Sintonen H. The 15D instrument of health-related quality of life: properties and applications. Ann Med 33 (2001) 328-336
45. Hunt S.M., McKenna S.P., McEwen J., Williams J., and Papp E. The Nottingham Health Profile: subjective health status and medical consultations. Soc Sci Med [A] 15 3 Pt 1 (1981) 221-229
46. Frisch M., Cornell J., and Villanueva M. Clinical validation of the quality of life inventory: a measure of life satisfaction for use in treatment planning and outcome assessment. Psychol Assess 4 (1992) 92-101
47. Ware Jr. J.E., Snow K., Kozinski M., and Gandek B. SF-36 Health Survey: manual and interpretation guide (1993), The Health Institute New England Medical Center, Boston
48. Townsend E., and Ryan B. Assessing independence in community living. Can J Public Health 82 (1991) 52-57
49. Fougeyrollas P., Noreau L., Bergeron H., Cloutier R., Dion S.A., and St-Michel G. Social consequences of long term impairments and disabilities: conceptual approach and assessment of handicap. Int J Rehabil Res 21 (1998) 127-141
50. Bohac D.L., Malec J.F., and Moessner A.M. Factor analysis of the Mayo-Portland Adaptability Inventory: structure and validity. Brain Inj 11 (1997) 469-482
51. Gandek B., Sinclair S.J., Jette A.M., and Ware Jr. J.E. Development and initial psychometric evaluation of the participation measure for post-acute care (PM-PAC). Am J Phys Med Rehabil 86 (2007) 57-71
52. Derogatis L.R. The psychosocial adjustment to illness scale (PAIS). J Psychosom Res 30 (1986) 77-91
53. Smith M.K., and Ford J. A client-developed functional level scale: The Community Living Skills Scale (CLSS). J Soc Serv Res 13 (1990) 61-84
54. Noreau L., Fougeyrollas P., and Vincent C. The LIFE-H: assessment of the quality of social participation. Technol Disabil 14 (2002) 113-118
55. Fougeyrollas P., Cloutier R., Bergeron H., Côté J., and St-Michel G. The Quebec Classification: Disability Creation Process. International Network on the Disability Creation Process (1999), National Library of Canada, Québec
56. Noreau L., Lepage C., Boissiere L., et al. Measuring participation in children with disabilities using the Assessment of Life Habits. Dev Med Child Neurol 49 (2007) 666-671
57. Desrosiers J., Noreau L., Robichaud L., Fougeyrollas P., Rochette A., and Viscogliosi C. Validity of the Assessment of Life Habits in older adults. J Rehabil Med 36 (2004) 177-182
58. Dumont C., Bertrand R., Fougeyrollas P., and Gervais M. Rasch modeling and the measurement of social participation. J Appl Meas 4 (2003) 309-325
59. Malec J.F., Kragness M., Evans R.W., Finlay K.L., Kent A., and Lezak M.D. Further psychometric evaluation and revision of the Mayo-Portland Adaptability Inventory in a national sample. J Head Trauma Rehabil 18 (2003) 479-492
60. Malec J.F. The Mayo-Portland Participation Index: a brief and psychometrically sound measure of brain injury outcome. Arch Phys Med Rehabil 85 (2004) 1989-1996
61. Malec J.F. Impact of comprehensive day treatment on societal participation for persons with acquired brain injury. Arch Phys Med Rehabil 82 (2001) 885-895
62. Oddson B., Rumney P., Johnson P., and Thomas-Stonell N. Clinical use of the Mayo-Portland Adaptability Inventory in rehabilitation after paediatric acquired brain injury. Dev Med Child Neurol 48 (2006) 918-922
63. Malec J.F., Buffington A.L., Moessner A.M., and Degiorgio L. A medical/vocational case coordination system for persons with brain injury: an evaluation of employment outcomes. Arch Phys Med Rehabil 81 (2000) 1007-1015
64. Murrey G.J., Hale F.M., and Williams J.D. Assessment of anosognosia in persons with frontal lobe damage: clinical utility of the Mayo-Portland Adaptability Inventory (MPAI). Brain Inj 19 (2005) 599-603
65. Haley S.M., Gandek B., Siebens H., et al. Computerized adaptive testing for follow-up after discharge from inpatient rehabilitation: II. Participation outcomes. Arch Phys Med Rehabil 89 (2008) 275-283
66. Derogatis L.R., Abeloff M.D., and Melisaratos N. Psychological coping mechanisms and survival time in metastatic breast cancer. JAMA 242 (1979) 1504-1508
67. Grill E., Lipp B., Boldt C., Stucki G., and Koenig E. Identification of relevant ICF categories by patients with neurological conditions in early post-acute rehabilitation facilities. Disabil Rehabil 27 (2005) 459-465
68. Cieza A., Ewert T., Ustun T.B., Chatterji S., Kostanjsek N., and Stucki G. Development of ICF core sets for patients with chronic conditions. J Rehabil Med 44 Suppl (2004) 9-11 Jul
69. Post M., De Witte L., Reichrat E., Verdonshot M., Wihuizen G., and Perenboom R. Development and validation of Impact-S, an ICF-based questionnaire to measure activities and participation. J Rehabil Med 40 (2008) 620-627
70. van Brakel W.H., Anderson A.M., Mutatkar R.K., et al. The Participation Scale: measuring a key concept in public health. Disabil Rehabil 28 (2006) 193-203
71. Yorkston K.M., Baylor C.R., Dietz J., et al. Developing a scale of communicative participation: a cognitive interviewing study. Disabil Rehabil 30 (2008) 425-433
72. Cieza A., and Stucki G. Content comparison of health-related quality of life (HRQOL) instruments based on the international classification of functioning, disability and health (ICF). Qual Life Res 14 (2005) 1225-1237
73. Jette A.M., Haley S.M., and Kooyoomjian J.T. Are the ICF activity and participation dimensions distinct?. J Rehabil Med 35 (2003) 145-149
74. Clark M.S., and Bond M.J. The Adelaide Activities Profile: a measure of the life-style activities of elderly people. [erratum appears in Aging (Milano) 1996;8:71]. Aging (Milano) 7 (1995) 174-184
75. Bybee D., Mowbray C.T., Oyserman D., and Lewandowski L. Variability in community functioning of mothers with serious mental illness. J Behav Health Serv Res 30 (2003) 269-289
76. Whiteneck G.G., Charlifue S.W., Gerhart K.A., Overholser J.D., and Richardson G.N. Quantifying handicap: a new measure of long-term rehabilitation outcomes. Arch Phys Med Rehabil 73 (1992) 519-526
77. Willer B., Ottenbacher K.J., and Coad M.L. The community integration questionnaire. A comparative examination. Am J Phys Med Rehabil 73 (1994) 103-111
78. McColl M.A., Davies D., Carlson P., Johnston J., and Minnes P. The community integration measure: development and preliminary validation. Arch Phys Med Rehabil 82 (2001) 429-434
79. Lincoln N.B., and Gladman J.R. The Extended Activities of Daily Living scale: a further validation. Disabil Rehabil 14 (1992) 41-43
80. Wade D.T., Legh-Smith J., and Langton Hewer R. Social activities after stroke: measurement and natural history using the Frenchay Activities Index. Int Rehabil Med 7 (1985) 176-181
81. Grace J., Stout J.C., and Malloy P.F. Assessing frontal lobe behavioral syndromes with the frontal lobe personality scale. Assessment 6 (1999) 269-284
82. Jette A.M., Davies A.R., Cleary P.D., et al. The Functional Status Questionnaire: reliability and validity when used in primary care. J Gen Intern Med 1 (1986) 143-149
83. Wiersma D., DeJong A., and Ormel J. The Groningen Social Disabilities Schedule: development, relationship with I.C.I.D.H., and psychometric properties. Int J Rehabil Res 11 (1988) 213-224
84. Cardol M., de Haan R.J., van den Bos G.A., de Jong B.A., and de Groot I.J. The development of a handicap assessment questionnaire: the Impact on Participation and Autonomy (IPA). Clin Rehabil 13 (1999) 411-419
85. World Health Organization. The ICF Checklist Version 2.1a (2001), World Health Organization, Geneva
86. Altshuler L., Mintz J., and Leight K. The Life Functioning Questionnaire (LFQ): a brief, gender-neutral scale assessing functional outcome. Psychiatry Res 112 (2002) 161-182
87. Harwood R.H., Rogers A., Dickinson E., and Ebrahim S. Measuring handicap: the London Handicap Scale, a new outcome measure for chronic disease. Qual Health Care 3 (1994) 11-16
88. O'Malia L., McFarland B.H., Barker S., and Barron N.M. A level-of-functioning self-report measure for consumers with severe mental illness. Psychiatr Serv 53 (2002) 326-331
89. Dobie D.J., Kivlahan D.R., Maynard C., et al. Screening for post-traumatic stress disorder in female Veteran's Affairs patients: validation of the PTSD checklist. Gen Hosp Psychiatry 24 (2002) 367-374
90. Brown M., Dijkers M.P., Gordon W.A., Ashman T., Charatz H., and Cheng Z. Participation objective, participation subjective: a measure of participation combining outsider and insider perspectives. J Head Trauma Rehabil 19 (2004) 459-481
91. Gray D.B., Hollingsworth H.H., Stark S.L., and Morgan K.A. Participation survey/mobility: psychometric properties of a measure of participation for people with mobility impairments and limitations. Arch Phys Med Rehabil 87 (2006) 189-197
92. Pallant J.F., Misajon R., Bennett E., and Manderson L. Measuring the impact and distress of health problems from the individual's perspective: development of the Perceived Impact of Problem Profile (PIPP). Health Qual Life Outcomes 4 (2006) 36
93. Burckhardt C.S., and Anderson K.L. The Quality of Life Scale (QOLS): reliability, validity, and utilization. Health Qual Life Outcomes 1 (2003) 60
94. Crawford S., Wenden F.J., and Wade D.T. The Rivermead head injury follow up questionnaire: a study of a new rating scale and other measures to evaluate outcome after head injury. J Neurol Neurosurg Psychiatry 60 (1996) 510-514
95. Stark S.L., Edwards D.F., Hollingsworth H., and Gray D.B. Validation of the Reintegration to Normal Living Index in a population of community-dwelling people with mobility limitations. Arch Phys Med Rehabil 86 (2005) 344-345
96. Tyrer P., Nur U., Crawford M., et al. The Social Functioning Questionnaire: a rapid and robust measure of perceived functioning. Int J Soc Psychiatry 51 (2005) 265-275
97. Birchwood M., Smith J., Cochrane R., Wetton S., and Copestake S. The Social Functioning Scale. The development and validation of a new scale of social adjustment for use in family intervention programmes with schizophrenic patients. Br J Psychiatry 157 (1990) 853-859
98. Tate R., Hodgkinson A., Veerabangsa A., and Maggiotto S. Measuring psychosocial recovery after traumatic brain injury: psychometric properties of a new scale. J Head Trauma Rehabil 14 (1999) 543-557
99. Trigg R., and Wood V.A. The validation of the Subjective Index of Physical and Social Outcome (SIPSO). Clin Rehabil 17 (2003) 283-289
100. Mundt J.C., Marks I.M., Shear M.K., and Greist J.H. The Work and Social Adjustment Scale: a simple measure of impairment in functioning. Br J Psychiatry 180 (2002) 461-464
101. World Heath Organization. WHODAS II Disability Assessment Schedule: training manual: a guide to administration (2000), World Health Organization, Geneva
102. Kaplan De-Nour A. Psychosocial adjustment To Illness Scale (PAIS): a study of chronic hemodialysis patients. J Psychosom Res 26 (1982) 11-22