The Participation Scale: Measuring a key concept in public health

Disability and Rehabilitation

Volumn 28, Issue 4, 2006, Pages 193-203

  Van Brakel, Wim H ^a   Anderson, Alison M ^b   Mutatkar, R K ^c   Bakirtzief, Zoica ^d   Nicholls, Peter G ^e   Raju, M S ^f   Das Pattanayak, Robert K ^f  

^a ROYAL TROPICAL INSTITUTE   (Netherlands)

^b Green Pastures Hospital and Rehabilitation Centre Nepal   (Nepal)

^c UNIVERSITY OF PUNE   (India)

^d University of Aberdeen ^*  (Brazil)

^e UNIVERSITY OF ABERDEEN   (United Kingdom)

^f India   (India)

Author keywords

Disability; ICF; Leprosy; Participation; Scales; Stigma

Indexed keywords

ARTICLE; BRAZIL; CONTROLLED STUDY; CULTURAL FACTOR; DISABILITY; FUNCTIONAL ASSESSMENT; HEALTH PROGRAM; HEALTH SURVEY; HUMAN; INDIA; INTERNATIONAL CLASSIFICATION OF FUNCTIONING, DISABILITY AND HEALTH; LEPROSY; NEPAL; PRIORITY JOURNAL; PUBLIC HEALTH SERVICE; RATING SCALE; RELIABILITY; SAMPLE SIZE; SCORING SYSTEM; SOCIAL ASPECT; STANDARDIZATION; STATISTICAL ANALYSIS; STATISTICAL SIGNIFICANCE; VALIDATION PROCESS;

ALGORITHMS; BRAZIL; CROSS-CULTURAL COMPARISON; DISABLED PERSONS; FEMALE; HEALTH STATUS INDICATORS; HUMANS; INDIA; INTERPERSONAL RELATIONS; INTERVIEWS; MALE; NEPAL; PATIENT SATISFACTION; PUBLIC HEALTH; QUALITY OF LIFE; QUESTIONNAIRES; REHABILITATION; REPRODUCIBILITY OF RESULTS; SOCIOECONOMIC FACTORS;

EID: 32844464977     PISSN: 09638288     EISSN: 14645165     Source Type: Journal    
DOI: 10.1080/09638280500192785     Document Type: Article

References (34)

1. World Health Organisation.(2001) International Classification of Functioning, Disability and Health (ICF). Geneva: WHO.
2. van Bennekom, C and Jelles, F and Lankhorst, G. (1995) Rehabilitation Activities Profile: The ICIDH as a framework for a problem-oriented assessment method in rehabilitation medicine Disab Rehab, 17, pp. 169 - 175.
3. Cardol, M and Brandsma, J and de Groot, I and van den Bos, G and de Haan, R and de Jong, B. (1999) Handicap questionnaires: What do they assess Disabil Rehabil, 21(3), pp. 97 - 105.
4. Jenkinson, C and Mant, J and Carter, J and Wade, D and Winner, S. (2000) The London handicap scale: A re-evaluation of its validity using standard scoring and simple summation J Neurol Neurosurg Psychiatry, 68(3), pp. 365 - 367.
5. Bainson, K and Van den Borne, B. (1998) Dimensions and process of stigmatization in leprosy Lepr Rev, 69(4), pp. 341 - 350.
6. Weiss MG, Ramakrishna J. Stigma Interventions and Research for International Health http://www.stigmaconference.nih.gov/FinalWeissPaper.htm 3-12-2001
7. Parker, R and Aggleton, P. (2003) HIV and AIDS-related stigma and discrimination: A conceptual framework and implications for action Soc Sci Med, 57(1), pp. 13 - 24.
8. Westbrook, M and Legge, V and Pennay, M. (1993) Attitudes towards disabilities in a multicultural society Soc Sci Med, 36(5), pp. 615 - 623.
9. Dickerson, F and Sommerville, J and Origoni, A and Ringel, N and Parente, F. (2002) Experiences of stigma among outpatients with schizophrenia Schizophr Bull, 28(1), pp. 143 - 155.
10. Vlassoff, C and Weiss, M and Ovuga, E and Eneanya, C and Nwel, P and Babalola, S and et al (2000) Gender and the stigma of onchocercal skin disease in Africa Soc Sci Med, 50(10), pp. 1353 - 1368.
11. Foreman, M and Lyra, P and Breinbauer, C.(2003) Understanding and responding to HIV/AIDS-related stigma and stigma and discrimination in the health sector. Pan American Health Organisation.
12. Gopal, P.(). Social and economic integration. 55-59. 1998. Tokyo, Sasakawa. Workshop reports, workshop summaries, opening and closing speeches, XVth International Leprosy Congress. In [pp.]..
13. Withington, S and Joha, S and Baird, D and Brink, M and Brink, J. (2003) Assessing socio-economic factors in relation to stigmatization, impairment status, and selection for socio-economic rehabilitation: A 1-year cohort of new leprosy cases in north Bangladesh Lepr Rev, 74(2), pp. 120 - 132.
14. Shumin, C and Diangchang, L and Bing, L and Lin, Z and Xioulu, Y. (2003) Assessment of disability, social and economic situations of people affected by leprosy in Shandong Province, People's Republic of China Lepr Rev, 74(3), pp. 215 - 221.
15. Kopparty, S. (1995) Problems, acceptance and social inequality: A study of the deformed leprosy patients and their families Lepr Rev, 66(3), pp. 239 - 249.
16. Noreau, L and Fougeyrollas, P. (2000) Long-term consequences of spinal cord injury on social participation: The occurrence of handicap situations Disabil Rehabil, 22(4), pp. 170 - 180.
17. Üstün T and Chatterji, S and Bickenbach, J and Kostanjsek, N and Schneider, M. (2003) The International Classification of Functioning, Disability and Health: A new tool for understanding disability and health Disabil Rehabil, 25(11-12), pp. 565 - 571.
18. WHO.(1980) International Classification of Impairments, Disabilities and Handicaps. Geneva: World Health Organisation.
19. Cardol, M and de Haan, RJ, RN and de Jong, B and van den Bos, G and de Groot, I. (2001) Psychometric properties of the impact on participation and autonomy questionnaire Arch Phys Med Rehabil, 82(Feb), pp. 210 - 215.
20. Cardol, M and de Haan, R and van den Bos, G and de Jong, B and de Groot, I. (1999) The development of a handicap assessment questionnaire: The Impact on Participation and Autonomy (IPA) Clin Rehabil, 13(5), pp. 411 - 419.
21. Perenboom, R and Chorus, A. (2003) Measuring participation according to the International Classification of Functioning, Disability and Health (ICF) Disabil Rehabil, 25(11-12), pp. 577 - 587.
22. Tate, D and Forchheimer, M and Maynard, F and Dijkers, M. (1994) Predicting depression and psychological distress in persons with spinal cord injury based on indicators of handicap Am J Phys Med Rehabil, 73(3), pp. 175 - 183.
23. Lo, R and Harwood, R and Woo, J and Yeung, F and Ebrahim, S. (2001) Cross-cultural validation of the London Handicap Scale in Hong Kong Chinese Clin Rehabil, 15(2), pp. 177 - 185.
24. Harwood, R and Rogers, A and Dickinson, E and Ebrahim, S. (1994) Measuring handicap: The London Handicap Scale, a new outcome measure for chronic disease Qual Health Care, 3(1), pp. 11 - 16.
25. Walker, N and Mellick, D and Brooks, C and Whiteneck, G. (2003) Measuring participation across impairment groups using the Craig Handicap Assessment Reporting Technique Am J Phys Med Rehabil, 82(12), pp. 936 - 941.
26. Anandaraj, H. (1995) Measurement of dehabilitation in patients of leprosy - A scale Ind J Lepr, 67(2), pp. 153 - 160.
27. Noreau, L and Desrosiers, J and Robichaud, L and Fougeyrollas, P and Rochette, A and Viscogliosi, C. (2004) Measuring social participation: reliability of the LIFE-H in older adults with disabilities Disabil Rehabil, 26(6), pp. 346 - 352.
28. Fougeyrollas, P and Noreau, L and Bergeron, H and Cloutier, R and Dion, S and St Michel, G. (1998) Social consequences of long term impairments and disabilities: Conceptual approach and assessment of handicap Int J Rehabil Res, 21(2), pp. 127 - 141.
29. Noreau, L and Fougeyrollas, P and Vincent, C. (2002) The LIFE-H: Assessment of the quality of social participation Technology and Disability, 14(3), pp. 113 - 118.
30. Cardol, M and de Jong, B and van den Bos, G and Beelem, A and de Groot, I and de Haan, R. (2002) Beyond disability: Perceived participation in people with a chronic disabling condition Clin Rehabil, 16(1), pp. 27 - 35.
31. Streiner, D and Norman, G.(1995) Health measurement scales. A practical guide to their development and use. 2nd ed. Oxford: Oxford University Press.
32. Fleiss, J and Cohen, J. (1973) The equivalence of weighted kappa and the intraclass correlation coefficient as measures of reliability Educ Psych Meas, 33, pp. 613 - 619.
33. Altman, D.(1991) Practical statistics for medical research. London: Chapman & Hall.
34. Üstün, T.(2001) Disability and culture: Universalism and diversity. 1st ed. Geneva: World Health Organisation.