Developing a national registry for conditions identifiable through newborn screening

Genetics in Medicine

Volumn 11, Issue 3, 2009, Pages 176-182

  Botkin, Jeffrey R ^a,b   Anderson, Rebecca ^a   Staes, Catherine ^b   Longo, Nicola ^a  

^a Division of Medical Ethics   (United States)

^b UNIVERSITY OF UTAH   (United States)

Author keywords

Informatics; Newborn screening; Public health; Registry

Indexed keywords

ARTICLE; FAMILY; HEALTH CARE MANAGEMENT; HEALTH CARE PLANNING; HEALTH PROGRAM; HISTORY; HUMAN; NEWBORN SCREENING; PUBLIC HEALTH SERVICE; REGISTER; SCHOOL;

ACCESS TO INFORMATION; CHILD; CONGENITAL ABNORMALITIES; HUMANS; INFANT, NEWBORN; INTERNET; NEONATAL SCREENING; OUTCOME ASSESSMENT (HEALTH CARE); PEDIATRICS; REGISTRIES; UNITED STATES;

EID: 63449083689     PISSN: 10983600     EISSN: None     Source Type: Journal    
DOI: 10.1097/GIM.0b013e318193ff0d     Document Type: Article

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