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Volumn 161, Issue 10, 2007, Pages 994-1000

Long-term follow-up data collection and use in state newborn screening programs

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; CLINICAL PRACTICE; ELECTRONICS; FOLLOW UP; HEALTH CARE PERSONNEL; HEALTH CARE POLICY; HEALTH CARE QUALITY; HEALTH PROGRAM; HEALTH STATUS; HEALTH SURVEY; HUMAN; INFORMATION PROCESSING; LONG TERM CARE; MEDICAL INFORMATION; NEWBORN DISEASE; NEWBORN SCREENING; OUTCOME ASSESSMENT; PRIORITY JOURNAL; QUESTIONNAIRE; VERBAL COMMUNICATION;

EID: 34948822964     PISSN: 10724710     EISSN: 15383628     Source Type: Journal    
DOI: 10.1001/archpedi.161.10.994     Document Type: Article
Times cited : (23)

References (13)
  • 1
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    • (2003) Genet Test , vol.7 , Issue.2 , pp. 131-134
    • Saxena, A.1
  • 2
    • 12244300531 scopus 로고    scopus 로고
    • Newborn screening: Rationale for a comprehensive, fully integrated public health system
    • McCabe LL, Therrell BL Jr, McCabe ERB. Newborn screening: rationale for a comprehensive, fully integrated public health system. Mol Genet Metab. 2002;77(4):267-273.
    • (2002) Mol Genet Metab , vol.77 , Issue.4 , pp. 267-273
    • McCabe, L.L.1    Therrell Jr, B.L.2    McCabe, E.R.B.3
  • 3
    • 0026730958 scopus 로고
    • Issues in state newborn screening programs
    • Clayton EW. Issues in state newborn screening programs. Pediatrics. 1992;90(4):641-646.
    • (1992) Pediatrics , vol.90 , Issue.4 , pp. 641-646
    • Clayton, E.W.1
  • 4
    • 34948859197 scopus 로고    scopus 로고
    • Maternal and Child Health Bureau. Newborn screening: toward a uniform screening panel and system. Washington, DC: Maternal and Child Health Bureau, Health Resources and Services Administration; 2004. ftp://ftp.hrsa.gov/mchb/ genetics/screeningdraftforcomment.pdf. Accessed September 15, 2006.
    • Maternal and Child Health Bureau. Newborn screening: toward a uniform screening panel and system. Washington, DC: Maternal and Child Health Bureau, Health Resources and Services Administration; 2004. ftp://ftp.hrsa.gov/mchb/ genetics/screeningdraftforcomment.pdf. Accessed September 15, 2006.
  • 5
    • 0033844765 scopus 로고    scopus 로고
    • Newborn Screening Task Force, American Academy of Pediatrics. Serving the family from birth to the medical home: a report from the Newborn Screening Task Force convened in Washington DC, May 10-11, 1999. Pediatrics. 2000;106(2, pt 2)(suppl):383-427.
    • Newborn Screening Task Force, American Academy of Pediatrics. Serving the family from birth to the medical home: a report from the Newborn Screening Task Force convened in Washington DC, May 10-11, 1999. Pediatrics. 2000;106(2, pt 2)(suppl):383-427.
  • 6
    • 33745321363 scopus 로고    scopus 로고
    • Practices and perceptions of long-term follow-up among state newborn screening programs
    • Hoff T, Hoyt A. Practices and perceptions of long-term follow-up among state newborn screening programs. Pediatrics. 2006;117(6):1922-1929.
    • (2006) Pediatrics , vol.117 , Issue.6 , pp. 1922-1929
    • Hoff, T.1    Hoyt, A.2
  • 7
    • 34948909864 scopus 로고    scopus 로고
    • Clinical and Laboratory Standards Institute. Newborn Screening Follow-up: Proposed Guideline. Wayne, PA: Clinical and Laboratory Standards Institute; 2005. CLSI document I/LA27-P.
    • Clinical and Laboratory Standards Institute. Newborn Screening Follow-up: Proposed Guideline. Wayne, PA: Clinical and Laboratory Standards Institute; 2005. CLSI document I/LA27-P.
  • 8
    • 34948865422 scopus 로고    scopus 로고
    • Newborn Screening Committee
    • Council of Regional Networks for Genetic Services;, Atlanta, GA: Council of Regional Networks for Genetic Services;
    • Council of Regional Networks for Genetic Services; Newborn Screening Committee. National Newborn Screening Report-1995. Atlanta, GA: Council of Regional Networks for Genetic Services; 1999.
    • (1999) National Newborn Screening Report-1995
  • 9
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    • Advisory Committee on Heritable Disorders and Genetic Diseases in Newborns and Children, Washington, DC, Accessed September 8
    • Advisory Committee on Heritable Disorders and Genetic Diseases in Newborns and Children. Summary of sixth meeting, Oct 20-21, 2005, Washington, DC. http://mchb.hrsa.gov/programs/genetics/committee/sixthmtgmins.htm. Accessed September 8, 2006.
    • (2005) Summary of sixth meeting, Oct 20-21
  • 10
    • 33748742728 scopus 로고    scopus 로고
    • Exploring barriers to long-term follow-up in newborn screening programs
    • Hoff T, Hoyt A, Therrell B, Ayoob M. Exploring barriers to long-term follow-up in newborn screening programs. Genet Med. 2006;8(9):563-571.
    • (2006) Genet Med , vol.8 , Issue.9 , pp. 563-571
    • Hoff, T.1    Hoyt, A.2    Therrell, B.3    Ayoob, M.4
  • 12
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    • National Newborn Screening and Genetics Resource Center, Austin, TX: National Newborn Screening and Genetics Resource Center;
    • National Newborn Screening and Genetics Resource Center. Newborn Screening Programs in the US. Austin, TX: National Newborn Screening and Genetics Resource Center; 2005.
    • (2005) Newborn Screening Programs in the US


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.