Primary care physicians' attitudes regarding follow-up care for children with positive newborn screening results

Pediatrics

Volumn 118, Issue 5, 2006, Pages 1836-1841

  Kemper, Alex R ^a,c   Uren, Rebecca L ^b   Moseley, Kathryn L ^b   Clark, Sarah J ^b  

^a DUKE UNIVERSITY SCHOOL OF MEDICINE   (United States)

^b UNIVERSITY OF MICHIGAN MEDICAL SCHOOL   (United States)

^c DUKE CLINICAL RESEARCH INSTITUTE   (United States)

Author keywords

Family physicians; Genetic counseling; Neonatal screening; Pediatrics; Practice patterns; Primary health care

Indexed keywords

CHILD CARE; CONGENITAL HYPOTHYROIDISM; CONTROLLED STUDY; CYSTIC FIBROSIS; DISEASE CARRIER; FOLLOW UP; GENETIC COUNSELING; HEALTH SURVEY; HUMAN; MEDICAL PRACTICE; MEDICAL SPECIALIST; NEWBORN SCREENING; NORMAL HUMAN; PHENYLKETONURIA; PHYSICIAN ATTITUDE; POSTAL MAIL; PRACTICE GUIDELINE; PRIMARY HEALTH CARE; PRIORITY JOURNAL; REVIEW; SICKLE CELL; ARTICLE; HEALTH PERSONNEL ATTITUDE; NEWBORN; PATIENT CARE; PEDIATRICS; QUESTIONNAIRE;

ATTITUDE OF HEALTH PERSONNEL; CONTINUITY OF PATIENT CARE; HUMANS; INFANT, NEWBORN; NEONATAL SCREENING; PEDIATRICS; PRIMARY HEALTH CARE; QUESTIONNAIRES;

EID: 33750954779     PISSN: 00314005     EISSN: 02105721     Source Type: Journal    
DOI: 10.1542/peds.2006-1639     Document Type: Review

References (16)

1. American Academy of Pediatrics, Newborn Screening Task Force. Serving the family from birth to the medical home: newborn screening: a blueprint for the future: a call for a national agenda on state newborn screening programs. Pediatrics. 2000;106:389-422
2. Bordley WC, Travers D, Scanlon P, Frush K, Hohenhaus S. Office preparedness for pediatric emergencies: a randomized, controlled trial of an office-based training program. Pediatrics. 2003;112:291-295
3. National Newborn Screening and Genetics Resource Center. National newborn screening status report. Available at: http://genes-r-us.uthscsa.edu/ nbsdisorders.htm. Accessed May 17, 2006
4. Gruskin A, Williams RG, McCabe ERB, et al. Final report of the FOPE II Pediatric Subspecialists of the Future Workgroup. Pediatrics. 2000;106:1224-1244
5. American College of Medical Genetics, Newborn Screening Expert Group. Newborn screening: toward a uniform screening panel and system: executive summary. Pediatrics. 2006;117:S296-S307
6. American College of Medical Genetics. Newborn screening ACT sheets and confirmatory algorithms. Available at: www.acmg.net/resources/policies/ACT/ condition-analyte-links.htm. Accessed May 17, 2006
7. Acharya K, Ackerman PD, Ross LF. Pediatricians' attitudes toward expanding newborn screening. Pediatrics. 2005;116(4). Available at: www.pediatrics.org/cgi/content/full/116/4/e476
8. Koopmans J, Ross LF. Does familiarity breed acceptance? The influence of policy on physicians' attitudes toward newborn screening programs. Pediatrics. 2006;117:1477-1485
9. Desposito F, Lloyd-Puryear MA, Tonniges TF, Rhein F, Mann M. Survey of pediatrician practices in retrieving statewide authorized newborn screening results. Pediatrics. 2001;108(2). Available at: www.pediatrics.org/cgi/ content/full/108/2/e22
10. Freed GL, Nahra TA, Wheeler JRC. Which physicians are providing health care to America's children? Trends and changes during the past 20 years. Arch Pediatr Adolesc Med. 2004;158:22-26
11. Randolph GD, Pathman DE. Trends in the rural-urban distribution of general pediatricians. Pediatrics. 2001;107(2). Available at: www.pediatrics.org/cgi/content/full/107/2/e18
12. Kemper AR, Foster CM. Congenital hypothyroidism: a guide for the general pediatrician. Contemp Pediatr. 2003;20:32-48
13. Council of American Survey Research Organizations. On the definition of response rates: CASRO Task Force Special Report, 1982. Available at: www.casro.org/resprates.cfm. Accessed May 17, 2006
14. Agency for Healthcare Research and Quality. National guideline clearinghouse. Available at: www.guideline.gov/. Accessed May 17, 2006
15. Cabana MD, Rand CS, Powe NR, et al. Why don't physicians follow clinical practice guidelines? JAMA. 1999;282:1458-1465
16. Kemper AR, Cohn LM, Fant KE, Dombkowski KJ, Hudson SR. Follow-up testing among children with elevated screening blood lead levels. JAMA. 2005;293:2232-2237