Health information for patients: Time to look beyond patient information leaflets

Journal of the Royal Society of Medicine

Volumn 101, Issue 9, 2008, Pages 447-453

  Colledge, Anthea ^a   Car, Josip ^a   Donnelly, Ailsa ^b   Majeed, Azeem ^a  

^a IMPERIAL COLLEGE LONDON   (United Kingdom)

^b ROYAL COLLEGE OF GENERAL PRACTITIONERS   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

HEALTH CARE ACCESS; HEALTH CARE ORGANIZATION; HEALTH CARE QUALITY; HEALTH PRACTITIONER; MEDICAL INFORMATION; NATIONAL HEALTH SERVICE; OUTCOME ASSESSMENT; READING; REVIEW;

EID: 51849103882     PISSN: 01410768     EISSN: None     Source Type: Journal    
DOI: 10.1258/jrsm.2008.080149     Document Type: Review

References (73)

1. Department of Health. Better information, better choices, better health: putting information at the centre of health. London: DoH; 2004
2. Coulter A, Entwistle V, Gilbert D. Sharing decisions with patients: Is the information good enough? BMJ 1999;318:318-22
3. The Joint Commission. What did the doctor say? Improving health literacy to protect patient safety. Oakbrook Terrace, Illinois: The Joint Commission; 2007
4. Nielsen-Bohlman L, Panzer AM, Kindig DA. Health Literacy: A prescription to end confusion. Washington DC: National Academies Press; 2004
5. Organisation for Economic Co-operation and Development, Statistics Canada. Literacy in the information age: Final report of the international adult literacy survey. Paris: OECD Publications; 2000
6. Ad hoc committee on health literacy for the council on scientific affairs. Health literacy: report of the Council on Scientific Affairs. JAMA 1999;281:552-7
7. Coulter A, Ellins J. Patient focused interventions: A review of the evidence. London: The Health Foundation; 2006
8. Schillinger D, Piette J, Grumbach K, et al. Closing the loop - Physician communication with diabetic patients who have low health literacy. Arch Intern Med 2003;163:83-90
9. Swain D, Ellins J, Coulter A, et al. Accessing information about health and social care services. Oxford: Picker Institute Europe; 2007
10. D'Alessandro DM, Kreiter CD, Kinzer SL, Peterson MW. A randomized controlled trial of an information prescription for pediatric patient education on the internet. Arch Pediatr 2004;158:857-62
11. Ritterband LM, Borowitz S, Cox DJ, et al. Using the internet to provide information prescriptions. Pediatrics 2005;116:e643-7
12. Ko Y, Brown M, Frost R, Woosley RL. Development of a prescription medication information webliography for consumers. J Gen Intern Med 2006;21:1313-6
13. Siegel ER, Logan RA, Harnsberger RL, et al. Information Rx: Evaluation of a new informatics tool for physicians, patients, and libraries. Inf Serv Use 2006;26:1-10
14. Suggs LS. A 10-year retrospective of research in new technologies for health communication. J Health Commun 2006;11:61-74
15. Berkman ND, DeWalt DA, Pignone MP, et al. Literacy and health outcomes. Evid Rep Technol Assess 2004;87:1-8
16. Pignone M, DeWalt DA, Sheridan S, Berkman N, Lohr KN. Interventions to improve health outcomes for patients with low literacy. A systematic review. J Gen Intern Med 2005;20:185-92
17. Eysenbach G, Powell J, Kuss O, Sa ER. Empirical studies assessing the quality of health information for consumers on the World Wide Web - a systematic review. JAMA 2002;287:2691-700
18. National Institute of Clinical Studies. The impact of the internet on consumer's health behaviour. Melbourne: NICS; 2003
19. Coulter A, Ellins J, Swain D, et al. Assessing the quality of information to support people in making decisions about their health and healthcare. Oxford: Picker Institute Europe; 2006
20. Coulter A, Entwistle V, Gilbert D. Informing patients: an assessment of the quality of patient information material. London: King's Fund; 1998
21. Boyer C, Selby M, Scherrer J-, Appel RD. The Health On the Net Code of Conduct for medical and health Websites. Comput Biol Med 1998;28:603-10
22. Elwyn G, O'Connor A, Stacey D, et al. Developing a quality criteria framework for patient decision aids: online international Delphi consensus process. BMJ 2006;333:417
23. Seale C. New directions for critical internet health studies: representing cancer experience on the web. Sociol Health Illn 2005;27:515-40
24. Nettleton S, Burrows R, O'Malley L. The mundane realities of the everyday lay use of the internet for health, and their consequences for media convergence. Sociol Health Illn 2005;27:972-92
25. Cuijpers P. Bibliotherapy in unipolar depression: A meta-analysis. J Behav Ther Exp Psychiatry 1997;28:139-47
26. Schillinger D, Grumbach K, Piette J, et al. Association of health literacy with diabetes outcomes. JAMA 2002;288:475-82
27. Hsu J, Huang J, Kinsman J, et al. Use of e-health services between 1999 and 2002: A growing digital divide. J Am Med Inform Assoc 2005;12:164-71
28. Eng TR, Maxfield A, Patrick K, Deering MJ, Ratzan SC, Gustafson DH. Access to health information and support - A public highway or a private road? JAMA 1998;280:1371-5
29. Office for National Statistics. First release: Internet access, households and individuals. London: ONS; 2006
30. Olney CA, Warner DG, Reyna G, Wood FB, Siegel ER. MedlinePlus and the challenge of low health literacy: findings from the Colonias project. J Med Libr Assoc 2007;95:31-9
31. Warner DG, Olney CA, Wood FB, Hansen L, Bowden VM. High school peer tutors teach MedlinePlus: a model for Hispanic outreach. J Med Libr Assoc 2005;93:243-52
32. Gustafson DH, Hawkins RP, Boberg EW, et al. CHESS: 10 years of research and development in consumer health informatics for broad populations, including the underserved. Int J Med Inform 2002;65:169-77
33. Gustafson DH, Hawkins R, Pingree S, et al. Effect of computer support on younger women with breast cancer. J Gen Intern Med 2001;16:435-45
34. Mead N, Varnam R, Rogers A, Roland M. What predicts patients' interest in the Internet as a health resource in primary care in England? J Health Serv Res Policy 2003;8:33-9
35. Robinson TN, Patrick K, Eng TR, Gustafson D. An evidence-based approach to interactive health communication: A challenge to medicine in the information age. JAMA 1998;280:1264-9
36. Howard DH, Sentell T, Gazmararian JA. Impact of health literacy on socioeconomic and racial differences in health in an elderly population. J Gen Intern Med 2006;21:857-61
37. Sentell TL, Halpin HA. Importance of adult literacy in understanding health disparities. J Gen Intern Med 2006;21:862-6
38. Saha S. Improving literacy as a means to reducing health disparities. J Gen Intern Med 2006;21:893-5
39. Kickbusch IS, Wait S, Magg D. Health Literacy: a call to action. London: The Alliance for Health and the future; 2006
40. Zarcadoolas C, Pleasant AF, Greer D. Advancing health literacy: a framework for understanding and action. Netherlands: Jossey-Bass; 2006
41. Nutbeam D. Health literacy as a public health goal: a challenge for contemporary health education and communication strategies into the 21st century. Health Promot Int 2000;15:259-67
42. Sihota S, Lennard L. Health literacy: being able to make the most of health. London: National Consumer Council; 2004
43. Paasche-Orlow MK, Parker RM, Gazmarian JA, Nielsen-Bohlman LT, Rudd R. The prevalence of limited health literacy. J Gen Intern Med 2005;20:175-84
44. DeWalt DA, Berkman ND, Sheridan S, Lohr KN, Pignone MP. Literacy and health outcomes: a systematic review of the literature. J Gen Intern Med 2004;19:1228-39
45. Houts PS, Doak CC, Doak LG, Loscalzo MJ. The role of pictures in improving health communication: A review of research on attention, comprehension, recall, and adherence. Patient Educ Couns 2006;61:173-90
46. Mansoor LE, Dowse R. Effect of pictograms on readability of patient information materials. Ann Pharmacother 2003;37:1003-9
47. Kools M, van de Wiel MW, Ruiter RA, Kok G. Pictures and text in instructions for medical devices: effects on recall and actual performance. Patient Educ Couns 2006;64:104-11
48. Brotherstone H, Miles A, Robb KA, Atkin W, Wardle J. The impact of illustrations on public understanding of the aim of cancer screening. Patient Educ Couns 2006;63:328-35
49. Jones R, Pearson J, McGregor S, et al. Randomised trial of personalised computer based information for cancer patients. BMJ 1999;319:1241-7
50. Krishna S, Balas EA, Francisco BD, Konig P. Effective and sustainable multimedia education for children with asthma: A randomized controlled trial. Child Health Care 2006;35:75-90
51. Krishna S, Francisco BD, Balas EA, Konig P, Graff GR, Madsen RW. Internet-enabled interactive multimedia asthma education program: a randomized trial. Pediatrics 2003;111:503-10
52. Koh TH, Budge D, Butow P, Renison B, Woodgate P. Audio recordings of consultations with doctors for parents of critically sick babies. Cochrane Database Syst Rev 2005; CD004502
53. Liddell C, Rae G, Brown TRM, Johnston D, Coates V, Mallett J. Giving patients an audiotape of their GP consultation: a randomised controlled trial. Br J Gen Pract 2004;54:667-72
54. Cope CD, Lyons AC, Donovan V, Rylance M, Kilby MD. Providing letters and audiotapes to supplement a prenatal diagnostic consultation: effects on later distress and recall. Prenat Diagn 2003;23:1060-7
55. Jenkinson D, Davison J, Jones S, Hawtin P. Comparison of effects of a self management booklet and audiocassette for patients with asthma. BMJ 1988;297:267-70
56. Ostojic V, Cvoriscec B, Ostojic SB, Reznikoff D, Stipic-Markovic A, Tudjman Z. Improving asthma control through telemedicine: A study of short-message service. Telemed J E Health 2005;11:28-35
57. Rami B, Popow C, Horn W, Waldhoer T, Schober E. Telemedical support to improve glycemic control in adolescents with type 1 diabetes mellitus. Eur J Pediatr 2006;165:701-5
58. Rodgers A, Corbett T, Bramley D, et al. Do u smoke after txt? Results of a randomised trial of smoking cessation using mobile phone text messaging. Tob Control 2005;14:255-61
59. Vidrine DJ, Arduino RC, Lazev AB, Gritz ER. A randomized trial of a proactive cellular telephone intervention for smokers living with HIV/AIDS. AIDS 2006;20:253-60
60. Frosch DL, Kaplan RM, Felitti VJ. A randomized controlled trial comparing internet and video to facilitate patient education for men considering the prostate specific antigen test. J Gen Intern Med 2003;18:781-7
61. Meade CD, Mckinney WP, Barnas GP. Educating patients with limited literacy skills - the effectiveness of printed and videotaped materials about colon-cancer. Am J Public Health 1994;84:119-21
62. Walker MS, Podbilewicz-Schuller Y. Video preparation for breast cancer treatment planning: Results of a randomized clinical trial. Psychooncology 2005;14:408-20
63. Cowan EA, Calderon Y, Gennis P, Macklin R, Ortiz C, Wall SP. Spanish and English video-assisted informed consent for intravenous contrast administration in the emergency department: A randomized controlled trial. Ann Emerg Med 2007;49:221-30. e3
64. Rossi MJ, Guttmann D, MacLennan MJ, Lubowitz JH. Video informed consent improves knee arthroscopy patient comprehension. Arthroscopy 2005;21:739-43
65. Rossi M, McClellan R, Chou L, Davis K. Informed consent for ankle fracture surgery: patient comprehension of verbal and videotaped information. Foot Ankle Int 2004;25:756-62
66. Calderon Y, Haughey M, Bijur PE, et al. An educational HIV pretest counseling video program for off-hours testing in the emergency department. Ann Emerg Med 2006;48:21-7
67. Pager CK. Randomised controlled trial of preoperative information to improve satisfaction with cataract surgery. Br J Ophthalmol 2005;89:10-3
68. Montgomery AA, Fahey T, Peters TJ. A factorial randomised controlled trial of decision analysis and an information video plus leaflet for newly diagnosed hypertensive patients. Br J Gen Pract 2003;53:446-53
69. Sciamanna CN, Nicholson RA, Lofland JH, Manocchia M, Mui S, Hartman CW. Effects of a Website designed to improve the management of migraines. Headache 2006;46:92-100
70. Goldsmith DM, Safran C. Using the Web to reduce postoperative pain following ambulatory surgery. Proc AMIA Symp 1999;780-4
71. Etter JF. Comparing the efficacy of two Internet-based, computer-tailored smoking cessation programs: a randomized trial. J Med Internet Res 2005;7:e2
72. Swartz LH, Noell JW, Schroeder SW, Ary DV. A randomised control study of a fully automated internet based smoking cessation programme. Tob Control 2006;15:7-12
73. Avery V, Chamberlain E, Summerfield C, Zealey L. Focus on the digital age. Basingstoke: Palgrave Macmillan; 2007