Do available questionnaires measure the communication factors that patients and families consider important at end of life?

Journal of Clinical Oncology

Volumn 26, Issue 23, 2008, Pages 3874-3878

  Grunfeld, Eva ^a   Folkes, Amy ^a   Urquhart, Robin ^a  

^a DALHOUSIE UNIVERSITY   (Canada)

Author keywords

[No Author keywords available]

Indexed keywords

CANCER PATIENT; CAREGIVER; HEALTH CARE QUALITY; HEALTH PRACTITIONER; HUMAN; INTERPERSONAL COMMUNICATION; NEOPLASM; PATIENT CARE; PRIORITY JOURNAL; QUESTIONNAIRE; REVIEW; SOCIAL SUPPORT; TERMINAL CARE;

COMMUNICATION; FAMILY; HUMANS; NEOPLASMS; PATIENT SATISFACTION; QUALITY OF HEALTH CARE; QUESTIONNAIRES; SOCIAL SUPPORT; TERMINAL CARE;

EID: 51349164063     PISSN: 0732183X     EISSN: None     Source Type: Journal    
DOI: 10.1200/JCO.2007.15.8006     Document Type: Review

References (38)

1. Mohide E, Whelan T, Rath D, et al: A randomised trial of two information packages distributed to new cancer patients before their initial appointment at a regional cancer centre. Br J Cancer 73:1588-1593, 1996
2. Coristine M, Crooks D, Grunfeld E, et al: Caregiving for women with advanced breast cancer. Psychooncology 12:709-719, 2003
3. Aranda S, Schofield P, Weih L, et al: Mapping the quality of life and unmet needs of urban women with metastatic breast cancer. Eur J Cancer Care 14:211-222, 2005
4. Kirk P, Kirk I, Kristjanson LJ: What do patients receiving palliative care for cancer and their families want to be told? A Canadian and Australian qualitative study. BMJ 328:1343-1349, 2004
5. Wong RK, Franssen E, Szumacher E, et al: What do patients living with advanced cancer and their carers want to know? A needs assessment. Support Care Cancer 10:408-415, 2002
6. Kutner JS, Steiner JF, Corbett KK, et al: Information needs in terminal illness. Soc Sci Med 48:1341-1352, 1999
7. Fincham L, Copp G, Caldwell K, et al: Supportive care: Experiences of cancer patients. Eur J Oncol Nurs 9:258-268, 2005
8. Fallowfield L, Jenkins V: Effective communication skills are the key to good cancer care. Eur J Cancer 35:1592-1597, 1999
9. Butow PN, Dunn SM, Tattersall MHN: Communication with cancer patients: Does it matter? J Palliat Care 11:34-38, 1995
10. Baile WF, Aaron J: Patient-physician communication in oncology: Past, present, and future. Curr Opin Oncol 17:331-335, 2005
11. Wiggers J, Donovan K, Redman S, et al: Cancer patient satisfaction with care. Cancer 66:610-616, 1990
12. Butow P, Kazemi J, Beeney L, et al: When the diagnosis is cancer: Patient communication experiences and preferences. Cancer 77:2630-2637, 1996
13. Chan A, Woodruff RK: Communicating with patients with advanced cancer. J Palliat Care 13:29-33, 1997
14. Lind SE, DelVecchio Good MJ, Seidel S, et al: Telling the diagnosis of cancer. J Clin Oncol 7:583-589, 1989
15. Eidinger RN, Schapira DV: Cancer patients' insight into their treatment, prognosis, and unconventional therapies. Cancer 12:2736-2740, 1984
16. Lerman C, Daly M, Walsh WP, et al: Communication between patients with breast cancer and health care providers: Determinants and implications. Cancer 72:2612-2620, 1993
17. Grunfeld E, Urquhart R, Mykhalovskiy E, et al: Toward population-based indicators of quality end-of-life care: Testing stakeholder agreement. Cancer 112:2301-2308, 2008
18. Grunfeld E, Lethbridge L, Dewar R, et al: Towards using administrative databases to measure population-based indicators of quality end-of-life care: Testing the methodology. Palliat Med 20:769-777, 2006
19. Brédart A, Razzavi D, Robertson C, et al: A comprehensive assessment of satisfaction with care: Preliminary psychometric analysis in an oncology institute in Italy. Ann Oncol 10:839-846, 1999
20. Brédart A, Razavi D, Robertson C, et al: Timing of patient satisfaction assessment: Effect on questionnaire acceptability, completeness of data, reliability and variability of scores. Patient Educ Couns 46:131-136, 2002
21. Ringdal G, Jordhoy M, Kaasa S: Family satisfaction with end-of-life care for cancer patients in a cluster randomized trial. J Pain Symptom Manage 24:53-63, 2002
22. Ringdal GI, Jordhoy MS, Kaasa S: Measuring quality of palliative care: Psychometric properties of the FAMCARE Scale. Qual Life Res 12:167-176, 2003
23. Loblaw A, Bezjak A, Bunston T: Development and testing of a visit-specific patient satisfaction questionnaire: The Princess Margaret Hospital Satisfaction with Doctor Questionnaire. J Clin Oncol 17:1931-1938, 1999
24. Loblaw DA, Bezjak A, Singh PM, et al: Psychometric refinement of an outpatient, visit-specific satisfaction with doctor questionnaire. Psychooncology 13:223-234, 2004
25. Meakin R, Weinman J: The 'Medical Interview Satisfaction Scale' (MISS-21) adapted for British general practice. Fam Pract 19:257-263, 2002
26. McKinstry B, Colthart I, Walker J: Can doctors predict patients' satisfaction and enablement? A cross-sectional observational study. Fam Pract 23:240-245, 2006
27. Baker R, Whitfield M: Measuring patient satisfaction: A test of construct validity. Qual Health Care 1:104-109, 1992
28. Marshall GN, Hays RD, Sherbourne CD, et al: The structure of patient satisfaction with outpatient medical care. Psychol Assess 5:477-483, 1993
29. Brédart A, Bottomley A, Blazeby JM, et al: An international prospective study of the EORTC cancer in-patient satisfaction with care measure (EORTC IN-PATSAT32). Eur J Cancer 41:2120-2131, 2005
30. Hearn J, Higginson I: Development and validation of a core outcome measure for palliative care: The palliative care outcome scale. Qual Health Care 8:219-227, 1999
31. Higginson I, McCarthy M: Validity of the support team assessment schedule: Do staffs' ratings reflect those made by patients or their families? Palliat Med 7:219-228, 1993
32. Nayak S, Pradhan JPB, Reddy S, et al: Cancer patients' perception of the quality of communication before and after the implementation of a communication strategy in a regional cancer center in India. J Clin Oncol 23:4771-4775, 2005
33. Thorne SE: Communication in cancer care: What science can and cannot teach us. Cancer Nurs 22:370-378, 1999
34. Christakis N: Death foretold: Prophecy and prognosis in medical care. Chicago, IL, University of Chicago Press, 2000
35. Fallowfield LJ, Jenkins VA, Beveridge HA: Truth may hurt but deceit hurts more: Communication in palliative care. Palliat Med 16:297-303, 2002
36. Canadian Council on Health Services Accreditation: Hospice palliative and end-of-life care. http://www.cchsa.ca/default.aspx?page=58&cat=27
37. Arraras JI, Kuljanic-Vlasic K, Bjordal K, et al: EORTC QLQ-INFO26: A questionnaire to assess information given to cancer patients a preliminary analysis in eight countries. Psychooncology 16:249-254, 2007
38. Kleeberg UR, Tews JT, Ruprecht T, et al: Patient satisfaction and quality of life in cancer outpatients: Results of the PASQOC study. Support Care Cancer 13:303-310, 2005