End-of-life care in the critical care unit for patients with heart failure

Critical Care Nurse

Volumn 28, Issue 2, 2008, Pages 84-94

  Wingate, Sue ^a   Wiegand, Debra Lynn McHale ^b,c  

^a KAISER PERMANENTE   (United States)

^b UNIVERSITY OF MARYLAND SCHOOL OF NURSING   (United States)

^c THOMAS JEFFERSON UNIVERSITY HOSPITAL   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

AGED; BEREAVEMENT; CASE REPORT; DECISION MAKING; DISEASE COURSE; FAMILY; FEMALE; HEART FAILURE; HUMAN; INTENSIVE CARE; INTERPERSONAL COMMUNICATION; LIVING WILL; MORTALITY; NURSE ATTITUDE; NURSE PATIENT RELATIONSHIP; NURSING ASSESSMENT; ORGANIZATION AND MANAGEMENT; PATIENT CARE PLANNING; PATIENT EDUCATION; PATIENT PARTICIPATION; PROGNOSIS; PSYCHOLOGICAL ASPECT; REVIEW; RISK ASSESSMENT; RISK FACTOR; TERMINAL CARE; TREATMENT WITHDRAWAL;

ADVANCE DIRECTIVES; AGED; BEREAVEMENT; COMMUNICATION; CRITICAL CARE; DECISION MAKING; DISEASE PROGRESSION; FAMILY; FEMALE; HEART FAILURE; HUMANS; NURSE'S ROLE; NURSE-PATIENT RELATIONS; NURSING ASSESSMENT; PATIENT CARE PLANNING; PATIENT EDUCATION AS TOPIC; PATIENT PARTICIPATION; PROGNOSIS; RISK ASSESSMENT; RISK FACTORS; TERMINAL CARE; WITHHOLDING TREATMENT;

EID: 45849096873     PISSN: 02795442     EISSN: None     Source Type: Journal    
DOI: None     Document Type: Article

References (58)

1. American Heart Association. Heart Disease and Stroke Statistics: 2007 Update. Dallas, TX: American Heart Association; 2007.
2. Gheorghiade M, Filippatos G. Reassessing treatment of acute heart failure syndromes: the ADHERE Registry. Eur Heart J Suppl. 2005;7(suppl B):B13-B19.
3. Blackledge HM, Tomlinson J, Squire IB. Prognosis for patients newly admitted to hospital with heart failure: survival trends in 12 220 index admissions in Leicestershire 1993-2001. Heart. 2003;89:615-620.
4. Angus DC, Barnato AE, Linde-Zwirble WT, et al; Robert Wood Johnson Foundation ICU End-of-Life Peer Group. Use of intensive care at the end of life in the United States: an epidemiologic study. Crit Care Med. 2004;32(2):638-643.
5. Jaagosild P, Dawson NV, Thomas C, et al. Outcomes of acute exacerbation of severe congestive heart failure: quality of life, resource use, and survival. SUPPORT Investigators: the Study to Understand Prognosis and Preferences for Outcomes and Risks of Treatments. Arch Intern Med. 1998;158(10):1081-1089.
6. Lee DS, Austin PC, Rouleau JL, Liu PP, Naimark D, Tu J. Predicting mortality among patients hospitalized for heart failure: derivation and validation of a clinical model. JAMA. 2003;290(19):2581-2587.
7. Alla F, Briancon S, Juilliere Y, Mertes PM, Villemot JP, Zannad F. Differential clinical prognostic classifications in dilated and ischemic advanced heart failure: the EPICAL study. Am Heart J. 2000;139(5):895-904.
8. Huynh BC, Rovner A, Rich MW. Long-term survival in elderly patients hospitalized for heart failure: 14-year follow-up from a prospective randomized trial. Arch Intern Med. 2006;166(17):1892-1898.
9. Fonarow GC, Adams KF Jr, Abraham WT, Yancy CW, Boscardin WJ; ADHERE Scientific Advisory Committee, Study Group, and Investigators. Risk stratification for in-hospital mortality in heart failure using classification and regression tree (CART) methodology. JAMA. 2005;293:572-580.
10. Adams KF, Lindenfeld J, Arnold JMO, et al. Executive Summary: HFSA 2006 comprehensive heart failure practice guideline. J Card Fail. 2006;12(1):10-38.
11. Costanzo MR, Guglin ME, Saltzberg MT, et al. Ultrafiltration versus intravenous diuretics for patients hospitalized for acute decompensated heart failure [published correction appears in J Am Coll Cardiol. 2007;49(10):1136]. J Am Coll Cardiol. 2007;49(6):675-683.
12. Lynn J, Goldstein NE. Advance care planning for fatal chronic illness: avoiding commonplace errors and unwarranted suffering. Ann Intern Med. 2003;138(10): 812-818.
13. Wiegand DL, Kalowes PG. Withdrawal of cardiac medications and devices. AACN Adv Crit Care. 2007;18(4):415-425.
14. Holmes HM, Hayley DC, Alexander GC, Sachs GA. Reconsidering medication appropriateness for patients late in life. Arch Intern Med. 2006;166:605-609.
15. Levy MM. End-of-life care in the intensive care unit: can we do better? Crit Care Med. 2001;29(2 suppl):N56-N61.
16. Lilly CM, De Meo DL, Sonna LA, et al. An intensive communication intervention for the critically ill. Am J Med. 2000;109(6):469-475.
17. Lilly CM, Sonna LA, Haley KJ, Massaro AF. Intensive communication: four-year followup from a clinical practice study. Crit Care Med. 2003;31(5 suppl):S394-S399.
18. Norton SA, Tilden VP, Tolle SW, Nelson CA, Eggman ST. Life support withdrawal: communication and conflict. Am J Crit Care. 2003;12(6):548-555.
19. O'Callahan JG, Fink C, Pitts LH, Luce JM. Withholding and withdrawing of life support from patients with severe head injury. Crit Care Med. 1995;23:1567-1575.
20. Wiegand DL. Withdrawal of life-sustaining therapy after sudden, unexpected life-threatening illness or injury: interactions between patients' families, healthcare providers, and the healthcare system. Am J Crit Care. 2006;15(2):178-187.
21. Norton SA, Bowers BJ. Working toward consensus: providers' strategies to shift patients from curative to palliative treatment choices. Res Nurs Health. 2001;24(4):258-269.
22. Schneiderman LJ, Spragg RG. Ethical decisions in discontinuing mechanical ventilation. N Engl J Med. 1988;318:984-988.
23. Hall RI, Rocker GM, Murray D. Simple changes can improve conduct of end-of-life care in the intensive care unit. Can J Anaesth. 2004;51(6):631-636.
24. President's Commission for the Study of Ethical Problems in Medicine and Biomedical and Behavioral Research. Deciding to Forgo Life-Sustaining Treatment: A Report on Ethical, Medical and Legal Issues in Treatment Decisions. Washington, DC: US Government Printing Office, 1983.
25. Jacob DA. Family members' experiences with decision making for incompetent patients in the ICU: a qualitative study. Am J Crit Care. 1998;7(1):30-36.
26. Mayer SA, Kossoff SB. Withdrawal of life support in the neurological intensive care unit. Neurology. 1999;52:1602-1609.
27. Swigart V, Lidz C, Butterworth V, Robert A. Letting go: family willingness to forgo life support. Heart Lung. 1996;25(6):483-494.
28. Tilden VP, Tolle SW, Nelson CA, Fields J. Family decision-making to withdraw life-sustaining treatments from hospitalized patients. Nurs Res. 2001;50(2):105-115.
29. Tilden VP, Tolle SW, Nelson CA, Thompson M, Eggman SC. Family decision making in foregoing life-extending treatments. J Fam Nurs. 1999;5(4):426-442.
30. Braun KL, Onaka AT, Horiuchi BY. Advance directive completion rates and end-of-life preferences in Hawaii. J Am Geriatr Soc. 2001;49(21):1708-1713.
31. Hanson LC, Rodgman E. The use of living wills at the end of life: a national study. Arch Intern Med. 1996;156(9):1018-1022.
32. Jezewski MA, Meeker MA, Schrader M. Voices of oncology nurses: what is needed to assist patients with advance directives. Cancer Nurs. 2003;26(2):105-112.
33. McKinley ED, Garreth JM, Evans AT, Danis M. Differences in end-of-life decision making among back and white ambulatory cancer patients. J Gen Intern Med. 1996;11(11):651-656.
34. Azoulay E, Sprung C. Family-physician interactions in the intensive care unit. Crit Care Med. 2004;32(11):2323-2328.
35. Walter SD, Cook DJ, Guyatt GH, et al. Confidence in life-support decisions in the intensive care unit: a survey of healthcare workers. Canadian Critical Care Trials Group. Crit Care Med. 1998;26(1):44-49.
36. Rocker GM, Curtis JR. Caring for the dying in the intensive care unit: in search of clarity. JAMA. 2003;290(6):820-822.
37. Puntillo KA, Benner P, Drought T, et al. End-of-life issues in intensive care units: a national survey of nurses' knowledge and beliefs. Am J Crit Care. 2001;10(4):216-229.
38. Lynn J, Teno JM, Phillips RS, et al. Perceptions by family members of the dying experience of older and seriously ill patients. SUPPORT Investigators. Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments. Ann Intern Med. 1997;126(2):97-106.
39. Tolle SW, Tilden VP, Rosenfeld AG, Hickman SE. Family reports of barriers to optimal care of the dying. Nurs Res. 2000;49(6):310-317.
40. Campbell M, Bizek KS, Thrill M. Patient responses during rapid terminal weaning from mechanical ventilation: a prospective study. Crit Care Med. 1999;27(1):73-77.
41. Keenan SP, Busche KD, Chen LM, McCarthy L, Inman KJ, Sibbald WJ. A retrospective review of a large cohort of patients undergoing the process of withholding or withdrawal of life support. Crit Care Med. 1997;25(8):1324-1331.
42. Wilson, W, Smedira N, Fink C, McDowell J, Luce J. Ordering and administration of sedatives and analgesics during withholding and withdrawal of life support from critically ill patients. JAMA. 1992;267:949-953.
43. Faber-Langendoen K, Bartels D. Process of forgoing life-sustaining treatment in a university hospital: an empirical study. Crit Care Med. 1992;20:570-577.
44. Campbell M, Carlson RW. Terminal weaning from mechanical ventilation: ethical and practical considerations for patient management. Am J Crit Care. 1992;1:152-156.
45. Chan JD, Treece PD, Engelberg RA, et al. Narcotic and benzodiazepine use after withdrawal of life support: association with time to death? Chest. 2004;126:286-293.
46. Daly BJ, Thomas D, Dyer MA. Procedures used in withdrawal of mechanical ventilation. Am J Crit Care. 1996;5:331-338.
47. O'Mahony S, McHugh M, Zallman L, Selwyn P. Ventilator withdrawal: procedures and outcomes. Report of collaboration between a critical care division and a palliative care service. J Pain Symptom Manage. 2003;26(4):954-961.
48. Prendergast TJ. Withholding or withdrawal of life-sustaining therapy. Hosp Pract (Minneap). 2000;35(6):91-92, 95-100, 102.
49. Rubenfeld GD, Crawford SW. Withdrawing life support: practice and principles. Crit Care Alert. 1995;2:89-96.
50. Goodlin S. Report on consensus conference: Palliative and Supportive Care in Advanced Heart Failure. AAHPM Bull. 2003;3(2):1, 21-22.
51. Andrew CM. Optimizing the human experience: nursing the families of people who die in intensive care. Intensive Crit Care Nurs. 1997;3:59-65.
52. Kirchhoff KT, Conradt KL, Anumandla PR. ICU nurses' preparation of families for death of patients following withdrawal of ventilator support. Appl Nurs Res. 2003;16(2):85-92.
53. Heyland DK, Rocker GM, O'Callaghan CJ, Dodek PM, Cook DJ. Dying in the ICU: perspective of family members. Chest. 2003;124:392-397.
54. Levy CR, Ely W, Payne K, Engelberg RA, Patrick DL, Curtis JR. Quality of dying and death in two medical ICUs: perceptions of family and clinicians. Chest. 2005;127(5):1775-1783.
55. McClement SE, Degner LF. Expert nursing behaviors in care of the dying adult in the intensive care unit. Heart Lung. 1995;24:408-419.
56. Cist, AFM, Truog RD, Brackett SE, Hurford WE. Practical guidelines on the withdrawal of life-sustaining therapies. Int Anesthesiol Clin. 2001;39(3):87-102.
57. Warren NA. Critical care family members' satisfaction with bereavement experiences. Crit Care Nurs Q. 2002;25(2):54-60.
58. Nelson JE, Danis M. End-of-life care in the intensive care unit: where are we now? Crit Care Med. 2001;29(2 suppl):N2-N9.