Attitudes to genetic testing in families with multiple cases of bipolar disorder

Genetic Testing

Volumn 12, Issue 2, 2008, Pages 233-243

  Meiser, Bettina ^a,b   Kasparian, Nadine A ^a,b   Mitchell, Philip B ^a,b   Strong, Kimberly ^a   Simpson, Judy M ^c   Tabassum, Laila ^a,b   Mireskandari, Shab ^a,d   Schofield, Peter R ^b,e  

^a PRINCE OF WALES HOSPITAL   (Australia)

^b UNIVERSITY OF NEW SOUTH WALES   (Australia)

^c UNIVERSITY OF SYDNEY   (Australia)

^d UNIVERSITY OF NEW SOUTH WALES   (Australia)

^e NEUROSCIENCE RESEARCH AUSTRALIA   (Australia)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; AGED; ARTICLE; ATTITUDE TO HEALTH; BIPOLAR DISORDER; BIRTH; CONTROLLED STUDY; DISEASE COURSE; FAMILY; FEMALE; GENETIC SCREENING; GENETIC VARIABILITY; HUMAN; MAJOR CLINICAL STUDY; MAJOR DEPRESSION; MALE; MANIA; PRENATAL CARE; PRENATAL DIAGNOSIS; QUESTIONNAIRE; RISK ASSESSMENT; SCHIZOAFFECTIVE PSYCHOSIS;

ADULT; AGED; AGED, 80 AND OVER; ATTITUDE TO HEALTH; BIPOLAR DISORDER; FAMILY; FAMILY HEALTH; FEMALE; GENETIC COUNSELING; GENETIC PREDISPOSITION TO DISEASE; GENETIC SCREENING; HUMANS; MALE; MIDDLE AGED; PATIENT ACCEPTANCE OF HEALTH CARE; QUESTIONNAIRES; STEREOTYPING;

EID: 45549103587     PISSN: 10906576     EISSN: None     Source Type: Journal    
DOI: 10.1089/gte.2007.0100     Document Type: Article

References (44)

1. Adams L, Mitchell PB, Fielder SL, Rosso A, Donald JA, Schofield P (1998) A susceptibility locus for bipolar affective disorder on chromosome 4q35. Am J Hum Genet 62:1084-1091.
2. Ajzen I, Fishbein M (1980) Understanding Attitudes and Predicting Social Behaviour. Prentice-Hall, Englewood Cliffs, NJ.
3. American Society of Human Genetics Board of Directors - American College of Medical Genetics Board of Directors (1995) Points to consider: ethical, legal, and psychosocial implications of genetic testing in children and adolescents. Am J Hum Genet 57:1233-1241.
4. Australian Bureau of Statistics (2001) 2001 Census Basic Community Profile and Snapshot. Canberra: Australian Bureau of Statistics.
5. Badenhop R, Moses M, Scimone A, Mitchell P, Ewen K, Rosso A, Donald J, Adams L, Schofield P (2001) A genome screen of a large bipolar affective disorder pedigree supports evidence for a susceptibility locus on chromosome 13q. Mol Psychiatry 6:396-403.
6. Baron M (2002) Manic-depression genes and the new millennium: poised for discovery. Mol Psychiatry 7:342-358.
7. Craufurd D, Binchy A, Evans G (1996) Uptake and impact of predictive testing - a comparison of breast-ovarian cancer and Huntington's disease. 5th European Meeting on Psychosocial Aspects of Genetics. Rome, Italy.
8. Craufurd D, Dodge A, Kerzin-Storrar L, Harris R (1989) Uptake of presymptomatic predictive testing for Huntington's disease. Lancet 8663:6035.
9. Decruyenaere M, Evers-Kiebooms G, Boogaerts A (1995) Predictive testing for Huntington's disease: risk perception, reasons for testing and psychological profile of test applicants. Genet Couns 6:1-13.
10. Evers Kiebooms G, Cassiman JJ, van den Berghe H (1987) Attitudes towards predictive testing in Huntington's disease: a recent survey in Belgium. J Med Genet 24:275-279.
11. Fishbein M, Ajzen I (1975) Belief, Attitude, Intention, and Behaviour: An Introduction to Theory and Research. Addison-Wesley, Reading, MA.
12. Hardeman W, Johnston M, Johnston D, Bonetti D, Wareham N, Kinmonth A (2002) Application of the theory of planned behaviour in behaviour change interventions: a systematic review. Psychol Health 17:123-158.
13. Human Genetics Society of Australasia (2005) Presymptomatic and predictive testing for genetic disorders.
14. Jacopini GA, D'Amico R, Frontali M, Vivona G (1992) Attitudes of persons at risk and their partners toward predictive testing. In: Evers-Kiebooms G, Fryns JP, Cassiman JJ, van den Berghe H (eds) Psychosocial Aspects of Genetic Counseling. Wiley-Liss, NY, pp 113-117.
15. Jones I, Scourfield J, McCandless F, Craddock N (2002) Attitudes towards future testing for bipolar disorder susceptibility genes: a preliminary investigation. J Affect Disord 71:189-193.
16. Kessler R, Berglund P, Demler O, Jin R, Merikangas K, Walters E (2005) Lifetime prevalence and age-of-onset distributions of DSM-IV disorders on the National Comorbidity Survey Replication. Arch Gen Psychiatry 62:593-602.
17. Lerman C, Croyle R, Tercyak K, Hamann H (2002) Genetic testing: psychological aspects and implications. J Consult Clin Psychol 70:784-797.
18. Lerman C, Daly M, Masny A, Balshem A (1994) Attitudes about genetic testing for breast-ovarian cancer susceptibility. J Clin Oncol 12:843-850.
19. Lerman C, Narod S, Schulman K, Hughes C, Gomez-Caminero A, Bonney G, Gold K, Trock B, Main D, Lynch J, Fulmore C, Snyder C, Lemon SJ, Conway T, Tonin P, Lenoir G, Lynch H (1996) BRCA1 testing in families with hereditary breast-ovarian cancer. JAMA 275:1885-1892.
20. Lerman C, Seay J, Balshem A, Audrain J (1995) Interest in genetic testing among first-degree relatives of breast cancer patients. Am J Med Genet 57:385-392.
21. Link B ( 1987) Understanding labeling effects in the area of mental disorders: an assessment of the effects of expectations of rejection. Am Sociol Rev 52:96-112.
22. Link B, Yang L, Phelan J, Collins P (2004) Measuring mental illness stigma. Schizophr Bull 30:511-541.
23. Lynch HT, Lemon SJ, Durham C, Tinley ST, Connolly C, Lynch JF, Surdam J, Orinion E, Slominski-Caster S, Watson P, Lerman C, Tonin P, Lenoir G, Serova O, Narod S (1997) A descriptive study of BRCA1 testing and reactions to disclosure of testing results. Cancer 79:2219-2228.
24. Mastromauro C, Myers RH, Berkman B (1987) Attitudes toward presymptomatic testing in Huntington's disease. Am J Med Genet 26:271-282.
25. McQueen M, Devlin B, Faraone S, et al. (2005) Combined analysis from eleven linkage studies on bipolar disorder provides strong evidence of susceptibility loci on chromosomes 6q and 8q. Am J Hum Genet 77:582-595.
26. Mechanic D, McAlpine D, Rosenfield S, Davis D (1994) Effects of illness attribution and depression of the quality of life among persons with serious mental illness. Soc Sci Med 39:155-164.
27. Meiser B (2005) Psychological impact of genetic testing for cancer susceptibility: an update of the literature. Psychooncology 14:1060-1074.
28. Meiser B, Dunn SM (2000) Psychological impact of genetic testing for Huntington disease: an update of the literature for clinicians. J Neurol Neurosurg Psychiatry 69:574-578.
29. Meiser B, Butow P, Barratt A, Suthers G, et al. (2000) Attitudes to genetic testing for breast cancer susceptibility in women at increased risk of developing hereditary breast cancer. J Med Genet 37:472-476.
30. Meiser B, Mitchell P, Kasparian N, Strong K, Simpson J, Mireskandari S, Tabassum L, Schofield P (2007) Attitudes towards childbearing, causal attributions for bipolar disorder and psychological distress: a study of families with multiple cases of bipolar disorder. Psychol Med 37:1601-1612.
31. Meiser B, Mitchell P, McGirr H, Van Herten M, Schofield P (2005) Implications of genetic risk information in families with a high density of bipolar disorder: an exploratory study. Soc Sci Med 60:109-118.
32. National Institute of Mental Health (1992) NIMH Genetics Initiative: Family Interview for Genetic Studies (FIGS). Rockville, MD.
33. Nuffield Council on Bioethics (1998) Mental Disorders and Genetics: The Ethical Context. Nuffield Council on Bioethics, London, UK.
34. Nurnberger J, Blehar M, Kaufmann C, York-Cooler C, Simpson S, Harkavy-Friedman J, Severe J, Malaspina D, Reich T (1994) Diagnostic interview for genetic studies. Rationale, unique features, and training. NIHM Genetics Initiative. Arch Gen Psychiatry 51:849-859.
35. Redfield Jamison K (1994) Touched with Fire. Simon & Schuster, NY.
36. Reus V, Freimer N (1997) Understanding the genetic basis of mood disorders: where do we stand? Am J Hum Genet 60:1283-1288.
37. Science and Technology Committee (1995) Human Genetics: Science and its Consequences. House of Commons, London.
38. Seguardo R, Detera-Wadleigh S, Levinson D, et al. (2003) Genome scan meta-analysis of schizophrenia and bipolar disorder, Part III: bipolar disorder. Am J Hum Genet 73:49-62.
39. Smith LB, Sapers B, Reus VI, Freimer NB (1996) Attitudes towards bipolar disorder and predictive testing among patients and providers. J Med Genet 33:544-549.
40. Struewing JP, Lerman C, Kase RG, Giambarresi TR, Tucker MA (1995) Anticipated uptake and impact of genetic testing in hereditary breast and ovarian cancer. Cancer Epidemiol Biomarkers Prev 4:169-173.
41. Trippitelli CL, Jamison KR, Folstein MF, Bartko JJ, DePaulo JR (1998) Pilot study on patients' and spouses' attitudes toward potential genetic testing for bipolar disorder. Am J Psychiatry 155:899-904.
42. Wertz D, Fanos JH, Reilly PR (1994) Genetic testing for children and adolescents: who decides? JAMA 272:875-881.
43. Westbrook MT, Legge V, Pennay M (1993) Attitudes towards disability in a multicultural society. Soc Sci Med 36:615-623.
44. Zeger SL, Liang KY (1986) Longitudinal data for discrete and continuous outcomes. Biometrics 42:121-130.