Exploring the role of partnership in the home care of children with special health needs: Qualitative findings from two service evaluations

International Journal of Nursing Studies

Volumn 45, Issue 5, 2008, Pages 714-726

  McIntosh, Jean ^a   Runciman, Phil ^a  

^a GLASGOW CALEDONIAN UNIVERSITY   (United Kingdom)

Author keywords

Children with complex health needs; Community paediatric nursing; Partnership

Indexed keywords

ARTICLE; ATTITUDE TO HEALTH; BIOMEDICAL TECHNOLOGY ASSESSMENT; CHILD; COMMUNITY HEALTH NURSING; COOPERATION; COST OF ILLNESS; EDUCATION; EVALUATION; FEMALE; HANDICAPPED CHILD; HEALTH PERSONNEL ATTITUDE; HEALTH SERVICE; HOME CARE; HUMAN; HUMAN RELATION; MALE; MENTAL STRESS; NURSE ATTITUDE; NURSING EVALUATION RESEARCH; NURSING METHODOLOGY RESEARCH; ORGANIZATION AND MANAGEMENT; PARENT; PEDIATRIC NURSING; PSYCHOLOGICAL ASPECT; QUALITATIVE RESEARCH; QUESTIONNAIRE; SELF CONCEPT; SOCIAL SUPPORT; TRUST; UNITED KINGDOM;

ATTITUDE OF HEALTH PERSONNEL; ATTITUDE TO HEALTH; CHILD; COMMUNITY HEALTH NURSING; COOPERATIVE BEHAVIOR; COST OF ILLNESS; DISABLED CHILDREN; FEMALE; HEALTH SERVICES NEEDS AND DEMAND; HOME CARE SERVICES; HUMANS; MALE; NURSE'S ROLE; NURSING EVALUATION RESEARCH; NURSING METHODOLOGY RESEARCH; PARENTS; PEDIATRIC NURSING; PROFESSIONAL-FAMILY RELATIONS; QUALITATIVE RESEARCH; QUESTIONNAIRES; SCOTLAND; SELF EFFICACY; SOCIAL SUPPORT; STRESS, PSYCHOLOGICAL; TECHNOLOGY, HIGH-COST; TRUST;

EID: 43649093030     PISSN: 00207489     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.ijnurstu.2006.12.012     Document Type: Article

References (46)

1. In: Balloch S., and Taylor M. (Eds). Partnership Working. Policy and Practice (2001), The Policy Press, Bristol
2. Bidmead C., and Cowley S. A concept analysis of partnership with clients. Community Practitioner 78 6 (2005) 203-208
3. Casey A. A partnership with child and family. Senior Nurse 8 4 (1988) 8-9
4. Casey A. Development and use of the partnership model of nursing care. In: Glasper A., and Tucker A. (Eds). Advances in Child Health Nursing (1993), Scutari Press, London
5. Committee on Child Health Services. Fit for the Future (The Court Report) (1976), HMSO, London
6. Coyne I.T. Parent participation: a concept analysis. Journal of Advanced Nursing 23 (1996) 733-740
7. Danvers L., Freshwater D., Cheater F., and Wilson A. Diana, Princess of Wales Children's Community Team: an evaluation of a multi-professional service for children with life-limiting illnesses. NT Research 7 3 (2002) 187-198
8. Danvers L., Freshwater D., Cheater F., and Wilson A. Providing a seamless service for children with life-limiting illness: experiences and recommendations of professional staff at the Diana Princess of Wales Children's Community Service. Journal of Clinical Nursing 12 (2003) 351-359
9. Department of Health. Child Health in the Community: A Guide to Good Practice (1996), Department of Health, London
10. Department of Health. National Service Framework for Children, Young People and Maternity Services: Disabled Children and Young People and Those with Complex Health Needs (2004), The Stationery Office, London
11. Department of Health NHS Executive Health Services Directorate. Evaluation of the Pilot Project Programme for Children with Life Threatening Illnesses (1998), HMSO, London
12. Dunst C.J., Trivette C.M., and Deal A.G. Enabling and Empowering Families. Principles and Guidelines for Practice (1988), Brookline Books, Cambridge, MA
13. In: Dunst C.J., Trivette C.M., and Deal A.G. (Eds). Supporting and Strengthening Families. Methods, Strategies and Practices vol. 1 (1994), Brookline Books, Cambridge, MA
14. Feeg V.D. Initiative to improve the care of children with life threatening illnesses: an Interview with Senator Mike DeWine (R-OH). Pediatric Nursing 31 3 (2005) 232-233
15. Feudtner C., Silviera M.J., and Christakis D.A. Where do children with complex chronic conditions die? Patterns in Washington State 1980-1998. Pediatrics 109 4 (2002) 656-660
16. Gabe J., Olumide G., and Bury M. 'It takes three to tango': a framework for understanding patient partnership in paediatric clinics. Social Science & Medicine 59 (2004) 1071-1079
17. Gallant M.H., Beaulieu M.C., and Carnevale F.A. Partnership: an analysis of the concept within the nurse-client relationship. Journal of Advanced Nursing 40 2 (2002) 149-157
18. Glendinning C., Kirk S., Guiffreda A., and Lawton D. Technology-dependent children in the community: definitions, numbers and costs. Child: Health Care and Development 27 4 (2001) 321-334
19. Haas D.L., Gray H.B., and McConnell B. Parent/professional partnerships in caring for children with special health care needs. Issues in Comprehensive Pediatric Nursing 15 Part 1 (1992) 39-53
20. Heaton J., Noyes J., Sloper P., and Shah R. Families' experiences of caring for technology-dependent children: a temporal perspective. Health and Social Care in the Community 13 5 (2005) 441-450
21. Hewitt-Taylor J. Caring for children with complex and continuing health needs. Nursing Standard 19 42 (2005) 41-47
22. Horrocks S., Somerset M., and Salisbury C. Do children with non-malignant life-threatening conditions receive effective palliative care? A pragmatic evaluation of a local service. Palliative Medicine 16 (2002) 410-416
23. Horsburgh M., Trenholme A., and Huckle T. Paediatric respite care: a literature review from New Zealand. Palliative Medicine 16 (2002) 99-105
24. Kemper E.A., Stringfield S., and Teddlie C. Mixed methods sampling strategies in Social Science Research. In: Tachakkori A., and Teddlie C. (Eds). Handbook of Mixed Methods in Social and Behavioral Research (2003), Sage, London 273-296 (Chapter 10)
25. Kirk S. Families' experiences of caring at home for a technology-dependent child: a review of the literature. Child: Care, Health and Development 24 2 (1998) 101-114
26. Kirk S., and Glendinning C. Trends in community care and patient participation: implications for the roles of informal carers and community nurses in the United Kingdom. Journal of Advanced Nursing 28 2 (1998) 370-381
27. Kirk S., and Glendinning C. Developing services to support parents caring for a technology-dependent child at home. Child: Care, Health and Development 30 3 (2004) 209-218
28. Lee P. Partnership: what does it mean?. Journal of Child Health Care 3 4 (1999) 28-32
29. Lenton S., Franck L., and Salt A. Children with complex health needs: supporting the child and family in the community. Editorial Child: Care, Health and Development 30 3 (2004) 191-192
30. Lightfoot J., Mukherjee S., and Sloper P. Supporting pupils with special health needs in mainstream schools: policy and practice. Children and Society 15 (2001) 57-69
31. Margolan H., Fraser J., and Lenton S. Parental experience of services when their child requires long-term ventilation. Implications for commissioning and providing services. Child: Care, Health and Development 30 3 (2004) 257-264
32. McIntosh J., and McGuinness C. Evaluation of the New Opportunities Fund Supported New Service for Palliative Respite Care for Children (2006), Unpublished Report, Glasgow Caledonian University
33. In: McLeod W.T. (Ed). The New Collins Dictionary and Thesaurus (1990), Collins, London and Glasgow
34. Mitchell W., and Sloper P. Quality in services for disabled children and their families: what can theory, policy and research in children's and parents' views tell us?. Children and Society 15 (2001) 237-252
35. NHS Executive. Evaluation of the Pilot Project Programme for Children with Life Threatening Illness (1997), NHSE, Leeds
36. NHS Executive. Diana Community Children's Nursing Teams. Health Service Circular 1998/201 (1998), NHS Executive, London
37. Olsen R., and Maslin-Prothero P. Dilemmas in the provision of own-home respite support for parents of young children with complex health care needs: evidence from an evaluation. Journal of Advanced Nursing 34 95 (2001) 603-610
38. Patton M.Q. Qualitative Research and Evaluation Methods. third ed (2002), Sage, London
39. Pelchat D., and Lefebvre H. A holistic intervention programme for families with a child with a disability. Journal of Advanced Nursing 48 2 (2004) 124-131
40. Runciman P., and McIntosh J. Family and Agency Members' Perceptions of the PATCH Service-Partnership and Training Supporting Children at Home (2002), Unpublished Report, Glasgow Caledonian University
41. Scottish Executive Health Department. Delivering a Healthy Future: An Action Framework for Children and Young People's Health in Scotland: Draft for Consultation (2006), Scottish Executive, Edinburgh
42. Sloper P. Models of service support for parents of disabled children. What do we know? What do we need to know?. Child: Care, Health and Development 25 (1999) 85-99
43. Wagner J., Power E.J., and Fox H. Technology-Dependent Children: Hospital Versus Home Care. Office of Technology Assessment Task Force (1988), JP Lippincott, Philadelphia
44. Wang K.K., and Barnard A. Technology-dependent children and their families: a review. Journal of Advanced Nursing 45 91 (2004) 36-46
45. Watson D., Townsley R., and Abbott D. Exploring multi-agency working in services to disabled children with complex healthcare needs and their families. Journal of Clinical Nursing 11 (2002) 367-375
46. While A.E., Cockett A.M., and Lewis S. Children and young people requiring home assisted ventilation in the South of England: incidence, receipt of care support and components of the care package. Children and Society 18 (2004) 207-217