Parental experience of services when their child requires long-term ventilation. Implications for commissioning and providing services

Child: Care, Health and Development

Volumn 30, Issue 3, 2004, Pages 257-264

  Margolan, H ^a   Fraser, J ^b   Lenton, Simon ^c  

^a Lifetime Service   (United Kingdom)

^b BRISTOL ROYAL HOSPITAL FOR CHILDREN   (United Kingdom)

^c Child Health Department   (United Kingdom)

Author keywords

Commissioning; Community children's nursing; Hospital discharge planning; Long term ventilation

Indexed keywords

ACCESS TO INFORMATION; ADOLESCENT; ADULT; ARTICLE; ARTIFICIAL VENTILATION; CHILD; CHILD HEALTH CARE; COMMUNITY CARE; CONTROLLED STUDY; EDUCATION; EXPERIENCE; FACE MASK; FAMILY STUDY; GOOD CLINICAL PRACTICE; HEALTH CARE AVAILABILITY; HEALTH CARE DELIVERY; HEALTH CARE FINANCING; HEALTH CARE NEED; HEALTH CARE QUALITY; HOME CARE; HOSPITAL DISCHARGE; HOUSING; HUMAN; INCOME; INTERVIEW; LONG TERM CARE; MEDICAL INSTRUMENTATION; MORBIDITY; NURSING STAFF; PARENTAL BEHAVIOR; PREVALENCE; PRIORITY JOURNAL; QUESTIONNAIRE; SOCIAL ISOLATION; TRACHEOSTOMY; UNEMPLOYMENT; UNITED KINGDOM;

ADULT; CAREGIVERS; CHILD; CHILD HEALTH SERVICES; COMMUNITY HEALTH NURSING; COST OF ILLNESS; DELIVERY OF HEALTH CARE; DISABLED CHILDREN; ENGLAND; HEALTH CARE SURVEYS; HOME NURSING; HUMANS; PARENTS; PATIENT DISCHARGE; RESPIRATION, ARTIFICIAL;

EID: 2642580705     PISSN: 03051862     EISSN: None     Source Type: Journal    
DOI: 10.1111/j.1365-2214.2004.00414.x     Document Type: Article

References (12)

1. Capen, C. & Dedlow, E. (1998) Discharging ventilator dependent children: a continuing challenge. Journal of Pediatric Nursing, 13, 175-184.
2. Department of Health (2000) The NHS Plan 2000. DoH, HMSO, London, UK.
3. Dougherty, J. M., Parrish, J. M. & Hock-Long, L. (1995) Part II using a competency-based curriculum to train experienced nurses in ventilator care. Pediatric Nursing, 21, 584-581.
4. Fraser, J. (1998) Prolonged mechanical ventilation consequence of acute illness. Archives of Disease in Childhood, 78, 253-256.
5. Fraser, J., Mok, Q. & Tasker, R. (1997) Survey of occupancy of paediatric intensive care units by children who are dependent on ventilator's. British Medical Journal, 315, 347-348.
6. Glendinning, C., Kirk, S., Giuffrida, A. & Lawton, D. (1999) Community Based care of technology Dependent Children in the UK. Definitions, Numbers and Costs. DoH Research Report Commissioned by the Social care Group. National Primary Research & Development Centre, University of Manchester, UK.
7. Henderson, J., Beckley, S., England, K., Booth, W. & Fleming, P. (2000) Organising ventilation at home. Current Paediatrics, 10, 18-21.
8. Hill, D. (1993) Coordinating a multidisciplinary tea discharge for the technology dependent child based on parental needs. Issues in Comprehensive Nursing, 11, 229-237.
9. Jardine, E. & Wallis, C. (1998) Core guidelines for the discharge home of the child on long term ventilation in the United Kingdom. Thorax, 53, 763-767.
10. Kirk, S. & Glendinning, C. (1999) Supporting Parents caring for Technology Dependent Children. DoH's Supporting parents research Initiative. National Primary Care Research & Development Centre, University of Manchester, UK.
11. Rhodes, A. (1999) Promoting Partnership. Barnados, London, UK.
12. United Nations (1989) UN Convention on the Rights of the Child.