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Volumn 18, Issue 4, 2008, Pages 335-341

Information Disclosure in Population-Based Research Involving Genetics: A Framework for the Practice of Ethics in Epidemiology

Author keywords

Beneficence; Bioethics; Disclosure; Epidemiology; Genetic Research; Information Dissemination; Informed Consent; Personal Autonomy; Principle Based Ethics

Indexed keywords

APOLIPOPROTEIN E;

EID: 40949099575     PISSN: 10472797     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.annepidem.2007.10.003     Document Type: Article
Times cited : (13)

References (34)
  • 1
    • 2542423783 scopus 로고    scopus 로고
    • Society and ethics-the genetics of disease
    • Thomas S.M. Society and ethics-the genetics of disease. Curr Opin Genet Dev 14 (2004) 287-291
    • (2004) Curr Opin Genet Dev , vol.14 , pp. 287-291
    • Thomas, S.M.1
  • 2
    • 0033146622 scopus 로고    scopus 로고
    • Genetic knowledge and third-party interests
    • Boetzkes E. Genetic knowledge and third-party interests. Camb Q Healthc Ethics 8 (1999) 386-392
    • (1999) Camb Q Healthc Ethics , vol.8 , pp. 386-392
    • Boetzkes, E.1
  • 3
    • 33750388916 scopus 로고    scopus 로고
    • The emergence of an ethical duty to disclose genetic research results: international perspectives
    • Knoppers B.M., Joly Y., Simard J., and Durocher F. The emergence of an ethical duty to disclose genetic research results: international perspectives. Eur J Hum Genet 14 (2006) 1170-1178
    • (2006) Eur J Hum Genet , vol.14 , pp. 1170-1178
    • Knoppers, B.M.1    Joly, Y.2    Simard, J.3    Durocher, F.4
  • 4
    • 33750631748 scopus 로고    scopus 로고
    • Disclosing individual genetic results to research participants
    • Ravitsky V., and Wilfond B.S. Disclosing individual genetic results to research participants. Am J Bioeth 6 (2006) 8-17
    • (2006) Am J Bioeth , vol.6 , pp. 8-17
    • Ravitsky, V.1    Wilfond, B.S.2
  • 5
    • 33750629796 scopus 로고    scopus 로고
    • Response to open peer commentaries on "Disclosing individual genetic results to research participants": defining clinical utility and revisiting the role of relationships
    • Ravitsky V., and Wilfond B. Response to open peer commentaries on "Disclosing individual genetic results to research participants": defining clinical utility and revisiting the role of relationships. Am J Bioeth 6 (2006) W10-W12
    • (2006) Am J Bioeth , vol.6
    • Ravitsky, V.1    Wilfond, B.2
  • 6
    • 33750610480 scopus 로고    scopus 로고
    • Considering the nature of individual research results
    • Beskow L.M. Considering the nature of individual research results. Am J Bioeth 6 (2006) 38-40
    • (2006) Am J Bioeth , vol.6 , pp. 38-40
    • Beskow, L.M.1
  • 7
    • 33750620963 scopus 로고    scopus 로고
    • Thresholds and boundaries in the disclosure of individual genetic research results
    • Dressler L.G., and Juengst E.T. Thresholds and boundaries in the disclosure of individual genetic research results. Am J Bioeth 6 (2006) 18-20
    • (2006) Am J Bioeth , vol.6 , pp. 18-20
    • Dressler, L.G.1    Juengst, E.T.2
  • 8
    • 33750620340 scopus 로고    scopus 로고
    • Relationships with test-tubes: where's the reciprocity?
    • Fryer-Edwards K., and Fullerton S.M. Relationships with test-tubes: where's the reciprocity?. Am J Bioeth 6 (2006) 36-38
    • (2006) Am J Bioeth , vol.6 , pp. 36-38
    • Fryer-Edwards, K.1    Fullerton, S.M.2
  • 9
    • 33750620339 scopus 로고    scopus 로고
    • Obligations in offering to disclose genetic research results
    • Fernandez C.V., and Weijer C. Obligations in offering to disclose genetic research results. Am J Bioeth 6 (2006) 44-46
    • (2006) Am J Bioeth , vol.6 , pp. 44-46
    • Fernandez, C.V.1    Weijer, C.2
  • 10
    • 33750613783 scopus 로고    scopus 로고
    • Questions, complexities, and limitations in disclosing individual genetic results
    • Klitzman R. Questions, complexities, and limitations in disclosing individual genetic results. Am J Bioeth 6 (2006) 34-36
    • (2006) Am J Bioeth , vol.6 , pp. 34-36
    • Klitzman, R.1
  • 11
    • 33750613452 scopus 로고    scopus 로고
    • Taking our obligations to research participants seriously: disclosing individual results of genetic research
    • Manolio T.A. Taking our obligations to research participants seriously: disclosing individual results of genetic research. Am J Bioeth 6 (2006) 32-34
    • (2006) Am J Bioeth , vol.6 , pp. 32-34
    • Manolio, T.A.1
  • 12
    • 33750624177 scopus 로고    scopus 로고
    • Undesirable implications of disclosing individual genetic results to research participants
    • Meltzer L.A. Undesirable implications of disclosing individual genetic results to research participants. Am J Bioeth 6 (2006) 28-30
    • (2006) Am J Bioeth , vol.6 , pp. 28-30
    • Meltzer, L.A.1
  • 13
    • 33750627321 scopus 로고    scopus 로고
    • Disclosing genetic research results: examples from practice
    • Ormond K.E. Disclosing genetic research results: examples from practice. Am J Bioeth 6 (2006) 30-32
    • (2006) Am J Bioeth , vol.6 , pp. 30-32
    • Ormond, K.E.1
  • 14
    • 33750628750 scopus 로고    scopus 로고
    • Letting the gene out of the bottle: a comment on returning individual research results to participants
    • Ossorio P.N. Letting the gene out of the bottle: a comment on returning individual research results to participants. Am J Bioeth 6 (2006) 24-25
    • (2006) Am J Bioeth , vol.6 , pp. 24-25
    • Ossorio, P.N.1
  • 15
    • 33750618070 scopus 로고    scopus 로고
    • Tiered disclosure options promote the autonomy and well-being of research subjects
    • Rothstein M.A. Tiered disclosure options promote the autonomy and well-being of research subjects. Am J Bioeth 6 (2006) 20-21
    • (2006) Am J Bioeth , vol.6 , pp. 20-21
    • Rothstein, M.A.1
  • 16
    • 33750625575 scopus 로고    scopus 로고
    • Clinical utility and full disclosure of genetic results to research participants
    • Sharp R.R., and Foster M.W. Clinical utility and full disclosure of genetic results to research participants. Am J Bioeth 6 (2006) 42-44
    • (2006) Am J Bioeth , vol.6 , pp. 42-44
    • Sharp, R.R.1    Foster, M.W.2
  • 17
    • 33750611619 scopus 로고    scopus 로고
    • When do genetic researchers have a duty to recontact study participants?
    • Wade C.H., and Kalfoglou A.L. When do genetic researchers have a duty to recontact study participants?. Am J Bioeth 6 (2006) 26-27
    • (2006) Am J Bioeth , vol.6 , pp. 26-27
    • Wade, C.H.1    Kalfoglou, A.L.2
  • 18
    • 0000387769 scopus 로고    scopus 로고
    • Autonomy
    • Reich W.T. (Ed), Simon & Schuster Macmillan, New York
    • Miller B. Autonomy. In: Reich W.T. (Ed). Encyclopedia of bioethics (1996), Simon & Schuster Macmillan, New York 215-220
    • (1996) Encyclopedia of bioethics , pp. 215-220
    • Miller, B.1
  • 19
    • 0003713743 scopus 로고
    • The National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research. The Belmont Report
    • Accessed May 8, 2007
    • The National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research. The Belmont Report. Ethical Principles and Guidelines for the Protection of Human Subjects of Research (1979). http://ohsr.od.nih.gov/guidelines/belmont.html Accessed May 8, 2007
    • (1979) Ethical Principles and Guidelines for the Protection of Human Subjects of Research
  • 21
    • 85007688452 scopus 로고    scopus 로고
    • Nuffield Council on Bioethics
    • Accessed May 8, 2007
    • Nuffield Council on Bioethics. Mental disorders and genetics: the ethical context (1998). http://www.nuffieldbioethics.org/fileLibrary/pdf/mentaldisorders2001.pdf Accessed May 8, 2007
    • (1998) Mental disorders and genetics: the ethical context
  • 22
    • 12744274912 scopus 로고    scopus 로고
    • Research in human genetics: the tension between doing no harm and personal autonomy
    • Pelias M.K. Research in human genetics: the tension between doing no harm and personal autonomy. Clin Genet 67 (2005) 1-5
    • (2005) Clin Genet , vol.67 , pp. 1-5
    • Pelias, M.K.1
  • 23
    • 84985257193 scopus 로고
    • Issues in preparing ethical guidelines for epidemiological studies
    • Dickens B.M. Issues in preparing ethical guidelines for epidemiological studies. Law Med Health Care 19 (1991) 175-183
    • (1991) Law Med Health Care , vol.19 , pp. 175-183
    • Dickens, B.M.1
  • 24
    • 40949147055 scopus 로고    scopus 로고
    • Ethics: a primer for non-ethicists
    • Wertz D.C. Ethics: a primer for non-ethicists. Genet Res 10 (1996) 5-8
    • (1996) Genet Res , vol.10 , pp. 5-8
    • Wertz, D.C.1
  • 25
    • 40949114254 scopus 로고    scopus 로고
    • The ethics of using secondary data for record linkage in epidemiology: is informed consent always required?
    • Côté P., Mustard C., and Frank J. The ethics of using secondary data for record linkage in epidemiology: is informed consent always required?. IWH Working Paper Series (2001)
    • (2001) IWH Working Paper Series
    • Côté, P.1    Mustard, C.2    Frank, J.3
  • 26
    • 0042855876 scopus 로고    scopus 로고
    • Ethical, legal, and social implications of genomic medicine
    • Clayton E.W. Ethical, legal, and social implications of genomic medicine. N Engl J Med 349 (2003) 562-569
    • (2003) N Engl J Med , vol.349 , pp. 562-569
    • Clayton, E.W.1
  • 27
    • 2342532980 scopus 로고    scopus 로고
    • Physicians, genetics and life insurance
    • Knoppers B.M., and Joly Y. Physicians, genetics and life insurance. CMAJ 170 (2004) 1421-1423
    • (2004) CMAJ , vol.170 , pp. 1421-1423
    • Knoppers, B.M.1    Joly, Y.2
  • 28
    • 0035679044 scopus 로고    scopus 로고
    • Informed consent and other ethical issues in human population genetics
    • Greely H.T. Informed consent and other ethical issues in human population genetics. Annu Rev Genet 35 (2001) 785-800
    • (2001) Annu Rev Genet , vol.35 , pp. 785-800
    • Greely, H.T.1
  • 29
    • 0035089993 scopus 로고    scopus 로고
    • Genetic testing for late-onset Alzheimer's Disease
    • AGS Ethics Committee. Genetic testing for late-onset Alzheimer's Disease. J Am Geriatr Soc 49 (2001) 225-226
    • (2001) J Am Geriatr Soc , vol.49 , pp. 225-226
    • AGS Ethics Committee1
  • 30
    • 0029944411 scopus 로고    scopus 로고
    • National Institute on Aging/Alzheimer's Association Working Group. Apolipoprotein E genotyping in Alzheimer's disease
    • National Institute on Aging/Alzheimer's Association Working Group. Apolipoprotein E genotyping in Alzheimer's disease. Lancet 347 (1996) 1091-1095
    • (1996) Lancet , vol.347 , pp. 1091-1095
  • 31
    • 0038721051 scopus 로고    scopus 로고
    • Selective justice, genetic discrimination, and insurance: should we single out genes in our laws?
    • Lemmens T. Selective justice, genetic discrimination, and insurance: should we single out genes in our laws?. McGill Law J 45 (2000) 347-412
    • (2000) McGill Law J , vol.45 , pp. 347-412
    • Lemmens, T.1
  • 34
    • 0027480960 scopus 로고
    • A novel gene containing a trinucleotide repeat that is expanded and unstable on Huntington disease chromosomes
    • Huntington Disease Collaborative Research Group
    • Huntington Disease Collaborative Research Group. A novel gene containing a trinucleotide repeat that is expanded and unstable on Huntington disease chromosomes. Cell 72 (1993) 971-983
    • (1993) Cell , vol.72 , pp. 971-983


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