ANONYMOUS TESTING;
BENEFICENCE;
DUTY TO RECONTACT;
ETHICS;
GENETICS;
HUMAN;
HUMAN RELATION;
INTERPERSONAL COMMUNICATION;
METHODOLOGY;
MORALITY;
NOTE;
PERSONNEL;
RESEARCH ETHICS;
RESEARCH SUBJECT;
ANONYMOUS TESTING;
BENEFICENCE;
DUTY TO RECONTACT;
ETHICS, RESEARCH;
GENETIC RESEARCH;
HUMANS;
MORAL OBLIGATIONS;
RESEARCH DESIGN;
RESEARCH PERSONNEL;
RESEARCH SUBJECTS;
RESEARCHER-SUBJECT RELATIONS;
TRUTH DISCLOSURE;
National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research. Washington, DC: U.S. Government Printing Office
National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research. 1979. The Belmont Report: Ethical principles and guidelines for the protection of human subjects of research. Washington, DC: U.S. Government Printing Office.
Office of Human Research Protections. Available online at (accessed July 24, 2006)
Office of Human Research Protections. 2004. Guidance on research involving coded private information or biological specimens. Available online at http://www.hhs.gov/ohrp/humansubjects/guidance/cdebiol.pdf (accessed July 24, 2006).
Clinical utility and full disclosure of genetic results to research participants
Sharp, R. R., and M. W. Foster. 2006. Clinical utility and full disclosure of genetic results to research participants. American Journal of Bioethics 6(6): 42-44.
Confounding, ascertainment bias, and the blind quest for a genetic 'fountain of youth'
Terwilliger, J. D., and K. M. Weiss. 2003. Confounding, ascertainment bias, and the blind quest for a genetic 'fountain of youth.' Annals of Medicine 35(7): 532-544.