Research in human genetics: The tension between doing no harm and personal autonomy

Clinical Genetics

Volumn 67, Issue 1, 2005, Pages 1-5

  Pelias, M K ^a  

^a GenELSI Consulting Inc   (United States)

Author keywords

Beneficence; Harm; Informed consent; Personal autonomy; Provisional research results

Indexed keywords

BIOMEDICINE; DOCTOR PATIENT RELATION; GOVERNMENT; HUMAN; HUMAN GENETICS; HUMAN RIGHTS; INDEPENDENCE; INFORMED CONSENT; LABORATORY TEST; MEDICAL DECISION MAKING; MEDICAL ETHICS; MEDICAL INFORMATION; MEDICAL RESEARCH; PRIORITY JOURNAL; SHORT SURVEY; UNITED STATES;

DECISION MAKING; ETHICS, RESEARCH; GENETICS; HISTORY, 20TH CENTURY; HISTORY, 21ST CENTURY; HUMANS; PATIENT RIGHTS; PROFESSIONAL AUTONOMY; RESEARCH;

EID: 12744274912     PISSN: 00099163     EISSN: None     Source Type: Journal    
DOI: 10.1111/j.1399-0004.2004.00324.x     Document Type: Short Survey

References (11)

1. Faden RR, Beauchamp TL. A history and theory of informed consent. New York: Oxford University Press, 1986.
2. Katz J. The silent world of doctor and patient. New York: The Free Press, 1984.
3. Beauchamp TL, Childress JF. Principles of biomedical ethics, 3rd edn. New York: Oxford University Press, 1989.
4. Mohr v. Williams (1905) 95 Minn. 261, 104 N.W. 12.
5. Schloendorff v. Society of New York Hospital (1914) 211 N.Y 125, 105 N.E. 92.
6. Canterbury v. Spence, 464 F.2d 772 (D.C.Cir 1972)
7. Appelbaum PS, Lidz CW, Meisel A. Informed consent: legal theory and clinical practice. New York: Oxford University Press, 1987.
8. Lifton RJ. The Nazi doctors: medical killing and the psychology of genocide. New York: Basic Books, 1986.
9. Advisory Committee on Human Radiation Experiments. The human radiation experiments. New York: Oxford University Press, 1996.
10. Dunn CM, Chadwick G. Protecting study volunteers in research: A manual for investigative sites. Boston: Center-Watch, 1999.
11. Pelias MK, Markward NJ. Newborn screening, informed consent, and future use of archived tissue samples. Genet Test 2001: 5 (3): 179-185.