Quality of life concerns and end-of-life care preferences of aged persons in long-term care facilities

Journal of Clinical Nursing

Volumn 16, Issue 11, 2007, Pages 2158-2166

  Chan, Helen Y L ^a   Pang, Samantha M C ^a  

^a HONG KONG POLYTECHNIC UNIVERSITY   (Hong Kong)

Author keywords

Advance care planning; End of life; Frail elderly; Nurses; Nursing home; Quality of life

Indexed keywords

AGED; ARTICLE; CROSS-SECTIONAL STUDY; FEMALE; HEALTH CARE FACILITY; HUMAN; LONG TERM CARE; MALE; ORGANIZATION AND MANAGEMENT; PATIENT SATISFACTION; QUALITY OF LIFE; TERMINAL CARE;

AGED; CROSS-SECTIONAL STUDIES; FEMALE; HEALTH FACILITIES; HUMANS; LONG-TERM CARE; MALE; PATIENT SATISFACTION; QUALITY OF LIFE; TERMINAL CARE;

EID: 35148879511     PISSN: 09621067     EISSN: 13652702     Source Type: Journal    
DOI: 10.1111/j.1365-2702.2006.01891.x     Document Type: Article

References (44)

1. American Medical Association White Paper on Elderly Health (1990) Report of the council on scientific affairs. Archives of Internal Medicine 150, 2459 2472.
2. Carrese JA, Mullaney JL, Faden RR Finucane TE (2002) Planning for death but not serious future illness: qualitative study of housebound elderly patients. British Medical Journal 325, 125 127.
3. Census and Statistics Department (2004) Health Status of Institutional Residents and Their Utilization of Medical Services. Thematic Household Survey Report No. 12. Available at: http://www.censtatd.gov.hk/hong_kong_statistics/ social_topics_studies/index.jsp (accessed on 24 February 2006).
4. Chan HYL Pang SMC (2006) Validation of the Modified Quality-of-Life in the End of Life Questionnaire for Chinese Frail Aged People. Conference on Quality of Life Research in Asia, Hong Kong (abstract).
5. Chan HYL, Pang SMC, Dai DLK Ng VSS (2005) Quality of life Concerns and Health Care Expectations of the Frail Aged Persons in Long-term Care Facilities. The 13th Annual Congress of Gerontology, Hong Kong (abstract).
6. Chi L Boey KW (1993) Hong Kong validation of measuring instruments of mental health status of the elderly. Clinical Gerontologist 13, 35 51.
7. Chi I Leung EMF (1995) Towards Healthy Ageing in Hong Kong. St James' Settlement, Hong Kong.
8. Chochinov HM, Hack T, Hassard T, Krisjanson LJ, McClement S Harlos M (2005) Dignity therapy: a novel psychotherapeutic intervention for patients near the end of life. Journal of Clinical Oncology 23, 5520 5525.
9. Cohen SR, Mount BM, Bruera E, Provost M, Rowe J Tong K (1997) Validity of the McGill Quality of Life Questionnaire in the palliative care setting: a multi-centre Canadian study demonstrating the importance of the existential domain. Palliative Medicine 11, 3 20.
10. Coventry PA, Grande GE, Richards DA Todd CJ (2005) Prediction of appropriate timing of palliative care for older adults with non-malignant life-threatening disease: a systematic review. Age and Ageing 34, 218 227.
11. Crogan NL, Evans B, Severtsen B Shultz JA (2004) Improving nursing home food service: uncovering the meaning of food through residents' stories. Journal of Gerontological Nursing 30, 29 36.
12. Ditto PH, Danks JH, Smucker WD, Bookwala J, Coppola KM Dresser R (2001) Advance directives as acts of communication. Archive of Internal Medicine 161, 421 430.
13. Drewery W, Winslade J Monk G (2000) Resisting the dominating story: toward a deeper understanding of narrative therapy. In Constructions of Disorder: Meaning-making Frameworks for Psychotherapy (Neimeyer RA Raskin JD eds). American Psychological Association, Washington, DC, pp. 243 264.
14. Dunne T (2003) Spiritual care at the end of life. In Caring for the Dying: Critical Issues at the Edge of Life (Baird RM Rosenbaum SE eds). Prometheus Books, New York, pp. 161 172.
15. Erikson EH, Erikson JM Kivnick HQ (1989) Vital Involvement in Old Age. W.W. Norton Company, New York.
16. Franklin LL, Ternestedt BM Nordenfelt L (2006) Views on dignity of elderly nursing home residents. Nursing Ethics 13, 130 146.
17. Gass D (2001) Narrative knowledge and health care of the elderly. In Narrative gerontology: theory, research and practice (Kenyon G, Clark P Vries B eds). Springer Publishing Co., New York, pp. 215 236.
18. Gruenewald DA White EJ (2006) The illness experience of older adults near the end of life: a systematic review. Anesthesiology Clinics of North American 24, 163 180.
19. High DM (1993) Advance directives and the elderly: a study of intervention strategies to increase use. The Gerontologist 33, 342 349.
20. Jordens C, Little M, Kerridge I McPhee J (2005) From advance directives to advance care planning: current legal status, ethical rationales and a new research agenda. Internal Medicine Journal 35, 563 566.
21. Kenyon GM Randall WL (2001) Narrative gerontology: an overview. In Narrative Gerontology: Theory, Research and Practice (Kenyon G, Clark P Vries B eds Springer Publishing Co., New York, pp. 3 18.
22. Kim SH Kjervik D (2005) Deferred decision making: patients' reliance on family and physicians for CPR decisions in critical care. Nursing Ethics 12, 493 506.
23. Kissane DW, Clarke DM Street AF (2001) Demoralization syndrome - a relevant psychiatric diagnosis for palliative care. Journal of Palliative Care 17, 12 21.
24. Lawton MP Brody EM (1969) Assessment of older people: self maintaining and instrumental activities of daily living. The Gerontologist 9, 179 186.
25. Lee DTF (1999) Transition to residential care: experiences of elderly Chinese people in Hong Kong. Journal of Advanced Nursing 30, 1118 1126.
26. Lee DTF, Woo J Mackenzie AE (2002) A review of older people's experiences with residential care placement. Journal of Advanced Nursing 37, 19 27.
27. Lee LYK, Lee DTF Woo J (2005) Predictors of satisfaction among cognitively intact nursing home residents in Hong Kong. Research in Nursing & Health 28, 376 387.
28. Linn BS, Linn MW Gurel L (1968) Cumulative illness rating scale. Journal of American Geriatrics Society 16, 622 626.
29. Marbella AM, Desbians NA, Mueller-Rizner N Layde PM (1998) Surrogates' agreement with patients' resuscitation preferences: effect of age, relationships and SUPPORT intervention. Journal of Critical Care 13, 140 145.
30. Miller MD, Paradis CF Houck PR (1992) Rating chronic medical illness burden in geropsychiatric practice and research: application of the Cumulative Illness Rating Scale. Psychiatry Research 41, 237 248.
31. Miura Y, Asai A, Matsushima M, Nagata S, Onishi M, Shimbo T, Hosoya T Fukuhara S (2006) Families' and physicians' predicators of dialysis patients' preferences regarding life-sustaining treatments in Japan. American Journal of Kidney Diseases 47, 122 130.
32. Morgan G (2000) Assessment of quality of life in palliative care. International Journal of Palliative Nursing 6, 410 416.
33. Pang SMC, Tse CY, Chan KS, Chung BPM, Leung AKA, Leung EMF Ko SKK (2004) An empirical analysis of the decision-making of limiting life-sustaining treatment for patients with advanced chronic obstructive pulmonary disease in Hong Kong, China. Journal of Critical Care 19, 135 144.
34. Pang MCS, Chan KS, Chung BPM, Lau KS, Leung EMF, Leung AWK, Tse CY Chan YL (2005) Assessing the quality of life of patients with advanced chronic obstructive pulmonary disease in the end-of-life. Journal of Palliative Care 21, 180 187.
35. Pfeiffer E (1975) A short portable mental status questionnaire for the assessment of organic brain deficit in elderly patients. The Journal of American Geriatrics Society 23, 433 441.
36. Pirau CE, Zanoschi G, Iliescu L Duda R (2002) Medical and psycho-social problems relating to the quality of life of institutionalized elderly people. Mankind Quarterly 42, 221 230.
37. Sharoff K (2004) Coping Skills Therapy for Managing Chronic and Terminal Illness. Springer Publishing Co., New York.
38. Social Welfare Department (2005) Residential Care Services for the Elderly. Available at: http://www.swd.gov.hk/en/index/site_pubsvc/page_elderly/ sub_residentia/id_overviewon/ (accessed24February2006)
39. Sonn U Asberg KH (1991) Assessment of activities of daily living in the elderly. Scandinavian Journal of Rehabilitation Medicine 23, 193 202.
40. Tanyi RA (2002) Towards clarification of the meaning of spirituality. Journal of Advanced Nursing 39, 500 509.
41. Tester S (2004) What does quality of life mean for frail residents? Nursing and Residential Care 6, 89 92.
42. Tester S, Hubbard G, Downs M, MacDonald C Murphy J (2004) Frailty and institutional life. In Growing Older: Quality of Life in Old Age (Walker A Hennessy CH eds). Open University Press, Berkshire, pp. 209 224.
43. Weissman DE (2004) Decision making at a time of crisis near the end of life. Journal of the American Medical Association 292, 1738 1743.
44. World Health Organization Quality of Life Group (1995) The World Health Organization quality of life assessment (WHOQOL): position paper from the World Health Organization. Social Science and Medicine 41, 1403 1409.