The illness experience of older adults near the end of life: A systematic review

Anesthesiology Clinics of North America

Volumn 24, Issue 1, 2006, Pages 163-180

  Gruenewald, David A ^a,b   White, Elizabeth J ^a,c  

^a VA PUGET SOUND HEALTH CARE SYSTEM   (United States)

^b UNIVERSITY OF WASHINGTON SCHOOL OF MEDICINE   (United States)

^c UNIVERSITY OF WASHINGTON   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

COGNITION; COPING BEHAVIOR; CULTURAL FACTOR; DEATH; ELDERLY CARE; EMOTION; EXPERIENCE; FAMILY; HEALTH CARE; HEALTH CARE PERSONNEL; HEALTH CARE PLANNING; HEALTH CARE SYSTEM; HOSPICE CARE; HUMAN; INTELLIGENCE; MEDICAL LITERATURE; MEDICAL RESEARCH; MEDLINE; PHYSICIAN; PSYCHOLOGICAL ASPECT; QUALITATIVE ANALYSIS; QUESTIONNAIRE; REVIEW; SOCIAL ASPECT; SYSTEMATIC REVIEW; TERMINAL CARE; TERMINAL DISEASE;

ACTIVITIES OF DAILY LIVING; AGED; ATTITUDE TO DEATH; ATTITUDE TO HEALTH; HUMANS; INTERPERSONAL RELATIONS; MIDDLE AGED; TERMINAL CARE; TERMINALLY ILL;

EID: 32644440346     PISSN: 08898537     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.atc.2005.12.003     Document Type: Review

References (43)

1. T.R. Fried, and E.H. Bradley What matters to seriously ill older persons making end-of-life treatment decisions?: a qualitative study J Palliat Med 6 2 2003 237 244
2. K.E. Rosenfeld, N.S. Wenger, and M. Kagawa-Singer End-of-life decision making: a qualitative study of elderly individuals J Gen Intern Med 15 9 2000 620 625
3. T.S. Inui The virtue of qualitative and quantitative research Ann Intern Med 125 9 1996 770 771
4. A. Strauss, and J. Corbin Basics of qualitative research: techniques and procedures for developing grounded theory 1998 Sage Publications Thousand Oaks (CA)
5. G. Becker Dying away from home: quandaries of migration for elders in two ethnic groups J Gerontol B Psychol Sci Soc Sci 57 2 2002 S79 S95
6. E. Benzein, A. Norberg, and B.I. Saveman The meaning of the lived experience of hope in patients with cancer in palliative home care Palliat Med 15 2 2001 117 126
7. L.J. Blackhall, G. Frank, and S.T. Murphy Ethnicity and attitudes towards life sustaining technology Soc Sci Med 48 12 1999 1779 1789
8. J.A. Carrese, J.L. Mullaney, and R.R. Faden Planning for death but not serious future illness: qualitative study of housebound elderly patients BMJ 325 7356 2002 125 127
9. H.M. Chochinov, T. Hack, and S. McClement Dignity in the terminally ill: a developing empirical model Soc Sci Med 54 3 2002 433 443
10. J.R. Curtis, M.D. Wenrich, and J.D. Carline Patients' perspectives on physician skill in end-of-life care: differences between patients with COPD, cancer, and AIDS Chest 122 1 2002 356 362
11. J.R. Curtis, M.D. Wenrich, and J.D. Carline Understanding physicians' skills at providing end-of-life care perspectives of patients, families, and health care workers J Gen Intern Med 16 1 2001 41 49
12. W. Duggleby Elderly hospice cancer patients' descriptions of their pain experiences Am J Hosp Palliat Care 17 2 2000 111 117
13. W. Duggleby Enduring suffering: a grounded theory analysis of the pain experience of elderly hospice patients with cancer Oncol Nurs Forum 27 5 2000 825 831
14. W. Duggleby, and K. Wright Elderly palliative care cancer patients' descriptions of hope-fostering strategies Int J Palliat Nurs 10 7 2004 352 359
15. V.F. Engle, E. Fox-Hill, and M.J. Graney The experience of living-dying in a nursing home: self-reports of black and white older adults J Am Geriatr Soc 46 9 1998 1091 1096
16. S.J. Farber, T.R. Egnew, and J.L. Herman-Bertsch Issues in end-of-life care: patient, caregiver, and clinician perceptions J Palliat Med 6 1 2003 19 31
17. S. Forbes This is Heaven's waiting room: end of life in one nursing home J Gerontol Nurs 27 11 2001 37 45
18. G. Frank, L.J. Blackhall, and V. Michel A discourse of relationships in bioethics: patient autonomy and end-of-life decision making among elderly Korean Americans Med Anthropol Q 12 4 1998 403 423
19. T.R. Fried, C. van Doorn, and J.R. O'Leary Older persons' preferences for site of terminal care Ann Intern Med 131 2 1999 109 112
20. M. Gott, J. Seymour, G. Bellamy, and D. Clark Older people's views about home as a place of care at the end of life Palliat Med 18 5 2004 460 467
21. M.L. Hall-Lord, G. Larsson, and I. Bostrom Elderly patients' experiences of pain and distress in intensive care: a grounded theory study Intensive Crit Care Nurs 10 2 1994 133 141
22. C.P. Hermann Spiritual needs of dying patients: a qualitative study Oncol Nurs Forum 28 1 2001 67 72
23. N.J. Jarrett, S.A. Payne, and R.A. Wiles Terminally ill patients' and lay-carers' perceptions and experiences of community-based services J Adv Nurs 29 2 1999 476 483
24. J. Kayser-Jones The experience of dying: an ethnographic nursing home study [special issue] Gerontologist 42 Suppl 3 2002 S11 S19
25. M. Kelner Activists and delegators: elderly patients' preferences about control at the end of life Soc Sci Med 41 4 1995 537 545
26. L. Marchand, V.M. Cloutier, and C. Gjerde Factors influencing rural Wisconsin elders in completing advance directives WMJ (Wisconsin Medical Journal) 100 9 2001 26 31
27. T.R. McCormick, and B.J. Conley Patients' perspectives on dying and on the care of dying patients West J Med 163 3 1995 236 243
28. A. Montazeri, R. Milroy, and C.R. Gillis Quality of life: perception of lung cancer patients Eur J Cancer 32A 13 1996 2284 2289
29. S.A. Murray, K. Boyd, and M. Kendall Dying of lung cancer or cardiac failure: prospective qualitative interview study of patients and their carers in the community BMJ 325 7370 2002 929 933
30. S.A. Payne, A. Langley-Evans, and R. Hillier Perceptions of a "good" death: a comparative study of the views of hospice staff and patients Palliat Med 10 4 1996 307 312
31. K. Phillips, and V. Woodward The decision to resuscitate: older people's views J Clin Nurs 8 6 1999 753 761
32. J. Seymour Technology and "natural death": a study of older people Z Gerontol Geriatr 36 5 2003 339 346
33. P.A. Singer, D.K. Martin, and M. Kelner Quality end-of-life care: patients' perspectives JAMA 281 2 1999 163 168
34. E.K. Vig, and R.A. Pearlman Good and bad dying from the perspective of terminally ill men Arch Intern Med 164 9 2004 977 981
35. E.K. Vig, and R.A. Pearlman Quality of life while dying: a qualitative study of terminally ill older men J Am Geriatr Soc 51 11 2003 1595 1601
36. M.D. Wenrich, J.R. Curtis, and D.A. Ambrozy Dying patients' need for emotional support and personalized care from physicians: perspectives of patients with terminal illness, families, and health care providers J Pain Symptom Manage 25 3 2003 236 246
37. M.D. Wenrich, J.R. Curtis, and S.E. Shannon Communicating with dying patients within the spectrum of medical care from terminal diagnosis to death Arch Intern Med 161 6 2001 868 874
38. D.M. Wilson End-of-life care preferences of Canadian senior citizens with caregiving experience J Adv Nurs 31 6 2000 1416 1421
39. J.E. Winland-Brown Death, denial, and defeat: older patients and advance directives Adv Pract Nurs Q 4 2 1998 36 40
40. P. Yates, A. Dewar, and B. Fentiman Pain: the views of elderly people living in long-term residential care settings J Adv Nurs 21 4 1995 667 674
41. A.J. Young, T. Ofori-Boateng, and K.L. Rodriguez Meaning and agency in discussing end-of-life care: a study of elderly veterans' values and interpretations Qual Health Res 13 8 2003 1039 1062
42. S. Kaasa, and J.H. Loge Quality of life in palliative care: principles and practice Palliat Med 17 1 2003 11 20
43. E.K. Vig, N.A. Davenport, and R.A. Pearlman Good deaths, bad deaths, and preferences for the end of life: a qualitative study of geriatric outpatients J Am Geriatr Soc 50 9 2002 1541 1548