Qualitative assessments

Best Practice and Research: Clinical Rheumatology

Volumn 21, Issue 5, 2007, Pages 857-869

  Lempp, Heidi ^a   Kingsley, Gabrielle ^a  

^a KING'S COLLEGE LONDON   (United Kingdom)

Author keywords

evidence based practice; health service research; qualitative research; rheumatology

Indexed keywords

CHRONIC DISEASE; DATA ANALYSIS; DATA COLLECTION METHOD; EVIDENCE BASED MEDICINE; HEALTH CARE DELIVERY; HEALTH CARE PLANNING; HEALTH SERVICES RESEARCH; OUTCOME ASSESSMENT; PATIENT CARE; PATIENT SATISFACTION; PRIORITY JOURNAL; QUALITATIVE RESEARCH; QUALITY OF LIFE; QUANTITATIVE STUDY; REVIEW; RHEUMATOID ARTHRITIS; UNITED KINGDOM; VALIDITY;

ARTHRITIS, RHEUMATOID; EVALUATION STUDIES AS TOPIC; EVIDENCE-BASED MEDICINE; GREAT BRITAIN; HEALTH SERVICES RESEARCH; HUMANS; OUTCOME ASSESSMENT (HEALTH CARE); PATIENT-CENTERED CARE; QUALITATIVE RESEARCH; RESEARCH DESIGN;

EID: 34548496896     PISSN: 15216942     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.berh.2007.05.002     Document Type: Review

References (100)

1. Mays M., and Pope C. Qualitative research in health care. Assessing quality in quality research. British Medical Journal 320 (2000) 50-52
2. Silverman D. The quality of qualitative health research: the open - ended interview and its alternatives. Social Science in Health 4 2 (1998) 104-118
3. Harding G., and Gantley M. Qualitative methods: beyond the cookbook. Family Practice 15 1 (1998) 76-79
4. Campbell C., Fitzpatrick R., Haines A., et al. Framework for design and evaluation of complex interventions to improve health. British Medical Journal 321 (2000) 694-696
5. Dixon-Woods M., and Fitzpatrick R. Qualitative research in systematic reviews. British Medical Journal 323 (2001) 765-766
6. Lapsley P., and Groves T. The patient journey: travelling through life with chronic illness. British Medical Journal 329 (2004) 583-584
7. Hewlett S., De Witt M., Richards P., et al. Patients and professionals as research partners: challenges, practicalities and benefits. Arthritis and Rheumatism (Arthritis Care & Research) 55 4 (2006) 676-680
8. Thornicroft G., and Rose D. Health service research: is there anything to learn from mental health?. Journal of Health Service Research Policy 10 1 (2005) 1-2
9. May C. Chronic illness and intractability: professional-patient interactions in primary care. Chronic Illness 1 (2005) 15-20
10. Thornicroft G., and Tansella M. Growing recognition of the importance of service user involvement in mental health service planning and evaluation. Epidemiologica e Psichiatria Sociale 14 1 (2005) 1-3
11. Green J., and Britten N. Qualitative research and evidence based medicine. British Medical Journal 316 (1998) 1230-1232
12. Goffman E. Asylums. Essays on the Social Situation of Mental Patients and their Inmates (1961), Penguin Books Ltd, Harmondsworth
13. Glaser B., and Strauss A. Awareness of Dying (1965), Aldine, New York
14. Silverman D. Going private: ceremonial forms in a private oncology clinic. Sociology 18 2 (1984) 191-204
15. Rose D., Fleishmann P., Wykes T., et al. Patients' perspectives on electroconvulsive therapy: systematic review. British Medical Journal 326 (2003) 1363
16. Nettleton S. The sociology of health and illness. second edn. (2006), Polity Press, Cambridge
17. McPherson K.M., Brander P., Taylor W.J., and McNaughton H.K. Consequences of stroke, arthritis and chronic pain - are there important similarities?. Disability and Rehabilitation 26 16 (2004 Aug 19) 988-999
18. Brambleby P. Threats and opportunities of a patient-led National Health Service. British Journal of Homecare 1 2 (2006) 4-5
19. Scott D.L., Smith C., and Kingsley G. What are the consequences of early rheumatoid arthritis for the individual?. Best Practice and Research Clinical Rheumatology 19 1 (2005) 117-136
20. Ahlmen M., Nordenskioeld B., Archenholtz I., et al. Rheumatology outcomes: the patient's perspective. A multicentre focus group interview study of Swedish rheumatoid arthritis patients. Rheumatology 44 (2005) 105-110
21. Conrad S., Garrett L., Cooksley W., et al. Living with chronic Hepatitis C means 'you just haven't got a normal life any more'. Chronic Illness 2 (2006) 121-131
22. Wetherell M.A., Byrne-Davis L., Dieppe P., et al. Effects of emotional disclosure on psychological and physiological outcomes in patients with rheumatoid arthritis: an exploratory home-based study. Journal of Health Psychology 10 2 (2005 Mar) 277-285
23. Haugli L., Strand E., and Finset A. How do patients with rheumatic disease experience their relationship with their doctors? A qualitative study of experiences of stress and support in the doctor-patient relationship. Patient Education and Counselling 52 2 (2004 Feb) 169-174
24. Plach S.K., Stevens P.E., and Moss V.A. Corporeality: women's experiences of a body with rheumatoid arthritis. Clinical Nursing Research 13 2 (2004 May) 137-155
25. Persson L., Berglund K., and Sahlberg D. Psychological factors in chronic rheumatic disease - a review. The case of rheumatoid arthritis, current research and some problems. Scandinavian Journal of Rheumatology 28 3 (1999) 137-144
26. Melanson P., and Downe-Wamboldt B. Confronting life with rheumatoid arthritis. Journal of Advanced Nursing 42 2 (2003) 125-133
27. Lempp H., Scott D., and Kingsley G. The personal impact of Rheumatoid Arthritis on patients' identity: a qualitative study. Chronic Illness 2 (2006) 109-120
28. Lempp H., Scott D., and Kingsley G. Patients' views on the quality of health care for rheumatoid arthritis. Rheumatology (oxford) 45 12 (2006) 1522-1528
29. Simpson C., Franks C., Morrison C., and Lempp H. The patient's journey: rheumatoid arthritis. British Medical Journal 331 (2005) 887-889
30. Lempp H., Scott D., and Kingsley G. Views and goals of doctors and nurses in their consultations with patients who live with rheumatoid arthritis. Medical Sociology Group Annual Conference Programme 95 (2006)
31. Seale C., Chaplin R., Lelliot P., and Quirk A. Sharing decisions in consultations involving anti-psychotic medication: a qualitative study of psychiatrists' experiences. Social Science and Medicine 62 (2006) 2861-2873
32. Malterud K. Qualitative research: standards, challenges, and guidelines. The Lancet 358 (2001) 483-488
33. Black N. Why we need observational studies to evaluate the effectiveness of health care. British Medical Journal 312 (1996) 1215-1218
34. Malterud K. The art and science of clinical knowledge: evidence beyond measures and numbers. The Lancet 358 (2001) 397-400
35. Cribb A., and Bignold S. Towards the reflexive medical school: the hidden curriculum and medical research. Studies in Higher Education 24 2 (1999) 195-209
36. Lazar D. Selected issues in the philosophy of social science. In: Seale C. (Ed). Researching Society and Culture (1998), Sage Publications, London 7-22
37. In: Stewart M., Belle Brown J., and Freeman T.R. (Eds). Patient-centred Medicine. Transforming the clinical method. second ed. (2003), Radcliffe Medical Press, Oxford
38. Denzin N., and Lincoln Y. Handbook of qualitative research (2000), Sage Publications, London
39. Silverman D. Qualitative Research. Theory, Method and Practice (1997), Sage Publications, London
40. Briggs C. Learning how to ask: a socio-linguistic appraisal of the role of the interviewer in social science research (1986), Cambridge University Press, Cambridge
41. Seale C. Researching society and culture (1998), Sage Publications, London
42. Britten N. Qualitative interviews in medical research. British Medical Journal 311 (1995) 251-253
43. Lindblad A., Hartzema A., Jansson L., and Feltelius N. Patients' views of priority setting for new medicines. A qualitative study of patients with rheumatoid arthritis. Scandinavian Journal of Rheumatology 31 (2002) 324-329
44. Donovan J., and Blake D.R. Qualitative study of interpretation of reassurance among patients attending rheumatology clinics: 'just a touch of arthritis, doctor?'. British Medical Journal 320 (2000) 541-544
45. Soederlund A., Skoge A., and Malterud K. 'I could not lift my arm holding the fork.': living with chronic fatigue syndrome. Scandinavian Journal of Primary Health Care 18 (2000) 165-169
46. Marshall N.J., Wilson G., Lapworth K., and Kay L.J. Patients' perceptions of treatment with anti-TNF therapy for rheumatoid arthritis: a qualitative study. Rheumatology 43 (2004) 1034-1038
47. Carr A., Hewlett S., Hughes R., et al. Rheumatology outcomes: the patient perspective. The Journal of Rheumatology 30 4 (2003) 880-883
48. Sinclair S. Making Doctors. An Institutional Apprenticeship (1997), Berg, Oxford
49. Hafferty F. Into the Valley: death and socialisation of medical students (1991), Yale University Press, London and New Haven
50. Pope C. Conducting ethnography in medical settings. Medical Education 39 (2005) 1180-1187
51. Pope C., Smith A., Goodwin D., and Mort M. Passing on tacit knowledge in anaesthesia: a qualitative study. Medical Education 37 (2003) 650-655
52. Emerson R., and Fretz R.S.L. Writing ethnographic fieldnotes (1995), University of Chicago Press, Chicago
53. Malterud K., and Baerheim A. Peeing barbed wire:symptom experiences in women with lower urinary tract infection. Scandinavian Journal of Primary Health Care 17 (1999) 49-51
54. Atkinson P., and Coffey A. Revisiting the relationship between participant observation and interviewing. In: Gubrium J., and Holstein J. (Eds). Handbook of Interview Research. Content and Method (2002), Sage Publications, London 801-814
55. Mason J. Qualitative Researching (1996), Sage Publications, London
56. Seale C. Using computers to analyse qualitative data. In: Silverman D. (Ed). Doing Qualitative Research: A Practical Handbook (1999), Sage Publications, London 154-172
57. Strauss A., and Corbin J. Basics of qualitative research: grounded theory procedures and techniques (1990), Sage, Newbury Park, CA
58. Pope C., Ziebland S., and Mays N. Analysing qualitative data. British Medical Journal 320 (2000) 114-116
59. Potter J. Discourse analysis as a way of analysing naturally occurring talk. In: Silverman D. (Ed). Qualitative Research: Theory, Method and Practice (1997), Sage Publications, London 144-160
60. Potter J., and Hepburn A. Discursive psychology as a qualitative approach for analysing interaction in medical settings. Medical Education 39 (2005) 338-344
61. Maynard D., and Heritage J. Conversation analysis, doctor-patient interaction and medical communication. Medical Education 39 (2005) 428-435
62. Bleakley A. Stories as data, data as stories: making sense of narrative inquiry in clinical situations. Medical Education 39 (2005) 534-540
63. Seale C. Accounting for contradictions. The quality of qualitative research (1999), Sage Publications, London 73-86
64. Seale C. Using numbers. The quality of qualitative research (1999), Sage Publications, London 119-139
65. Bowling A. Research methods in health. Investigating health and health services (1997), Open University Press, Buckingham 135-138
66. Bryman A. Quantity and Quality in Social Research (1988), Routledge, London
67. Whyte J. Traumatic brain injury rehabilitation: are there alternatives to randomised clinical trials?. Archives of Physical Medicine and Rehabilitation 83 9 (2002) 1320-1322
68. Turner-Stokes L. The national service framework for long term conditions: a novel approach for a 'new style' NSF. Journal of Neurology, Neurosurgery and Psychiatry 76 (2005) 901-902
69. Newman M., and Thompson C. Helping practitioners understand the contribution of qualitative research to evidence-based practice. Evidence Based Nursing 9 (2006) 4-7
70. Chamberlin J. User/consumer involvement in mental health service delivery. Epidemiologica e Psichiatria Sociale 14 1 (2005) 10-14
71. Berkanovic E., Hurwicz M., and Lachenbruch P. Concordant and discrepant views of patients' physical functioning. Arthritis Care Research 8 (1995) 94-101
72. Suarez-Almazor M.E., Conner-Spady B., Kendall C.J., et al. Lack of congruence in the ratings of patients' health status by patients and their physicians. Medical Decision Making 21 (2001) 113-121
73. Pimm T.J., and Weinman J. Applying Leventhal's self regulation model to adaptation and intervention in rheumatic disease. Clinical Psychology and Psychotherapy 5 (1998) 62-75
74. Thornicroft G., and Slade M. Comparing needs assessment by staff and by service users: paternalism or partnership in mental health?. Epidemiologica e Psichiatria Sociale 11 (2002) 186-191
75. Sackett D.L., Rosenberg W.M., Gray J.A., et al. Evidence based medicine: what it is and what it isn't. British Medical Journal 312 (1996) 71-72
76. Arthritis and Musculoskeletal Alliance. Standards of Care for people with Inflammatory Arthritis (2004), Arthritis and Musculoskeletal Alliance, London
77. Thomas J., Harden A., Oakley A., et al. Integrating qualitative research with trials in systematic reviews. British Medical Journal 328 (2004) 1010-1012
78. Moulding N.T., Silagy C.A., and Weller D.P. A framework for effective management of change in clinical practice: dissemination and implementation of clinical practice guidelines. Quality in Health Care 8 3 (1999 Sep) 177-183
79. Morgan D. Practical strategies for combining qualitative and quantitative methods: application for health research. Qualitative Health Research 8 3 (1998) 362-376
80. Barlow J.H., Turner A.P., and Wright C.C. A randomised controlled study of the Arthritis Self-Management Programme in the UK. Health Education Research 15 6 (2000) 665-680
81. Department of Health. The Expert Patient. A New Approach to Chronic Disease Management for the 21st Century (2001), Department of Health, London
82. Department of Health. The National Service Framework for long-term conditions (2005), Department of Health, Leeds Report No.: Gateway Reference 4377
83. Department of Health. Supporting People With Long Terms Conditions to Self Care. A Guide To Developing Local Strategies and Good Practice (2006), Department of Health, London Report No.: Gateway 5411
84. Levenstein J.H., McCracken E., McWhinney I., et al. The patient-centred clinical method: a model for the doctor-patient interaction in family medicine. Family Practice 3 (1986) 24-30
85. Arthur V., and Clifford C. Rheumatology: the expectations and preferences of patients for their follow-up monitoring care: a qualitative study to determine the dimensions of patient satisfaction. Journal of Clinical Nursing 13 (2004) 234-242
86. Mann C., and Dieppe P. Different patterns of illness-related interaction in couples coping with rheumatoid arthritis. Arthritis and Rheumatism 55 2 (2006) 279-286
87. Ryan S., Hassel A., Dawes P., and Kendall S. Control perceptions in patients with rheumatoid arthritis: the impact of the medical consultation. Rheumatology 42 (2003) 135-140
88. Woodhead G., Donovan J., and Dieppe P. Outcomes of total knee replacement: a qualitative study. Rheumatology (Oxford) 44 8 (2005) 1032-1037
89. Greenwood M.C., Hakim A.J., and Doyle D.V. A simple extension to the Rheumatoid Arthritis Quality of Life questionnaire (RAQol) to explore individual patient concerns and monitor group outcome in clinical practice. Rheumatology 45 (2006) 61-65
90. Tammaru M., Strompl J., Maimets K., and Hanson E. The value of the qualitative method for adaptation of a disease-specific quality of life assessment instrument: the case of the Rheumatoid Arthritis Quality of Life Scale (RAQoL) in Estonia. Health and Quality of Life Outcomes 2 1 (2004 Dec 4) 69
91. Barry C.A., Bradley C.P., Britten N., et al. Patients' unvoiced agendas in general practice consultations: qualitative study. British Medical Journal 320 (2000) 1246-1250
92. Stevenson F.A., Barry C.A., Britten N., et al. Doctor-patient communication about drugs: the evidence for shared decision making. Social Science and Medicine 50 (2000) 829-840
93. Faulkner A. ABC of palliative care: communication with patients, families and other professionals. British Medical Journal 316 (1998) 130-132
94. Dickens C., McGowan L., Clark-Carter D., and Creed F. Depression in Rheumatoid Arthritis: a systematic review of the literature with meta-analysis. Psychosomatic Medicine 64 1 (2002) 52-60
95. Emery P. Treatment of rheumatoid arthritis. British Medical Journal 332 (2006) 152-155
96. Hill J. Patient satisfaction in a nurse-led rheumatology clinic. Journal of Advanced Nursing 25 (1997) 347-354
97. Hedin P., McKenna S., and Meads D. The Rheumatoid Arthritis Quality of Life (RAQoL) for Sweden: adaptation and validation. Scandinavian Journal of Rheumatology 35 2 (2006) 117-123
98. Cornwell J. Hard earned lives: accounts of health and illness from East London (1984), Tavistock, London
99. Stanley L., and Wise S. Breaking Out Again. Feminist Ontology and Epistemology (1993), Routledge, London
100. In: Anderson R., and Bury M. (Eds). Living with Chronic Illness. The Experiences of Patients and their Families (1988), Unwin Hyman, London