The Rheumatoid Arthritis Quality of Life (RAQoL) for Sweden: Adaptation and validation

Scandinavian Journal of Rheumatology

Volumn 35, Issue 2, 2006, Pages 117-123

  Hedin, P J ^a   McKenna, S P ^b   Meads, D M ^b  

^a FALUN HOSPITAL   (Sweden)

^b GALEN RESEARCH   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; AGED; CONTENT VALIDITY; FACE VALIDITY; FEMALE; HEALTH ASSESSMENT QUESTIONNAIRE; HUMAN; LANGUAGE; MAJOR CLINICAL STUDY; MALE; PRIORITY JOURNAL; QUALITY OF LIFE; QUESTIONNAIRE; REPRODUCIBILITY; REVIEW; RHEUMATOID ARTHRITIS; RHEUMATOID ARTHRITIS QUALITY OF LIFE; SWEDEN; TEST RETEST RELIABILITY;

ADULT; AGED; AGED, 80 AND OVER; ARTHRITIS, RHEUMATOID; FEMALE; HUMANS; MALE; MIDDLE AGED; PSYCHOMETRICS; QUALITY OF LIFE; QUESTIONNAIRES; REPRODUCIBILITY OF RESULTS; SWEDEN;

EID: 33646475883     PISSN: 03009742     EISSN: 15027732     Source Type: Journal    
DOI: 10.1080/03009740500311770     Document Type: Review

References (34)

1. Whalley D, McKenna SP, de Jong Z, van der Heijde D. Quality of life in rheumatoid arthritis. Br J Rheumatol 1997;36:884-8.
2. de Jong Z, van der Heijde D, McKenna SP, Whalley D. The reliability and construct validity of the RAQoL: a rheumatoid arthritis-specific quality of life instrument. Br J Rheumatol 1997;36:878-83.
3. Hunt SM, McKenna SP. The QLDS: a scale for the measurement of quality of life in depression. Health Policy 1992;22:307-19.
4. Holmes SJ, McKenna SP, Doward LC, Shalet SM, Development of a questionnaire to assess the quality of life of adults with growth hormone deficiency. Endocrinol Metab 1995;2:63-9.
5. Wagner TH, Patrick DL, McKenna SP, Froese MA. Cross-cultural development of a quality of life measure for men with erection difficulties. Qual Life Res 1996;5:443-9.
6. McKenna SP, Doward LC, Mackenzie Davey K. The development and psychometric properties of the MSQOL; a migraine-specific quality-of-life instrument. Clin Drug Invest 1998;15:413-23.
7. Doward LC, McKenna SP, Kohlmann T, Niero M, Patrick D, Spencer B, et al. The international development of the RGHQoL: a quality of life measure for recurrent genital herpes. Qual Life Res 1998;7:143-53.
8. Whalley D, McKenna SP, Dewar AL, Erdman RA, Kohlmann T, Niero M, et al. A new instrument for assessing quality of life in atopic dermatitis: International Development of the Quality of Life Index for Atopic Dermatitis (QoLIAD). Br J Dermatol 2004;150:274-83.
9. McKenna SP, Cook SA, Whalley D, Doward LC, Richards HL, Griffiths CE, et al. Development of the PSORIQoL, a psoriasis-specific measure of quality of life designed for use in clinical practice and trials. Br J Dermatol 2003;149:323-31.
10. Doward LC, Spoorenberg A, Cook SA, Whalley D, Helliwell PS, Kay LJ, et al. Development of the ASQoL: a quality of life instrument specific to ankylosing spondylitis. Ann Rheum Dis 2003;62:20-6.
11. McKenna SP, Doward LC, Whalley D, Tennant A, Emery P, Veale DJ. Development of the PsAQoL: a quality of life instrument specific to psoriatic arthritis. Ann Rheum Dis 2004;63:162-169.
12. Wells G, Boers M, Shea B, Tugwell P, Westhovens R, Saurez-Almazor M, et al. Sensitivity to change of generic quality of life instruments in patients with rheumatoid arthritis: preliminary findings in the generic health OMERACT study. OMERACT/ILAR Task Force on Generic Quality of Life. Life Outcome Measures in Rheumatology. International League of Associations for Rheumatology. J Rheumatol 1999;26:217-21.
13. Hunt SM, McEwen J, McKenna SP. Measuring health status. London: Croom Helm, 1986.
14. Leplège A, Verdier A. The adaptation of health status measures: methodological aspects of the translation procedure. In Shumaker S, Berzon R, editors. International use and performance of health-related quality of life instruments. Oxford: Oxford Rapid Communication, 1995.
15. Swaine-Verdier A, Doward LC, Hagell P, Thorsen H, McKenna SP. Adapting quality of life instruments. Value Health 2004;7 Suppl 1:27-30.
16. Whalley D, McKenna SP, Lovas K, Smedstad LM, Fortin PR. International adaptation of the Rheumatoid Arthritis Quality of Life Scale (RAQoL). Qual Life Res 2000;9:342.
17. Neville C, Whalley D, McKenna S, Le Comte M, Fortin PR. Adaptation and validation of the rheumatoid arthritis quality of life scale for use in Canada. J Rheumatol 2001;28:1505-10.
18. Thorsen H, Hansen TM, McKenna SP, Sorensen SF, Whalley D. Adaptation into Danish of the Stanford Health Assessment Questionnaire (HAQ) and the Rheumatoid Arthritis Quality of Life Scale (RAQoL). Scand J Rheumatol 2001;30:103-9.
19. Tammaru M, McKenna SP, Mottus E, Maimets K. Adaptation of the RAQOL for Estonia. Value Health 2003;6:728.
20. Ekdahl C, Eberhardt K, Andersson SI, Svensson B. Assessing disability in patients with rheumatoid arthritis. Use of a Swedish version of the Stanford Health Assessment Questionnaire. Scand J Rheumatol 1988;17:263-71.
21. Wiklund I, Romanus B, Hunt SM. Self-assessed disability in patients with arthrosis of the hip joint. Reliability of the Swedish version of the Nottingham Health Profile. Int Disabil Stud 1988;10:159-63.
22. Weiner EA, Stewart BJ. Assessing individuals. Boston: Little Brown, 1984.
23. Streiner D, Norman G. Health measurement scales. Oxford: Oxford University Press, 1989.
24. Anastasi A, Urbina S. Psychological testing. 7th edn., Upper Saddle River, NJ: Prentice Hall, 1997.
25. Wyrwich KW, Nienaber NA, Tierney WM, Wolinsky FD. Linking clinical relevance and statistical significance in evaluating intra-individual changes in health-related quality of life. Med Care 1999;37:469-78.
26. Wyrwich KW, Tierney WM, Wolinsky FD. Further evidence supporting an SEM-based criterion for identifying meaningful intra-individual changes in health-related quality of life. J Clin Epidemiol 1999;52:861-73.
27. Wyrwich KW, Tierney WM, Wolinsky FD. Using the standard error of measurement to identify important changes on the Asthma Quality of Life Questionnaire. Qual Life Res 2002;11:1-7.
28. Fitzpatrick R, Norquist JM, Jenkinson C. Distribution-based criteria for change in health-related quality of life in Parkinson's disease. J Clin Epidemiol 2004;57:40-4.
29. McHorney C, Tarlov A. Individual-patient monitoring in clinical practice: are available health status surveys adequate? Qual Life Res 1995;4:293-307.
30. Sloan DA, Donnely MB, Schwartz RW, Felts JL, Blue AV, Strodel WE. The use of the objective structured clinical examination (OSCE) for evaluation and instruction in graduate medical education. J Surg Res 1996;63:225.
31. Tennant A, McKenna SP, Hagell P. Application of Rasch analysis in the development and application of quality of life instruments. Value Health 2004;7 Suppl 1:S22-6.
32. Dixon P, Heaton J, Long A, Warburton A. Reviewing and applying the SF-36. Outcomes Briefing 1994;4:3-25.
33. Doward LC, McKenna SP. Defining patient reported outcomes. Value Health 2004;7 Suppl 1:S4-8.
34. Eberhardt K, Duckberg S, Larsson BM, Johnson PM, Nived K. Measuring health related quality of life in patients with rheumatoid arthritis - reliability, validity, and responsiveness of a Swedish version of RAQoL. Scand J Rheumatol 2002;31:6-12.