Living with chronic hepatitis C means 'you just haven't got a normal life any more'

Chronic Illness

Volumn 2, Issue 2, 2006, Pages 121-131

  Conrad, S ^a   Garrett, L E ^a   Cooksley, W G E ^b   Dunne, M P ^a   Macdonald, G A ^b  

^a QUEENSLAND UNIVERSITY OF TECHNOLOGY   (Australia)

^b UNIVERSITY OF QUEENSLAND   (Australia)

Author keywords

Hepatitis C; Psychosocial; Stigma; Symptom clusters; Transmission

Indexed keywords

ADOLESCENT; ADULT; ANXIETY; ARTICLE; CHILD; CONTROLLED STUDY; DEPRESSION; DISEASE COURSE; FEAR; FEMALE; HEPATITIS C; HEPATITIS C VIRUS; HUMAN; INFECTION; LIFESTYLE; MAJOR CLINICAL STUDY; MALE; PERCEPTIVE DISCRIMINATION; PSYCHOLOGICAL ASPECT; QUALITY OF LIFE; SELF REPORT; SEMI STRUCTURED INTERVIEW; SOCIAL PSYCHOLOGY; STIGMA; SYMPTOMATOLOGY; UNCERTAINTY; VIRUS TRANSMISSION;

ADOLESCENT; ADULT; COMORBIDITY; DEPRESSION; FEMALE; HEPATITIS C, CHRONIC; HUMANS; INTERPERSONAL RELATIONS; MALE; MIDDLE AGED; PREJUDICE; QUALITATIVE RESEARCH; QUALITY OF LIFE;

EID: 33745736074     PISSN: 17423953     EISSN: 17459206     Source Type: Journal    
DOI: 10.1179/174592006X110996     Document Type: Article

References (32)

1. Perz JF, Farrington LA, Pecoraro C, Hutin YJF, Armstrong GL. Estimated global prevalence of hepatitis C virus infection. Paper presented at: 42nd Annual Meeting of the Infectious Diseases Society of America, Boston, 2004.
2. Tong MJ, El-Farra NS, Reikes AR, Co RL. Clinical outcomes after transfusion associated hepatitis C. N Engl J Med 1995; 332: 1463-6.
3. Bonkovsky HL, Wooley JM. Reduction of health related quality of life in chronic hepatitis C and improvement with interferon therapy. Hepatology 1999; 29: 264-8.
4. Ware JE, Bayliss MS, McHutchison JG, et al. Impact of therapy with interferon alpha-2B plus ribavirin on health-related quality of life and work productivity in chronic hepatitis C patients. J Hepatol 2001; 34(1): 140-7.
5. MacDonald M, Zhou J. Prevalence of HIV, HCV and injecting and sexual behaviour among IDU at needle and syringe programs: Australian NSP survey national data report 1995-2001, Sydney: National Centre in HIV Epidemiology and Clinical Research, 2002.
6. Obhrai J, Hall Y, Anand BS. Assessment of fatigue and psychologic disturbances in patients with hepatitis C virus infection. J Clin Gastroenterol 2001; 32: 413-17.
7. Fontana RJ, Hussain KB, Schwartz SM, Moyer CA, Su GL, Lok ASF. Emotional distress in chronic hepatitis C patients not receiving antiviral therapy. J Hepatol 2002; 36: 401-7.
8. Hilsabeck RC, Hassanein TI, Carlson MD, Ziegler EA, Perry W. Cognitive functioning and psychiatric symptomology in patients with chronic hepatitis C. J Int Neuropsychol Soc 2003; 9: 847-54.
9. Kramer L, Bauer E, Funk G, et al. Subclinical impairment of brain function in chronic hepatitis C infection. J Hepatol 2002; 37: 349-54.
10. Crofts N, Louie, R, Loff B. The next plague: stigmatisation and discrimination related to hepatitis C virus infection. Health Hum Rights 1996; 2: 86-97.
11. Dunne EA, Quayle E. The impact of iatrogenically acquired hepatitis C infection on the well-being and relationships of a group of Irish women. J Health Psychol 2001; 6: 679-92.
12. Grundy G, Beeching N. Understanding social stigma in women with hepatitis C. Nurs Stand 2004; 19: 35-9.
13. Pope C, Mays N. Researching the parts other methods cannot reach: an introduction to qualitative methods in health and health services research. BMJ 1995; 311: 42-44.
14. Lang CA, Conrad S, Garrett L, et al. Symptom prevalence and clustering of symptoms in people living with chronic hepatitis C infection. J Pain Symptom Manag 2006; 31(4): 335-44.
15. Kitzinger J. Introducing focus groups. BMJ 1995; 311: 299-302.
16. Corbin J, Morse JM. The unstructured interactive interview: issues of reciprocity and risks when dealing with sensitive topics. Qualitative Inquiry 2003; 9: 335-54.
17. Scholarli. QSR NUD*IST, Version 4. Melbourne, 1997.
18. Strauss A, Corbin J. Basics of qualitative research: techniques and procedures for developing grounded theory, 2nd edn. Thousand Oaks: Sage Publications, 1998.
19. Dey I. Qualitative data analysis: a user friendly guide for social sciences. New York: Routledge, 1993.
20. Miles MB, Huberman AM. An expanded sourcebook, qualitative data analysis. Thousand Oaks: Sage Publications, 1994.
21. Blaikie N. Designing social research. Cambridge: Polity Press, 2000.
22. Mays N, Pope C. Assessing quality in qualitative research. BMJ 2000; 320: 50-2.
23. Albrecht GL, Devlieger PJ. The disability paradox: high quality of life against all odds. Soc Sci Med 1999; 48: 977-88.
24. Miaskowski C, Dodd M, Lee K. Symptom clusters: the new frontier in symptom management research. J Natl Cancer Inst Monogr 2004; 32: 17-21.
25. Crockett B, Gifford SM. 'Eyes wide shut': narratives of women living with hepatitis C in Australia. Women Health 2004; 39: 117-37.
26. McCain NL, Cella DF. Correlates of stress in HIV disease. Western J Nurs Res 1995; 17: 141-55.
27. Brashers DE, Neidig JL, Reynolds NR, Haas SM. Uncertainty in illness across the HIV/AIDS trajectory. J Assoc Nurses AIDS Care 1998; 9: 166-72.
28. Wessely S, Pariante C. Fatigue, depression and chronic hepatitis C infection. Psychol Med 2002; 32: 1-10.
29. Munoz Sastre M, Bacq Y, Mullet E, Clay Sorum P. Misconceptions regarding hepatitis C in the French public. Prev Med 2002; 34: 596-9.
30. Holt R, Court P, Vedhara K, Nott KH, Holmes J, Snow MH. The role of disclosure in coping with HIV infection. AIDS Care 1998; 10: 49-60.
31. Gupta L, Puech MC, Ward JE. Service expectations, self-reported educational and resource needs of general practitioners in managing patients with hepatitis C. Drug Alcohol Rev 2000; 19: 65-71.
32. Tanguy G, Remy A-J, Veyrac M, Daures J-P, Larry D. Effects of antiviral treatment on the quality of life in patients with chronic hepatitis C. Hepatology 1999; 30: 636A.