Developing outcome measures for pediatric deformity surgery

Spine

Volumn 32, Issue 19 SUPPL., 2007, Pages

  Richards, B Stephens ^a   Sanders, James O ^b  

^a UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTER   (United States)

^b SHRINERS HOSPITALS FOR CHILDREN   (United States)

Author keywords

Patient based outcomes; Pediatric spinal deformity

Indexed keywords

ADOLESCENT DISEASE; CHILD CARE; EVIDENCE BASED MEDICINE; HUMAN; LUNG PARENCHYMA; LUNG VOLUME; MEDICAL RESEARCH; OUTCOME ASSESSMENT; PEDIATRIC SURGERY; PRIORITY JOURNAL; QUALITY OF LIFE; QUALITY OF LIFE INDEX; QUESTIONNAIRE; REVIEW; SCOLIOSIS; SPINE; SPINE MALFORMATION; SPINE SURGERY; THORAX;

CHILD; HUMANS; ORTHOPEDIC PROCEDURES; OUTCOME ASSESSMENT (HEALTH CARE); PATIENT SATISFACTION; QUESTIONNAIRES; SPINAL DISEASES; SPINE;

EID: 34548309190     PISSN: 03622436     EISSN: 15281159     Source Type: Journal    
DOI: 10.1097/BRS.0b013e318134ea57     Document Type: Review

References (43)

1. Sackett DL, Rosenberg WM, Gray JA, et al. Evidence based medicine: what it is and what it isn't. BMJ 1996;312:71-2.
2. Haher TR, Valdevit A. The use of outcomes instruments in the assessment of patients with idiopathic scoliosis. Instr Course Lect 2005;54:543-50.
3. Lai SM, Asher M, Burton D. Estimating SRS-22 quality of life measures with SF-36: application in idiopathic scoliosis. Spine 2006;31:473-8.
4. Asher M, Min Lai S, Burton D, et al. Discrimination validity of the Scoliosis Research Society-22 patient questionnaire: relationship to idiopathic scoliosis curve pattern and curve size. Spine 2003;28:74-8.
5. Asher M, Min Lai S, Burton D, et al. The reliability and concurrent validity of the Scoliosis Research Society-22 patient questionnaire for idiopathic scoliosis. Spine 2003;28:63-9.
6. Asher M, Min Lai S, Burton D, et al. Scoliosis Research Society-22 patient questionnaire: responsiveness to change associated with surgical treatment. Spine 2003;28:70-3.
7. Climent JM, Reig A, Sanchez J, et al. Construction and validation of a specific quality of life instrument for adolescents with spine deformities. Spine 1995;20:2006-11.
8. Climent JM, Sanchez J. Impact of the type of brace on the quality of life of adolescents with spine deformities. Spine 1999;24:1903-8.
9. Feise RJ, Donaldson S, Crowther ER, et al. Construction and validation of the scoliosis quality of life index in adolescent idiopathic scoliosis. Spine 2005;30:1310-5.
10. Haher TR, Gorup JM, Shin TM, et al. Results of the Scoliosis Research Society instrument for evaluation of surgical outcome in adolescent idiopathic scoliosis: a multicenter study of 244 patients. Spine 1999;24:1435-40.
11. Alanay A, Cil A, Berk H, et al. Reliability and validity of adapted Turkish Version of Scoliosis Research Society-22 (SRS-22) questionnaire. Spine 2005;30:2464-8.
12. Bago J, Climent JM, Ey A, et al. The Spanish version of the SRS-22 patient questionnaire for idiopathic scoliosis: transcultural adaptation and reliability analysis. Spine 2004;29:1676-80.
13. Climent JM, Bago J, Ey A, et al. Validity of the Spanish version of the Scoliosis Research Society-22 (SRS-22) Patient Questionnaire. Spine 2005;30:705-9.
14. Asher MA, Min Lai S, Burton DC. Further development and validation of the Scoliosis Research Society (SRS) outcomes instrument. Spine 2000;25:2381-6.
15. Berven S, Deviren V, Demir-Deviren S, et al. Studies in the modified Scoliosis Research Society Outcomes Instrument in adults: validation, reliability, and discriminatory capacity. Spine 28:2164-9, 2003; discussion 9.
16. Asher MA, Lai SM, Glattes RC, et al. Refinement of the SRS-22 Health-Related Quality of Life questionnaire Function domain. Spine 2006;31:593-7.
17. Lerman JA, Sullivan E, Haynes RJ. The Pediatric Outcomes Data Collection Instrument (PODCI) and functional assessment in patients with adolescent or juvenile idiopathic scoliosis and congenital scoliosis or kyphosis. Spine 2002;27:2052-7, discussion 2057-8.
18. Masso PD, Meeropol E, Lennon E. Juvenile-onset scoliosis followed up to adulthood: orthopaedic and functional outcomes. J Pediatr Orthop 2002;22:279-84.
19. Ugwonali OF, Lomas G, Choe JC, et al. Effect of bracing on the quality of life of adolescents with idiopathic scoliosis. Spine J 2004;4:254-60.
20. Vitale MG, Levy DE, Moskowitz AJ, et al. Capturing quality of life in pediatric orthopaedics: two recent measures compared. J Pediatr Orthop 2001;21:629-35.
21. Asher M, Lai SM, Burton D, et al. The influence of spine and trunk deformity on preoperative idiopathic scoliosis patients' health-related quality of life questionnaire responses. Spine 2004;29:861-8.
22. Burton DC, Asher MA, Lai SM. Patient-based outcomes analysis of patients with single torsion thoracolumbar-lumbar scoliosis treated with anterior or posterior instrumentation: an average 5- to 9-year follow-up study. Spine 2002;27:2363-7.
23. Burton DC, Sama AA, Asher MA, et al. The treatment of large (>70 degrees) thoracic idiopathic scoliosis curves with posterior instrumentation and arthrodesis: when is anterior release indicated? Spine 2005;30:1979-84.
24. Merola AA, Haher TR, Brkaric M, et al. A multicenter study of the outcomes of the surgical treatment of adolescent idiopathic scoliosis using the Scoliosis Research Society (SRS) outcome instrument. Spine 2002;27:2046-51.
25. White SF, Asher MA, Lai SM, et al. Patients' perceptions of overall function, pain, and appearance after primary posterior instrumentation and fusion for idiopathic scoliosis. Spine 1999;24:1693-9; discussion 1699-700.
26. Rinella A, Lenke L, Peelle M, et al. Comparison of SRS questionnaire results submitted by both parents and patients in the operative treatment of idiopathic scoliosis. Spine 2004;29:303-10.
27. D'Andrea LP, Betz RR, Lenke LG, et al. Do radiographic parameters correlate with clinical outcomes in adolescent idiopathic scoliosis? Spine 2000;25:1795-802.
28. Smith PL, Donaldson S, Hedden D, et al. Parents' and patients' perceptions of postoperative appearance in adolescent idiopathic scoliosis. Spine 2006;31:2367-74.
29. Wilson PL, Newton PO, Wenger DR, et al. A multicenter study analyzing the relationship of a standardized radiographic scoring system of adolescent idiopathic scoliosis and the Scoliosis Research Society outcomes instrument. Spine 2002;27:2036-40.
30. Kim YJ, Lenke LG, Cho SK, et al. Comparative analysis of pedicle screw versus hook instrumentation in posterior spinal fusion of adolescent idiopathic scoliosis. Spine 2004;29:2040-8.
31. Kim YJ, Lenke LG, Kim J, et al. Comparative analysis of pedicle screw versus hybrid instrumentation in posterior spinal fusion of adolescent idiopathic scoliosis. Spine 2006;31:291-8.
32. Lenke LG. Debate: Resolved, a 55 degrees right thoracic adolescent idiopathic scoliotic curve should be treated by posterior spinal fusion and segmental instrumentation using thoracic pedicle screws: Pro: Thoracic pedicle screws should be used to treat a 55 degrees right thoracic adolescent idiopathic scoliosis. J Pediatr Orthop 2004; 24:329-34; discussion 338-41.
33. Pineda S, Bago J, Gilperez C, et al. Validity of the Walter Reed Visual Assessment Scale to measure subjective perception of spine deformity in patients with idiopathic scoliosis. Scoliosis 2006;1:18.
34. Sanders JO, Polly DW Jr, Cats-Baril W, et al. Analysis of patient and parent assessment of deformity in idiopathic scoliosis using the Walter Reed Visual Assessment Scale. Spine 2003;28:2158-63.
35. Sanders JO. Spinal appearance questionnaire (SAQ). Scoliosis Research Society Annual Meeting [Poster]. Monterey, CA, 2006.
36. Akbarnia BA, Marks DS, Boachie-Adjei O, et al. Dual growing rod technique for the treatment of progressive early-onset scoliosis: a multicenter study. Spine 2005;30(suppl):46-57.
37. Campbell RM Jr, Hell-Vocke AK. Growth of the thoracic spine in congenital scoliosis after expansion thoracoplasty. J Bone Joint Surg Am 2003;85:409-20.
38. Campbell RM Jr, Smith MD, Mayes TC, et al. The effect of opening wedge thoracostomy on thoracic insufficiency syndrome associated with fused ribs and congenital scoliosis. J Bone Joint Surg Am 2004;86:1659-74.
39. Emans JB, Caubet JF, Ordonez CL, et al. The treatment of spine and chest wall deformities with fused ribs by expansion thoracostomy and insertion of vertical expandable prosthetic titanium rib: growth of thoracic spine and improvement of lung volumes. Spine 2005;30(suppl):58-68.
40. Goldberg CJ, Gillic I, Connaughton O, et al. Respiratory function and cosmesis at maturity in infantile-onset scoliosis. Spine 2003;28:2397-406.
41. Gollogly S, Smith JT, White SK, et al. The volume of lung parenchyma as a function of age: a review of 1050 normal CT scans of the chest with three-dimensional volumetric reconstruction of the pulmonary system. Spine 2004;29:2061-6.
42. Dimeglio A, Bonnel F. Le rachis en croissance. Paris: Springer-Verlag; 1990.
43. Emans JB, Ciarlo M, Callahan M, et al. Prediction of thoracic dimensions and spine length based on individual pelvic dimensions in children and adolescents: an age-independent, individualized standard for evaluation of outcome in early-onset spinal deformity. Spine 2005;30:2824-9.