The state of advance care planning: One decade after SUPPORT

American Journal of Hospice and Palliative Medicine

Volumn 23, Issue 5, 2006, Pages 378-384

  Collins, Lauren G ^a,c   Parks, Susan M ^a   Winter, Laraine ^b  

^a THOMAS JEFFERSON UNIVERSITY   (United States)

^b THOMAS JEFFERSON UNIVERSITY   (United States)

^c NONE   (United States)

Author keywords

Advance care planning; Decision making; End of life

Indexed keywords

ATTITUDE TO DEATH; DECISION MAKING; DOCTOR PATIENT RELATION; FORECASTING; HEALTH CARE QUALITY; HEALTH SERVICES RESEARCH; HUMAN; INTERPERSONAL COMMUNICATION; LIVING WILL; MENTAL CAPACITY; ORGANIZATION AND MANAGEMENT; PATIENT CARE; PATIENT PARTICIPATION; PROGNOSIS; PSYCHOLOGICAL ASPECT; REVIEW; TERMINAL CARE; TOTAL QUALITY MANAGEMENT; TREATMENT OUTCOME;

ADVANCE CARE PLANNING; ADVANCE DIRECTIVE ADHERENCE; ATTITUDE TO DEATH; CHOICE BEHAVIOR; COMMUNICATION; DECISION MAKING; FORECASTING; HEALTH SERVICES RESEARCH; HUMANS; MENTAL COMPETENCY; OUTCOME AND PROCESS ASSESSMENT (HEALTH CARE); PATIENT PARTICIPATION; PHYSICIAN-PATIENT RELATIONS; PROGNOSIS; PROGRAM EVALUATION; TERMINAL CARE; TOTAL QUALITY MANAGEMENT;

EID: 34247281667     PISSN: 10499091     EISSN: None     Source Type: Journal    
DOI: 10.1177/1049909106292171     Document Type: Article

References (83)

1. The SUPPORT Investigators. A controlled trial to improve care for seriously ill hospitalized patients in the Study to Understand Prognoses and Preferences for Outcomes and Risk of Treatments. JAMA. 1995;274: 1591-1598.
2. Freeborne N, Lynn J, Desbiens NA. Insights about dying from the SUPPORT project. The Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments. J Am Geriatr Soc. 2000; 48(5 Suppl):S199-S205.
3. Singer PA, Martin DK, Lavery JV et al. Reconceptualizing advance care planning from the patient's perspective. Arch Intern Med. 1998;158:879-884.
4. Steinhauser KE, Clipp EC, McNeilly M, Christakis NA, McIntyre LM, Tulsky JA. In search of a good death: observations of patients, families, and providers. Ann Intern Med. 2000;132:825-832.
5. Clarke EB. Quality indicators for end-of-life care in the intensive care unit. Crit Care Med. 2003; 31:2255-62
6. Rubin SM, Strull WM, Fialkow MF. Increasing the completion of the durable power of attorney for health care. JAMA. 1994;271:209-212.
7. Hanson LC, Rodgman E. The use of living wills at the end of life. Arch Intern Med. 1996;156:1018-1022.
8. Hammes BJ, Rooney BL. Death and end-of-life planning in one Midwestern community. Arch Intern Med. 1998;158:383-390.
9. Emanuel LL, Danis M, Pearlman R, Singer PA. Advance care planning as a process: structuring the discussions in practice. J Am Geriatr Soc. 1995;43:440-446.
10. Gamble ER, McDonald PJ, Lichstein PR. Knowledge, attitudes, and behavior of elderly persons regarding living wills. Arch Intern Med. 1991;151:277-280.
11. Sachs G, Stocking CB, Miles SH. Empowerment of the older patient? A randomized controlled trial to increase discussion and use of advance directives. J Am Geriatr Soc. 1992;40:269-273.
12. Danis M, Southerland LI, Garrett JM. A prospective study of advance directives for life-sustaining care. N Engl J Med. 1991;324:882-888.
13. Schneiderman LJ, Kronick R, Kaplan RM. Effects of offering advance directives on medical treatments and costs. Ann Intern Med, 1992;11:599-606.
14. Teno JM, Lynn J, Wegner N, et al. Advance directives for seriously ill hospitalized patients: effectiveness with the Patient Self-Determination Act and the SUPPORT Intervention. J Am Geriatr Soc. 1997;45:500-507.
15. Lynn J, DeVries KO, Arkes HR, et al. Ineffectiveness of the SUPPORT intervention: review of explanations. J Am Geriatr Soc. 2000;48 (Suppl 5):S206-S213.
16. Wenger NS. Phillips RS, Teno JM et al. Physician understanding of patient resuscitation preferences: Insights and clinical implications. J Am Geriatr Soc. 2000;48(suppl): S44-51.
17. Weeks WB, Kofed LL, Wallace AE, Welch HG. Advance directives and the cost of terminal hospitalization. Arch Intern Med. 1994;154:2077-2083.
18. Teno JM, Lynn J, Connors AF, et al. The illusion of end-of-life resource savings with advance directives. J Am Geriatr Soc. 1997;45:513-518.
19. Tulsky JA. Beyond advance directives: importance of communication skills at the end of life. JAMA. 2005; 294:359-65.
20. Hanson LC, Tulsky J, Danis M. Can clinical interventions change care at the end of life? Ann Intern Med. 1997;126:381-388.
21. Teno JM, Licks S, Lynn J, et al. Do advance directives provide instructions that direct care? J Am Geriatr Soc. 1997;45:508-512.
22. Lo B, Steinbrook R. Resuscitating advance directives. Arch Intern Med. 2004;164:1501-1506.
23. Pellegrino ED. Decisions to withdraw life-sustaining treatment: a moral algorithm. JAMA. 2000;283:1065-1067.
24. Layde PM, Beam CA, Connors AF, et al. Surrogates predictions of seriously ill patients' resuscitation preferences. Arch Fam Med. 1995;6:518-523.
25. Thomasma DC. Freedom, dependency, and the care of the very old. J Am Geriatr Soc. 1984;32:906-914.
26. The President's Commission for the Study of Ethical Problems in Medicine and Biomedical and Behavioral Research. Deciding to Forgo Life-sustaining Treatment. Washington, DC: US Government Printing Office; 1983:132-133.
27. Ditto PH, Danks JH, Smucker WD, Advance directives as acts of communication: a randomized controlled trial. Arch Intern Med. 2001;161:421-430.
28. Mezey M, Kluger M, Maislin G, Mittelman M. Life-sustaining treatment decisions by spouses of patients with Alzheimer's disease, J Am Geriatr Soc. 1996;44: 144-150.
29. Seckler AB, Meier DE, Mulvihill M. Substituted judgment: how accurate are proxy predictions? Ann Intern Med. 1991;115:92-98.
30. Hines SC, Glover JJ, Babrow AS, Holley JL, Badzek LA, Moss AH. Improving advance care planning by accommodating family preferences. J Palliat Med. 2001;4:481-489.
31. Coppolino M, Ackerson L: Do surrogate decision makers provide accurate consent for intensive care research? Chest. 2001;119:603-612
32. Coppola KM, Ditto PH. Danks JH, Smucker WD. Accuracy of primary care and hospital-based physicians' predictions of elderly outpatients' treatment preferences with and without advance directives. Arch Intern Med. 2001;161:431-440.
33. Marbella AM, Desbiens NA, Mueller-Rizner N, Layde PM. Surrogates' agreement with patients' resuscitation preferences: effect of age, relationship, and SUPPORT intervention. J Crit Care. 1998;13:140-145.
34. Uhlmann RG, Pearlman R, Cain KC. Physicians' and spouses' predictions of elderly patients' resuscitation preferences. J Gerontol. 1988;43:M115-M121.
35. Karlawish JH, Casarett DJ, James BD, Tenhave T, Clark CM, Asch DA. Why would caregivers not want to treat their relative's Alzheimer's disease. J Am Geriatr Soc. 2003;51:1391-1.397.
36. Fagerlin A, Ditto PH, Danks JH. Projection in surrogate decisions about life-sustaining medical treatments. Health Psych. 2001;20:166-175.
37. Azoulay E, Chevret S, Leleu G, et al. Half the families of intensive care unit patients experience inadequate communication with physicians. Crit Care Med. 2000;28:3044-3049.
38. Sulmasy DP, Terry PB, Weisman CS, et al. The accuracy of substituted judgments in patients with terminal diagnoses. Ann Intern Med. 1998;128:621-629.
39. Seghal A, Galbraith A, Chesney M. How strictly do dialysis patients want their advance directives followed? JAMA. 1992;267:59-63.
40. Puchalski CM, Zhong A, Jacobs MM, et al. Patients who want their family and physician to make resuscitation decisions for them: observations from SUPPORT and HELP. J Am Geriatr Soc. 2000;48 (Suppl 5): S84-S90.
41. Terry PB, Vettese M, Song J. End-of-life decision making: when patients and surrogates disagree. J Clin Ethics. 1999;10:286-293.
42. Mueller PS. Ethical issues in geriatrics: a guide for clinicians. Mayo Clin Proc. 2004;79:554-562.
43. Covinsky KE. Communication and decision-making in seriously ill patients: findings of the SUPPORT project. The Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments. J Am Geriatr Soc. 2000;48(5 Suppl):S187-193.
44. Emanuel LL. Advance directives and advancing age. J Am Geriatr Soc. 2004;52:1-2.
45. Karlawish JH. Quill T, Meier DE. A consensus-based approach to providing palliative care to patients who lack decision-making capacity. ACP-ASIM End-of-Life Care Consensus Panel. American College of Physicians-American Society of Internal Medicine. Ann Intern Med. 1999;130:835-40.
46. Lo B, Quill T, Tulsky J. Discussing palliative care with patients. ACP-ASIM End-of-Life Care Consensus Panel. American College of Physicians-American Society of Internal Medicine. Ann Intern Med. 1999;130:744-749.
47. Lynn J, Arkes HR, Stevens M, et al. Rethinking fundamental assumptions: SUPPORT's implications for future reform. J Am Geriatr Soc. 2000;48 (Suppl 5):S214-S221.
48. Schneiderman LJ, Kaplan RM, Pearlman RA, Teetzel H. Do physicians' own preferences for life-sustaining treatment influence their perceptions of patients' preferences? J Clin Ethics. 1993;4:28-32.
49. Emanuel LL, Emanuel EJ, Stoeckle JD. Advance directives: stability of patients' treatment choices. Arch Int Med. 1994;154:209-217.
50. Danis M, Garrett J, Harris R, Patrick DL. Stability of choices about life-sustaining treatments. Ann Intern Med. 1994;120:567-573.
51. McParland E, Likourezos A, Chichin E. Stability of preferences regarding life-sustaining treatment: a two year prospective study of nursing home residents. Mt Sinai J Med. 2003;70:85-92.
52. Sprangers MA, Schwartz CE. Integrating response shift into health-related quality-of-life research: a theoretical model. Soc Sci Med. 1999;48:1507-1515.
53. Schwartz CE, Sprangers MAG. Methodological approaches for assessing response shift in longitudinal quality of life research. Soc Sci Med. 1999;48:1531-1548.
54. Weissman DE, Ambuel B, Norton AJ, Wang-Cheng R, Schiedermayer D. A survey of competencies and concerns in end-of-life care for physician trainees. J Pain Symptom Manage. 1998;15:12-90.
55. Lee MA, Smith DM, Fenn DS, Ganzini L. Do patients' treatment decisions match advance statements of their preferences? J Clin Ethics. 1998;9:258-262.
56. Straton JB, Wang NY, Meoni LA. Physical functioning, depression and preferences for treatment at the end of life: the Johns Hopkins Precursors Study. J Am Geriatr Soc. 2004;52:577-582.
57. Lockhardt LK, Ditto PH, Danks JH. The stability of older adults' judgments of fates better or worse than death. Death Stud. 2001;25:299-317.
58. Schwartz C. Honing an advance care planning intervention using qualitative analysis: the Living Well interview, J Palliat Med. 2003;6:593-603.
59. Prendergast, TJ, Advance care planning: pitfalls, progress, promise. Crit Care Med, 2001;29(2 Suppl): N34-39.
60. Doukas DJ, McCullough LB. The values history. The evaluation of the patient's wishes and advance directives. J Fam Prac. 1991;32:145-53.
61. Leland J. Advance directives and establishing the goals of care. Prim Care. 2001;28(2):349-363.
62. Lang F, Quill T. Making decisions with families at the end of life. Am Fam Physician. 2004;70:719-723.
63. Kirschner KL. When written advance directives are not enough. Clin Geriatr Med. 2005;21:193-209.
64. Winzelberg GS. Beyond autonomy: diversifying end-of-life decision-making approaches to serve patients and families. J Am Geriatr Soc. 2005;53:1046-1050.
65. Reisfeld GM, Wilson GR. Communicating with patients and families. Clin Fam Prac. 2004;6;325.
66. Brody H . Shared decision making and determining decision-making capacity. Prim Care. 2005;32: 645-58.
67. Stuart B, Alexander C, Amelia C. Medical Guidelines for Determining Prognosis in Selected Non-Cancer Disease. 2nd ed. Arlington, VA: National Hospice Organization; 1996.
68. Butow PN, Dowsett S, Hagerty R, Tattersall MH. Communicating prognosis to patients with metastatic disease: what do they really want to know? Support Care Cancer. 2002;10:161-168.
69. Rosenberg EE, Lussier MT, Beaudoin C. Lessons for clinicians from physician-patient communication literature. Arch Fam Med. 1997;6:279-283.
70. Buckman R. How to Break Bad News. Baltimore, MD: Johns Hopkins University Press; 1992.
71. Campbell ML. Breaking bad news to patients. JAMA. 1994;271:1052.
72. Curtis JR. Communicating about end-of-life care with patients and families in the intensive care unit. Crit Care Clin. 2004;20:363-80.
73. Larson DG, Tobin DR. End-of-life conversations: evolving theory and practice. JAMA. 2000;284:1573-1578.
74. Ptacek JT, Eberhardt TL. Breaking bad news. A review of the literature. JAMA. 1996;276:496-502.
75. Weissman DE. Education in palliative care. Clin Geriatr Med. 2005;21:165-175.
76. Pan C, Soriano R, Fischberg D. Palliative care module within required geriatrics clerkship: taking advantage of existing partnerships. Acad Med. 2002;77:936-937.
77. Mularski RA. Educational agendas for interdisciplinary end of life curricula. Crit Care Med. 2001;29(2 Suppl): N16-23.
78. Silveira MJ, DiPiero A, Gerrity MS, Feudtner C. Patients' knowledge of options at the end of life: ignorance in the face of death. JAMA. 2000;284: 2483-2488.
79. Silveira M. Common sense and compassion: planning for the end of life. Clin Fam Pract. 2004;6:349.
80. Lee MA, Brummel-Smith K, Meyer J, Drew N, London MR. Physician Orders for Life-Sustaining Treatment (POLST): outcomes in a PACE program. J Am Geriatr Soc. 2000;48:1219-1225.
81. Molloy DW, Guyatt GH, Russo R, et al. Systematic implementation of an advance directive program in nursing homes. JAMA. 2000;283:1437-1444.
82. Pearlman RA. Improvements in advance care planning in the Veterans Affairs System: results of a multifaceted intervention. Arch Intern Med. 2005;165: 667-74.
83. Perry E. Peer mentoring: a culturally sensitive approach to end-of-life planning for long-term dialysis patients. Am J Kidney Dis. 2005;46:111-119.