Experiences of living with non-cancer-related lymphedema: Implications for clinical practice

Qualitative Health Research

Volumn 17, Issue 2, 2007, Pages 213-224

  Bogan, Lisa K ^b   Powell, Janet M ^a   Dudgeon, Brian J ^a  

^a UNIVERSITY OF WASHINGTON SCHOOL OF MEDICINE   (United States)

^b NONE

Author keywords

Disability; Qualitative research; Rehabilitation

Indexed keywords

ADULT; AGED; ARTICLE; AWARENESS; CANCER; CLINICAL ARTICLE; CLINICAL PRACTICE; COMPRESSION THERAPY; DIAGNOSTIC ACCURACY; DISEASE COURSE; EXPERIENCE; FEMALE; HEALTH PROGRAM; HOSPITAL CARE; HUMAN; KINESIOTHERAPY; LYMPHATIC DRAINAGE; LYMPHEDEMA; MALE; PRIORITY JOURNAL; QUALITATIVE RESEARCH; SELF CARE; THERAPY EFFECT;

ADULT; AGED; CHRONIC DISEASE; FEMALE; HUMANS; INTERVIEWS; LYMPHEDEMA; MALE; MIDDLE AGED; NARRATION; NORTHWESTERN UNITED STATES; QUALITATIVE RESEARCH; QUALITY OF LIFE; SELF CARE; SELF CONCEPT; SICKNESS IMPACT PROFILE;

EID: 33846068022     PISSN: 10497323     EISSN: 15527557     Source Type: Journal    
DOI: 10.1177/1049732306297660     Document Type: Article

References (30)

1. Borkan, J. (1999). Immersion/crystallization. In B. F. Crabtree & W. L. Miller (Eds.), Doing qualitative research (pp. 179-194). Thousand Oaks, CA: Sage.
2. Cameron, C. (1996). Patient compliance: Recognition of factors involved and suggestions for promoting compliance with therapeutic regimens. Journal of Advanced Nursing, 24, 244-250.
3. Carter, B. (1997). Women's experience of lymphedema. Oncology Nursing Forum, 24, 875-882.
4. Casley-Smith, J. (1995). Alteration of untreated lymphedema and its grades over time. Lymphology, 28, 174-185.
5. Cheville, A., McGarvey, C., Petrek J., Russo, S., Taylor, M., & Thiadens, S. (2003). Lymphedema management. Seminars in Radiation Oncology, 13, 290-301.
6. Consensus Document of the International Society of Lymphology. (2003). The diagnosis and treatment of peripheral lymphedema. Lymphology, 36, 84-91.
7. Crabtree, B. F., & Miller, W. L. (1999). Using codes and code manuals: A template organizing style of interpretation. In B. F. Crabtree & W. L. Miller (Eds.), Doing qualitative research (pp. 163-177). Thousand Oaks, CA: Sage.
8. Foldi, M. (1994). Treatment of lymphedema. Lymphology, 27, 1-5.
9. Gerhardt, U. (1990). Qualitative research on chronic illness: The issue and the story. Social Science & Medicine, 30, 1149-1159.
10. Lerner, R. (2000). Chronic lymphedema. In J. B. Chang (Ed.), Textbook of angiology (pp. 1227-1236). New York: Springer.
11. Lincoln, Y. S., & Guba, E. G. (1985). Naturalistic inquiry. Beverly Hills, CA: Sage.
12. Logan, V. B. (1995). Incidence and prevalence of lymphoedema: A literature review. Journal of Clinical Nursing, 4, 213-219.
13. Mason, W. (2000). Exploring rehabilitation within lymphoedema management. International Journal of Palliative Nursing, 6, 265-273.
14. Maxwell, J.A. (2005). Qualitative research design: An interactive approach (2nd ed.). Thousand Oaks, CA: Sage.
15. Moffatt, C. J., Franks, P. J., Doherty, D. C., Williams, A. F., Badger, C., Jeffs, E., et al. (2003). Lymphoedema: An underestimated health problem. Quarterly Journal of Medicine, 96, 731-738.
16. Passik, S. D., & McDonald, M. V. (1998) Psychosocial aspects of upper extremity lymphedema in women treated for breast cancer. American Cancer Society Cancer, 83 (Suppl.), 2817-2820.
17. Passik, S. D., Newman, M. L., Brennan, M., & Tunkel, R. (1995). Predictors of psychological distress, sexual dysfunction and physical functioning among women with upper extremity lymphedema related to breast cancer. Psycho-oncology, 4, 255-263.
18. Patton, M. Q. (2002). Qualitative research and evaluation methods (3rd ed.). Thousand Oaks, CA: Sage.
19. Pereira de Godoy, J. M., Braile, D. M., de Fatima Godoy, M., & Longo, O. (2002). Quality of life and peripheral lymphedema. Lymphology, 35, 72-75.
20. Sandelowski, M. (2000). Whatever happened to qualitative description? Research in Nursing & Health, 23, 334-340.
21. Seidman, I. (1998). Interviewing as qualitative research: A guide for researchers in education and the social sciences (2nd ed.). New York: Teachers College Press.
22. Sitzia, J., & Sobrido, L. (1997). Measurement of health-related quality of life of patients receiving conservative treatment for limb lymphedema using the Nottingham Health Profile. Quality of Life Research, 6, 373-384.
23. Sitzia, J., & Wood, N. (1997). Patient satisfaction: A review of issues and concepts. Social Science & Medicine, 45, 1829-1843.
24. Sitzia, J., Woods, M., Hine, P., Williams, A., Eaton, K., & Green, G. (1998). Characteristics of new referrals to twenty-seven lymphoedema treatment units. European Journal of Cancer Care, 7, 255-262.
25. Szuba, A., & Rockson, S. (1998). Lymphedema: Classification, diagnosis, and therapy. Vascular Medicine, 3, 145-156.
26. Thiadens, S. (2003). Coming of age: The first U.S. lymphedema inpatient clinic. National Lymphedema Network Newsletter, 16 (3), 4-6, 26-27.
27. Weiss, J. M., & Spray, B. J. (2002). The effect of complete decongestive therapy on the quality of life of patients with peripheral lymphedema. Lymphology, 35, 46-58.
28. Williams,A. F., Franks, P. J., & Moffatt, C. J. (2005). Lymphoedema: Estimating the size of the problem. Palliative Medicine, 19, 300-313.
29. Williams, A. F., Moffatt, C. J., & Franks, P. J. (2004). A phenomenological study of the lived experiences of people with lymphoedema. International Journal of Palliative Nursing, 10, 279-286.
30. Woods, M., Tobin, M., & Mortimer, P. (1995). The psychosocial morbidity of breast cancer patients with lymphedema. Cancer Nursing, 18, 467-471.