The turning point: Clinical identification of dying and reorientation of care

Journal of Palliative Medicine

Volumn 9, Issue 6, 2006, Pages 1348-1358

  Jakobsson, Eva ^a,b   Bergh, Ingrid ^b   Gaston Johansson, Fannie ^a   Stolt, Carl Magnus ^c   Öhlén, Joakim ^a  

^a UNIVERSITY OF GOTHENBURG   (Sweden)

^b UNIVERSITY OF SKÖVDE   (Sweden)

^c KAROLINSKA INSTITUTE   (Sweden)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; AGED; ARTICLE; CLINICAL PRACTICE; DATA ANALYSIS; DYING; FEMALE; GENERAL CONDITION DETERIORATION; HEALTH CARE SYSTEM; HOSPITAL ADMISSION; HUMAN; ISCHEMIA; MAJOR CLINICAL STUDY; MALE; MEDICAL RECORD; NEOPLASM; PALLIATIVE THERAPY; PATIENT CARE;

ADOLESCENT; ADULT; AGED; AGED, 80 AND OVER; DECISION MAKING; FEMALE; HUMANS; MALE; MEDICAL AUDIT; MIDDLE AGED; PALLIATIVE CARE; SWEDEN; TERMINALLY ILL; TRIAGE;

EID: 33845988749     PISSN: 10966218     EISSN: None     Source Type: Journal    
DOI: 10.1089/jpm.2006.9.1348     Document Type: Article

References (51)

1. Ten Have H, Clark D: Introduction: The work of the Pallium project. In: Ten Have H, Clark D (eds): The Ethics in Palliative. Care. European Perspective. Philadelphia: Milton Keynes/Open University Press, 2002, pp. 1-12.
2. Lamont EB: A demographic and prognostic approach to defining the end of life. J Palliat Med 2005;8:S12-21.
3. Higginson IJ: End-of-life care: Lessons from other nations. J Palliat Med 2005;8:S161-173.
4. Teno JM, Weitzen S, Fennell ML, Mor V: Dying trajectory in the last year of life: Does cancer trajectories fit other diseases? J Palliat Med 2001;4:457-564.
5. Lunney JR, Lynn J, Hogan C: Profiles of older medicare decedents. J Am Geriatr Soc 2002;50:1108-1112.
6. Covinsky KE, Eng C, Lui L-Y, Sands LP, Yaffe K: The last 2 years of life: Functional trajectories of frail older people. J Am Geriatr Soc 2003;51:492-498.
7. Lunney JR, Lynn J, Foley DJ, Lipson S, Guralnik JM: Patterns of functional decline at the end of life. JAMA 2005;289:2387-2392.
8. Seymour J, Ingleton C: Transitions into the terminal phase. Overview. In: Payne SJ, Seymour J, Ingleton C (eds): Palliative care Nursing. Principles and Evidence for Practice. Milton Keynes/Open University Press, 2004, pp. 189-217.
9. Travis SS, Loving G, McClanahan L, Bernard M: Hospitalization patterns and palliation in the last year of life among residents in long term-care. Gerontologist 2001;41:153-160.
10. Happ MB, Capezuti E, Strumpf NE, Wagner L, Cunningham S, Evans L, Maislin G: Advance care planning and end-of-life care for hospitalized nursing home residents. J Am Geriatr Soc 2002;50:829-835.
11. Gott MC, Ahmedzai SH, Wood C: How many inpatients at an acute hospital have palliative care needs? Comparing the perspectives of medical and nursing staff. Palliat Med 2001;15:451-460.
12. Prick S, Uehlinger DE, Zuercher Zenklusen RM: Medical futility: predicting outcome of intensive care unit patients by nurses and doctors-A prospective comparative study. Crit Care Med 2003;31:456-461.
13. Ellershaw J, Ward C: Care of the dying patients: the last hours or days of life. BMJ 2003;326:30-34.
14. Lynn J: Learning to care for people with chronic illness facing the end of life. JAMA 2000;284:2508-2511.
15. Glaser BG, Strauss AL. Time for Dying. Chicago: Aldine, 1968.
16. Strauss A: Dying trajectories, the organisation of work and expectations of dying. In: Dickenson D, Johnson M, Samson Katz J (eds): Death Dying and Bereavement, 2nd rev. ed. London: Sage Publications Ltd., 2000, pp. 196-199.
17. Glaser BG, Strauss AL. Awareness of Dying. Chicago: Aldine, 1965.
18. Official Statistics of Sweden SCB. Population Statistics 2003. 2004, Official Statistics of Sweden.
19. Cochran WG: Sampling techniques, 3rd rev ed. New York: Wiley, 1977.
20. Donaldson MS, Field MJ: Measuring quality of care at the end-of-life. Arch Intern Med 1998;158:121-128.
21. Stewart AL, Teno J, Patrick DL, Lynn J: The concept of quality of life of dying persons in the context of health care. J Pain Symptom Manag 1999;17:93-108.
22. World Health Organization: International Statistical Classification of Diseases and Related Health Problems, 10th Revision. Geneva: World Health Organization, 2003.
23. Good P: Permutation Tests, 2nd rev ed. New York: Springer Verlag, 2000.
24. Seale C: Constructing Death. The Sociology of Dying and Bereavement. Cambridge: Cambridge University Press, 1998.
25. Goldstein N, Lynn J: Trajectory of end-stage heart failure-The influence of technology and implications for policy change. Perspect Biol Med 2006;49:10-18.
26. Heffner JE, Barbieri C: End-of-life care preferences of patients enrolled in cardiovascular rehabilitation programs. Chest 2000;117:1471-1481.
27. Murray SA, Boyd K, Kendall M, Worth A, Benton TF, Clausen H: Dying of lung cancer or cardiac failure: prospective qualitative interview study of patients and their carers in the community. BMJ 2002;325:929-938.
28. Laakkonen M-L, Pitkala KH, Strandberg TE, Berglind S, Tilvis RS: Older people's reasoning for resuscitation preferences and their role in the decision-making process. Resuscitation 2005;65:165-171.
29. Kirkpatrick JN, Kim AY: Ethical issues in heart failure-overview of an emerging need. Perspect Biol Med 2006;49:l-9.
30. Dendaas NR: Prognostication in advanced cancer: nurses perceptions of the dying process. Oncol Nurs Forum 2002;29:493-499.
31. Sloane PD, Zimmerman S, Hanson L, Mitchell CM, Riedel-Leo C, Custis-Buie V: End-of-life care in assisted living and related residential care settings: Comparison with nursing homes. J Am Geriatr Soc 2003;51:1587-1594.
32. Vigano A, Donaldsson N, Higginson IJ, Bruera E, Mahmud S, Suarez-Almazor M: Quality of life and survival prediction in terminal cancer patients: A multicenter study. Cancer 2004;101:1090-1098.
33. Lynn J, Teno JM, Philips RS, Wu AW, Desbiens N, Harrold J, Claessens MT, Wenger N, Kreling B, Connors AF Jr: Perceptions by family members of the dying experience of older and seriously ill patients. Ann Intern Med 1997;126:97-106.
34. Llobera J, Esteva M, Benito E, Terrasa J, Rifa J, Pons O, Maya A: Quality of life for oncology patients during the terminal period. Validation of the HRCA-QL index. Support Care Cancer 2003;11:294-303.
35. Aune S, Herlitz J, Bång A: Characteristics of patients who die in hospital with no attempt resuscitation. Resuscitation 2005;65:291-299.
36. Pressley JC, Patrick CH: Frailty bias in comorbidity risk adjustments of community dwelling elderly populations. J Clin Epidemiol 1999;52:753-760.
37. Min LC, Elliot MN, Wenger NS, Saliba D: Higher vulnerable Elders survey scores predict death and functional decline in vulnerable older people. J Am Geriatr Soc 2006;54:507-511.
38. Salaffi F, De Angelis R, Stancati A, Grassi W: Health-related quality of life in multiple musculoskeletal conditions: a cross-sectional population based epidemiological study. II. The MAPPING study. Clin Exp Rheumatol 2005;23:829-839.
39. Curatalo M, Bogduk N: Pharmacologic pain treatment of musculoskeletal disorders: current perspectives and future prospects Clin J Pain 2001;17:25-32.
40. Watters CL, Harvey CV, Mechan AJ, Schoenly L: Palliative care: A challenge for orthopaedic nursing care. Orthop Nurs 2005;24:4-7.
41. Freisinger GC, Butler J: End-of-life care for elderly patients with heart failure. Clin Geriatr Med 2000;16:663-674.
42. Addington-Hall J, Higginsson I. Introduction. In: Addington-Hall J, Higginson I. Palliative Care for Non-Cancer Patients. Oxford: Oxford University Press, 2001. pp. 1-9.
43. Skilbeck JK, Payne S: End of life care: A discursive analysis of specialist palliative care nursing. J Adv Nurs 2005;51:325-334.
44. Tranmer JE, Heyland D, Dudgeon D, Groll D, Squires-Graham M, Coulson K: Measuring the symptom experience of seriously ill cancer and noncancer hospitalized patients near the end of life with the memorial symptom assessment scale. J Pain Symptom Manage 2003;25:420-429.
45. Somogyi-Salud E, Zhong Z, Lynn J, Dawson NV, Hamel MB, Desbiens NA: Dying with acute respiratory failure or multiple organ system failure with sepsis. J Am Geriatr Soc 2000;48:S140-145.
46. Reynolds K, Henderson M, Schulman A, Hanson LC: Needs of the dying in nursing homes. J Palliative Med 2002;5:895-901.
47. Mitchell SL, Morris JN, Park PS, Fries BE: Terminal care for persons with advanced dementia in the nursing home and home care settings. J Palliat Med 2004;7:808-816.
48. Klinkenberg M, Willems DL, van der Wal G, Deeg DJH: Symptom burden in the last week of life. J Pain Symptom Manage 2004;27:5-13.
49. Plonk WM, Arnold RM: Terminal care: last weeks of life. J Palliat Med 2005;8:1042-1054.
50. Lloyd L: Dying in old age: Promoting well-being at the end-of-life. Mortality 2000;5:171-188.
51. Zimmerman C, Rodin G: The denial of death thesis: Sociological critique and implications for palliative care. Palliat Med 2004;18:121-128.