Quality of life for oncology patients during the terminal period. Validation of the HRCA-QL index

Supportive Care in Cancer

Volumn 11, Issue 5, 2003, Pages 294-303

  Llobera, Joan ^a   Esteva, Magdalena ^b   Benito, Enric ^c   Terrasa, Josefa ^c   Rifà, Juli ^a   Pons, Onofre ^d   Maya, Ascensión ^c  

^a Balears ^*

^b Research Unit   (Spain)

^c HOSPITAL UNIVERSITARIO SON ESPASES   (Spain)

^d IBSALUT   (Spain)

Author keywords

Follow up study; Neoplasm; Quality of life; Terminal Illness; Validity

Indexed keywords

ADULT; AGED; ARTICLE; CANCER; CANCER PATIENT; CONTROLLED STUDY; DAILY LIFE ACTIVITY; DETERIORATION; DISABILITY; DISEASE ASSOCIATION; DISEASE COURSE; FEMALE; FOLLOW UP; FUNCTIONAL ASSESSMENT; HUMAN; MAJOR CLINICAL STUDY; MALE; MEDICAL INFORMATION; MORTALITY; ONCOLOGY; PRIORITY JOURNAL; QUALITY OF LIFE; RELIABILITY; SYMPTOMATOLOGY; TERMINAL CARE;

EID: 0038274746     PISSN: 09414355     EISSN: None     Source Type: Journal    
DOI: 10.1007/s00520-003-0455-7     Document Type: Article

References (50)

1. Addington-Hall JM, MacDonald LD, Anderson HR (1990) Can the Spitzer quality of life index help to reduce prognostic uncertainly in terminal cancer? Br J Cancer 62:659-669
2. Agra Y, Badia X (1998) Spanish version of the Rotterdam Symptom Check List: cross-cultural adaptation and preliminary validity in a sample of terminal cancer patients. Psychooncology 7:229-239
3. Agra Y, Badia X, Gil A (1998) Instrumentos para la medición de la calidad de vida en los pacientes con cáncer. Med Clin (Barc) 110:703-708
4. Álvarez M, Alaiz AT, Brun E, Cabañeros JJ, Calzón M, Cosío I, et al (1992) Capacidad funcional de pacientes mayores de 65 años, según el índice de Katz. Fiabilidad del método. Aten Primaria 10:812-815
5. Arrarás LI, Illaramendi JJ, Valerdi JJ (1995) El cuestionario de calida de vida de la EORTC. Estudio estadístico de validación con una muestra española. Rev Psicol Salud 7:13-33
6. Badia X, Salamero M, Alonso J, Ollé A (1999) La medida de la salud. Guía de escalas de medición en español, 2nd edn. Editec, Barcelona
7. Bayes R (1998) Paliación y evaluación del sufrimiento en la práctica clínica. Med Clin (Barc) 110:740-743
8. Benítez MA, Hernández P, Barreto J (1994) Evaluación geriátrica exhaustiva en atención primaria: valoración de su utilidad. Aten Primaria 12:20-26
9. Bilbao I, Gastaminza AM, García JA, Quindimil JA, López JL, Huidobro L (1992) Calidad de vida de los pacientes domiciliarios crónicos y sus cuidadores en atención primaria. Aten Primaria 10:946-947
10. Brorsson B, Asberg KH (1984) Katz index of independence in ADL: reliability and validity in short term care. Scand J Soc Med 16:261-265
11. Bullinger M (1992) Quality of life assessment in palliative care. J Palliat Care 8:34-39
12. Busse R, Wagner HP, Krauth C, Klein-Lang M, Schwartz FW (1998) Sentinel practices in evaluating longer periods of care: quality life and drug therapy of terminal ill persons in Lower Saxony (Germany). J Epidemiol Community Health 52 [Suppl 1]:56S-60S
13. Catalán JG, Pons O, Recober A, Avella A, Carbonero JM, Benito E, Garau I (1991) Dying of cancer. The place of death and family circumstances. Med Care 29:841-852
14. Chapman CR, Gravin J (1993) Suffering and its relationship with pain. J Palliat Care 9:5-13
15. Coates A (1997) Quality of life and supportive care. Support Care Cancer 5:435-438
16. Conill C, Verger E, Salamero M (1990) Performance status in cancer patients. Cancer 65:1864-1867
17. Donelly S, Walsh D (1996) Quality of life assessment in advanced cancer. Palliat Med 10:275-283
18. Dunn G (1989) Design and analysis of reliability studies. Oxford University Press, Oxford
19. Evans C, McCarty M (1985) Prognostic uncertainty in terminal care: can the Karnofsky index help? Lancet 25:1204-1206
20. Fleiss JL (1972) Statistical methods for rates and proportions. John Wiley, New York
21. García-García JA (1995) El Quality Life Index de Spitzer: validado? Med Clin (Barc) 105:319
22. González JI, Salgado A (1992) Manejo del paciente anciano en atención primaria. Líneas guía. Aten Primaria 9:219-226
23. Greer DS, Mor V, Morris J, Sherwood S, Kidder D, Birnbaum H (1994) An alternative in terminal care: results of the National Hospice Study. J Chron Dis 39:9-26
24. Guillemin F, Bomabardier C, Beaton D (1993) Cross-cultural adaptation of health-related quality of life measures: literature review and proposed guidelines. J Clin Epidemiol 46:1417-1432
25. Higginson IJ, McCarthy M (1994) A comparison of two measures of quality of life: their sensitivity and validity for patients with advanced cancer. Palliat Med 8:282-290
26. Hutchinson TA, Boyd NF, Feistein AR (1979) Scientific problems in clinical scales, as demonstrated in the Karnofsky performance status scale. J Chron Dis 32:661-666
27. Karnofsky DA, Abkerman WH, Craver LF, Buckernal JH (1948) The use of nitrogen mustards in the palliative treatment of cancer. Cancer 1:634-656
28. Katz S, Ford AB, Moskowitz RW, et al (1963) Studies of illness in the aged: the index ADL - a standardized measure of biological and psychological function. JAMA 185:914-919
29. Kleinbaum DG, Kupper LL, Muller KE (1988) Applied regression analysis and other multivariable methods, 2nd edn. PWS-KENT, Boston
30. Kramer MS, Feinstein AR (1981) Clinical biostatistics. LIV. The biostatistics of concordance. Clin Pharmacol Ther 29:111-123
31. Laplege A, Hunt S (1997) The problem of quality of life in medicine. JAMA 278:47-50
32. Limonero JT, Bayes R (1995) Bienestar en el ámbito de los enfermos en situación terminal. Med Palliat 2:53-59
33. Llobera J, Benito E, Esteva M, Terrassa J, Pons O, Rojas C (1998) Enfermedad oncológica: frecuencia de síntomas en el curso de la fase terminal. Medifam 8:90-99
34. Llobera J, Esteva M, Rifà J, Benito E, Terrassa J, Rojas C, Pons O, Catalán G, Avellà A (2000) Terminal cancer: duration and prediction of survival time. Eur J Cancer 36:2036-2043
35. Maltoni M, Pirovano M, Scarpi E, Marinari M, Indelli M, Arnoldi M, et al (1995) Prediction survival of patients with terminally ill with cancer. Results of an Italian prospective multicentric study. Cancer 75:2613-2622
36. McCusker J (1984) The terminal period of cancer: definition and descriptive epidemiology. J Chron Dis 37:377-385
37. McDowell I, Newell C (1996) The quality of life index. In: Measuring health: a guide to rating scales and questionnaires, 2nd edn. Oxford University Press, New York, pp 405-409
38. McDowell I, Newell C (1996) The index of Independence in Activities of Daily Living, or index ADL. In: Measuring health: a guide to rating scales and questionnaires, 2nd edn. Oxford University Press, New York, pp 63-67
39. Mor V, Laliberte L, Morris JN, Wiemann M (1984) The Karnofsky performance status scale: an examination of its reliability and validity in a research setting. Cancer 53:2002-2007
40. Morris JN, Suissa S, Sherwood S, Wright SN, Greer D (1986) Last days: a study of the quality of life of terminally ill cancer patients. J Chron Dis 39:47-62
41. Orr ST, Aisner J (1986) Performance status assessment among oncology patients: a review. Cancer Treat Rep 70:1423-1429
42. Rathbone G, Horsley S, Goacher J (1994) A self-evaluated assessment suitable for seriously ill patients. Palliat Med 8:29-34
43. Richards MA, Ramírez AJ (1997) Quality of life: the main outcome measure of palliative care. Palliat Med 11:89-92
44. Ruigómez A, Alonso J, Antó JM (1991) Salud percibida y capacidad funcional de la población anciana no institucionalizada de Barcelona. Gac Sanit (Barc) 5:117-124
45. Schwarz R, Bernhard J, Flechtner H, Hurny C, Kuchler T (1994) Guidelines for the assessment of quality of life in oncology - implementing adequate methods and their content. Conference "Quality of Life in Oncology. II: State of the art 1990-1994" Heidelberg, 5-7 May 1994. J Cancer Res Clin Oncol 120:691-692
46. Spitzer WO, Dobson AJ, Hall J, Chesterman E, Levi J, Shepherd R, Battista R, Cathlove BR (1981) Measuring the quality of life of cancer patients. A concise QL-index for use by physicians. J Chron Dis 34:585-597
47. Streiner DL, Norman GR (1989) Health measurement scales. A practical guide to their development and use. Oxford University Press, New York
48. Viganò A, Bruera E, Suárez-Almazor ME (1999) Terminal cancer syndrome: myth or reality?. J Palliat Care 15:32-39
49. WHO Expert Committee (1990) Cancer pain relief and palliative care (technical report series 804). World Health Organization, Geneva
50. Wilkin D, Hallam L, Doggett MA (1992) Measures of need and outcome for primary health care. Oxford University Press, New York