Lay perspective on pharmacogenomics: A literature review

Personalized Medicine

Volumn 3, Issue 3, 2006, Pages 311-316

  Nielsen, Louise Fuks ^a   Møldrup, Claus ^a  

^a UNIVERSITY OF COPENHAGEN   (Denmark)

Author keywords

Discrimination; Ethics; Lay; Legal; Pharmacogenetics; Pharmacogenomics; Public; Social

Indexed keywords

AGE DISTRIBUTION; ATTITUDE TO HEALTH; CORRELATION ANALYSIS; CULTURAL FACTOR; EMBASE; ETHNOLOGY; HEALTH CARE PLANNING; HUMAN; INCOME; MEDICAL LITERATURE; MEDICAL RESEARCH; MEDLINE; PHARMACOGENOMICS; PRIORITY JOURNAL; PUBLIC HEALTH; REVIEW; SOCIOECONOMICS; SYSTEMATIC REVIEW;

EID: 33747275830     PISSN: 17410541     EISSN: 1744828X     Source Type: Journal    
DOI: 10.2217/17410541.3.3.311     Document Type: Review

References (25)

1. Ainsworth MA, Nielsen OH: Pharmacogenetics - new therapeutic possibilities. Ugeskr Læger 167 (20), 2141 (article in Danish) (2005).
2. Møldrup C: Ethical, social and legal implications of pharmacogenomics - a critical review. Community Genet. 4, 204-214 (2001).
3. Vaszar LT, Cho MK, Raffin TA: Privacy issues in personalized medicine. Pharmacogenetics 4(2), 107-112 (2003).
4. Møldrup C: When pharmacogenomics goes public. New Genet. Soc. 21(1), 29-37 (2002).
5. Folkersen J: Literature search and assessment of evidence - a short guide. MTV-enheden (2002).
6. Ganguly NK, Bano R, Seth SD: Human genome project: pharmacogenomics and drug development. Indian J. Exp. Biol. 39, 955-961 (2001).
7. March R, Cheesemann K, Doherty M: Pharmacogenetics - legal, ethical and regulatory considerations. Pharmacogenomics 2(4), 317-327 (2001).
8. Roses AD: Pharmacogenetics and the practice of medicine. Natum 405(6788), 857-865 (2000).
9. Rothstein MA, Hornung CA: Public Attitudes About Pharmacogenomics. In: Pharmacogenomics - Social, Ethical and Clinical dimensions. Rothstein MA (Ed.), John Wiley & Sons, NJ, USA, 3-27 (2003).
10. Møldrup C: The importance of pharmacogenetics in the primary health care sector. Ugeskr Læger 164(25), 3333-3337 (article in Danish) (2002).
11. Lesko LJ, Woodcock J: Translation of pharmacogenomics and pharmacogenetics: a regulatory perspective. Nature Rev. Drug Discovery 3, 763-769 (2004).
12. Frueh FW, Gurwitz D: From pharmacogenetics to personalized medicine: a vital need for educating health professionals and the community. Pharmacogenomics 5(5), 571-579 (2004).
13. Almarsdottir AB, Bjornsdottir I, Traulsen JM et al: A lay prescription for tailor-made drugs-focus group reflections on pharmacogenomics. Health Policy 71, 233-241 (2005).
14. Almarsdóttir AB, Traulsen JM, Björnsdottir I: We don't have many secrets - the lay perspectives on privacy and genetic data. Abstract from the International ELSAGEN Conference on Ethical, Legal and Social Aspects of Human Genetic Databases, University of Iceland, Reykjavík (2004).
15. Bevan JL, Lynch JA, Dubriwny TN et al: Informed lay preferences for delivery of racially varied pharmacogenomics. Genet. Med. 5(5), 393-399 (2003).
16. Henneman L, Timmermans DRM, Van der Wal G: Public experiences, knowledge and expectations about medical genetics and use of genetic information. Community Genetics 7(1) (2004).
17. Toiviainen H, Jallinoja P, Aro AR, Hemminki E: Medical and lay attitudes towards genetic screening and testing in Finland. Eur. J. Hum. Genet. 11, 565-572 (2003).
18. Condit C, Templeton A, Bates BR, Bevan JL, Harris TM: Attitudinal barriers to delinery of race-targeted pharmacogenomics among informed lay persons. Genet. Med. 5(5), 385-392 (2003).
19. Condit C: What is 'public opinion' about genetics? Nature Rev. Genet. 2(10), 811-815 (2001).
20. Shaw JS, Bassi KL: Lay attitudes toward genetic testing for susceptibility to inherited deseases. J. Health Parhol. 6(4), 405-423 (2001).
21. Wynne B: Knowledges in context. Sci. Technol. Human Values 16(1), 111-121 (1991).
22. Aro AR, Hakonen A, Hietala M et al: Acceptance of genetic testing in a general population: age, education and gender difference. Patient Educ. Couns. 32, 41-49 (1997).
23. Durant J, Hansen A, Bauer M: Public understanding of the new genetics. In: The troubled helix: Social and psychological implications of the new human genetics. Marteau T, Richards M (Eds). Cambridge University Press, London, UK, 235-248 (1996).
24. Hedgecoe A, Martin P: The drugs don't work: expectations and the shaping of pharmacogenetics. Soc. Stud. Sci. 33(3), 327-364 (2003).
25. Nuffield Council on Bioethics: Pharmacogenetics - Public perceptions of pharmacogenetics (2004).