Informed lay preferences for delivery of racially varied pharmacogenomics

Genetics in Medicine

Volumn 5, Issue 5, 2003, Pages 393-399

  Bevan, Jennifer L ^a   Lynch, John A ^b   Dubriwny, Tash N ^b   Harris, Tina M ^b   Achter, Paul J ^b   Reeder, Amy L ^c   Condit, Celeste M ^b  

^a UNIVERSITY OF NEVADA   (United States)

^b UNIVERSITY OF GEORGIA   (United States)

^c Gainesville College   (United States)

Author keywords

Focus group methodology; Genetic discrimination; Pharmacogenomics; Race

Indexed keywords

ARTICLE; COMMUNITY CARE; COST; DISCRIMINANT ANALYSIS; DRUG PREFERENCE; GENDER; GENETIC ANALYSIS; HEALTH CARE DELIVERY; HEALTH CARE QUALITY; HEALTH SURVEY; HUMAN; INDIVIDUALIZATION; MINORITY GROUP; NEGRO; PHARMACOGENETICS; PRESCRIPTION; PRIVACY; RACE; RURAL AREA; SAMPLING; URBAN AREA; VOLUNTEER;

EMPIRICAL APPROACH; GENETICS AND REPRODUCTION;

ATTITUDE TO HEALTH; DRUG LABELING; ETHNIC GROUPS; FEMALE; FOCUS GROUPS; GENETIC SCREENING; HUMANS; MALE; MINORITY GROUPS; PATIENT SATISFACTION; PHARMACOGENETICS; PREJUDICE; PRESCRIPTIONS, DRUG;

EID: 0142063077     PISSN: 10983600     EISSN: None     Source Type: Journal    
DOI: 10.1097/01.GIM.0000087989.12317.3F     Document Type: Article

References (23)

1. Exner DV, Dries DL, Domanski MJ, Cohn JN. Lesser response to angiotensin-converting-enzyme inhibitor therapy in black as compared with white patients with left ventricular dysfunction. N Engl J Med 2001;344:1351-1357.
2. Braun L. Race, ethnicity, and health: Can genetics explain disparities? Perspec Bio Med; 2002; 45: 159-174.
3. Risch N, Burchard E, Ziv E, Tang H. Categorization of humans in biomedical research: Genes, race and disease. Genome Bio 2002;3:2007-2012.
4. Goodman AH. Why genes don't count (for racial differences in health). Am J Pub Health 2000;90:1699-1702.
5. Schwartz RS. Racial profiling in medical research. N Engl J Med 2001;344:1392-1393.
6. Wood AJJ. Racial differences in the response to drugs-pointers to genetic differences. N Engl J Med 2001;344:1393-1396.
7. Halushka MK, Fan JB, Bentley K, Hsie L, Shen N, Weder A et al. Patterns of single-nucleotide polymorphisms in candidate genes for blood-pressure homeostasis. Nat Genet 1999;22:239-247.
8. Wilson JF, Weale ME, Smith AC, Gratrix F, Fletcher B, Thomas MG et al. Population genetic structure of variable drug response. Nat Genet 2001;29:265-269.
9. Evangelista LS, Dracup K. A closer look at compliance research in heart failure patients in the last decade. Prog Cardiovasc Nurs 2000;15:97-104.
10. Holtzman NA, Rothstein MA. Invited editorial: Eugenics and genetic discrimination. Am J Hum Genet 1992;50:457-459.
11. Natowicz MR, Alper JK, Alper JS. Genetic discrimination and the law. Am J Hum Genet 1992;50:465-475.
12. Jackson F. African-American responses to the Human Genome Project. Pub Understand Sci 1999;8:181-191.
13. Singer E. Public attitudes toward genetic testing. Pop Res Pol Rev 1991;10:235-255.
14. Singer E, Corning AD, Antonucci T. Attitudes toward genetic testing and fetal diagnosis, 1990-1996. J Health Soc Behav 1999;40:429-445.
15. Sander C. Genomic medicine and the future of health care. Science 2000;287:1977-1978.
16. Graves JL. The Emperor's New Clothes: Biological Theories of Race at the Millennium. New Brunswick, NJ: Rutgers Univeristy Press, 2001.
17. Cavalli-Sforza LL, Menozzi P, Piazza A. The History and Geography of Human Genes. Princeton, NJ: Princeton University Press, 1994.
18. Zwillich T. Insurers ignore genes' role in drug effects. Reuters Health, 25 September 2002.
19. Barns I, Schibeci R, Davidson A, Shaw R. What do you think about genetic medicine? Facilitating sociable public discourse on developments in the new genetics. Sci Technol Human Values 2000;25:283-308.
20. Kerr A, Cunningham-Burley S, Amos A. Drawing the line: An analysis of lay people's discussions about the new genetics. Pub Understand Sci 1998;7:113-133.
21. Landis JR, Koch GG. The measurement of observer agreement of categorical data. Biometrics 1977;33:159-174.
22. Condit CM. How the public understands genetics: Non-deterministic and non-discriminatory interpretations of the "blueprint" metaphor. Pub Understand Sci 1999;8:169-180.
23. Durant J, Hansen A, Bauer M. Public understanding of the new genetics. In: Marteau T, Richards M, editors. The Troubled Helix: Social and Psychological Implications of the New Human Genetics. London: Cambridge University Press, 1996:235-248.