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Volumn 7, Issue 1, 2003, Pages 33-43

Public experiences, knowledge and expectations about medical genetics and the use of genetic information

Author keywords

Genetic testing; Information; Knowledge; Public expectations

Indexed keywords

ACADEMIC ACHIEVEMENT; ADULT; AGE DISTRIBUTION; AGED; ARTICLE; CONTROLLED STUDY; DIAGNOSTIC PROCEDURE; EXPECTATION; EXPERIENCE; FEMALE; HEALTH PRACTITIONER; HUMAN; INFORMATION DISSEMINATION; MALE; MEDICAL GENETICS; MEDICAL INFORMATION; MULTIVARIATE ANALYSIS; NETHERLANDS; NORMAL HUMAN; PRIORITY JOURNAL; QUESTIONNAIRE; SEX ROLE;

EID: 5644273777     PISSN: 14222795     EISSN: None     Source Type: Journal    
DOI: 10.1159/000080302     Document Type: Article
Times cited : (121)

References (36)
  • 1
    • 0035819474 scopus 로고    scopus 로고
    • Implications of the Human Genome Project for medical science
    • Collins FS, McKusick VA: Implications of the Human Genome Project for medical science. JAMA 2001;285:540-544.
    • (2001) JAMA , vol.285 , pp. 540-544
    • Collins, F.S.1    McKusick, V.A.2
  • 2
    • 0036040770 scopus 로고    scopus 로고
    • Pharmacogenetics and the future of medical practice
    • Lindpaintner K: Pharmacogenetics and the future of medical practice. Br J Clin Pharmacol 2002;54:221-230.
    • (2002) Br J Clin Pharmacol , vol.54 , pp. 221-230
    • Lindpaintner, K.1
  • 3
    • 0032554222 scopus 로고    scopus 로고
    • The new genetics in clinical practice
    • Bell J: The new genetics in clinical practice. BMJ 1998;316:618-620.
    • (1998) BMJ , vol.316 , pp. 618-620
    • Bell, J.1
  • 4
    • 0035282201 scopus 로고    scopus 로고
    • Women's interest in genetic testing for breast cancer susceptibility may be based on unrealistic expectations
    • Press NA, Yasui Y, Reynolds S, Durfy SJ, Burke W: Women's interest in genetic testing for breast cancer susceptibility may be based on unrealistic expectations. Am J Med Genet 2001;99:99-110.
    • (2001) Am J Med Genet , vol.99 , pp. 99-110
    • Press, N.A.1    Yasui, Y.2    Reynolds, S.3    Durfy, S.J.4    Burke, W.5
  • 6
    • 0035490903 scopus 로고    scopus 로고
    • What is 'public opinion' about genetics?
    • Condit C: What is 'public opinion' about genetics? Nat Rev Genet 2001;2:811-815.
    • (2001) Nat Rev Genet , vol.2 , pp. 811-815
    • Condit, C.1
  • 8
    • 85029599783 scopus 로고    scopus 로고
    • Public and professional understanding of genetics
    • Cooper DN (ed): London, Nature Publishing Group
    • Cunningham-Burley S: Public and professional understanding of genetics; in Cooper DN (ed): Nature Encyclopedia of the Human Genome. London, Nature Publishing Group, 2003, vol 3, pp 929-932.
    • (2003) Nature Encyclopedia of the Human Genome , vol.3 , pp. 929-932
    • Cunningham-Burley, S.1
  • 9
    • 5644257531 scopus 로고    scopus 로고
    • Public understanding of genetics: The deficit model
    • Cooper DN (ed): London, Nature Publishing Group
    • Turney J: Public understanding of genetics: The deficit model; in Cooper DN (ed): Nature Encyclopedia of the Human Genome. London, Nature Publishing Group, 2003, vol 3, pp 936-939.
    • (2003) Nature Encyclopedia of the Human Genome , vol.3 , pp. 936-939
    • Turney, J.1
  • 12
    • 0036757653 scopus 로고    scopus 로고
    • Preconception cystic fibrosis carrier couple screening: Impact, understanding, and satisfaction
    • Henneman L, Bramsen I, Van der Ploeg HM, Ten Kate LP: Preconception cystic fibrosis carrier couple screening: Impact, understanding, and satisfaction. Genet Test 2002;6:195-202.
    • (2002) Genet Test , vol.6 , pp. 195-202
    • Henneman, L.1    Bramsen, I.2    Van Der Ploeg, H.M.3    Ten Kate, L.P.4
  • 13
    • 3543125329 scopus 로고    scopus 로고
    • The Hague, Health Council of the Netherlands, publication No. 2003/05
    • Health Council of The Netherlands: Public Awareness about Genetics. The Hague, Health Council of the Netherlands, 2003, publication No. 2003/05.
    • (2003) Public Awareness about Genetics
  • 14
    • 0008739384 scopus 로고    scopus 로고
    • People's Panel Quantitative Study conducted for the Human Genetics Commission. London, Crown
    • Human Genetic Commission: Public Attitudes to Human Genetic Information. People's Panel Quantitative Study conducted for the Human Genetics Commission. London, Crown, 2001.
    • (2001) Public Attitudes to Human Genetic Information
  • 15
    • 0030452123 scopus 로고    scopus 로고
    • Lay understanding of genetics: A test of a hypothesis
    • Richards M, Ponder M: Lay understanding of genetics: A test of a hypothesis. J Med Genet 1996;33:1032-1036.
    • (1996) J Med Genet , vol.33 , pp. 1032-1036
    • Richards, M.1    Ponder, M.2
  • 16
    • 0032866380 scopus 로고    scopus 로고
    • Knowledge about genes and heredity among Finns
    • Jallinoja P, Aro AR: Knowledge about genes and heredity among Finns. New Genet Soc 1999;18:101-110.
    • (1999) New Genet Soc , vol.18 , pp. 101-110
    • Jallinoja, P.1    Aro, A.R.2
  • 17
    • 0032809485 scopus 로고    scopus 로고
    • The Genetic Knowledge Index: Developing a standard measure of genetic knowledge
    • Furr LA, Kelly SE: The Genetic Knowledge Index: Developing a standard measure of genetic knowledge. Genet Test 1999;3:193-199.
    • (1999) Genet Test , vol.3 , pp. 193-199
    • Furr, L.A.1    Kelly, S.E.2
  • 19
    • 0028856597 scopus 로고
    • 20-Year national screening for phenylketonuria in the Netherlands
    • National Guidance Commission PKU (in Dutch)
    • Verkerk PH: 20-year national screening for phenylketonuria in The Netherlands. National Guidance Commission PKU (in Dutch). Ned Tijdschr Geneeskd 1995;139:2302-2305.
    • (1995) Ned Tijdschr Geneeskd , vol.139 , pp. 2302-2305
    • Verkerk, P.H.1
  • 20
    • 84995055253 scopus 로고
    • Lay constructions of genetic risk
    • Parsons E, Atkinson P: Lay constructions of genetic risk. Soc Health Illness 1992;14:439-455.
    • (1992) Soc Health Illness , vol.14 , pp. 439-455
    • Parsons, E.1    Atkinson, P.2
  • 21
    • 0036245054 scopus 로고    scopus 로고
    • Science and society: Genetic counselling and customary consanguineous marriage
    • Modell B, Darr A: Science and society: Genetic counselling and customary consanguineous marriage. Nat Rev Genet 2002;3:225-229.
    • (2002) Nat Rev Genet , vol.3 , pp. 225-229
    • Modell, B.1    Darr, A.2
  • 22
    • 0029612238 scopus 로고
    • Towards informed decisions about prenatal testing: A review
    • Marteau TM: Towards informed decisions about prenatal testing: A review. Prenat Diagn 1995;15:1215-1226.
    • (1995) Prenat Diagn , vol.15 , pp. 1215-1226
    • Marteau, T.M.1
  • 23
    • 0036318421 scopus 로고    scopus 로고
    • Three years after the Dutch folic acid campaign: Growing socioeconomic differences
    • De Walle HEK, Cornel MC, De Jong-van den Berg LT: Three years after the Dutch folic acid campaign: Growing socioeconomic differences. Prev Med 2002;35:65-69.
    • (2002) Prev Med , vol.35 , pp. 65-69
    • De Walle, H.E.K.1    Cornel, M.C.2    De Jong-van Den Berg, L.T.3
  • 24
    • 5644294797 scopus 로고    scopus 로고
    • European regions and the knowledge deficit model
    • Bauer MW, Gaskell G (eds): Cambridge, Cambridge University Press
    • Allum NC, Boy D, Bauer MW: European regions and the knowledge deficit model; in Bauer MW, Gaskell G (eds): Biotechnology: The Making of a Global Controversy. Cambridge, Cambridge University Press, 2002, pp 224-243.
    • (2002) Biotechnology: The Making of a Global Controversy , pp. 224-243
    • Allum, N.C.1    Boy, D.2    Bauer, M.W.3
  • 26
    • 0031240547 scopus 로고    scopus 로고
    • Whom would you trust with your genetic information?
    • Weiss JO, Kozma C, Lapham EV: Whom would you trust with your genetic information? Am J Hum Genet 1997;61:A24.
    • (1997) Am J Hum Genet , vol.61
    • Weiss, J.O.1    Kozma, C.2    Lapham, E.V.3
  • 27
    • 0029091299 scopus 로고
    • Barriers to carrier testing for adult cystic fibrosis sibs: The importance of not knowing
    • Fanos JH, Johnson JP: Barriers to carrier testing for adult cystic fibrosis sibs: The importance of not knowing. Am J Med Genet 1995;59:85-91.
    • (1995) Am J Med Genet , vol.59 , pp. 85-91
    • Fanos, J.H.1    Johnson, J.P.2
  • 29
    • 5644240083 scopus 로고
    • Signs of life-taking genetic literacy seriously
    • Turney J: Signs of life-taking genetic literacy seriously. Genet Engineer Biotechnol 1995;15:181-187.
    • (1995) Genet Engineer Biotechnol , vol.15 , pp. 181-187
    • Turney, J.1
  • 30
    • 0037164335 scopus 로고    scopus 로고
    • Working towards ethical management of genetic testing
    • Parker M, Lucassen A: Working towards ethical management of genetic testing. Lancet 2002;360:1685-1688.
    • (2002) Lancet , vol.360 , pp. 1685-1688
    • Parker, M.1    Lucassen, A.2
  • 31
    • 5644301408 scopus 로고    scopus 로고
    • Biology students' forming and justifying of opinions on predictive genetic testing. Towards a practicable and effective teaching strategy
    • Bandiera M, Caravita S, Torracca E, Vicentini M (eds): London, Kluwer Academic
    • Waarlo AJ: Biology students' forming and justifying of opinions on predictive genetic testing. Towards a practicable and effective teaching strategy; in Bandiera M, Caravita S, Torracca E, Vicentini M (eds): Research in Science Education in Europe. London, Kluwer Academic, 1999, pp 41-48.
    • (1999) Research in Science Education in Europe , pp. 41-48
    • Waarlo, A.J.1
  • 33
    • 0037177527 scopus 로고    scopus 로고
    • Balancing life-style and genomics research for disease prevention
    • Willett WC: Balancing life-style and genomics research for disease prevention. Science 2002;296:695-698.
    • (2002) Science , vol.296 , pp. 695-698
    • Willett, W.C.1
  • 34
    • 0034644254 scopus 로고    scopus 로고
    • Will genetics revolutionize medicine?
    • Holtzman NA, Marteau TM: Will genetics revolutionize medicine? N Engl J Med 2000;343:141-144.
    • (2000) N Engl J Med , vol.343 , pp. 141-144
    • Holtzman, N.A.1    Marteau, T.M.2
  • 36
    • 0034606928 scopus 로고    scopus 로고
    • Informed choice in genetic screening for thalassaemia during pregnancy: Audit from a national confidential inquiry
    • Modell B, Harris R, Lane B, Khan M, Darlison M, Petrou M, Old J, Layton M, Varnavides L: Informed choice in genetic screening for thalassaemia during pregnancy: Audit from a national confidential inquiry. BMJ 2000;320:337-341.
    • (2000) BMJ , vol.320 , pp. 337-341
    • Modell, B.1    Harris, R.2    Lane, B.3    Khan, M.4    Darlison, M.5    Petrou, M.6    Old, J.7    Layton, M.8    Varnavides, L.9


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.