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Volumn 14, Issue 1, 2005, Pages 29-42

(Mis)alignments in counseling for Huntington's Disease predictive testing: Clients' responses to reflective frames

Author keywords

Decision to test; Discourse analysis; Engagement; Genetic counseling; Impact of result; Reflection; Temporal and social axes

Indexed keywords

ARTICLE; CLINICAL MEDICINE; COPING BEHAVIOR; GENETIC COUNSELING; GENETIC RISK; GENETIC SCREENING; HUMAN; HUNTINGTON CHOREA; INTERPERSONAL COMMUNICATION; MEDICAL DECISION MAKING; METHODOLOGY; PATIENT ATTITUDE; SELF EVALUATION; SOCIAL ASPECT; THEORETICAL STUDY;

EID: 17444378941     PISSN: 10597700     EISSN: None     Source Type: Journal    
DOI: 10.1007/s10897-005-1498-3     Document Type: Article
Times cited : (33)

References (40)
  • 1
    • 0035044117 scopus 로고    scopus 로고
    • Professional constructions of family and kinship in medical genetics
    • Atkinson, P., Parsons, E., & Featherstone, K. (2001). Professional constructions of family and kinship in medical genetics. New Genet Soc, 20(1), 5-24.
    • (2001) New Genet Soc , vol.20 , Issue.1 , pp. 5-24
    • Atkinson, P.1    Parsons, E.2    Featherstone, K.3
  • 2
    • 0032421735 scopus 로고    scopus 로고
    • Predictive testing for Huntington's disease: I. Predictors of uptake in South Wales
    • Binedell, X, Soldan, J. R., & Harper, P. S. (1998a). Predictive testing for Huntington's disease: I. Predictors of uptake in South Wales. Clin Genet, 54, 477-488.
    • (1998) Clin Genet , vol.54 , pp. 477-488
    • Binedell, X.1    Soldan, J.R.2    Harper, P.S.3
  • 3
    • 0032410262 scopus 로고    scopus 로고
    • Predictive testing for Huntington's disease: II. Qualitative findings from a study of uptake in South Wales
    • Binedell, J., Soldan, J. R., & Harper, P. S. (1998b). Predictive testing for Huntington's disease: II. Qualitative findings from a study of uptake in South Wales. Clin Genet, 54, 489-496.
    • (1998) Clin Genet , vol.54 , pp. 489-496
    • Binedell, J.1    Soldan, J.R.2    Harper, P.S.3
  • 4
    • 85069102296 scopus 로고    scopus 로고
    • Genetic counseling protocols for hereditary nonpolyposis colorectal cancer: A survey of U.K. centres
    • Brain, K., Soldan, J., Sampson, J., & Gray, J. (2003). Genetic counseling protocols for hereditary nonpolyposis colorectal cancer: A survey of U.K. centres. Clin Genet, 63, 1-7.
    • (2003) Clin Genet , vol.63 , pp. 1-7
    • Brain, K.1    Soldan, J.2    Sampson, J.3    Gray, J.4
  • 6
    • 0037607584 scopus 로고    scopus 로고
    • Ethical dilemmas in testing for late onset conditions: Reactions to testing and perceived impact on other family members
    • Chapman, E. (2002). Ethical dilemmas in testing for late onset conditions: Reactions to testing and perceived impact on other family members. J Genet Couns, 11(5), 351-367.
    • (2002) J Genet Couns , vol.11 , Issue.5 , pp. 351-367
    • Chapman, E.1
  • 7
    • 0028022712 scopus 로고
    • Psychological costs and benefits of predictive testing for Huntington's disease
    • Codori, A.-M., & Brandt, J. (1994). Psychological costs and benefits of predictive testing for Huntington's disease. Am J Med Genet (Neuropsychiatr Genet), 54, 174-184.
    • (1994) Am J Med Genet (Neuropsychiatr Genet) , vol.54 , pp. 174-184
    • Codori, A.-M.1    Brandt, J.2
  • 8
    • 0033181469 scopus 로고    scopus 로고
    • 'There's this thing in our family': Predictive testing and the construction of risk for Huntington's Disease
    • Cox, S. M., & McKellin, W. (1999). 'There's this thing in our family': Predictive testing and the construction of risk for Huntington's Disease. Soc Health Illn, 21(5), 622-646.
    • (1999) Soc Health Illn , vol.21 , Issue.5 , pp. 622-646
    • Cox, S.M.1    McKellin, W.2
  • 12
    • 16944363057 scopus 로고    scopus 로고
    • Psychological distress in applicants of predictive DNA testing for autosomal dominant inheritable late onset disorders
    • Dudok de Wit, A. C, Tibben, A., Duivenvoorden, H. J., Frets, P. G., Zoeteweij, M. W, Losekoot, M., et al. (1997). Psychological distress in applicants of predictive DNA testing for autosomal dominant inheritable late onset disorders. J. Med Genet, 34, 382-391.
    • (1997) J Med Genet , vol.34 , pp. 382-391
    • Dudok De Wit, A.C.1    Tibben, A.2    Duivenvoorden, H.J.3    Frets, P.G.4    Zoeteweij, M.W.5    Losekoot, M.6
  • 13
    • 85047696356 scopus 로고    scopus 로고
    • Predictive DNA-testing for Huntington's disease and reproductive decision-making: A European collaborative study
    • Evers-Kiebooms, G., Nys, K., Harper, P. S., Zoeteweij, M., Durr, A., Jacopini, G., et al. (2002). Predictive DNA-testing for Huntington's disease and reproductive decision-making: A European collaborative study. Eur J Hum Genet, 10, 167-176.
    • (2002) Eur J Hum Genet , vol.10 , pp. 167-176
    • Evers-Kiebooms, G.1    Nys, K.2    Harper, P.S.3    Zoeteweij, M.4    Durr, A.5    Jacopini, G.6
  • 15
    • 0001891051 scopus 로고    scopus 로고
    • Presymptomatic testing for late-onset genetic disorders. Lessons from Huntington's disease
    • P. S. Harper, & A. Clarke (Eds.), Oxford: Bios Scientific
    • Harper, P. S. (1997). Presymptomatic testing for late-onset genetic disorders. Lessons from Huntington's disease. In P. S. Harper, & A. Clarke (Eds.), Genetics, society and clinical practice (pp. 31-48). Oxford: Bios Scientific.
    • (1997) Genetics, Society and Clinical Practice , pp. 31-48
    • Harper, P.S.1
  • 17
    • 0026524216 scopus 로고
    • Predictive testing for Huntington disease in Canada: Adverse effects and unexpected results in those receiving a decreased risk
    • Huggins, M., Bloch, M., Wiggins, S., Adam, S., Suchowersky, O., Trew, M., et al. (1992). Predictive testing for Huntington disease in Canada: Adverse effects and unexpected results in those receiving a decreased risk. Am J Med Genet, 42, 508-515.
    • (1992) Am J Med Genet , vol.42 , pp. 508-515
    • Huggins, M.1    Bloch, M.2    Wiggins, S.3    Adam, S.4    Suchowersky, O.5    Trew, M.6
  • 18
    • 0009987839 scopus 로고    scopus 로고
    • Grounded theory in genetic counseling research
    • McAllister, M. (2001). Grounded theory in genetic counseling research. J Genet Courts, 10, 233-250.
    • (2001) J Genet Courts , vol.10 , pp. 233-250
    • McAllister, M.1
  • 19
    • 6044239799 scopus 로고    scopus 로고
    • Understanding responses to predictive genetic testing: A grounded theory approach
    • Michie, S. V., McDonald, V, & Marteau, T. M. (1996). Understanding responses to predictive genetic testing: A grounded theory approach. Psychol Health, 11, 455-470.
    • (1996) Psychol Health , vol.11 , pp. 455-470
    • Michie, S.V.1    McDonald, V.2    Marteau, T.M.3
  • 21
    • 85187342772 scopus 로고    scopus 로고
    • Mapping and assessing medical students' interactional involvement styles with patients
    • K. Spellman-Miller & P. Thompson (Eds.), London: Continuum
    • Roberts, C., & Sarangi, S. (2002). Mapping and assessing medical students' interactional involvement styles with patients. In K. Spellman-Miller & P. Thompson (Eds.), Unity and diversity in language use (pp. 99-124). London: Continuum.
    • (2002) Unity and Diversity in Language Use , pp. 99-124
    • Roberts, C.1    Sarangi, S.2
  • 22
    • 85069287494 scopus 로고    scopus 로고
    • Activity types, discourse types and interactional hybridity: The case of genetic counseling
    • S. Sarangi & M. Coulthard (Eds.), London: Pearson
    • Sarangi, S. (2000). Activity types, discourse types and interactional hybridity: The case of genetic counseling. In S. Sarangi & M. Coulthard (Eds.), Discourse and social life (pp. 1-27). London: Pearson.
    • (2000) Discourse and Social Life , pp. 1-27
    • Sarangi, S.1
  • 23
    • 0036114145 scopus 로고    scopus 로고
    • The language of likelihood in genetic counseling discourse
    • Sarangi, S. (2002). The language of likelihood in genetic counseling discourse. J Lang Social Psychol, 21, 7-31.
    • (2002) J Lang Social Psychol , vol.21 , pp. 7-31
    • Sarangi, S.1
  • 24
    • 3543116057 scopus 로고    scopus 로고
    • Communication in genetic counseling: A discourse analytic approach
    • D. N. Cooper (Ed.), London: Nature Publishing Group
    • Sarangi, S. (2003). Communication in genetic counseling: A discourse analytic approach. In D. N. Cooper (Ed.), The encyclopaedia of the human genome (pp. 747-752). London: Nature Publishing Group.
    • (2003) The Encyclopaedia of the Human Genome , pp. 747-752
    • Sarangi, S.1
  • 25
    • 0038388306 scopus 로고    scopus 로고
    • Relatively speaking: Relativisation of genetic risk in counselling for predictive testing
    • Sarangi, S., Bennert, K., Howell, L., & Clarke, A. (2003a). Relatively speaking: Relativisation of genetic risk in counselling for predictive testing. Health Risk Soc, 5(2), 155-170.
    • (2003) Health Risk Soc , vol.5 , Issue.2 , pp. 155-170
    • Sarangi, S.1    Bennert, K.2    Howell, L.3    Clarke, A.4
  • 26
    • 3543147325 scopus 로고    scopus 로고
    • Initiation of reflective frames in counseling for Huntington's Disease predictive testing
    • Sarangi, S., Bennert, K., Howell, L., Clarke. A., Harper. P., & Gray, J. (2004). Initiation of reflective frames in counseling for Huntington's Disease predictive testing. J Genet Couns, 13(2), 135-155.
    • (2004) J Genet Couns , vol.13 , Issue.2 , pp. 135-155
    • Sarangi, S.1    Bennert, K.2    Howell, L.3    Clarke, A.4    Harper, P.5    Gray, J.6
  • 27
    • 0036080942 scopus 로고    scopus 로고
    • Zones of expertise and the management of uncertainty in genetics risk communication
    • Sarangi, S., & Clarke, A. (2002a). Zones of expertise and the management of uncertainty in genetics risk communication. Res Lang Soc Interact, 35, 139-171.
    • (2002) Res Lang Soc Interact , vol.35 , pp. 139-171
    • Sarangi, S.1    Clarke, A.2
  • 28
    • 0036132311 scopus 로고    scopus 로고
    • Constructing an account by contrast in counseling for childhood genetic testing
    • Sarangi, S., & Clarke, A. (2002b). Constructing an account by contrast in counseling for childhood genetic testing. Soc Sci Med, 54, 295-308.
    • (2002) Soc Sci Med , vol.54 , pp. 295-308
    • Sarangi, S.1    Clarke, A.2
  • 29
    • 0345706095 scopus 로고    scopus 로고
    • Categorisation practices across professional boundaries: Some analytic insights from genetic counselling
    • S. Sarangi & T. van Leeuwen (Eds.), London: Continuum
    • Sarangi, S., Clarke, A., Bennert, K., & Howell, L. (2003b). Categorisation practices across professional boundaries: Some analytic insights from genetic counselling. In S. Sarangi & T. van Leeuwen (Eds.), Applied linguistics and communities of practice (pp. 150-168). London: Continuum.
    • (2003) Applied Linguistics and Communities of Practice , pp. 150-168
    • Sarangi, S.1    Clarke, A.2    Bennert, K.3    Howell, L.4
  • 32
    • 0002046341 scopus 로고    scopus 로고
    • Decision-making in the context of genetic risk
    • T. Marteau & M. Richards (Eds.), Cambridge: Cambridge University Press
    • Shiloh, S. (1996). Decision-making in the context of genetic risk. In T. Marteau & M. Richards (Eds.), The troubled helix: Social and psychological implications of the new human genetics (pp. 82-103). Cambridge: Cambridge University Press.
    • (1996) The Troubled Helix: Social and Psychological Implications of the New Human Genetics , pp. 82-103
    • Shiloh, S.1
  • 33
    • 0033989352 scopus 로고    scopus 로고
    • Impact of genetic testing for Huntington's disease on the family system
    • Sobel, S. K., & Cowan, D. B. (2000). Impact of genetic testing for Huntington's disease on the family system. Am J Med Genet, 90, 49-59.
    • (2000) Am J Med Genet , vol.90 , pp. 49-59
    • Sobel, S.K.1    Cowan, D.B.2
  • 34
    • 0034120841 scopus 로고    scopus 로고
    • Psychological model for presymptomatic test interviews: Lessons learned from Huntington disease
    • Soldan, J., Street, J., Gray, J., Binedell, J., & Harper, P. S. (2000). Psychological model for presymptomatic test interviews: Lessons learned from Huntington disease. J Genet Couns, 9, 15-31.
    • (2000) J Genet Couns , vol.9 , pp. 15-31
    • Soldan, J.1    Street, J.2    Gray, J.3    Binedell, J.4    Harper, P.S.5
  • 35
  • 38
    • 0004191718 scopus 로고
    • New York: Oxford University Press
    • Tannen, D. (Ed.). (1993). Framing in discourse. New York: Oxford University Press.
    • (1993) Framing in Discourse
    • Tannen, D.1
  • 39
    • 0039424490 scopus 로고
    • Some formal properties of therapy talk
    • D. Sudnow (Ed.), New York: Free Press
    • Turner, R. (1972). Some formal properties of therapy talk. In D. Sudnow (Ed.), Studies in social interaction (pp. 367-397). New York: Free Press.
    • (1972) Studies in Social Interaction , pp. 367-397
    • Turner, R.1
  • 40
    • 0028018162 scopus 로고
    • Predictive testing for Huntington disease: Nonparticipants compared with participants in the Dutch program
    • Van der Steenstraten, I. M., Tibben, A., Roos, R. A. C., van de Kamp. J. J. P., & Niermeijer, M. F. (1994). Predictive testing for Huntington disease: Nonparticipants compared with participants in the Dutch program. Am J Hum Genet, 55, 618-625.
    • (1994) Am J Hum Genet , vol.55 , pp. 618-625
    • Van Der Steenstraten, I.M.1    Tibben, A.2    Roos, R.A.C.3    Van De Kamp, J.J.P.4    Niermeijer, M.F.5


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