Patient-centred outcomes in dietary research

Journal of Human Nutrition and Dietetics

Volumn 18, Issue 2, 2005, Pages 83-92

  Jackson, Jennie A ^a,b   Kinn, S ^a   Dalgarno, P ^a  

^a GLASGOW CALEDONIAN UNIVERSITY   (United Kingdom)

^b NHS AYRSHIRE AND ARRAN   (United Kingdom)

Author keywords

Dietetic treatment; Outcome measurement; Patient centred outcomes

Indexed keywords

INSULIN;

ALLERGY; BIBLIOGRAPHIC DATABASE; CARDIOVASCULAR DISEASE; CELIAC DISEASE; CLINICAL RESEARCH; COCHRANE LIBRARY; DIET RESTRICTION; DIET SUPPLEMENTATION; DIET THERAPY; ENTERIC FEEDING; EPILEPSY; EXERCISE; GLUTEN FREE DIET; HEALTH CARE DELIVERY; HEALTH CARE POLICY; HUMAN; HYPERCHOLESTEROLEMIA; HYPERLIPIDEMIA; HYPERTENSION; INSULIN DEPENDENT DIABETES MELLITUS; INTERVIEW; KETOGENIC DIET; KIDNEY DISEASE; LOW FAT DIET; MALNUTRITION; MEDICAL LITERATURE; MEDLINE; MOTIVATION; NUTRITIONAL HEALTH; OUTCOMES RESEARCH; PATIENT ATTITUDE; PATIENT CARE; PATIENT COUNSELING; PROTEIN RESTRICTION; QUALITY OF LIFE; QUESTIONNAIRE; REVIEW; TOTAL PARENTERAL NUTRITION; TREATMENT OUTCOME;

ATTITUDE TO HEALTH; DIET; HUMANS; OUTCOME ASSESSMENT (HEALTH CARE); PATIENT SATISFACTION; PATIENT-CENTERED CARE; RESEARCH; TREATMENT OUTCOME;

EID: 17144380743     PISSN: 09523871     EISSN: None     Source Type: Journal    
DOI: 10.1111/j.1365-277X.2004.00581.x     Document Type: Review

References (55)

1. Barr, J.T. & Schumacher, G. (2003a) The need for a nutrition-related quality of life measure. J. Am. Diet. Assoc. 103, 177-180.
2. Barr, J.T. & Schumacher, G. (2003b) Using focus groups to determine what constitutes quality of life in clients receiving medical nutrition therapy: first steps in the development of a nutrition quality of life survey. J. Am. Diet. Assoc. 103, 844-851.
3. Barr, J.T., Schumacher, G. & Myers, E.F. (2001) Case problem: quality of life outcomes assessment. How can you use it in medical nutrition therapy? J. Am. Diet. Assoc. 101, 1064-1066.
4. Beattie, A.H., Prach, A.T., Baxter, J.P. & Pennington, C.R. (2000) A randomised controlled trial evaluating the use of enteral nutritional supplements postoperatively in malnourished surgical patients. Gut 46, 813-818.
5. Biesemeier, C. & Chima, C.S. (1997) Computerized patient record: are we prepared for our future practice? J. Am. Diet. Assoc. 97, 1099-1104.
6. Bowen, D., Ehret, C., Pedersen, M., Snetselaar, L et al. (2002) Results of an adjunct dietary intervention program in the Women's Health Initiative. J. Am. Diet. Assoc. 102, 1631.
7. Bradley, C., Todd, C., Gorton, T., Symonds, E., Martin, A. & Plowright, R. (1999) The development of an individualized questionnaire measure of perceived impact of diabetes on quality of life: the ADDQoL. Qual. Life Res. 8, 79-91.
8. Campbell, R., Quilty, B. & Dieppe, P. (2003) Discrepancies between patients' assessments of outcome: qualitative study nested within a randomised controlled trial. BMJ 326, 252-253.
9. DCCT Research Group (1988) Reliability and validity of a Diabetes Quality-of-Life measure for the Diabetes Control and Complications Trial (DCCT). Diabetes Care 11, 725-732.
10. DCCT Research Group (1996) Influence of intensive diabetes treatment on quality-of-life outcomes in the Diabetes Control and Complications Trial. Diabetes Care 19, 195-203.
11. Delahanty, L.M., Hayden, D., Ammerman, A. & Nathan, D.M. (2002) Medical nutrition therapy for hypercholesterolemia positively affects patient satisfaction and quality of life outcomes. Ann. Behav. Med. 24, 269-278.
12. Department of Health (2000) The NHS Plan: a Plan for Investment, a Plan for Reform. London: Stationery Office, CM 4818-1. http://www.nhs.uk/nationalplan/ [accessed November 2003].
13. Department of Health (2003) Involving Patients and the Public in Health. http://www.doh.gov.uk/involvingpatients [accessed November 2003].
14. Derebery, M.J. & Berliner, K.I. (2000) Allergy and health-related quality of life. Otolaryngol. Head Neck Surg. 123 393-399.
15. Dixon, P. & Long, A.F. (1995) Broadening the criteria for selecting and developing health status instruments. Outcomes Briefing 8, 4-14.
16. Eaton, J. (2001) Outcome measures - what are you doing? Diet. Today 36, 9.
17. Eck, L.H., Slawson, D.L., Williams, R. & Smith, K. (1998) A model for making outcomes research standard practice in clinical dietetics. J. Am. Diet. Assoc. 98, 451-457.
18. Entwistle, V.A., Sowden, A.J. & Watt, I.S. (1998) Evaluating interventions to promote patient involvement in decision-making: by what criteria should they be judged. J. Health Serv. Res. Policy 3 100-107.
19. Faro, B. (1999) The effect of diabetes on adolescents' quality of life. Pediatr. Nurs. 25, 247-253.
20. Fitzpatrick, R., Davey, C., Buxton, M.J. & Jones, D.R. (1998) Evaluating patient-based outcome measures for use in clinical trials. Health Technol. Assess. 2, 1-74.
21. Gerteis, M., Edgman-Levitan, S., Daley, J. & Delbanco, T.L. (1993) Through the Patient's Eyes. Understanding and Promoting Patient-Centred Care. San Francisco, CA: Jossey-Bass Inc.
22. Haeberle, K.N. (1989) Psychological aspects of low protein diet therapy. Blood Purif. 7, 39-42.
23. Hallert, C., Granno, C., Grant, C., Hulten, S., Midhagen, G., Strom, M., Svensson, H., Valdimarsson, T. & Wickstrom, T. (1998) Quality of life of adult coeliac patients treated for 10 years. Scand. J. Gastroenterol. 33, 933-938.
24. Harries, U. & Hill, S. (1994) Measuring outcomes: two sides of the coin. Health Serv. J. 104, 25.
25. Hatton, D.C., Haynes, R.B., Oparil, S., Kris-Etherton, P., Pi-Sunyer, F.X., Resnick, L.M., Stern, J.S., Clark, S., McMahon, M., Morris, C., Metz, J., Ward, A., Holcomb, S. & MacCarron, D.A. (1996) Improved quality of life in patients with generalized cardiovascular metabolic disease on a prepared diet. Am. J. Clin. Nutr. 64, 935-943.
26. Joyce, C.R.B., O'Boyle, C.A. & McGee, H.M. (1999) Introduction: the individual perspective. In Individual Quality of Life. Approaches to Conceptualisation and Assessment. eds C.R.B. Joyce, C.A. O'Boyle & H.M. McGee, pp. 3-8. Amsterdam: Harwood Academic Publishers.
27. Keinanen-Kiukaanniemi, S., Ohinmaa, A., Pajunpaa, H. & Koivukangas, P. (1996) Health related quality of life in diabetic patients measured by the Nottingham Health Profile. Diabet. Med. 13, 382-388.
28. Kelson, M. (1999) Patient-defined Outcomes. London: College of Health.
29. Krondl, M., Coleman, P.H., Bradley, C.L., Lau, D. & Ryan, N. (1999) Subjectively healthy elderly consuming a liquid nutrition supplement maintained body mass index and improved some nutritional parameters and perceived well-being. J. Am. Diet. Assoc. 99, 1542-1548.
30. Kulkarni, K., Castle, G., Gregory, R., Holmes, A., Leontos, C., Powers, M., Snetselaar, L., Splett, P. & Wylie-Rosett, J. (1998) Nutrition practice guidelines for type 1 diabetes mellitus positively affect dietitian practices and patient outcomes. The Diabetes Care and Education Dietetic Practice Group. J. Am. Diet. Assoc. 98, 62-70.
31. Lee, A. & Newman, J.M. (2003) Coeliac diet: its impact on quality of life. J. Am. Diet. Assoc. 103, 1533.
32. Long, A. (1996) The user's perspective in outcome measurement: an overview of the issues. Outcomes Briefing 8, 4-8.
33. MacCracken, K.A. & Scalisi, J.C. (1999) Development and evaluation of a ketogenic diet program. J. Am. Diet. Assoc. 99 1554-1558.
34. McCarron, D.A., Oparil, S., Chait, A., Haynes, R.B., Kris-Etherton, P., Stern, J.S., Resnick, L.M., Clark, S., Morris, C.D., Hatton, D.C., Metz, J.A., McMahon, M., Holcomb, S., Snyder, G.W. & Pi-Sunyer, F.X. (1997) Nutritional management of cardiovascular risk factors. A randomized clinical trial. Arch. Intern. Med. 157, 169-177.
35. Merkens, B.J. (1994) Measuring outcomes of nutrition intervention. J. Can. Diet. Assoc. 55, 64-68.
36. Miller, R. & Rollnick S. (2002) Motivational Interviewing: Preparing People for Change, 2nd edn. New York: Guilford Press.
37. O'Boyle, C.A., Browne, J., Hickey, A. & Joyce, C.R.B. (1996) Schedule for the Evaluation of individual Quality of Life - a Direct Weighting Procedure for the Quality of Life Domains. Administration Manual. Dublin, Ireland: Department of Psychology, Royal College of Surgeons Ireland.
38. Plaisted, C.S., Galanos, A.N., Westlund, R., Lin, P.H., Currie, K. & Bales, C.W. (1995) Community dwelling elderly are appropriate subjects for intensive dietary choice restriction studies. J. Nutr. Elderly 14, 1-14.
39. Plaisted, C.S., Lin, P., Ard, J.D., McClure, M.L. & Svetsky, L.P. (1999) Dash Trial. The effects of dietary patterns on quality of life: a substudy of the Dietary Approaches to Stop Hypertension trial. J. Am. Diet. Assoc. 99, S84-S89.
40. Reddy, P. & Malone, M. (1998) Cost and outcome analysis of home parenteral and enteral nutrition. JPEN J. Parenter. Enteral Nutr. 22, 302-310.
41. Retterstol, K., Stugaard, M., Gorbitz, C. & Ose, L. (1996) Results of intensive long-term treatment of familial hypercholesterolemia. Am. J. Cardiol. 78, 1369-1374.
42. Reuben, D.B., Effros, R.B., Hirsch, S., Zhu X. & Greendale, G.A. (1999) An in-home nurse-administered geriatric assessment for hypoalbuminemic older persons: development and preliminary experiences. J. Am. Geriatr. Soc. 47, 1244-1248.
43. Richards, D.M. & Irving, M.H. (1997) Assessing the quality of life of patients with intestinal failure on home parenteral nutrition. Gut 40, 218-222.
44. Roberts, A. & Ashley, G. (1999) What are the characteristics of overweight and obese patients who achieve weight loss and what factors are most helpful? A quantitative and qualitative study of patients and interventions in a rural GP practice. J. Hum. Nutr. Diet. 12 Suppl. 1), 20.
45. Schiller, M.R. & Moore, C. (1999) Practical approaches to outcomes evaluation. Topics Clin. Nutr. 14, 1-12.
46. Schiller, M.R., Miller, M., Moore, C., Davis, E., Dunn, A., Mulligan, K. & Zeller, P. (1998) Patients report positive nutrition counselling outcomes. J. Am. Diet. Assoc. 98, 977-982.
47. Schneider, S.M., Pouget, I., Staccini, P., Rampal, P. & Hebuterne, X. (2000) Quality of life in long-term home enteral nutrition patients. Clin. Nutr. 19, 23-28.
48. Scottish Executive (2000) Our National Health: a Plan for Action, a Plan for Change. Edinburgh: Scottish Executive.
49. Scottish Executive (2001) Patient Focus and Public Involvement. Edinburgh: Scottish Executive.
50. Shah, M., McGovern, P., French, S. & Baxter, J. (1994) Comparison of a low-fat, ad libitum complex-carbohydrate diet with a low-energy diet in moderately obese women. Am. J. Clin. Nutr. 59 980-984.
51. Splett, P. & Myers, E.F. (2001) A proposed model for effective nutrition care. J. Am. Diet. Assoc. 101, 357-363.
52. Stenius-Aarniala, B., Poussa, T., Kvarnstrom, J., Gronlund, E.-L., Ylikahri, M. & Mustajoki, P. (2000) Immediate and long term effects of weight reduction in obese people with asthma: randomised controlled study. BMJ 320, 827-832.
53. Stewart, M., Brown, J.B., Weston, W.W., McWhinney, I., McWilliam, C.L. & Freeman, T.R. (1995) Patient-centred Medicine. Transforming the Clinical Method. Thousand Oaks, CA: Sage Publications Inc.
54. Ware, J. & Sherbourne, C.D. (1992) The MOS 36-item short form health survey (SF36). I: Conceptual framework and item selection. Med. Care 30, 473-483.
55. Wiser, N.A., Shane, J.M., McGuigan, A.T., Memken, J.A. & Olsson, P.J. (1997) The effects of a group nutrition education program on nutrition knowledge, nutrition status, and quality of life in hemodialysis patients. J. Ren. Nutr. 7, 187-193.