Reflections on the cleft experience by South African adults: Use of qualitative methodology

Cleft Palate-Craniofacial Journal

Volumn 40, Issue 5, 2003, Pages 471-480

  Patel, Zakkiya ^a   Ross, Eleanor ^b  

^a UNIVERSITY OF THE WITWATERSRAND   (South Africa)

^b UNIVERSITY OF THE WITWATERSRAND   (South Africa)

Author keywords

Adults; Cleft lip and palate; Quality of life; South Africa

Indexed keywords

ACADEMIC ACHIEVEMENT; ADULT; ARTICLE; CLEFT LIP; CLEFT PALATE; CLINICAL ARTICLE; EDUCATION; EMOTION; EMPLOYMENT; FAMILY COUNSELING; FAMILY LIFE; FEMALE; HEALTH EDUCATION; HUMAN; INTERPERSONAL COMMUNICATION; MALE; MARRIAGE; METHODOLOGY; PATIENT COUNSELING; PRIORITY JOURNAL; QUALITATIVE ANALYSIS; QUALITY OF LIFE; SOCIAL LIFE; SOUTH AFRICA; SPEECH ARTICULATION; SPEECH THERAPY;

ADULT; CLEFT LIP; CLEFT PALATE; EDUCATIONAL STATUS; EMPLOYMENT; FEMALE; FOLLOW-UP STUDIES; HUMANS; INTERPERSONAL RELATIONS; INTERVIEWS; MALE; MARITAL STATUS; MIDDLE AGED; PATIENT SATISFACTION; QUALITY OF LIFE;

EID: 0141676224     PISSN: 10556656     EISSN: None     Source Type: Journal    
DOI: 10.1597/1545-1569(2003)040<0471:ROTCEB>2.0.CO;2     Document Type: Article

References (46)

1. Albery EH, Hawthorn IS, Pigott RW. Cleft Lip and Palate: A Team Approach. Bristol, UK: Wright; 1986.
2. ASHA. Joint committee on infant hearing: 1994 position statement. ASHA. 1994;38-41.
3. Baker BL. Doing Social Research. New York: McGraw-Hill; 1994.
4. Barry LA, Witt PD, Marsh JL. Personality attributions based on speech samples of children with repaired cleft lip and palate. Cleft Palate Craniofac J. 1997; 34:334-388.
5. Bednar EA. Self-help for the facially disfigured: commentary on the "quasimodo complex". J Clin Ethics. 1990;1:222-223.
6. Breakwell GM, Hammond S, Schaw CF. Research Methods in Psychology. Thousand Oaks, CS: Sage; 1997.
7. Broder HL. Psychological research of children with craniofacial anomalies: review, critique and implications for the future. Cleft Palate Craniofac J. 1997;34:402-404.
8. Broder HL. Using psychological assessment and therapeutic strategies to enhance well-being. Cleft Palate Craniofac J. 2001;38:248-254.
9. Broder HL, Richman LC. An examination of the mental health services offered by cleft craniofacial teams. Cleft Palate J. 1987;24:158-162.
10. Clifford E. The Cleft Palate Experience. Springfield, IL: Charles C. Thomas; 1987.
11. Crabtree BF, Miller WL. Doing Qualitative Research. London: Sage Publications; 1992.
12. De Andrade V. Siyezwa Ingabantu: Approaches of Traditional Healers Towards Hearing Impairment. Johannesburg: University of the Witwatersrand; 1999. Unpublished master's research report.
13. Denzin NK, Lincoln YS. Collecting and Interpreting Qualitative Materials. Thousand Oaks, CA: Sage Publications, Inc; 1998.
14. Endriga MC, Kapp-Simon KA. Psychological issues in craniofacial care: state of the art. Cleft Palate Craniofac J. 1999;36:3-9.
15. Gilbert L, Selikow T, Walker L. Society, Health and Disease: An Introductory Reader for Health Professionals. Englewood Cliffs, NJ: Prentice-Hall; 1997.
16. Grandin T. Emergent Self: Living With Autism. Baltimore: Pro-ed; 1993.
17. Heller A, Tidmarsh W, Pless IB. The psychosocial functioning of young adults born with cleft lip and palate: a follow-up study. Clinical Pediatrics 1981; 24:456-459.
18. Herskina AM, Christensen K, Fogh-Anderson P, Jeul P. Cleft lip: a risk factor for suicide. Presented at the International Congress on Cleft Palate and Related Craniofacial Anomalies; November 12, 1993; Broadbeach, Australia.
19. Hill-Beuf A. Beauty is Best: Appearance-Impaired Children in America. Philadelphia: University of Pennsylvania Press; 1990.
20. Kapp-Simon KA, McGuire D. Observed social interaction patterns in adolescents with and without craniofacial conditions. Cleft Palate Craniofac J. 1997;34:380-384.
21. Kelton RW. Facing up to stigma: workplace and personal struggles. Cleft Palate Craniofac J. 2001;38:245-247.
22. Kruckenburg S, Kapp-Simon KA. Effect of parental factors on social skills of preschool children with cranio-facial anomalies. Cleft Palate Craniofac J. 1993;30:490-496.
23. McWilliams BJ, Paradise LP. Educational, occupational and marital status of cleft palate adults. Cleft Palate J. 1973;30:223-229.
24. McWilliams BS, Witzel MA. Cleft palate. In: Shames GH, Wieg EH, Secord WA, eds. Human Communication Disorders: An Introduction. 4th ed. New York: MacMillan College Publishing Co.; 1994:438-479.
25. Meyerson MD. Resiliency and success in adults with Moebius syndrome. Cleft Palate Craniofac J. 2001;38:231-235.
26. Mouradian WE. Deficits versus strengths: ethics and implications for clinical practice and research. Cleft Palate Craniofac J. 2001;38:255-259.
27. Newman WL. Social Research Methods: Qualitative and Quantitative Approaches. Boston: Allyn and Bacon; 1997.
28. Noar JH. Questionnaire survey of attitudes and concerns of patients with cleft lip and palate and their parents. Cleft Palate Craniofac J. 1991;28:279-283.
29. Peter JP, Chinsky R, Fisher MJ. Sociological aspects of cleft palate adults: III. Vocational and economic aspects. Cleft Palate J. 1974;1:371-373.
30. Peter JP, Chinsky R, Fisher MJ. Sociological aspects of cleft palate adults: IV. Social integration. Cleft Palate J. 1975;1:304-311.
31. Phipps S, Drotar D, Joseph C. Psychological impact of family resources and maternal coping style. J Dev Behav Pediatr. 1989;10:7-12.
32. Pope AW, Speltz ML. Research on psychosocial issues of children with craniofacial anomalies: progress and challenges. Cleft Palate Craniofac J. 1997;34:371-373.
33. Pope AW, Ward J. Self-perceived facial appearance and psychosocial adjustments in pre-adolescents with craniofacial anomalies. Cleft Palate Craniofac J. 1997;34:396-401.
34. Pruzinsky T. Social and psychological effects of major craniofacial deformity. Cleft Palate Craniofac J. 1992;29:579-584.
35. Reed J, Robathan M, Hockenhull A, Rostrill H, Perrett D, Lees A. Children's attitudes towards interacting with peers with different craniofacial anomalies. Cleft Palate Craniofac J. 1999;36:441-447.
36. Richman LC. Self reported social, speech and facial concerns, and personality adjustment of adolescents with cleft lip and palette. Cleft Palate Craniofac J. 1983;20:108-112.
37. Richman LC. Facial and speech relationships to behavior of children with clefts across three age levels. Cleft Palate Craniofac J. 1997;34:390-395.
38. Staquet MJ, Hays RD, Fayers PM. Quality of life assessment in clinical trials: methods and practice. Oxford: Oxford University Press; 1998.
39. Strauss RP. "Only skin deep": health, resilience, and craniofacial care. Cleft Palate Craniofac J. 2001;38:226-230.
40. Tetnowski JA, Damico JS. A demonstration of the advantages of qualitative methodologies in stuttering research. J Fluency Disord. 2001;26:17-42.
41. Tobiasen JM. Psychological correlates of congenital facial clefts: a conceptualization and model. Cleft Palate J. 1984;21:131-137.
42. Van Demark DR, Van Demark AN. Speech and socio-vocational aspects of individuals with cleft palate. Cleft Palate J. 1970;24:284-299.
43. Witzel MA. Communicative impairment associated with clefting. In: Shprintzen RJ, Bardach J, eds. Cleft Palate Speech Management: A Multidisciplinary Approach. Baltimore: Mosby; 1995:294-347.
44. World Health Organization. International Classification of Functioning and Disability (ICIDH-2) Beta-2 Draft. Geneva; 1999.
45. World Health Organization. Program on Mental Health. Geneva: World Health Organization; 1996.
46. World Health Organization (WHO). WHOQOL Study Protocol: the development of the WHO Quality of Life Assessment Instrument. MNH/PSF/93.9. Geneva: Division of Mental Health; 1993.