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Volumn 10, Issue 3, 2003, Pages 255-268

Safeguarding being: A bioethical principle for genetic nursing care

Author keywords

Bioethics; Genetics; Nursing; Technology

Indexed keywords

ANALYTICAL APPROACH; EMPATHY; ETHICS; GENETIC SCREENING; GENETICS AND REPRODUCTION; HUMAN; MEDICAL ETHICS; NURSE ATTITUDE; PATIENT ADVOCACY; PHILOSOPHY; REVIEW; SAFETY;

EID: 0037974864     PISSN: 09697330     EISSN: 14770989     Source Type: Journal    
DOI: 10.1191/0969733003ne604oa     Document Type: Review
Times cited : (11)

References (82)
  • 1
    • 33746644463 scopus 로고    scopus 로고
    • June 5-7. Bethesda, MD: National Institutes of Health. Available from: URL
    • Secretary's Advisory Committee on Genetic Testing (SACGT). Highlights of the fifth meeting of the Secretary's Advisory Committee on Genetic Testing, June 5-7. Bethesda, MD: National Institutes of Health; 2000. Available from: URL http://www4.od.nih.gov/obs/highlights62000.htm [Accessed 09-Aug-2000]
    • (2000) Highlights of the Fifth Meeting of the Secretary's Advisory Committee on Genetic Testing
  • 2
    • 0036152382 scopus 로고    scopus 로고
    • Genetic testing for cancer predisposition
    • Calzone KA, Biesecker B. Genetic testing for cancer predisposition. Cancer Nurs 2002; 25: 15-25.
    • (2002) Cancer Nurs , vol.25 , pp. 15-25
    • Calzone, K.A.1    Biesecker, B.2
  • 3
    • 0031744522 scopus 로고    scopus 로고
    • Proof of 'disease causing' mutation
    • Cotton RG, Scriver CR. Proof of 'disease causing' mutation. Hum Mutat 1998; 12: 1-3.
    • (1998) Hum Mutat , vol.12 , pp. 1-3
    • Cotton, R.G.1    Scriver, C.R.2
  • 5
    • 33746643257 scopus 로고    scopus 로고
    • Genetics, public health and the law
    • Khoury M, Burke W, Thomson E eds. New York: Oxford University Press
    • Wright-Clayton E. Genetics, public health and the law. In: Khoury M, Burke W, Thomson E eds. Genetics and public health in the 21st century. New York: Oxford University Press, 2000: 489-504.
    • (2000) Genetics and Public Health in the 21st Century , pp. 489-504
    • Wright-Clayton, E.1
  • 6
    • 0029372202 scopus 로고
    • Genetic prophesy and genetic privacy - Can we prevent the dream from becoming a nightmare?
    • Annas GJ. Genetic prophesy and genetic privacy - can we prevent the dream from becoming a nightmare? Am J Pub Health 1995; 85: 1196-97.
    • (1995) Am J Pub Health , vol.85 , pp. 1196-1197
    • Annas, G.J.1
  • 7
    • 0031132232 scopus 로고    scopus 로고
    • Presymptomatic and predisposition genetic testing: Ethical and social considerations
    • Bove CM, Fry ST, MacDonald D. Presymptomatic and predisposition genetic testing: ethical and social considerations. Semin Oncol Nurs. 1997; 13: 135-40.
    • (1997) Semin Oncol Nurs , vol.13 , pp. 135-140
    • Bove, C.M.1    Fry, S.T.2    MacDonald, D.3
  • 8
    • 0003708160 scopus 로고    scopus 로고
    • Genes, justice and human behavior
    • Buchanan, A, Brock, DW, Daniels, N, Wilker, D eds. New York, NY: Cambridge University Press
    • Buchanan A, Brock DW, Daniels N, Wilker D. Genes, justice and human behavior. In: Buchanan, A, Brock, DW, Daniels, N, Wilker, D eds. From chance to choice: genetics and justice. New York, NY: Cambridge University Press, 2000: 61-100.
    • (2000) From Chance to Choice: Genetics and Justice , pp. 61-100
    • Buchanan, A.1    Brock, D.W.2    Daniels, N.3    Wilker, D.4
  • 9
    • 0347705551 scopus 로고    scopus 로고
    • Cancer genetic susceptibility testing: Ethical and policy implications for future research and clinical practice
    • Wilfond BS, Rothenberg KH, Thomson E et al. Cancer genetic susceptibility testing: ethical and policy implications for future research and clinical practice. J Law Med Ethics 1997; 25: 243-51.
    • (1997) J Law Med Ethics , vol.25 , pp. 243-251
    • Wilfond, B.S.1    Rothenberg, K.H.2    Thomson, E.3
  • 10
    • 0029059596 scopus 로고
    • Ethical considerations, confidentiality issues, rights of human subjects, and uses of monitoring data in research and regulation
    • Schulte PA, Sweeney MH. Ethical considerations, confidentiality issues, rights of human subjects, and uses of monitoring data in research and regulation. Environ Health Perspect 1995; 103(suppl 3): 69-74.
    • (1995) Environ Health Perspect , vol.103 , Issue.SUPPL. 3 , pp. 69-74
    • Schulte, P.A.1    Sweeney, M.H.2
  • 11
    • 0036268724 scopus 로고    scopus 로고
    • Mapping public policy on genetics
    • Weisfeld NE. Mapping public policy on genetics. Gene Ther 2002; 9: 662-66.
    • (2002) Gene Ther , vol.9 , pp. 662-666
    • Weisfeld, N.E.1
  • 12
    • 0035690516 scopus 로고    scopus 로고
    • Newborn screening, informed consent, and future use of archived tissue samples
    • Pelias MK, Markward NJ. Newborn screening, informed consent, and future use of archived tissue samples. Genet Test 2001; 5: 179-85.
    • (2001) Genet Test , vol.5 , pp. 179-185
    • Pelias, M.K.1    Markward, N.J.2
  • 13
    • 0034168843 scopus 로고    scopus 로고
    • Issues related to the use of genetic material and information
    • Giarelli E, Jacobs LA. Issues related to the use of genetic material and information. Oncol Nurs Forum 2000; 27: 459-67.
    • (2000) Oncol Nurs Forum , vol.27 , pp. 459-467
    • Giarelli, E.1    Jacobs, L.A.2
  • 14
    • 0035727880 scopus 로고    scopus 로고
    • Closing the gaps in genetics legislation and policy: A report by the New York State Task Force on Life and the Law
    • Carroll AM, Coleman CH. Closing the gaps in genetics legislation and policy: a report by the New York State Task Force on Life and the Law. Genet Test 2001 5: 275-80.
    • (2001) Genet Test , vol.5 , pp. 275-280
    • Carroll, A.M.1    Coleman, C.H.2
  • 15
    • 0035746506 scopus 로고    scopus 로고
    • Points to consider in preventing unfair discrimination based on genetic disease risk: A position statement of the American College of Medical Genetics
    • Watson MS, Greene CL. Points to consider in preventing unfair discrimination based on genetic disease risk: a position statement of the American College of Medical Genetics. Genet Med 2001; 3: P436-37.
    • (2001) Genet Med , vol.3
    • Watson, M.S.1    Greene, C.L.2
  • 16
    • 0033569908 scopus 로고    scopus 로고
    • Clinical impact of molecular genetic testing, diagnosis, genetic counseling and management of hereditary cancer. Part I: Studies of cancer families
    • Lynch H, Watson P, Shaw T et al. Clinical impact of molecular genetic testing, diagnosis, genetic counseling and management of hereditary cancer. Part I: Studies of cancer families. Cancer 1999; 86(suppl 8): 1629-36.
    • (1999) Cancer , vol.86 , Issue.SUPPL. 8 , pp. 1629-1636
    • Lynch, H.1    Watson, P.2    Shaw, T.3
  • 17
    • 0031132992 scopus 로고    scopus 로고
    • Application of genetic testing to cancer screening, prevention, diagnosis, prognosis and treatment
    • Peters JA. Application of genetic testing to cancer screening, prevention, diagnosis, prognosis and treatment. Semin Oncol Nurs 1997; 13: 74-81.
    • (1997) Semin Oncol Nurs , vol.13 , pp. 74-81
    • Peters, J.A.1
  • 18
    • 0036582099 scopus 로고    scopus 로고
    • Legal issues in the early detection and monitoring of cancer
    • Frank-Stromborg M, Ganschow JR. Legal issues in the early detection and monitoring of cancer. Semin Oncol Nurs 2002; 18: 128-34.
    • (2002) Semin Oncol Nurs , vol.18 , pp. 128-134
    • Frank-Stromborg, M.1    Ganschow, J.R.2
  • 23
    • 0002982392 scopus 로고
    • Out of eugenics: The historical politics of the human genome
    • Kevles DJ, Hood L eds. Cambridge, MA: Harvard University Press
    • Kevles DJ. Out of eugenics: The historical politics of the human genome. In: Kevles DJ, Hood L eds. The code of codes: scientific and social issues in the Human Genome Project. Cambridge, MA: Harvard University Press, 1992: 3-36.
    • (1992) The Code of Codes: Scientific and Social Issues in the Human Genome Project , pp. 3-36
    • Kevles, D.J.1
  • 25
    • 0036580415 scopus 로고    scopus 로고
    • The Human Genome Project: Exploring its progress and successes and the ethical, legal, and social implications
    • Zneimer SM. The Human Genome Project: exploring its progress and successes and the ethical, legal, and social implications. Clin Leadership Manage Rev 2002; 16: 151-57.
    • (2002) Clin Leadership Manage Rev , vol.16 , pp. 151-157
    • Zneimer, S.M.1
  • 28
    • 0027879476 scopus 로고
    • The technology of caring: A synthesis of technology and caring for nursing administration
    • Jones CB, Alexander JW. The technology of caring: a synthesis of technology and caring for nursing administration. Nurs Adm Q 1993; 17(2): 11-20.
    • (1993) Nurs Adm Q , vol.17 , Issue.2 , pp. 11-20
    • Jones, C.B.1    Alexander, J.W.2
  • 30
    • 0345934696 scopus 로고    scopus 로고
    • Knowing and forgetting: The challenge of technology for a reflexive practice science of nursing
    • Thorne S, Hayes V eds. Thousand Oaks, CA: SAGE
    • Sandelowski M. Knowing and forgetting: the challenge of technology for a reflexive practice science of nursing. In: Thorne S, Hayes V eds. Nursing praxis: knowledge and action. Thousand Oaks, CA: SAGE, 1997: 69-85.
    • (1997) Nursing Praxis: Knowledge and Action , pp. 69-85
    • Sandelowski, M.1
  • 31
    • 0032041380 scopus 로고    scopus 로고
    • Toward a holistic view of genetic technology as a way of knowing
    • Loescher LJ, Ronan JP. Toward a holistic view of genetic technology as a way of knowing. Holistic Nurs Pract 1998; 12(3): 1-8.
    • (1998) Holistic Nurs Pract , vol.12 , Issue.3 , pp. 1-8
    • Loescher, L.J.1    Ronan, J.P.2
  • 32
    • 0035793393 scopus 로고    scopus 로고
    • Is the genome the secular equivalent of the soul?
    • Mauron A. Is the genome the secular equivalent of the soul? Science 2001; 291: 831-32.
    • (2001) Science , vol.291 , pp. 831-832
    • Mauron, A.1
  • 33
    • 0032086714 scopus 로고    scopus 로고
    • What's special about molecular genetic diagnostics?
    • Byertz K. What's special about molecular genetic diagnostics? J Med Philos 1998; 23: 247-54.
    • (1998) J Med Philos , vol.23 , pp. 247-254
    • Byertz, K.1
  • 34
    • 0014446521 scopus 로고
    • The pursuit of wholeness
    • Levine ME. The pursuit of wholeness. Am J Nurs 1969; 69(1): 93-98.
    • (1969) Am J Nurs , vol.69 , Issue.1 , pp. 93-98
    • Levine, M.E.1
  • 35
    • 0031228270 scopus 로고    scopus 로고
    • Experiencing the whole
    • Newman MA. Experiencing the whole. ANS Adv Nurs Sci 1997; 20(1): 34-39.
    • (1997) ANS Adv Nurs Sci , vol.20 , Issue.1 , pp. 34-39
    • Newman, M.A.1
  • 36
    • 0025913958 scopus 로고
    • Prenatal testing and screening: Constructing needs and reinforcing inequities
    • Lippman A. Prenatal testing and screening: Constructing needs and reinforcing inequities. Am J Law Med 1991; 17: 15-50.
    • (1991) Am J Law Med , vol.17 , pp. 15-50
    • Lippman, A.1
  • 37
    • 0032086775 scopus 로고    scopus 로고
    • Geneticization: The Cyprus paradigm
    • Hoedemaekers RF, ten Have H. Geneticization: the Cyprus paradigm. J Med Philos 1998; 23: 274-87.
    • (1998) J Med Philos , vol.23 , pp. 274-287
    • Hoedemaekers, R.F.1    Ten Have, H.2
  • 38
    • 1842841225 scopus 로고    scopus 로고
    • The meaning of genetic causation
    • Buchanan A, Brock DW, Daniels N, Wilker D eds. New York: Cambridge University Press
    • Sober E. The meaning of genetic causation. In: Buchanan A, Brock DW, Daniels N, Wilker D eds. From chance to choice: genetics and justice. New York: Cambridge University Press, 2000, 347-70.
    • (2000) From Chance to Choice: Genetics and Justice , pp. 347-370
    • Sober, E.1
  • 39
    • 0002522926 scopus 로고
    • Nature, nurture and the Human Genome Project
    • Kevles DJ, Hood L eds. Cambridge, MA: Harvard University Press
    • Keller EF. Nature, nurture and the Human Genome Project. In: Kevles DJ, Hood L eds. The code of codes: scientific and social issues in the human genome project. Cambridge, MA: Harvard University Press, 1992: 281-99.
    • (1992) The Code of Codes: Scientific and Social Issues in the Human Genome Project , pp. 281-299
    • Keller, E.F.1
  • 40
    • 0026514328 scopus 로고
    • Predictive testing for Huntington's disease in Canada: The experience of those receiving an increased risk
    • Block M, Adams S, Wiggins S et al. Predictive testing for Huntington's disease in Canada: The experience of those receiving an increased risk. Am J Med Genet 1992; 42: 499-507.
    • (1992) Am J Med Genet , vol.42 , pp. 499-507
    • Block, M.1    Adams, S.2    Wiggins, S.3
  • 41
    • 0030075116 scopus 로고    scopus 로고
    • Psychosocial consequences of DNA analysis for MEN type 1
    • Grosfeld F, Lips C, TenKroode H et al. Psychosocial consequences of DNA analysis for MEN type 1. Oncology 1996; 10: 141-57.
    • (1996) Oncology , vol.10 , pp. 141-157
    • Grosfeld, F.1    Lips, C.2    Tenkroode, H.3
  • 44
    • 0032408888 scopus 로고    scopus 로고
    • Prescriptions: Autonomy, humanism, and the purpose of health technology
    • Krakauer EL. Prescriptions: autonomy, humanism, and the purpose of health technology. Theor Med Bioethics 1998; 19: 525-45.
    • (1998) Theor Med Bioethics , vol.19 , pp. 525-545
    • Krakauer, E.L.1
  • 45
    • 0035383268 scopus 로고    scopus 로고
    • The family covenant and genetic testing
    • Doukas DJ, Berg JW. The family covenant and genetic testing. Am J Bioethics 2001; 1: 3-10.
    • (2001) Am J Bioethics , vol.1 , pp. 3-10
    • Doukas, D.J.1    Berg, J.W.2
  • 50
    • 0018450556 scopus 로고
    • Toward a reconstruction of medical morality: The primacy of the act of profession and the fact of illness
    • Pellegrino ED. Toward a reconstruction of medical morality: The primacy of the act of profession and the fact of illness. J Med Philos 1979; 4: 32-55.
    • (1979) J Med Philos , vol.4 , pp. 32-55
    • Pellegrino, E.D.1
  • 51
    • 0031136637 scopus 로고    scopus 로고
    • Psychological issues in cancer genetics
    • Biestecker BB. Psychological issues in cancer genetics. Semin Oncol Nurs 1997; 13: 129-34.
    • (1997) Semin Oncol Nurs , vol.13 , pp. 129-134
    • Biestecker, B.B.1
  • 52
    • 0030833282 scopus 로고    scopus 로고
    • Clinical terminology: Anxiety and confusion amongst families undergoing genetic counseling
    • Chapple A, Campion P, May C. Clinical terminology: anxiety and confusion amongst families undergoing genetic counseling. Patient Educ Counsel 1997; 32: 81-91.
    • (1997) Patient Educ Counsel , vol.32 , pp. 81-91
    • Chapple, A.1    Campion, P.2    May, C.3
  • 53
    • 0031974321 scopus 로고    scopus 로고
    • Distress in individuals facing predictive DNA testing for autosomal dominant late-onset disorders: Comparing questionnaire results with in depth interviews
    • Dudok de Wit A, Tibben A, Duivenvoorden HJ et al. Distress in individuals facing predictive DNA testing for autosomal dominant late-onset disorders: comparing questionnaire results with in depth interviews. Am J Med Genet 1998; 75: 62-74.
    • (1998) Am J Med Genet , vol.75 , pp. 62-74
    • Dudok De Wit, A.1    Tibben, A.2    Duivenvoorden, H.J.3
  • 54
    • 0030074994 scopus 로고    scopus 로고
    • Emotional and behavioral responses to genetic testing for susceptibility to cancer
    • Lerman C, Croyle R. Emotional and behavioral responses to genetic testing for susceptibility to cancer. Oncology 1996; 10: 191-95.
    • (1996) Oncology , vol.10 , pp. 191-195
    • Lerman, C.1    Croyle, R.2
  • 57
    • 0030932081 scopus 로고    scopus 로고
    • Why 'do no harm?'
    • Sharpe VA. Why 'do no harm?' Theor Med 1997; 18: 197-215.
    • (1997) Theor Med , vol.18 , pp. 197-215
    • Sharpe, V.A.1
  • 58
    • 0029313208 scopus 로고
    • The new human genetics: Ethical issues and implications for public policy
    • Mullen MA. The new human genetics: Ethical issues and implications for public policy. Kan Med 1995; 96(2): 55-57.
    • (1995) Kan Med , vol.96 , Issue.2 , pp. 55-57
    • Mullen, M.A.1
  • 59
    • 0032897929 scopus 로고    scopus 로고
    • Genetic medicine and the conflict of moral principles
    • Green RM. Genetic medicine and the conflict of moral principles. Fam Syst Health 1999; 17: 63-74.
    • (1999) Fam Syst Health , vol.17 , pp. 63-74
    • Green, R.M.1
  • 60
    • 0004247732 scopus 로고
    • Indianapolis, IN: Bobbs-Merrill
    • Mills JS. Utilitarianism. Indianapolis, IN: Bobbs-Merrill, 1957.
    • (1957) Utilitarianism
    • Mills, J.S.1
  • 61
    • 0031106282 scopus 로고    scopus 로고
    • The ethics of human genetic intervention: A postmodern perspective
    • Dyer AR. The ethics of human genetic intervention: a postmodern perspective. Exp Neurol 1997; 144: 168-72.
    • (1997) Exp Neurol , vol.144 , pp. 168-172
    • Dyer, A.R.1
  • 62
    • 0030433353 scopus 로고    scopus 로고
    • Dissecting people and ignoring social structure: An analysis of individualism, public policy, and genetic labeling
    • Miringoff ML. Dissecting people and ignoring social structure: an analysis of individualism, public policy, and genetic labeling. Behav Sci Law 1996; 14: 433-42.
    • (1996) Behav Sci Law , vol.14 , pp. 433-442
    • Miringoff, M.L.1
  • 63
    • 25744480463 scopus 로고    scopus 로고
    • The race to cash in on the genetic code
    • Fisher ML. The race to cash in on the genetic code. The New York Times 1999 Aug 29: B1, B12.
    • (1999) The New York Times , vol.29
    • Fisher, M.L.1
  • 64
    • 0032561249 scopus 로고    scopus 로고
    • New goals for the US Human Genome Project: 1998-2003
    • Collins FS, Patrinos A, Jordan E et al. New goals for the US Human Genome Project: 1998-2003. Science 1998; 283: 682-89.
    • (1998) Science , vol.283 , pp. 682-689
    • Collins, F.S.1    Patrinos, A.2    Jordan, E.3
  • 65
    • 0031887533 scopus 로고    scopus 로고
    • The Human Genome Diversity Project: Medical benefits versus ethical concern
    • Wallace RW. The Human Genome Diversity Project: medical benefits versus ethical concern. Mol Med Today 1998; 4(2): 59-62.
    • (1998) Mol Med Today , vol.4 , Issue.2 , pp. 59-62
    • Wallace, R.W.1
  • 66
    • 33746586458 scopus 로고    scopus 로고
    • Reuters Health Information; Available from: URL
    • Pallarito K. Human Genome Project, SNP Consortium collaborate. Reuters Health Information; 2000. Available from: URL: http://www.reutershealth.com/ archive/2000/07/12/eline/links/20000712elin035.html [Accessed 14-Jul-2000]
    • (2000) Human Genome Project, SNP Consortium Collaborate
    • Pallarito, K.1
  • 67
    • 33746621175 scopus 로고    scopus 로고
    • To patent or not to patent: Experts argue over genes
    • Southwick R. To patent or not to patent: experts argue over genes. Trenton Times 1999 Sep 13; A1, A6.
    • (1999) Trenton Times , vol.13
    • Southwick, R.1
  • 68
    • 0000977925 scopus 로고
    • Determinism and reductionism: A greater threat because of the Human Genome Project
    • Annas G, Elias S eds. New York: Oxford University Press
    • Shuster E. Determinism and reductionism: a greater threat because of the Human Genome Project. In: Annas G, Elias S eds. Gene mapping: using law and ethics as guides. New York: Oxford University Press, 1992: 115-27.
    • (1992) Gene Mapping: Using Law and Ethics as Guides , pp. 115-127
    • Shuster, E.1
  • 70
    • 0032946333 scopus 로고    scopus 로고
    • The tenetic self: The Human Genome Project, genetic counseling and family therapy
    • Peters JA, Djurdjinovic L, Baker D. The tenetic self: the Human Genome Project, genetic counseling and family therapy. Fam Syst Health 1999; 17: 5-23.
    • (1999) Fam Syst Health , vol.17 , pp. 5-23
    • Peters, J.A.1    Djurdjinovic, L.2    Baker, D.3
  • 72
    • 0028453373 scopus 로고
    • Professional uncertainty: Nurses in the technologically intense arena
    • Wichowski HC. Professional uncertainty: nurses in the technologically intense arena. J Adv Nurs 1994; 19: 1162-67.
    • (1994) J Adv Nurs , vol.19 , pp. 1162-1167
    • Wichowski, H.C.1
  • 74
    • 0032043590 scopus 로고    scopus 로고
    • Storytelling: A holistic foundation for genetic nursing
    • Anderson G. Storytelling: A holistic foundation for genetic nursing. Holistic Nurs Pract 1998; 12(3): 64-76.
    • (1998) Holistic Nurs Pract , vol.12 , Issue.3 , pp. 64-76
    • Anderson, G.1
  • 76
    • 0346595931 scopus 로고
    • Technology and caring in nursing
    • Boykin A, ed. New York: National League for Nursing
    • Locsin R. Technology and caring in nursing. In: Boykin A, ed. Power, politics, and policy: a matter of caring. New York: National League for Nursing; 1995: 24-36.
    • (1995) Power, Politics, and Policy: A Matter of Caring , pp. 24-36
    • Locsin, R.1
  • 77
    • 0032106968 scopus 로고    scopus 로고
    • Looking to care or caring to look? Technology and the rise of spectacular nursing
    • Sandelowski M. Looking to care or caring to look? Technology and the rise of spectacular nursing. Holistic Nurs Pract 1998; 12(4): 1-11.
    • (1998) Holistic Nurs Pract , vol.12 , Issue.4 , pp. 1-11
    • Sandelowski, M.1
  • 78
    • 84928219543 scopus 로고
    • The formation of conscience in an age of technology
    • Green TF. The formation of conscience in an age of technology. Am J Educ 1985; 94: 1-32.
    • (1985) Am J Educ , vol.94 , pp. 1-32
    • Green, T.F.1
  • 82
    • 0021441210 scopus 로고
    • From loyalty to advocacy: A new metaphor for nursing
    • Winslow GR. From loyalty to advocacy: a new metaphor for nursing. Hastings Cen Rep 1984; 14: 32-40.
    • (1984) Hastings Cen Rep , vol.14 , pp. 32-40
    • Winslow, G.R.1


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