Genetic medicine and the conflict of moral principles

Families, Systems and Health

Volumn 17, Issue 1, 1999, Pages 63-74

  Green, Ronald M ^a  

^a DARTMOUTH COLLEGE   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

CONFLICT; DECISION MAKING; ETHNIC GROUP; GENETIC COUNSELING; GENETICS; INDIVIDUALITY; INFORMED CONSENT; MEDICAL ETHICS; MORALITY; REVIEW;

EID: 0032897929     PISSN: 10917527     EISSN: None     Source Type: Journal    
DOI: 10.1037/h0089886     Document Type: Review

References (51)

1. Advisory Committee on Human Radiation Experiments (1995). Final Report. Washington, DC: U.S. Government Printing Office.
2. Andrews, L.B. (1991). Legal aspects of genetic information, The Yale Journal of Biology and Medicine 64:36-39.
3. Andrews, L.B. (1996). The genetic information superhighway: rules of the road for contacting relatives and recontacting patients. Paper presented at First International Conference on DNA Sampling, Montreal, September 7.
4. Asch, A. (1989). Reproductive technology and disability (69-93). In S. Cohen & N. Taub (eds.), Reproductive Laws for the 1990s. Clifton, NJ: Humana Press.
5. Asch, A. (1994). The human genome and disability rights, The Disability Rag & Resource, (January/February ):12-15.
6. Bayles, M.D. (1984). Reproductive Ethics. Englewood Cliffs, NJ: Prentice-Hall.
7. Caplan, A.L. (1992). Neutrality is not morality: the ethics of genetic counseling (149-165). In D.M. Bartels, B.S. LeRoy, & A. Caplan (eds.), Prescribing Our Future: Ethical Challenges in Genetic Counseling. New York: Aldine De Gruyter.
8. Caplan, A.L. (1992). If I Were a Rich Man, Could I Buy a Pancreas? Bloomington, IN: Indiana University Press.
9. Childress, J.F. (1990). The place of autonomy in bioethics, Hastings Center Report 20(1):12-17.
10. Childress, J.F., & Fletcher, J.C. (1994). Respect for autonomy, Hastings Center Report 24(3): 34-5.
11. Cohen, W.R. (1995). Maternal-fetal conflict, I. (10-28). In A. Goldworth, W. Silverman, O.K. Stevenson & E.W.D. Young, (eds.) Ethics and Perinatology. New York: Oxford University Press.
12. Culver, C.M. (1995). The concept of genetic malady (147-166). In B. Gert, E.M. Berger, G.F. Cahill, K.D. Clouser, C.M. Culver, J.B. Moeschler, & G.H. Singer (eds.), Morality and the New Genetics: a Guide for Students and Healthcare Providers. Sudbury, MA: Jones and Bartlett Publishers.
13. Duster, T. (1990). The ethnic distribution of disease (Appendix C, 160-62). In Backdoor to Eugenics. New York: Routledge.
14. Geller, L.N., Alper, J.S., Billings, P.E., Barash, C.I., Beckwith, J., & Natowicz M.R. (1996). Individual, family, and societal dimensions of genetic discrimination: a case study analysis, Science & Engineering Ethics 2:71-84.
15. Greely, H.T. (1992). Health insurance, employment discrimination, and the genetic revolution (264-280). In D. Kevles, & L. Hood (eds.), The Code of Codes: Scientific and Social Issues in the Human Genome Project. Cambridge, MA: Harvard University Press.
16. Green, R.M., & Thomas, A.M. (1997). Whose gene is it: a case discussion about familial conflict over genetic information, The Journal of Genetic Counseling 6:245-254.
17. Hamer, D., & Copeland, P. (1994). The Science Of Desire: The Search For The Gay Gene And The Biology Of Behavior. New York: Simon and Schuster.
18. Heimler, A., & Zanko, A. (1995). Huntington disease: a case study describing the complexities and nuances of predictive testing of monozygotic twins, Journal of Genetic Counseling 4:125-137. (Letter and replies Journal of Genetic Counseling 5:47-50).
19. Hu, S., Pattatucci, A.M.L., Patterson, C., Li, L., Fulker, D.W., Cherny, S.S., Kruglyak, L., & Hamer, D.H. (1995). Linkage between sexual orientation and chromosome Xq28 in males but not in females, Nature Genetics 11:249-256.
20. Indian Health Services (1996). Draft IHS Guidelines about the Collection and Use of Research Specimens. Albuquerque, NM, (May 7):l-8.
21. Jones, J.H. (1993). Bad Blood: The Tuskegee Syphilis Experiment. New York: Free Press.
22. Jos, P.H., Marshall, M.F., & Perlmutter M. (1995), The Charleston policy on cocaine use during pregnancy: a cautionary tale, Journal of Law, Medicine & Ethics 23:120-128.
23. Kaplan, D. (1993). Prenatal screening and its impact on persons with disabilities, Fetal Diagnostic Therapy 8:64-69.
24. Kapp, M.B. (1994). Ethical and legal implications of advances in genetic testing technology (305-319). In C.H. Wech, (ed.) Legal Medicine. Salem, NH: Butterworth Legal Publishers.
25. Lapham, E.V., Kozma, C., & Weiss, J.O. (1996). Genetic discrimination: perspectives of consumers, Science 274:621-624.
26. Lippman, A. (1991). Prenatal genetic testing and screening: constructing needs and reinforcing inequities, American Journal of Law & Medicine, 17:15-50.
27. Macklin, R. (1995). Maternal-fetal conflict, H (2946). In A. Goldworth, W. Silverman, O.K. Stevenson & E.W.D. Young (eds.), Ethics and Perinatology. New York: Oxford University Press.
28. Müllen, M.A. (1995). The new human genetics: ethical issues and implications for public policy," Kansas Medicine 96(2):55-57.
29. Murphy, T. (1995). Abortion and the ethics of genetic orientation research, Cambridge Quarterly of Healthcare Ethics 4:340-350.
30. National Commission for the Protection of Human Subjects of Biomédical and Behavioral Research (1979). The Belmont Report: Ethical Principles and Guidelines for the Protection of Human Subjects of Research, Office for the Protection of Subjects from Research Risks, (OPRR) Reports, (April 18):2-8.
31. National Society of Genetic Counselors (1993). Code of ethics (169-71). In D.M. Bartels, B.S. LeRoy, & A. Caplan, (eds.), Prescribing Our Future: Ethical Challenges in Genetic Counseling. New York: Aldine De Gruyter.
32. Nelkin, D. (1992). Diagnosis: the social implications of biological tests (215-224). In H. Blank & A.L. Bonnicksen (eds), Emerging Issues in Biomédical Policy: An Annual Review, Vol. I. New York: Columbia University Press.
33. Parker, L.S. & Lidz, C.W. (1994). Familial coercion to participate in genetic family studies: Is there cause for IRB intervention? IRB 16:6-12.
34. Patel, V. (1989). Sex-determination and sex preselection tests in India: Recent techniques in femicide, Reproductive and Genetic Engineering 2:111-119.
35. Pelias, M.K. (1991). Duty to disclose in medical genetics: a legal perspective, American Journal of Medical Genetics 39:347-354.
36. President's Commission for the Study of Ethical Problems in Medicine and Biomédical and Behavioral Research (1983). Screening and Counseling for Genetic Conditions. Washington, DC: U.S. Government Printing Office.
37. Reubinoff, B.E. & Schenker, J.G. (1996). New advances in sex preselection, Fertility and Sterility 66:343-350.
38. Rothenberg, K.H. (1997). Breast cancer, the genetic 'quick fix,' and the Jewish community, Health Matrix: Journal of Law-Medicine 7:97-124.
39. Sawisch, L. (1988). A different approach (96-108). In S. Ball (ed.), Strategies in Genetic Counseling: the Challenge of the Future, Vol 1. New York: Human Sciences Press.
40. Saxton, M. (1996). Commentary on the case study, "Society's Diseases," Hastings Center Report 26(3):22.
41. Schüklenk, U., Stein, E., Kerin, J., & Byne, W. (1997). The ethics of genetic research on sexual orientation, Hastings Center Report 27:4:6-13.
42. Shoofs, M. (1997). Geneocide, The Village Voice, July 1,1997:1,40-43.
43. Siebert, C. (1995). The DNA we've been dealt, New York Times Magazine, Sept. 17, Section 6:50-104.
44. Suter, S.M. (1993). Whose genes are these anyway? Familial conflicts over access to genetic information, Michigan Law Review 91:1854-1908.
45. Warren, M.A. (1985). Gendercide: The Implications of Sex Selection. (Totowa, NJ: Rowman & Allanheld).
46. Wasmuth, J.J. (1995). Interview on National Public Radio's "All Things Considered," February 7.
47. Wertz, D.C. (1992). Ethical and legal Implications of the new genetics: issues for discussion, Social Science and Medicine 35:495-505.
48. Wertz, D.C. and Fletcher, J.C. (1989a). Sex selection in India, Hastings Center Report, 19 (4):25.
49. Wertz, D.C. and Fletcher, J.C. (1989b). Ethics and genetics: an international survey, Hastings Center Report 19(4):20-24.
50. Wertz, D.C. and Fletcher, J.C. (1989c). Fatal knowledge? Prenatal diagnosis and sex selection, Hastings Center Report, 19 (1):21-7.
51. Wertz, D.C. & Fletcher, J.C. (1989d). Ethics and Human Genetics: A Cross-cultural Perspective. Berlin & New York: Springer-Verlag.