-
1
-
-
85043750341
-
Give up your data to cure disease
-
Agus DB (2016) Give up your data to cure disease. The New York Times, 6 February.
-
(2016)
The New York Times
-
-
Agus, D.B.1
-
2
-
-
84952921160
-
The cultural economy in the digital age
-
Benghozi P, Paris T, (2016) The cultural economy in the digital age. City, Culture and Society 7(2): 75–80.
-
(2016)
City, Culture and Society
, vol.7
, Issue.2
, pp. 75-80
-
-
Benghozi, P.1
Paris, T.2
-
3
-
-
84961317182
-
Digital market manipulation
-
Calo R, (2014) Digital market manipulation. The George Washington Law Review 82(4): 995–1051.
-
(2014)
The George Washington Law Review
, vol.82
, Issue.4
, pp. 995-1051
-
-
Calo, R.1
-
4
-
-
27644527244
-
Panopticon.com: Online surveillance and the commodification of privacy
-
Campbell JE, Carlson M, (2002) Panopticon.com: Online surveillance and the commodification of privacy. Journal of Broadcasting and Electronic Media 46(4): 586–606.
-
(2002)
Journal of Broadcasting and Electronic Media
, vol.46
, Issue.4
, pp. 586-606
-
-
Campbell, J.E.1
Carlson, M.2
-
5
-
-
84929662775
-
Potential and challenges of patient-generated health data for high-quality cancer care
-
Chung AE, Basch EM, (2015) Potential and challenges of patient-generated health data for high-quality cancer care. Journal of Oncology Practice 11(3): 195–197.
-
(2015)
Journal of Oncology Practice
, vol.11
, Issue.3
, pp. 195-197
-
-
Chung, A.E.1
Basch, E.M.2
-
6
-
-
85074188474
-
Humility, adaptability, and collaboration: The way forward in cyber security
-
New York City, New York
-
Comey J (2016) Humility, adaptability, and collaboration: The way forward in cyber security. Speech delivered at FBI/Fordham University international cyber security conference, New York City, New York, 27 July 2016. Available at: https://www.fbi.gov/news/speeches/humility-adaptability-and-collaboration-the-way-forward-in-cyber-security (accessed 1 August 2016).
-
(2016)
Speech Delivered at Fbi/Fordham University International Cyber Security Conference
-
-
Comey, J.1
-
9
-
-
84992417332
-
There is a blind spot in AI research
-
Crawford K, Calo R, (2016) There is a blind spot in AI research. Nature 538(7625): 311–313.
-
(2016)
Nature
, vol.538
, Issue.7625
, pp. 311-313
-
-
Crawford, K.1
Calo, R.2
-
10
-
-
84901745184
-
Issue brief: Patient-generated health data and health IT
-
Washington, D.C., 20 December 2013, Washington, D.C: Office of the National Coordinator for Health Information Technology
-
Deering MJ, Siminerio E and Weinstein S (2013) Issue brief: Patient-generated health data and health IT. Office of the National Coordinator for Health Information Technology, Washington, D.C., 20 December 2013, pp. 1–11. Washington, D.C: Office of the National Coordinator for Health Information Technology.
-
(2013)
Office of the National Coordinator for Health Information Technology
, pp. 1-11
-
-
Deering, M.J.1
Siminerio, E.2
Weinstein, S.3
-
11
-
-
85074199914
-
The morning risk report: Study shows deep flaws in health-care cybersecurity
-
29 June
-
Dockery S (2016) The morning risk report: Study shows deep flaws in health-care cybersecurity. The Wall Street Journal, 29 June.
-
(2016)
The Wall Street Journal
-
-
Dockery, S.1
-
12
-
-
0038176693
-
A diagram of panoptic surveillance
-
Elmer G, (2003) A diagram of panoptic surveillance. New Media and Society 5(2): 231–247.
-
(2003)
New Media and Society
, vol.5
, Issue.2
, pp. 231-247
-
-
Elmer, G.1
-
13
-
-
67149116198
-
-
Report for Robert Wood Johnson Foundation, (accessed 1 August 2016)
-
Ferguson T, et al. (2007) e-Patients: How they can help us heal healthcare. Report for Robert Wood Johnson Foundation. Available at: http://www.e-patients.net/e-Patients_White_Paper.pdf (accessed 1 August 2016).
-
(2007)
E-Patients: How they Can Help Us Heal Healthcare
-
-
Ferguson, T.1
-
14
-
-
85011556852
-
Communication, mediation, and the expectations of data
-
Fiore-Gartland B, Neff G, (2015) Communication, mediation, and the expectations of data. International Journal of Communication 9: 1466–1484.
-
(2015)
International Journal of Communication
, vol.9
, pp. 1466-1484
-
-
Fiore-Gartland, B.1
Neff, G.2
-
15
-
-
84936745048
-
-
Available at:, accessed 28 May 2016
-
Fitbit (2015) Terms of service. Available at: https://www.fitbit.com/legal/terms-of-service (accessed 28 May 2016).
-
(2015)
Terms of Service
-
-
-
17
-
-
84882800772
-
Tracking for health
-
(accessed 1 August 2016)
-
Fox S and Duggan M (2013) Tracking for health. Report for Pew Research Center. Available at: http://www.pewinternet.org/2013/01/28/tracking-for-health/ (accessed 1 August 2016).
-
(2013)
Report for Pew Research Center
-
-
Fox, S.1
Duggan, M.2
-
18
-
-
85052869858
-
The power of community brands
-
Harhoff D., Lakhani K.R., (eds), Cambridge, MIT Press, In:, (eds
-
Füller J, (2016) The power of community brands. In: Harhoff D, Lakhani KR, (eds) Revolutionizing Innovation, Cambridge: MIT Press, pp. 353–376.
-
(2016)
Revolutionizing Innovation
, pp. 353-376
-
-
Füller, J.1
-
19
-
-
84902356333
-
-
Available at:, accessed 28 May 2016
-
Garmin (2014) Terms of use. Available at: http://www.garmin.com/en-US/legal/terms-of-use (accessed 28 May 2016).
-
(2014)
Terms of Use
-
-
-
20
-
-
84936628244
-
Situated knowledges: The science question in feminism and the privilege of partial perspective
-
Haraway D, (1988) Situated knowledges: The science question in feminism and the privilege of partial perspective. Feminist Studies 14(3): 575–599.
-
(1988)
Feminist Studies
, vol.14
, Issue.3
, pp. 575-599
-
-
Haraway, D.1
-
21
-
-
85044334682
-
-
Report for George Washington University, Hirsh Health Law and Policy Program, accessed 1 August 2016
-
Health Information and the Law Project (2015) Who owns medical records: 50 state comparison. Report for George Washington University, Hirsh Health Law and Policy Program. Available at: http://www.healthinfolaw.org/comparative-analysis/who-owns-medical-records-50-state-comparison (accessed 1 August 2016).
-
(2015)
Who Owns Medical Records: 50 State Comparison
-
-
-
22
-
-
84923223695
-
-
(accessed 28 May 2016)
-
Internet Society (2012) Global internet user survey 2012. Available at: http://www.internetsociety.org/surveyexplorer/online-privacy-and-identity/what-are-the-main-reasons-you-accept-the-terms-and-conditions-as-offered-without-reading-them-14/ (accessed 28 May 2016).
-
(2012)
Global internet user survey 2012
-
-
-
24
-
-
85074212391
-
-
Jawbone, accessed 28 May 2016
-
Jawbone (2014) UP terms of use. Available at: https://jawbone.com/legal/up/terms (accessed 28 May 2016).
-
(2014)
UP Terms of Use
-
-
-
26
-
-
85074212949
-
Three’s a crowd: Towards contextual integrity in third party data sharing
-
Kim N, (2014) Three’s a crowd: Towards contextual integrity in third party data sharing. Harvard Journal of Law and Technology 28(1): 325–347.
-
(2014)
Harvard Journal of Law and Technology
, vol.28
, Issue.1
, pp. 325-347
-
-
Kim, N.1
-
27
-
-
84941121243
-
Unpatients: Why patients should own their medical data
-
Kish L, Topol E, (2015) Unpatients: Why patients should own their medical data. Nature Biotechnology 33(9): 921–924.
-
(2015)
Nature Biotechnology
, vol.33
, Issue.9
, pp. 921-924
-
-
Kish, L.1
Topol, E.2
-
30
-
-
85050385991
-
The biggest share in the sharing economy
-
7 August, accessed 1 August 2016
-
Leaf C (2015) The biggest share in the sharing economy. Fortune, 7 August. Available at: http://fortune.com/2015/08/07/digital-health-data/ (accessed 1 August 2016).
-
(2015)
Fortune
-
-
Leaf, C.1
-
33
-
-
85074215507
-
Americans’ attitudes toward privacy, security, and surveillance
-
(accessed 2 May 2016)
-
Madden M and Rainie L (2015) Americans’ attitudes toward privacy, security, and surveillance. Report for Pew Research Center. Available at: http://www.pewinternet.org/2015/05/20/americans-attitudes-about-privacy-security-and-surveillance/ (accessed 2 May 2016).
-
(2015)
Report for Pew Research Center
-
-
Madden, M.1
Rainie, L.2
-
34
-
-
85074204802
-
Where are human subjects in big data research?
-
Metcalf J, Crawford K, (2016) Where are human subjects in big data research? Big Data & Society 3(1): 1–14.
-
(2016)
Big Data & Society
, vol.3
, Issue.1
, pp. 1-14
-
-
Metcalf, J.1
Crawford, K.2
-
35
-
-
85074192889
-
-
Misfit (2015) Misfit terms of use. : (accessed 28 May 2016
-
Misfit (2015) Misfit terms of use. Available at: http://misfit.com/legal/terms_of_use (accessed 28 May 2016)
-
-
-
-
36
-
-
85011582886
-
This one does not go up to 11: The quantified self movement as an alternative big data practice
-
Nafus D, Sherman J, (2014) This one does not go up to 11: The quantified self movement as an alternative big data practice. International Journal of Communication 8: 11.
-
(2014)
International Journal of Communication
, vol.8
, pp. 11
-
-
Nafus, D.1
Sherman, J.2
-
38
-
-
84949212687
-
-
(accessed 1 August 2016)
-
National Institutes of Health, Precision Medicine Initiative (2015) About the precision medicine initiative cohort program. Available at: https://www.nih.gov/precision-medicine-initiative-cohort-program (accessed 1 August 2016).
-
(2015)
About the precision medicine initiative cohort program
-
-
-
40
-
-
77957594024
-
Broken promises of privacy: Responding to the surprising failure of anonymization
-
Ohm P, (2010) Broken promises of privacy: Responding to the surprising failure of anonymization. UCLA Law Review 57: 1701–1777.
-
(2010)
UCLA Law Review
, vol.57
, pp. 1701-1777
-
-
Ohm, P.1
-
41
-
-
85074214737
-
Your health records are supposed to be private
-
Ornstein C (2015) Your health records are supposed to be private. They aren’t. The Washington Post, 30 December.
-
(2015)
They aren’t. the Washington Post
-
-
Ornstein, C.1
-
43
-
-
84929212571
-
-
Cambridge, MA, Harvard University Press
-
Pasquale F, (2015) The Black Box Society, Cambridge, MA: Harvard University Press.
-
(2015)
The Black Box Society
-
-
Pasquale, F.1
-
44
-
-
84976235557
-
Protecting health privacy in an era of big data processing and cloud computing
-
Pasquale F, Ragone TA, (2014) Protecting health privacy in an era of big data processing and cloud computing. Stanford Technology Law Review 17: 595–653.
-
(2014)
Stanford Technology Law Review
, vol.17
, pp. 595-653
-
-
Pasquale, F.1
Ragone, T.A.2
-
50
-
-
84924006144
-
-
Princeton, NJ, Princeton University Press
-
Rose N, (2006) The Politics of Life Itself: Biomedicine, Power, and Subjectivity in the Twenty-first Century, Princeton, NJ: Princeton University Press.
-
(2006)
The Politics of Life Itself: Biomedicine, Power, and Subjectivity in the Twenty-first Century
-
-
Rose, N.1
-
52
-
-
84900388468
-
Leakiness and creepiness in app space: Perceptions of privacy and mobile app use
-
Toronto, Canada, 26 April–1 May, New York, NY, Association for Computing Machinery
-
Shklovski I, Mainwaring SD, Skúladóttir HH, et al. (2014) Leakiness and creepiness in app space: Perceptions of privacy and mobile app use. In: Proceedings of the 32nd annual ACM conference on human factors in computing systems-CHI ’14, Toronto, Canada, 26 April–1 May, pp.2347–2356. New York, NY: Association for Computing Machinery.
-
(2014)
Proceedings of the 32Nd Annual ACM Conference on Human Factors in Computing Systems-Chi ’14
, pp. 2347-2356
-
-
Shklovski, I.1
Mainwaring, S.D.2
Skúladóttir, H.H.3
-
55
-
-
84923675764
-
Big data and public health: Navigating privacy laws to maximize potential
-
Thorpe JH, Gray EA, (2015) Big data and public health: Navigating privacy laws to maximize potential. Public Health Reports 130(2): 171–5.
-
(2015)
Public Health Reports
, vol.130
, Issue.2
, pp. 171-175
-
-
Thorpe, J.H.1
Gray, E.A.2
-
57
-
-
84955576677
-
The tradeoff fallacy: How marketers are misrepresenting American consumers and opening them up to exploitation
-
Available at:, accessed 29 July 2016
-
Turow J, Hennessy M and Draper N (2015) The tradeoff fallacy: How marketers are misrepresenting American consumers and opening them up to exploitation. Report, Annenberg School for Communication, University of Pennsylvania. Available at: https://www.asc.upenn.edu/sites/default/files/TradeoffFallacy_1.pdf (accessed 29 July 2016).
-
(2015)
Report, Annenberg School for Communication, University of Pennsylvania.
-
-
Turow, J.1
Hennessy, M.2
Draper, N.3
-
58
-
-
58049178838
-
Users like you? Theorizing agency in user-generated content
-
Van Dijck J, (2009) Users like you? Theorizing agency in user-generated content. Media, Culture and Society 31(1): 41–58.
-
(2009)
Media, Culture and Society
, vol.31
, Issue.1
, pp. 41-58
-
-
Van Dijck, J.1
-
59
-
-
84901007475
-
Datafication, dataism and dataveillance: Big data between scientific paradigm and ideology
-
Van Dijck J, (2014) Datafication, dataism and dataveillance: Big data between scientific paradigm and ideology. Surveillance and Society 12(2): 197–208.
-
(2014)
Surveillance and Society
, vol.12
, Issue.2
, pp. 197-208
-
-
Van Dijck, J.1
-
60
-
-
85027102582
-
Understanding the promises and premises of online health platforms
-
Van Dijck J, Poell T, (2016) Understanding the promises and premises of online health platforms. Big Data & Society 3(1): 1–11.
-
(2016)
Big Data & Society
, vol.3
, Issue.1
, pp. 1-11
-
-
Van Dijck, J.1
Poell, T.2
-
61
-
-
84979578312
-
Stop the privatization of health data
-
Wilbanks J, Topol E, (2016) Stop the privatization of health data. Nature 535: 345–348.
-
(2016)
Nature
, vol.535
, pp. 345-348
-
-
Wilbanks, J.1
Topol, E.2
-
62
-
-
85044088641
-
The creation of HIPAA culture: Prioritizing privacy paranoia over patient care
-
Wilkes JJ, (2015) The creation of HIPAA culture: Prioritizing privacy paranoia over patient care. BYU Law Review 5(7): 1213–1249.
-
(2015)
BYU Law Review
, vol.5
, Issue.7
, pp. 1213-1249
-
-
Wilkes, J.J.1
-
63
-
-
85074203830
-
We’re more honest with our phones than with our doctors
-
23 March
-
Wortham J (2016) We’re more honest with our phones than with our doctors. The New York Times Magazine, 23 March.
-
(2016)
The New York Times Magazine
-
-
Wortham, J.1
-
64
-
-
84954061937
-
Big data ethics
-
Zwitter A, (2014) Big data ethics. Big Data & Society 1(2): 1–6.
-
(2014)
Big Data & Society
, vol.1
, Issue.2
, pp. 1-6
-
-
Zwitter, A.1
|