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Volumn 4, Issue 1, 2017, Pages

Trust and privacy in the context of user-generated health data

Author keywords

Big data; health data; privacy; sharing; terms and conditions; trust

Indexed keywords


EID: 85074197648     PISSN: None     EISSN: 20539517     Source Type: Journal    
DOI: 10.1177/2053951717704673     Document Type: Article
Times cited : (46)

References (64)
  • 1
    • 85043750341 scopus 로고    scopus 로고
    • Give up your data to cure disease
    • Agus DB (2016) Give up your data to cure disease. The New York Times, 6 February.
    • (2016) The New York Times
    • Agus, D.B.1
  • 2
    • 84952921160 scopus 로고    scopus 로고
    • The cultural economy in the digital age
    • Benghozi P, Paris T, (2016) The cultural economy in the digital age. City, Culture and Society 7(2): 75–80.
    • (2016) City, Culture and Society , vol.7 , Issue.2 , pp. 75-80
    • Benghozi, P.1    Paris, T.2
  • 3
    • 84961317182 scopus 로고    scopus 로고
    • Digital market manipulation
    • Calo R, (2014) Digital market manipulation. The George Washington Law Review 82(4): 995–1051.
    • (2014) The George Washington Law Review , vol.82 , Issue.4 , pp. 995-1051
    • Calo, R.1
  • 4
    • 27644527244 scopus 로고    scopus 로고
    • Panopticon.com: Online surveillance and the commodification of privacy
    • Campbell JE, Carlson M, (2002) Panopticon.com: Online surveillance and the commodification of privacy. Journal of Broadcasting and Electronic Media 46(4): 586–606.
    • (2002) Journal of Broadcasting and Electronic Media , vol.46 , Issue.4 , pp. 586-606
    • Campbell, J.E.1    Carlson, M.2
  • 5
    • 84929662775 scopus 로고    scopus 로고
    • Potential and challenges of patient-generated health data for high-quality cancer care
    • Chung AE, Basch EM, (2015) Potential and challenges of patient-generated health data for high-quality cancer care. Journal of Oncology Practice 11(3): 195–197.
    • (2015) Journal of Oncology Practice , vol.11 , Issue.3 , pp. 195-197
    • Chung, A.E.1    Basch, E.M.2
  • 6
    • 85074188474 scopus 로고    scopus 로고
    • Humility, adaptability, and collaboration: The way forward in cyber security
    • New York City, New York
    • Comey J (2016) Humility, adaptability, and collaboration: The way forward in cyber security. Speech delivered at FBI/Fordham University international cyber security conference, New York City, New York, 27 July 2016. Available at: https://www.fbi.gov/news/speeches/humility-adaptability-and-collaboration-the-way-forward-in-cyber-security (accessed 1 August 2016).
    • (2016) Speech Delivered at Fbi/Fordham University International Cyber Security Conference
    • Comey, J.1
  • 9
    • 84992417332 scopus 로고    scopus 로고
    • There is a blind spot in AI research
    • Crawford K, Calo R, (2016) There is a blind spot in AI research. Nature 538(7625): 311–313.
    • (2016) Nature , vol.538 , Issue.7625 , pp. 311-313
    • Crawford, K.1    Calo, R.2
  • 10
    • 84901745184 scopus 로고    scopus 로고
    • Issue brief: Patient-generated health data and health IT
    • Washington, D.C., 20 December 2013, Washington, D.C: Office of the National Coordinator for Health Information Technology
    • Deering MJ, Siminerio E and Weinstein S (2013) Issue brief: Patient-generated health data and health IT. Office of the National Coordinator for Health Information Technology, Washington, D.C., 20 December 2013, pp. 1–11. Washington, D.C: Office of the National Coordinator for Health Information Technology.
    • (2013) Office of the National Coordinator for Health Information Technology , pp. 1-11
    • Deering, M.J.1    Siminerio, E.2    Weinstein, S.3
  • 11
    • 85074199914 scopus 로고    scopus 로고
    • The morning risk report: Study shows deep flaws in health-care cybersecurity
    • 29 June
    • Dockery S (2016) The morning risk report: Study shows deep flaws in health-care cybersecurity. The Wall Street Journal, 29 June.
    • (2016) The Wall Street Journal
    • Dockery, S.1
  • 12
    • 0038176693 scopus 로고    scopus 로고
    • A diagram of panoptic surveillance
    • Elmer G, (2003) A diagram of panoptic surveillance. New Media and Society 5(2): 231–247.
    • (2003) New Media and Society , vol.5 , Issue.2 , pp. 231-247
    • Elmer, G.1
  • 13
    • 67149116198 scopus 로고    scopus 로고
    • Report for Robert Wood Johnson Foundation, (accessed 1 August 2016)
    • Ferguson T, et al. (2007) e-Patients: How they can help us heal healthcare. Report for Robert Wood Johnson Foundation. Available at: http://www.e-patients.net/e-Patients_White_Paper.pdf (accessed 1 August 2016).
    • (2007) E-Patients: How they Can Help Us Heal Healthcare
    • Ferguson, T.1
  • 15
    • 84936745048 scopus 로고    scopus 로고
    • Available at:, accessed 28 May 2016
    • Fitbit (2015) Terms of service. Available at: https://www.fitbit.com/legal/terms-of-service (accessed 28 May 2016).
    • (2015) Terms of Service
  • 17
    • 84882800772 scopus 로고    scopus 로고
    • Tracking for health
    • (accessed 1 August 2016)
    • Fox S and Duggan M (2013) Tracking for health. Report for Pew Research Center. Available at: http://www.pewinternet.org/2013/01/28/tracking-for-health/ (accessed 1 August 2016).
    • (2013) Report for Pew Research Center
    • Fox, S.1    Duggan, M.2
  • 18
    • 85052869858 scopus 로고    scopus 로고
    • The power of community brands
    • Harhoff D., Lakhani K.R., (eds), Cambridge, MIT Press, In:, (eds
    • Füller J, (2016) The power of community brands. In: Harhoff D, Lakhani KR, (eds) Revolutionizing Innovation, Cambridge: MIT Press, pp. 353–376.
    • (2016) Revolutionizing Innovation , pp. 353-376
    • Füller, J.1
  • 19
    • 84902356333 scopus 로고    scopus 로고
    • Available at:, accessed 28 May 2016
    • Garmin (2014) Terms of use. Available at: http://www.garmin.com/en-US/legal/terms-of-use (accessed 28 May 2016).
    • (2014) Terms of Use
  • 20
    • 84936628244 scopus 로고
    • Situated knowledges: The science question in feminism and the privilege of partial perspective
    • Haraway D, (1988) Situated knowledges: The science question in feminism and the privilege of partial perspective. Feminist Studies 14(3): 575–599.
    • (1988) Feminist Studies , vol.14 , Issue.3 , pp. 575-599
    • Haraway, D.1
  • 21
    • 85044334682 scopus 로고    scopus 로고
    • Report for George Washington University, Hirsh Health Law and Policy Program, accessed 1 August 2016
    • Health Information and the Law Project (2015) Who owns medical records: 50 state comparison. Report for George Washington University, Hirsh Health Law and Policy Program. Available at: http://www.healthinfolaw.org/comparative-analysis/who-owns-medical-records-50-state-comparison (accessed 1 August 2016).
    • (2015) Who Owns Medical Records: 50 State Comparison
  • 22
    • 84923223695 scopus 로고    scopus 로고
    • (accessed 28 May 2016)
    • Internet Society (2012) Global internet user survey 2012. Available at: http://www.internetsociety.org/surveyexplorer/online-privacy-and-identity/what-are-the-main-reasons-you-accept-the-terms-and-conditions-as-offered-without-reading-them-14/ (accessed 28 May 2016).
    • (2012) Global internet user survey 2012
  • 24
    • 85074212391 scopus 로고    scopus 로고
    • Jawbone, accessed 28 May 2016
    • Jawbone (2014) UP terms of use. Available at: https://jawbone.com/legal/up/terms (accessed 28 May 2016).
    • (2014) UP Terms of Use
  • 26
    • 85074212949 scopus 로고    scopus 로고
    • Three’s a crowd: Towards contextual integrity in third party data sharing
    • Kim N, (2014) Three’s a crowd: Towards contextual integrity in third party data sharing. Harvard Journal of Law and Technology 28(1): 325–347.
    • (2014) Harvard Journal of Law and Technology , vol.28 , Issue.1 , pp. 325-347
    • Kim, N.1
  • 27
    • 84941121243 scopus 로고    scopus 로고
    • Unpatients: Why patients should own their medical data
    • Kish L, Topol E, (2015) Unpatients: Why patients should own their medical data. Nature Biotechnology 33(9): 921–924.
    • (2015) Nature Biotechnology , vol.33 , Issue.9 , pp. 921-924
    • Kish, L.1    Topol, E.2
  • 30
    • 85050385991 scopus 로고    scopus 로고
    • The biggest share in the sharing economy
    • 7 August, accessed 1 August 2016
    • Leaf C (2015) The biggest share in the sharing economy. Fortune, 7 August. Available at: http://fortune.com/2015/08/07/digital-health-data/ (accessed 1 August 2016).
    • (2015) Fortune
    • Leaf, C.1
  • 33
    • 85074215507 scopus 로고    scopus 로고
    • Americans’ attitudes toward privacy, security, and surveillance
    • (accessed 2 May 2016)
    • Madden M and Rainie L (2015) Americans’ attitudes toward privacy, security, and surveillance. Report for Pew Research Center. Available at: http://www.pewinternet.org/2015/05/20/americans-attitudes-about-privacy-security-and-surveillance/ (accessed 2 May 2016).
    • (2015) Report for Pew Research Center
    • Madden, M.1    Rainie, L.2
  • 34
    • 85074204802 scopus 로고    scopus 로고
    • Where are human subjects in big data research?
    • Metcalf J, Crawford K, (2016) Where are human subjects in big data research? Big Data & Society 3(1): 1–14.
    • (2016) Big Data & Society , vol.3 , Issue.1 , pp. 1-14
    • Metcalf, J.1    Crawford, K.2
  • 35
    • 85074192889 scopus 로고    scopus 로고
    • Misfit (2015) Misfit terms of use. : (accessed 28 May 2016
    • Misfit (2015) Misfit terms of use. Available at: http://misfit.com/legal/terms_of_use (accessed 28 May 2016)
  • 36
    • 85011582886 scopus 로고    scopus 로고
    • This one does not go up to 11: The quantified self movement as an alternative big data practice
    • Nafus D, Sherman J, (2014) This one does not go up to 11: The quantified self movement as an alternative big data practice. International Journal of Communication 8: 11.
    • (2014) International Journal of Communication , vol.8 , pp. 11
    • Nafus, D.1    Sherman, J.2
  • 38
    • 84949212687 scopus 로고    scopus 로고
    • (accessed 1 August 2016)
    • National Institutes of Health, Precision Medicine Initiative (2015) About the precision medicine initiative cohort program. Available at: https://www.nih.gov/precision-medicine-initiative-cohort-program (accessed 1 August 2016).
    • (2015) About the precision medicine initiative cohort program
  • 40
    • 77957594024 scopus 로고    scopus 로고
    • Broken promises of privacy: Responding to the surprising failure of anonymization
    • Ohm P, (2010) Broken promises of privacy: Responding to the surprising failure of anonymization. UCLA Law Review 57: 1701–1777.
    • (2010) UCLA Law Review , vol.57 , pp. 1701-1777
    • Ohm, P.1
  • 43
    • 84929212571 scopus 로고    scopus 로고
    • Cambridge, MA, Harvard University Press
    • Pasquale F, (2015) The Black Box Society, Cambridge, MA: Harvard University Press.
    • (2015) The Black Box Society
    • Pasquale, F.1
  • 44
    • 84976235557 scopus 로고    scopus 로고
    • Protecting health privacy in an era of big data processing and cloud computing
    • Pasquale F, Ragone TA, (2014) Protecting health privacy in an era of big data processing and cloud computing. Stanford Technology Law Review 17: 595–653.
    • (2014) Stanford Technology Law Review , vol.17 , pp. 595-653
    • Pasquale, F.1    Ragone, T.A.2
  • 46
    • 85002003298 scopus 로고    scopus 로고
    • Hacking the social life of big data
    • Pybus J, Coté M, Blanke T, (2016) Hacking the social life of big data. Big Data & Society 2(2): 1–10.
    • (2016) Big Data & Society , vol.2 , Issue.2 , pp. 1-10
    • Pybus, J.1    Coté, M.2    Blanke, T.3
  • 47
  • 55
    • 84923675764 scopus 로고    scopus 로고
    • Big data and public health: Navigating privacy laws to maximize potential
    • Thorpe JH, Gray EA, (2015) Big data and public health: Navigating privacy laws to maximize potential. Public Health Reports 130(2): 171–5.
    • (2015) Public Health Reports , vol.130 , Issue.2 , pp. 171-175
    • Thorpe, J.H.1    Gray, E.A.2
  • 57
    • 84955576677 scopus 로고    scopus 로고
    • The tradeoff fallacy: How marketers are misrepresenting American consumers and opening them up to exploitation
    • Available at:, accessed 29 July 2016
    • Turow J, Hennessy M and Draper N (2015) The tradeoff fallacy: How marketers are misrepresenting American consumers and opening them up to exploitation. Report, Annenberg School for Communication, University of Pennsylvania. Available at: https://www.asc.upenn.edu/sites/default/files/TradeoffFallacy_1.pdf (accessed 29 July 2016).
    • (2015) Report, Annenberg School for Communication, University of Pennsylvania.
    • Turow, J.1    Hennessy, M.2    Draper, N.3
  • 58
    • 58049178838 scopus 로고    scopus 로고
    • Users like you? Theorizing agency in user-generated content
    • Van Dijck J, (2009) Users like you? Theorizing agency in user-generated content. Media, Culture and Society 31(1): 41–58.
    • (2009) Media, Culture and Society , vol.31 , Issue.1 , pp. 41-58
    • Van Dijck, J.1
  • 59
    • 84901007475 scopus 로고    scopus 로고
    • Datafication, dataism and dataveillance: Big data between scientific paradigm and ideology
    • Van Dijck J, (2014) Datafication, dataism and dataveillance: Big data between scientific paradigm and ideology. Surveillance and Society 12(2): 197–208.
    • (2014) Surveillance and Society , vol.12 , Issue.2 , pp. 197-208
    • Van Dijck, J.1
  • 60
    • 85027102582 scopus 로고    scopus 로고
    • Understanding the promises and premises of online health platforms
    • Van Dijck J, Poell T, (2016) Understanding the promises and premises of online health platforms. Big Data & Society 3(1): 1–11.
    • (2016) Big Data & Society , vol.3 , Issue.1 , pp. 1-11
    • Van Dijck, J.1    Poell, T.2
  • 61
    • 84979578312 scopus 로고    scopus 로고
    • Stop the privatization of health data
    • Wilbanks J, Topol E, (2016) Stop the privatization of health data. Nature 535: 345–348.
    • (2016) Nature , vol.535 , pp. 345-348
    • Wilbanks, J.1    Topol, E.2
  • 62
    • 85044088641 scopus 로고    scopus 로고
    • The creation of HIPAA culture: Prioritizing privacy paranoia over patient care
    • Wilkes JJ, (2015) The creation of HIPAA culture: Prioritizing privacy paranoia over patient care. BYU Law Review 5(7): 1213–1249.
    • (2015) BYU Law Review , vol.5 , Issue.7 , pp. 1213-1249
    • Wilkes, J.J.1
  • 63
    • 85074203830 scopus 로고    scopus 로고
    • We’re more honest with our phones than with our doctors
    • 23 March
    • Wortham J (2016) We’re more honest with our phones than with our doctors. The New York Times Magazine, 23 March.
    • (2016) The New York Times Magazine
    • Wortham, J.1
  • 64
    • 84954061937 scopus 로고    scopus 로고
    • Big data ethics
    • Zwitter A, (2014) Big data ethics. Big Data & Society 1(2): 1–6.
    • (2014) Big Data & Society , vol.1 , Issue.2 , pp. 1-6
    • Zwitter, A.1


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.