메뉴 건너뛰기




Volumn 9, Issue 10, 2019, Pages

Frequency and format of clinical trial results dissemination to patients: A survey of authors of trials indexed in PubMed

Author keywords

dissemination; participants; patients and the public; research results

Indexed keywords

ADULT; ARTICLE; CONTROLLED STUDY; ETHICS; FEMALE; HUMAN; MAJOR CLINICAL STUDY; MALE; MEDLINE; MOTIVATION; QUESTIONNAIRE; SOCIAL WELFARE; CLINICAL TRIAL (TOPIC); INFORMATION DISSEMINATION; INTERPERSONAL COMMUNICATION; PATIENT; PROCEDURES; RESEARCH SUBJECT;

EID: 85073656665     PISSN: None     EISSN: 20446055     Source Type: Journal    
DOI: 10.1136/bmjopen-2019-032701     Document Type: Article
Times cited : (42)

References (34)
  • 1
    • 40049092143 scopus 로고    scopus 로고
    • Health research funding agencies' support and promotion of knowledge translation: An international study
    • Tetroe JM, Graham ID, Foy R, et al. Health research funding agencies' support and promotion of knowledge translation: an international study. Milbank Q 2008;86:125-55.
    • (2008) Milbank Q , vol.86 , pp. 125-155
    • Tetroe, J.M.1    Graham, I.D.2    Foy, R.3
  • 2
    • 77955114542 scopus 로고    scopus 로고
    • Does dissemination extend beyond publication: A survey of a cross section of public funded research in the UK
    • Wilson PM, Petticrew M, Calnan MW, et al. Does dissemination extend beyond publication: a survey of a cross section of public funded research in the UK. Implementation Sci 2010;5.
    • (2010) Implementation Sci , vol.5
    • Wilson, P.M.1    Petticrew, M.2    Calnan, M.W.3
  • 4
    • 84896469223 scopus 로고    scopus 로고
    • Publish or perish where are we heading?
    • Rawat S, Meena S. Publish or perish: where are we heading? J Res Med Sci 2014;19:87-9.
    • (2014) J Res Med Sci , vol.19 , pp. 87-89
    • Rawat, S.1    Meena, S.2
  • 5
    • 0142149999 scopus 로고    scopus 로고
    • Informing study participants of research results: An ethical imperative
    • Fernandez CV, Kodish E, Weijer C. Informing study participants of research results: an ethical imperative. IRB 2003;25:12-19.
    • (2003) IRB , vol.25 , pp. 12-19
    • Fernandez, C.V.1    Kodish, E.2    Weijer, C.3
  • 6
    • 2342453359 scopus 로고    scopus 로고
    • Oncology physician and nurse practices and attitudes regarding offering clinical trial results to study participants
    • Partridge AH, Hackett N, Blood E, et al. Oncology physician and nurse practices and attitudes regarding offering clinical trial results to study participants. J Natl Cancer Inst 2004;96:629-32.
    • (2004) J Natl Cancer Inst , vol.96 , pp. 629-632
    • Partridge, A.H.1    Hackett, N.2    Blood, E.3
  • 7
    • 56749161655 scopus 로고    scopus 로고
    • The search for clarity in communicating research results to study participants
    • Shalowitz DI, Miller FG. The search for clarity in communicating research results to study participants. J Med Ethics 2008;34:e17.
    • (2008) J Med Ethics , vol.34 , pp. e17
    • Shalowitz, D.I.1    Miller, F.G.2
  • 8
    • 81255209494 scopus 로고    scopus 로고
    • Return of research results: General principles and international perspectives
    • Lévesque E, Joly Y, Simard J. Return of research results: general principles and international perspectives. J Law Med Ethics 2011;39:583-92.
    • (2011) J Law Med Ethics , vol.39 , pp. 583-592
    • Lévesque, E.1    Joly, Y.2    Simard, J.3
  • 9
    • 84888610885 scopus 로고    scopus 로고
    • World Medical association Declaration of Helsinki: Ethical principles for medical research involving human subjects
    • World Medical Association
    • World Medical Association. World Medical association Declaration of Helsinki: ethical principles for medical research involving human subjects. JAMA 2013;310:2191-4.
    • (2013) JAMA , vol.310 , pp. 2191-2194
  • 11
    • 85074469607 scopus 로고    scopus 로고
    • National Academies of Sciences, Engineering, and Medicine. Returning individual research results to participants: guidance for a new research paradigm. Washington, DC: The National Academies Press
    • National Academies of Sciences, Engineering, and Medicine. Returning individual research results to participants: guidance for a new research paradigm. Washington, DC: The National Academies Press, 2018.
    • (2018)
  • 12
    • 44449162023 scopus 로고    scopus 로고
    • Communicating the results of clinical research to participants: Attitudes, practices, and future directions
    • Shalowitz DI, Miller FG. Communicating the results of clinical research to participants: attitudes, practices, and future directions. PLoS Med 2008;5:e91.
    • (2008) PLoS Med , vol.5 , pp. e91
    • Shalowitz, D.I.1    Miller, F.G.2
  • 13
    • 29944440965 scopus 로고    scopus 로고
    • Implications of disclosing individual results of clinical research
    • Clayton EW, Ross L F. Implications of disclosing individual results of clinical research. JAMA 2006;295:37-8.
    • (2006) JAMA , vol.295 , pp. 37-38
    • Clayton, E.W.1    Ross, L.F.2
  • 14
    • 0035258156 scopus 로고    scopus 로고
    • So much research evidence, so little dissemination and uptake: Mixing the useful with the pleasing
    • Waddell C. So much research evidence, so little dissemination and uptake: mixing the useful with the pleasing. Evid Based Ment Health 2001;4:3-5.
    • (2001) Evid Based Ment Health , vol.4 , pp. 3-5
    • Waddell, C.1
  • 15
    • 31644443407 scopus 로고    scopus 로고
    • Receiving a summary of the results of a trial: Qualitative study of participants' views
    • Dixon-Woods M, Jackson C, Windridge KC, et al. Receiving a summary of the results of a trial: qualitative study of participants' views. BMJ 2006;332:206-10.
    • (2006) BMJ , vol.332 , pp. 206-210
    • Dixon-Woods, M.1    Jackson, C.2    Windridge, K.C.3
  • 16
    • 33645744866 scopus 로고    scopus 로고
    • Trialists should tell participants results, but how?
    • The Lancet
    • The Lancet. Trialists should tell participants results, but how? The Lancet 2006;367:1030.
    • (2006) The Lancet , vol.367 , pp. 1030
  • 17
    • 23744513284 scopus 로고    scopus 로고
    • Providing research results to study participants: Support versus practice of researchers presenting at the American Society of hematology annual meeting
    • Rigby H, Fernandez CV. Providing research results to study participants: support versus practice of researchers presenting at the American Society of hematology annual meeting. Blood 2005;106:1199-202.
    • (2005) Blood , vol.106 , pp. 1199-1202
    • Rigby, H.1    Fernandez, C.V.2
  • 18
    • 77956597294 scopus 로고    scopus 로고
    • Dissemination of results in community-based participatory research
    • Chen PG, Diaz N, Lucas G, et al. Dissemination of results in community-based participatory research. Am J Prev Med 2010;39:372-8.
    • (2010) Am J Prev Med , vol.39 , pp. 372-378
    • Chen, P.G.1    Diaz, N.2    Lucas, G.3
  • 19
    • 85001115537 scopus 로고    scopus 로고
    • Health research participants' preferences for receiving research results
    • Long CR, Stewart MK, Cunningham TV, et al. Health research participants' preferences for receiving research results. Clin Trials 2016;13:582-91.
    • (2016) Clin Trials , vol.13 , pp. 582-591
    • Long, C.R.1    Stewart, M.K.2    Cunningham, T.V.3
  • 20
    • 85062406387 scopus 로고    scopus 로고
    • Health researchers' experiences, perceptions and barriers related to sharing study results with participants
    • Long CR, Purvis RS, Flood-Grady E, et al. Health researchers' experiences, perceptions and barriers related to sharing study results with participants. Health Res Policy Syst 2019;17.
    • (2019) Health Res Policy Syst , vol.17
    • Long, C.R.1    Purvis, R.S.2    Flood-Grady, E.3
  • 21
    • 79952538534 scopus 로고    scopus 로고
    • Feedback of trial results to participants: A survey of clinicians' and patients' attitudes and experiences
    • Cox K, Moghaddam N, Bird L, et al. Feedback of trial results to participants: a survey of clinicians' and patients' attitudes and experiences. Eur J Oncol Nurs 2011;15:124-9.
    • (2011) Eur J Oncol Nurs , vol.15 , pp. 124-129
    • Cox, K.1    Moghaddam, N.2    Bird, L.3
  • 22
    • 85017599756 scopus 로고    scopus 로고
    • Qualitative study of participants' perceptions and preferences regarding research dissemination
    • Purvis RS, Abraham TH, Long CR, et al. Qualitative study of participants' perceptions and preferences regarding research dissemination. AJOB Empirical Bioethics 2017;8:69-74.
    • (2017) AJOB Empirical Bioethics , vol.8 , pp. 69-74
    • Purvis, R.S.1    Abraham, T.H.2    Long, C.R.3
  • 23
    • 85058389713 scopus 로고    scopus 로고
    • Examining the use of consent forms to promote dissemination of research results to participants
    • Curran D, Kekewich M, Foreman T. Examining the use of consent forms to promote dissemination of research results to participants. Res Ethics 2019;15:1-28.
    • (2019) Res Ethics , vol.15 , pp. 1-28
    • Curran, D.1    Kekewich, M.2    Foreman, T.3
  • 24
    • 85061277602 scopus 로고    scopus 로고
    • Health research funding agencies' policies, recommendations, and tools for dissemination
    • McElfsh PA, Purvis RS, Stewart MK, et al. Health research funding agencies' policies, recommendations, and tools for dissemination. Prog Community Health Partnersh 2018;12:473-82.
    • (2018) Prog Community Health Partnersh , vol.12 , pp. 473-482
    • McElfsh, P.A.1    Purvis, R.S.2    Stewart, M.K.3
  • 25
    • 84881505065 scopus 로고    scopus 로고
    • Designing for dissemination among public health researchers: Fndings from a national survey in the United States
    • Brownson RC, Jacobs JA, Tabak RG, et al. Designing for dissemination among public health researchers: fndings from a national survey in the United States. Am J Public Health 2013;103:1693-9.
    • (2013) Am J Public Health , vol.103 , pp. 1693-1699
    • Brownson, R.C.1    Jacobs, J.A.2    Tabak, R.G.3
  • 26
    • 0042735076 scopus 로고    scopus 로고
    • Offering to return results to research participants: Attitudes and needs of principal Investigators in the children's Oncology Group
    • Fernandez CV, Kodish E, Shurin S, et al. Offering to return results to research participants: attitudes and needs of principal Investigators in the children's Oncology Group. J Pediatr Hematol Oncol 2003;25:704-8.
    • (2003) J Pediatr Hematol Oncol , vol.25 , pp. 704-708
    • Fernandez, C.V.1    Kodish, E.2    Shurin, S.3
  • 27
    • 84871216979 scopus 로고    scopus 로고
    • Peer review in a changing world: An international study measuring the attitudes of researchers
    • Mulligan A, Hall L, Raphael E. Peer review in a changing world: an international study measuring the attitudes of researchers. J Am Soc Inf Sci Tec 2013;64:132-61.
    • (2013) J Am Soc Inf Sci Tec , vol.64 , pp. 132-161
    • Mulligan, A.1    Hall, L.2    Raphael, E.3
  • 28
    • 85054071892 scopus 로고    scopus 로고
    • Role of supplementary material in biomedical Journal articles: Surveys of authors, reviewers and readers
    • Price A, Schroter S, Clarke M, et al. Role of supplementary material in biomedical Journal articles: surveys of authors, reviewers and readers. BMJ Open 2018;8:e021753.
    • (2018) BMJ Open , vol.8 , pp. e021753
    • Price, A.1    Schroter, S.2    Clarke, M.3
  • 30
    • 78649645722 scopus 로고    scopus 로고
    • Disseminating research fndings: What should researchers do? A systematic scoping review of conceptual frameworks
    • Wilson PM, Petticrew M, Calnan MW, et al. Disseminating research fndings: what should researchers do? A systematic scoping review of conceptual frameworks. Implementation Sci 2010;5.
    • (2010) Implementation Sci , vol.5
    • Wilson, P.M.1    Petticrew, M.2    Calnan, M.W.3
  • 31
    • 0037454241 scopus 로고    scopus 로고
    • Do patients participating in clinical trials want to know study results?
    • Partridge AH, Burstein HJ, Gelman RS, et al. Do patients participating in clinical trials want to know study results? J Natl Cancer Inst 2003;95:491-2.
    • (2003) J Natl Cancer Inst , vol.95 , pp. 491-492
    • Partridge, A.H.1    Burstein, H.J.2    Gelman, R.S.3
  • 32
    • 15844375512 scopus 로고    scopus 로고
    • Offering participants results of a clinical trial: Sharing results of a negative study
    • Partridge AH, Wong JS, Knudsen K, et al. Offering participants results of a clinical trial: sharing results of a negative study. Lancet 2005;365:963-4.
    • (2005) Lancet , vol.365 , pp. 963-964
    • Partridge, A.H.1    Wong, J.S.2    Knudsen, K.3
  • 33
    • 85042002667 scopus 로고    scopus 로고
    • The state of OA: A large-scale analysis of the prevalence and impact of open access articles
    • Piwowar H, Priem J, Larivière V, et al. The state of OA: a large-scale analysis of the prevalence and impact of open access articles. PeerJ 2018;6:e4375.
    • (2018) PeerJ , vol.6 , pp. e4375
    • Piwowar, H.1    Priem, J.2    Larivière, V.3
  • 34
    • 85050797053 scopus 로고    scopus 로고
    • Patients' roles and rights in research
    • Wicks P, Richards T, Denegri S, et al. Patients' roles and rights in research. BMJ 2018;362.
    • (2018) BMJ , vol.362
    • Wicks, P.1    Richards, T.2    Denegri, S.3


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.