-
1
-
-
1542314296
-
The ethics of reporting and disseminating results of clinical research trials
-
Bell JG, Brady M, Copeland LJ, (2004) The ethics of reporting and disseminating results of clinical research trials. Cancer 100(6): 1107–1109
-
(2004)
Cancer
, vol.100
, Issue.6
, pp. 1107-1109
-
-
Bell, J.G.1
Brady, M.2
Copeland, L.J.3
-
2
-
-
53349107714
-
Informed consent for biorepositories: Assessing prospective participants’ understanding and opinions
-
Beskow LM, Dean E, (2008) Informed consent for biorepositories: Assessing prospective participants’ understanding and opinions. Cancer Epidemiology Biomarkers Prevalence 17(6): 1440–1451
-
(2008)
Cancer Epidemiology Biomarkers Prevalence
, vol.17
, Issue.6
, pp. 1440-1451
-
-
Beskow, L.M.1
Dean, E.2
-
3
-
-
79952538534
-
Feedback of trial results to participants: A survey of clinicians’ and patients’ attitudes and experiences
-
Cox K, Moghaddam N, Bird L, Elkan R, (2011) Feedback of trial results to participants: A survey of clinicians’ and patients’ attitudes and experiences. European Journal of Oncology Nursing 15(2): 124–129
-
(2011)
European Journal of Oncology Nursing
, vol.15
, Issue.2
, pp. 124-129
-
-
Cox, K.1
Moghaddam, N.2
Bird, L.3
Elkan, R.4
-
4
-
-
0037038981
-
Informing participants of allocation to placebo at trial closure: Postal survey
-
Di Blasi Z, Kaptchuk TJ, Weinman J, Kleijnen J, (2002) Informing participants of allocation to placebo at trial closure: Postal survey. British Medical Journal 325(7376): 1329–1331
-
(2002)
British Medical Journal
, vol.325
, Issue.7376
, pp. 1329-1331
-
-
Di Blasi, Z.1
Kaptchuk, T.J.2
Weinman, J.3
Kleijnen, J.4
-
5
-
-
31644443407
-
Receiving a summary of the results of a trial: Qualitative study of participants’ views
-
Dixon-Woods M, Jackson C, Windridge K, Kenyon S, (2006) Receiving a summary of the results of a trial: Qualitative study of participants’ views. British Medical Journal 332(7535): 206–210
-
(2006)
British Medical Journal
, vol.332
, Issue.7535
, pp. 206-210
-
-
Dixon-Woods, M.1
Jackson, C.2
Windridge, K.3
Kenyon, S.4
-
6
-
-
79960232273
-
Providing the results of research to participants: A mixed-method study of the benefits and challenges of a consultative approach
-
Dixon-Woods M, Tarrant C, Jackson CJ, Jones DR, Kenyon S, (2011) Providing the results of research to participants: A mixed-method study of the benefits and challenges of a consultative approach. Clinical Trials 8(3): 330–341
-
(2011)
Clinical Trials
, vol.8
, Issue.3
, pp. 330-341
-
-
Dixon-Woods, M.1
Tarrant, C.2
Jackson, C.J.3
Jones, D.R.4
Kenyon, S.5
-
8
-
-
61449158785
-
Communicating clinical trial results to research participants
-
Dorsey ER, Beck CA, Adams M. (2008) Communicating clinical trial results to research participants. Archives of Neurology 65(12): 1590–1595
-
(2008)
Archives of Neurology
, vol.65
, Issue.12
, pp. 1590-1595
-
-
Dorsey, E.R.1
Beck, C.A.2
Adams, M.3
-
10
-
-
2342644002
-
Considerations and costs of disclosing study findings to research participants
-
Fernandez CV, Skedgel C, Weijer C, (2004) Considerations and costs of disclosing study findings to research participants. Canadian Medical Association Journal 170(9): 1417–1419
-
(2004)
Canadian Medical Association Journal
, vol.170
, Issue.9
, pp. 1417-1419
-
-
Fernandez, C.V.1
Skedgel, C.2
Weijer, C.3
-
12
-
-
0033201966
-
Disseminating the results of participant-focused research
-
Flaskerud JH, Anderson N, (1999) Disseminating the results of participant-focused research. Journal of Transcultural Nursing 10(4): 340–349
-
(1999)
Journal of Transcultural Nursing
, vol.10
, Issue.4
, pp. 340-349
-
-
Flaskerud, J.H.1
Anderson, N.2
-
13
-
-
79951630942
-
Reporting results of human biomonitoring of environmental chemicals to study participants: A comparison of approaches followed in two Canadian studies
-
Haines DA, Arbuckle TE, Lye E. (2011) Reporting results of human biomonitoring of environmental chemicals to study participants: A comparison of approaches followed in two Canadian studies. Journal of Epidemiology & Community Health 65(3): 191–198
-
(2011)
Journal of Epidemiology & Community Health
, vol.65
, Issue.3
, pp. 191-198
-
-
Haines, D.A.1
Arbuckle, T.E.2
Lye, E.3
-
14
-
-
81255209494
-
Return of research results: General principles and international perspectives
-
Lévesque E, Joly Y, Simard J, (2011) Return of research results: General principles and international perspectives. Journal of Law & Medical Ethics 39(4): 583–592
-
(2011)
Journal of Law & Medical Ethics
, vol.39
, Issue.4
, pp. 583-592
-
-
Lévesque, E.1
Joly, Y.2
Simard, J.3
-
15
-
-
79953317220
-
Study newsletters, community and ethics advisory boards, and focus group discussions provide ongoing feedback for a large biobank
-
McCarty CA, Garber A, Reeser JC, Fost NC, (2011) Study newsletters, community and ethics advisory boards, and focus group discussions provide ongoing feedback for a large biobank. American Journal of Medical Genetics 155A(4): 737–741
-
(2011)
American Journal of Medical Genetics
, vol.155A
, Issue.4
, pp. 737-741
-
-
McCarty, C.A.1
Garber, A.2
Reeser, J.C.3
Fost, N.C.4
-
16
-
-
30644476605
-
Informing research participants of research results: Analysis of Canadian university based research ethics board policies
-
(, a
-
MacNeil SD, Fernandez CV, (2006a) Informing research participants of research results: Analysis of Canadian university based research ethics board policies. Journal of Medical Ethics 32(1): 49–54
-
(2006)
Journal of Medical Ethics
, vol.32
, Issue.1
, pp. 49-54
-
-
MacNeil, S.D.1
Fernandez, C.V.2
-
17
-
-
31644436975
-
Offering results to research participants: Is ethically right but not yet fully explored
-
(, b
-
MacNeil SD, Fernandez CV, (2006b) Offering results to research participants: Is ethically right but not yet fully explored. British Medical Journal 332(7535): 188–189
-
(2006)
British Medical Journal
, vol.332
, Issue.7535
, pp. 188-189
-
-
MacNeil, S.D.1
Fernandez, C.V.2
-
18
-
-
40649092107
-
Duty to disclose what? Querying the putative obligation to return research results to participants
-
Miller FA, Christensen R, Giacomini M, Robert JS, (2008) Duty to disclose what? Querying the putative obligation to return research results to participants. Journal of Medical Ethics 34(3): 210–213
-
(2008)
Journal of Medical Ethics
, vol.34
, Issue.3
, pp. 210-213
-
-
Miller, F.A.1
Christensen, R.2
Giacomini, M.3
Robert, J.S.4
-
19
-
-
85058422011
-
-
accessed 30 August 2017
-
Ontario Health Study (2017) Available at: https://ontariohealthstudy.ca/en/research (accessed 30 August 2017)
-
(2017)
-
-
-
21
-
-
0037454241
-
Do patients participating in clinical trials want to know study results?
-
Partridge AH, Burstein HJ, Gelman RS, Marcom PK, Winer EP, (2003) Do patients participating in clinical trials want to know study results? Journal of the National Cancer Institute 95(6): 491–492
-
(2003)
Journal of the National Cancer Institute
, vol.95
, Issue.6
, pp. 491-492
-
-
Partridge, A.H.1
Burstein, H.J.2
Gelman, R.S.3
Marcom, P.K.4
Winer, E.P.5
-
22
-
-
15844375512
-
Offering participants results of a clinical trial: Sharing results of a negative study
-
Partridge AH, Wong JS, Knudsen K. (2005) Offering participants results of a clinical trial: Sharing results of a negative study. Lancet 365(9463): 963–964
-
(2005)
Lancet
, vol.365
, Issue.9463
, pp. 963-964
-
-
Partridge, A.H.1
Wong, J.S.2
Knudsen, K.3
-
23
-
-
23744513284
-
Providing research results to study participants: Support versus practice of researchers presenting at the American Society of Hematology annual meeting
-
Rigby H, Fernandez CV, (2005) Providing research results to study participants: Support versus practice of researchers presenting at the American Society of Hematology annual meeting. Blood 106(4): 1199–1202
-
(2005)
Blood
, vol.106
, Issue.4
, pp. 1199-1202
-
-
Rigby, H.1
Fernandez, C.V.2
-
24
-
-
23344451021
-
Disclosing individual results of clinical research: Implications of respect for participants
-
Shalowoitz DI, Miller FG, (2005) Disclosing individual results of clinical research: Implications of respect for participants. Journal of the American Medical Association 294(6): 737–740
-
(2005)
Journal of the American Medical Association
, vol.294
, Issue.6
, pp. 737-740
-
-
Shalowoitz, D.I.1
Miller, F.G.2
-
25
-
-
84942297714
-
Patient and service user engagement in research: A systematic review and synthesized framework
-
Shippee ND, Domecq Garces JP, Prutsky Lopez GJ. (2015) Patient and service user engagement in research: A systematic review and synthesized framework. Health Expectations 18: 1151–1166
-
(2015)
Health Expectations
, vol.18
, pp. 1151-1166
-
-
Shippee, N.D.1
Domecq Garces, J.P.2
Prutsky Lopez, G.J.3
-
26
-
-
62749139547
-
Patients’ attitudes and preferences about participation and recruitment strategies in clinical trials
-
Sood A, Prasad K, Chhatwani L. (2009) Patients’ attitudes and preferences about participation and recruitment strategies in clinical trials. Mayo Clinic Proceedings 84(3): 243–247
-
(2009)
Mayo Clinic Proceedings
, vol.84
, Issue.3
, pp. 243-247
-
-
Sood, A.1
Prasad, K.2
Chhatwani, L.3
-
27
-
-
84926652145
-
An implementation framework for the feedback of individual research results and incidental findings in research
-
Thorogood A, Joly Y, Knoppers BM. (2014) An implementation framework for the feedback of individual research results and incidental findings in research. BMC Medical Ethics 15(1): 88
-
(2014)
BMC Medical Ethics
, vol.15
, Issue.1
, pp. 88
-
-
Thorogood, A.1
Joly, Y.2
Knoppers, B.M.3
-
28
-
-
84995543060
-
Trial reporting in ClinicalTrials.gov—The Final Rule
-
Zarin DA, Tse T, Williams RJ, Carr S, (2016) Trial reporting in ClinicalTrials.gov—The Final Rule. New England Journal of Medicine 375: 1998–2004
-
(2016)
New England Journal of Medicine
, vol.375
, pp. 1998-2004
-
-
Zarin, D.A.1
Tse, T.2
Williams, R.J.3
Carr, S.4
|