The meaning of the name of ‘pulmonary rehabilitation’ and its influence on engagement with individuals with chronic lung disease

Chronic Respiratory Disease

Volumn 16, Issue , 2019, Pages

  Oxley, Rebecca ^a   Harrison, Samantha L ^b   Rose, Arthur ^a   Macnaughton, Jane ^a  

^a DURHAM UNIVERSITY   (United Kingdom)

^b TEESSIDE UNIVERSITY   (United Kingdom)

Author keywords

breathlessness; dance; medical humanities; Pulmonary rehabilitation; singing for lung health

Indexed keywords

CHRONIC LUNG DISEASE; COGNITIVE BEHAVIORAL THERAPY; COGNITIVE DEFECT; DYSPNEA; ETHNOGRAPHIC RESEARCH; HEALTH LITERACY; HUMAN; MEDICAL PRACTICE; PERCEPTION; PHYSICAL ACTIVITY; PRIORITY JOURNAL; PROBABILITY; PULMONARY REHABILITATION; REVIEW; SEMI STRUCTURED INTERVIEW; SIX MINUTE WALK TEST; SOCIAL INTERACTION; SOCIAL ISOLATION; SOCIOECONOMICS; TRANSLATIONAL RESEARCH; ATTITUDE TO HEALTH; CHRONIC DISEASE; DANCE THERAPY; HUMANITIES; LUNG DISEASE; MEDICAL INFORMATION; NOMENCLATURE; PATIENT PARTICIPATION; RESPIRATORY CARE; SINGING; SOCIAL STIGMA;

ATTITUDE TO HEALTH; CHRONIC DISEASE; DANCE THERAPY; DYSPNEA; HEALTH COMMUNICATION; HUMANITIES; HUMANS; LUNG DISEASES; PATIENT PARTICIPATION; RESPIRATORY THERAPY; SINGING; SOCIAL STIGMA; TERMINOLOGY AS TOPIC;

EID: 85067295019     PISSN: 14799723     EISSN: 14799731     Source Type: Journal    
DOI: 10.1177/1479973119847659     Document Type: Review

References (57)

1. Spruit MA, Singh SJ, Garvey C, et al. An official American Thoracic Society/European respiratory society statement: key concepts and advances in pulmonary rehabilitation. AJRCCM 2013; 188(8): e13–e64.
2. Bolton CE, Bevan-Smith EF, Blakey JD, et al. British thoracic society guideline on pulmonary rehabilitation in adults: accredited by NICE. Thorax 2013; 68(suppl 2): ii1–ii30.
3. Cox NS, Oliveira CC, Lahham A, et al. Pulmonary rehabilitation referral and participation are commonly influenced by environment, knowledge, and beliefs about consequences: a systematic review using the Theoretical Domains Framework. J Physiother 2017; 63(2): 84–93.
4. Steiner M, McMillan V, Lowe D, et al. Pulmonary rehabilitation: an exercise in improvement. National Chronic Obstructive Pulmonary Disease (COPD) Audit Programme: Clinical and organisational audits of pulmonary rehabilitation services in England and Wales 2017. National report. London: RCP, 2018.
5. Puhan MA, Gimeno-Santos E, Cates CJ, et al. Pulmonary rehabilitation following exacerbations of chronic obstructive pulmonary disease. CDSR 2016; 12: CD005305.
6. Harrison SL, Robertson N, Graham CD, et al. Can we identify patients with different illness schema following an acute exacerbation of COPD: a cluster analysis. Respir Med 2014; 108(2): 319–328.
7. Adekunle AO, Watson T, Schreuder FM. Pulmonary rehabilitation: uptake and completion profile of patients with chronic obstructive pulmonary disease. IJTR 2017; 24(9): 385–393.
8. Fischer M, Scharloo M, Abbink J, et al. Participation and drop-out in pulmonary rehabilitation: a qualitative analysis of the patients’ perspective. Clin Rehabil 2007; 21: 212–221.
9. Sohanpal R, Steed L, Mars T, et al. Understanding patient participation behaviour in studies of COPD support programmes such as pulmonary rehabilitation and self-management: a qualitative synthesis with application of theory. NPJ Prim Care Respir Med 2015; 25: 15054.
10. Liu Y, Dickerson T, Early F, et al. Understanding influences on the uptake of pulmonary rehabilitation in the East of England: an inclusive design/mixed methods study protocol. BMJ Open 2018; 8: e020750.
11. Harrison SL, Robertson N, Apps L, et al. ‘We are not worthy’ – understanding why patients decline pulmonary rehabilitation following an acute exacerbation of COPD. Disabil Rehabil 2015; 37(9): 750–756.
12. The Life of Breath Project. Durham and Bristol Universities, UK. https://lifeofbreath.org/ (accessed 14th November 2017).
13. Oxley R, Macnaughton J. Inspiring change: humanities and social science insights into the experience and management of breathlessness. Curr Opin Support Palliat Care 2016; 10(3): 256–261.
14. Carel H. Phenomenology as a resource for patients. J Med Philos 2012; 37(2): 96–113.
15. Carel H. Illness: the cry of the flesh. 2nd ed. Stocksfield: Acumen, 2013, p. 93.
16. Rose A. Introduction. In: Rose A, Heine S, Tsentourou N, Saunders CJ, Garratt P. (eds) Reading breath in literature. London: Palgrave, 2019 (In Press).
17. British Lung Foundation. Invisible lives: chronic obstructive pulmonary disease (COPD) – funding the missing millions. London: British Lung Foundation, 2007.
18. Snell N, Strachan D, Hubbard R, et al. Epidemiology of chronic obstructive pulmonary disease (COPD) in the UK: findings from the British Lung Foundation’s ‘respiratory health of the nation’ project. Thorax. 2016; 71(suppl 3): A20.
19. Hardie GE, Janson S, Gold WM, et al. Ethnic differences: word descriptors used by African-American and white asthma patients during induced bronchoconstriction. Chest 2000; 117: 935–943.
20. Graves J, Sandrey V, Graves T, et al. Effectiveness of a group opt-in session on uptake and graduation rates for pulmonary rehabilitation. Chron Respir Dis. 2010; 7(3): 159–164.
21. Holland AE, Harrison SL, Brooks D. Multimorbidity, frailty and chronic obstructive pulmonary disease: Are the challenges for pulmonary rehabilitation in the name? Chron Respir Dis 2016; 13(4): 372–382.
22. Banzett RB, Dempsey JA, O’Donnell DE, et al. Symptom perception and respiratory sensation in asthma. Am J Respir Crit Care Med 2000; 162: 1178–1182.
23. Hayen A, Herigstad M, Pattinson K. Understanding dyspnea as a complex individual experience. Maturitas 2013; 76: 45–50.
24. Wainwright M, Macnaughton J. Is a qualitative perspective missing from COPD guidelines? Lancet Respir Med 2013; 1: 441–442.
25. Halding AG, Heggdal K, Wahl A. Experiences of self-blame and stigmatisation for self-infliction among individuals living with COPD. Scand J Caring Sci 2011; 25: 100–107.
26. Berger BE, Kapella MC, Larson JL. The experience of stigma in chronic obstructive pulmonary disease. Western J Nurs Res 2011; 33(7): 916–932.
27. Gullick J, Stainton MC. Living with chronic obstructive pulmonary disease: developing conscious body management in a shrinking life-world. J Adv Nurs 2008; 64: 605–614.
28. Ream E, Richardson A. Fatigue in patients with cancer and chronic obstructive airways disease: a phenomenological enquiry. Int J Nurs Stud 1997; 34: 44–53.
29. Dolezal L. The body and shame: phenomenology, feminism and the socially shaped body. London & New York: Lexington books, 2015.
30. Johnson JL, Campbell AC, Bowers M, et al. Understanding the social consequences of chronic obstructive pulmonary disease: the effects of stigma and gender. Proc Am Thorac Soc 2007; 4(8): 680–682.
31. BOC Healthcare. Newcastle Healthy Lungs programme [Information Pamphlet]. Newcastle Gateshead Clinical Commissioning Group, 2015. Manchester, UK: BOC healthcare.
32. World Health Organisation. Constitution of the World Health Organization: Principles. WHO [1948], 2017. http://www.who.int/about/mission/en/ (accessed 09 November 2017).
33. Singh SJ, Steiner MC. Pulmonary rehabilitation: What’s in a name? Thorax 2013; 68(10): 899–901.
34. Bourne S, Devos R, North M, et al. Online versus face-to-face pulmonary rehabilitation for patients with chronic obstructive pulmonary disease: randomised controlled trial. BMJ Open 2017; 7(e014580): 1–11.
35. Heslop K, Newton J, Baker C, et al. Effectiveness of cognitive behavioural therapy (CBT) interventions for anxiety in patients with chronic obstructive pulmonary disease (COPD) undertaken by respiratory nurses: the COPD CBT CARE study: (ISRCTN55206395). BMC Pulm Med 2013; 13: 62.
36. Williams V, Bruton A, Ellis-Hill C, et al. The importance of movement for people living with chronic obstructive pulmonary disease. Qual Health Res 2011; 21: 1239–1248.
37. Levack WMM, Jones B, Grainger R, et al. Whakawhanaungatanga: the importance of culturally meaningful connections to improve uptake of pulmonary rehabilitation by Māori with COPD – a qualitative study. Int J Chron Obstruct Pulmon Dis 2016; 11: 489–501.
38. Lewis A, Cave P, Stern M, et al. Singing for lung health – a systematic review of the literature and consensus statement. NPJ Prim Care Respir Med 2016; 26: 1–8.
39. Seamark DA, Blake SD, Seamark CJ, et al. Living with severe chronic obstructive pulmonary disease (COPD): perceptions of patients and their carers: an interpretative phenomenological analysis. Palliative Med 2004; 18(7): 619–625.
40. Gardiner C, Gott M, Payne S, et al. Exploring the care needs of patients with advanced COPD: an overview of the literature. Resp Med 2010; 104(2): 159–165.
41. Rose C, Wallace L, Dickson R, et al. The most effective psychologically-based treatments to reduce anxiety and panic in patients with chronic obstructive pulmonary disease (COPD): a systematic review. Patient Educ Couns 2002; 47(4): 311–318.
42. Eiser MD, Blanc PD, Yelin EH, et al. Influence of anxiety on health outcomes in COPD. Thorax 2010; 65(3): 229–234.
43. Wolf SI, Lampl KL. Pulmonary rehabilitation: the use of aerobic dance as a therapeutic exercise for asthmatic patients. Ann Allergy 1988; 61(5): 357–360.
44. The use of dance in pulmonary rehabilitation for chronic obstructive pulmonary disease. King College London, UK, https://www.kcl.ac.uk/Cultural/-/Projects/DanceCOPD.aspx (accessed 24 November 2017).
45. Let’s boogie: Feasibility of a dance intervention in patients with chronic obstructive pulmonary disease. University of Toronto, Canada. http://www.physicaltherapy.utoronto.ca/news-events/lets-boogie-can-dance-programs-help-people-lung-disease/ (accessed 24 November 2017).
46. Keogh JWL, Kilding A, Pidegeon P, et al. Physical benefits of dancing for healthy older adults: a review. J Aging Phys Activ 2009; 17: 479–500.
47. Hwang PWN, Braun KL. The effectiveness of dance interventions to improve older adults’ health: a systematic literature review. Altern Ther Health Med 2015; 21(5): 64–70.
48. Mansfield L, Kay T, Meads C, et al. A systematic review of sport and dance participation in healthy young people (15-24 years) to promote subjective wellbeing. London: What Works Centre for Wellbeing, 2016.
49. Connolly MK, Redding E. Dancing towards well-being in the third age: literature review on the impact of dance on health and well-being among older people. London: Trinity Laban Conservatoire of Music and Dance, 2010.
50. Christesen JF, Gaigg SB, Calvo-Merino B. I can feel my heartbeat: dancers have increased interoceptive ability. Psychophysiology 2018; 55(4): e13008.
51. Klimova B, Valis M, Kuca K. Dancing as an intervention tool for people with dementia: a mini-review dancing and dementia. Curr Alzheimer Res 2017; 14(12): 1264–1269.
52. Lazarou I, Parastatidis T, Tsolaki A, et al. International ballroom dancing against neurodegeneration: a randomized controlled trial in Greek community-dwelling elders with mild cognitive impairment. AJADD 2017; 32(8): 489–499.
53. De Natale ER, Paulus KS, Aiello E, et al. Dance therapy improves motor and cognitive functions in patients with Parkinson’s disease. Neurorehabilitation 2017; 40(1): 141–144.
54. Slack JA, Giordani B, Smith J, et al. Domain specific cognitive changes in persons with chronic obstructive pulmonary disease (COPD): a systematic review and meta-analysis. AJRCCM 2017; 195: A1032.
55. Cleutjens FAHM, Spruit MA, Ponds RWHM, et al. The impact of cognitive impairment on efficacy of pulmonary rehabilitation in patients with COPD. JAMDA 2017; 18(5): 420–426.
56. Desveaux L, Harrison SL, Gagnon JF, et al. Effects of exercise training on cognition in chronic obstructive pulmonary disease: a systematic review. Respir Med 2018; 139: 110–116.
57. Thakur ER, Sansgiry S, Petersen NJ, et al. Cognitive and perceptual factors, not disease severity, are linked with anxiety in COPD: results from a cross-sectional study. Int J Behav Med 2018; 25(1): 74–84.