Living with chronic obstructive pulmonary disease: Developing conscious body management in a shrinking life-world

Journal of Advanced Nursing

Volumn 64, Issue 6, 2008, Pages 605-614

  Gullick, Janice ^a,b   Stainton, M Colleen ^b  

^a Department of Microbiology and Infectious Diseases

^b UNIVERSITY OF SYDNEY   (Australia)

Author keywords

Breathlessness; Chronic obstructive pulmonary disease; Hermeneutics; Interviews; Nursing; Phenomenology; Self management

Indexed keywords

ADAPTIVE BEHAVIOR; ADOLESCENT; ADULT; AGED; ARTICLE; ATTITUDE TO HEALTH; AUSTRALIA; CHRONIC DISEASE; CHRONIC OBSTRUCTIVE LUNG DISEASE; CLINICAL TRIAL; DAILY LIFE ACTIVITY; DYSPNEA; FAMILY; FEMALE; HUMAN; LUNG EMPHYSEMA; MALE; MIDDLE AGED; MULTICENTER STUDY; OUTCOME ASSESSMENT; PSYCHOLOGICAL ASPECT; QUALITATIVE RESEARCH; QUALITY OF LIFE; SELF CARE; SICKNESS IMPACT PROFILE;

ACTIVITIES OF DAILY LIVING; ADAPTATION, PSYCHOLOGICAL; ADOLESCENT; ADULT; AGED; AGED, 80 AND OVER; ATTITUDE TO HEALTH; CHRONIC DISEASE; DYSPNEA; FAMILY; FEMALE; HUMANS; MALE; MIDDLE AGED; NEW SOUTH WALES; OUTCOME ASSESSMENT (HEALTH CARE); PULMONARY DISEASE, CHRONIC OBSTRUCTIVE; PULMONARY EMPHYSEMA; QUALITATIVE RESEARCH; QUALITY OF LIFE; SELF CARE; SICKNESS IMPACT PROFILE; YOUNG ADULT;

EID: 56849084074     PISSN: 03092402     EISSN: 13652648     Source Type: Journal    
DOI: 10.1111/j.1365-2648.2008.04823.x     Document Type: Article

References (48)

1. Baker C.F. Scholz J.A. (2002) Coping with symptoms of dyspnea in chronic obstructive pulmonary disease. Rehabilitation Nursing 27, 67 74.
2. Barnett M. (2005) Chronic obstructive pulmonary disease: a phenomenological study of patients' experiences. Journal of Clinical Nursing 14, 805 812.
3. Bendtsen P., Leijon M., Sommer A.S. Kristenson M. (2003) Measuring health-related quality of life in patients with chronic obstructive pulmonary disease in a routine hospital setting: feasibility and perceived value. Health and Quality of Life Outcomes 1 (5), http://www.hqlo.com/content/1/1/5 (accessed August 2007).
4. Bestall J.C., Paul E.A., Garrod R., Garnham R., Jones P.W. Wedzicha J.A. (1999) Usefulness of the medical research council (M.R.C.) dyspnoea scale as a measure of disability in patients with chronic obstructive pulmonary disease. Thorax 54, 581 586.
5. Blanker M.H., Bohmen A.M., Groeneveld F.P.M., Bernsen R.M.D., Prins A., Thomas S. Bosch J.L.H. (2001) Correlates for erectile and ejaculatory dysfunction in older Dutch men: a community-based study. Journal of the American Geriatrics Society 49, 436 441.
6. Chailleux E., Laaban J.P. Veale D. (2003) Prognostic value of nutritional depletion in patients with C.O.P.D. treated by long-term oxygen therapy: data from the Antadir observatory. Chest 123, 1460 1466.
7. Charmaz K. (1991) Good Days, Bad Days: The Self in Chronic Illness and Time. Rutgers University Press, New Jersey.
8. Dilthey W. (1883:1976) In Selected Writings (Rickman H., ed Cambridge University Press, Cambridge, pp. 317 337.
9. Elkington H., White P., Addington-Hall J., Higgs R. Edmonds P. (2005) The healthcare needs of chronic obstructive pulmonary disease patients in the last year of life. Palliative Medicine 19, 485 491.
10. Fagerhaugh S. (1975) Routing: getting about with emphysema. In Chronic Illness and the Quality of Life Strauss A., ed C.V. Mosby Co., St Louis. pp. 99 107.
11. Fraser D., Kee C.C. Minick P. (2006) Living with chronic obstructive pulmonary disease: insiders' perspectives. Journal of Advanced Nursing 55 (5 550 558.
12. Gilbert R. (2004) Aging and loss. Illness, Crisis and Loss 12 (3 199 211.
13. Gleeson B. (1999) Geographies of Disability. Routledge Press, NY.
14. Griffith J., Caron C., Desrosiers J. Thibeault R. (2007) Defining spirituality and giving meaning to occupation: the perspective of community dwelling older adults with autonomy loss. Canadian Journal of Occupational Therapy 74 (2 78 90.
15. Hajiro T., Nishimura K., Tsukino M., Ikeda A. Oga T. (2000) Stages of disease severity and factors that effect the health status of patients with chronic obstructive pulmonary disease. Respiratory Medicine 94, 841 846.
16. Heidegger M. (1927:1996) Being and Time. Harper & Brothers, New York.
17. Hu J. Meek P. (2005) Health-related quality of life in individuals with chronic obstructive pulmonary disease. Heart and Lung 34 (6 415 422.
18. Husserl E. (1913) Ideas: A General Introduction to Pure Phenomenology. Allen & Unwin, London.
19. Hussey V. (2003) Wives caring for husbands with COPD. Info Nursing 34 (1 20.
20. Ironside P.M., Scheckel M., Wessels C., Bailey M.E., Powers S. Seeley D.K. (2003) Experiencing chronic illness: cocreating new understandings. Qualitative Health Research 13 (2 171 183.
21. Kanervisto M., Kaistila T. Paavilainen E. (2007) Severe chronic obstructive pulmonary disease in a family's everyday life in Finland: perceptions of people with chronic obstructive pulmonary disease and their spouses. Nursing and Health Sciences 9, 40 47.
22. Kelly D. (2004) Patients with colorectal cancer expressed a loss of adulthood related to a loss of professional and sexual identity, dignity, privacy, independence, and ability to socialise. Evidence-Based Nursing 7 (4 126.
23. Kessler R., Ståhl E., Vogelmeier C., Haughney J., Trudeau E., Löfdahl C.G. Partridge M.R. (2006) Patient understanding, detection, and experience of COPD exacerbations: an observational, interview-based study. Chest 130, 133 142.
24. Laliberte-Rudman D. (2002) Linking occupation and identity: lessons learned through qualitative exploration. Journal of Occupational Science 9 (1 12 19.
25. Lee R., Graydon J. Ross E. (1991) Effect of psychological well-being, physical status, and social support on oxygen-dependent C.O.P.D. patients' level of functioning. Research in Nursing and Health 14, 323 328.
26. Leidy N. Haase J. (1999) Functional status from the patient's perspective: the challenge of preserving personal integrity. Research in Nursing & Health 22, 67 77.
27. Leidy N. Traver G. (1996) Adjustment and social behaviour in older adults with chronic obstructive pulmonary disease: the family's perspective. Journal of Advanced Nursing 23, 252 259.
28. Lincoln Y. Guba E. (1985) Naturalistic Enquiry. Sage publications, Beverly Hills.
29. Lomborg K., Bjorn A., Dahl R. Kirkevold M. (2005) Body care experienced by people hospitalised with severe respiratory disease. Journal of Advanced Nursing 50, 262 271.
30. McKee B.J. (2003) Disability culture timeline: a brief history http://www.chairgrrl.com/DisabilityTimeline/bibliography.htm (accessed August 2007).
31. Merleau-Ponty M. (1945:1962) Phenomenology of Perception. Routledge and Kegan Paul, London.
32. Minichiello V., Fulton G. Sullivan G. (1999) Posing qualitative research questions. In Handbook for Research Methods in Health Sciences (Minichiello V., Sullivan G., Greenwood K. Axford R., eds). Addison Wesley Longman Australia, Sydney, p. 45.
33. Monninkhof E., van der Aaa M., van der Valka P., van der Palena J., Zielhuisb G., Koningc K. Pietersec M. (2004) A qualitative evaluation of a comprehensive self-management programme for COPD patients: effectiveness from the patients' perspective. Patient Education and Counseling 55 (2 177 184.
34. Morse J. (1997) Responding to threats to integrity of self. Advances in Nursing Science 19, 21 36.
35. Ninot G., Fortes M., Poulain M., Brun A., Desplan J., Préfaut C. Varray A. (2006) Gender difference in coping strategies among patients enrolled in an inpatient rehabilitation program. Heart and Lung 35 (2 130 136.
36. Odencrants S., Ehnfors M. Grobe S.J. (2007) Living with chronic obstructive pulmonary disease: part I. Struggling with meal-related situations: experiences among persons with COPD. Scandinavian Journal of Caring Science 21 (1 56 63.
37. Robinson T. (2005) Living with severe hypoxic COPD: the patients experience. Nursing Times 101 (7 38 42.
38. Rozmovits L. Ziebland S. (2004) Expressions of loss of adulthood in the narratives of people with colorectal cancer. Qualitative Health Research 14, 187 203.
39. Seamark D.A., Blake S.D., Seamark C.J. Halpin D.M. (2004) Living with severe chronic obstructive pulmonary disease (COPD): perceptions of patients and their carers - an interpretative phenomenological analysis. Palliative Medicine 18, 619 625.
40. Seemungal T., Donaldson G. Paul E. (1998) Effect of exacerbation on quality of life in patients with chronic obstructive pulmonary disease. American Journal of Respiratory and Critical Care Medicine 157, 1418 1422.
41. Soriano J., Davis K., Coleman B., Visick G., Mannino D. Pride N. (2003) The proportional Venn diagram of obstructive lung disease: two approximations from the United States and the United Kingdom. Chest 124, 474 481.
42. Strauss A. Glaser B. (eds 1975) Chronic Illness and the Quality of Life. C.V.Mosby, St. Louis.
43. Toms J. Harrison K. (2002) Living with chronic lung disease and the effect of pulmonary rehabilitation: patients' perspectives. Physiotherapy 88, 605 619.
44. de Torres J., Pinto-Plata V., Ingenito E., Bagley P., Gray A., Berger R. Celli B. (2002) Power of outcome measurements to detect clinically significant changes in pulmonary rehabilitation of patients with COPD. Chest 12, 1092 1098.
45. Williams V., Bruton A., Ellis-Hill C. McPherson K. (2007) What really matters to patients living with chronic obstructive pulmonary disease? Chronic Respiratory Disease 4, 77 85.
46. Wilson I.B. Cleary P.D. (1995) Linking clinical variables with health-related quality of life: a conceptual model of patient outcomes. JAMA 273, 59 65.
47. World Health Organisation (2006) Chronic Obstructive Pulmonary Disease, Fact Sheet. N°315. http://www.who.int/mediacentre/factsheets/fs315/en/index. html (accessed February 2007).
48. Yusen R.D. (2001) What outcomes should be measured in patients with COPD? Chest 119, 327 328.