-
2
-
-
84946397205
-
The quest for a new methodology for dementia care research
-
Swarbrick C. The quest for a new methodology for dementia care research. Dementia (London). 2015;14(6):713-5.
-
(2015)
Dementia (London)
, vol.14
, Issue.6
, pp. 713-715
-
-
Swarbrick, C.1
-
4
-
-
85059577589
-
-
European Working Group of People with Dementia Alzheimer Europe Conference St Julian's, Malta
-
European Working Group of People with Dementia. Nothing about us without us. St Julian's, Malta: Alzheimer Europe Conference; 2013.
-
(2013)
Nothing about Us Without Us
-
-
-
5
-
-
85019648405
-
Alzheimer Europe's position on involving people with dementia in research through PPI (patient and public involvement)
-
European Working Group of People with Dementia
-
Gove D, Diaz-Ponce A, Georges J, Moniz-Cook E, Mountain G, Chattat R, Oksnebjerg L, European Working Group of People with Dementia. Alzheimer Europe's position on involving people with dementia in research through PPI (patient and public involvement). Aging Ment Health. 2018;22(6):723-9.
-
(2018)
Aging Ment Health
, vol.22
, Issue.6
, pp. 723-729
-
-
Gove, D.1
Diaz-Ponce, A.2
Georges, J.3
Moniz-Cook, E.4
Mountain, G.5
Chattat, R.6
Oksnebjerg, L.7
-
6
-
-
85032960432
-
How to increase the participation of older subjects in research: Good practices and more evidence are needed!
-
Cherubini A, Gasperini B. How to increase the participation of older subjects in research: good practices and more evidence are needed! Age Ageing. 2017;46(6):878-81.
-
(2017)
Age Ageing
, vol.46
, Issue.6
, pp. 878-881
-
-
Cherubini, A.1
Gasperini, B.2
-
7
-
-
85048998669
-
Visioning change: Co-producing a model of involvement and engagement in research (Innovative Practice)
-
Scottish Dementia Working G, Educate
-
Swarbrick CM, Doors O, Scottish Dementia Working G, Educate, Davis K, Keady J. Visioning change: co-producing a model of involvement and engagement in research (Innovative Practice). Dementia (London). 2016;0(0):1471301216674559.
-
(2016)
Dementia (London)
-
-
Swarbrick, C.M.1
Doors, O.2
Davis, K.3
Keady, J.4
-
9
-
-
84906330245
-
Core principles for involving people with dementia in research: Innovative practice
-
Scottish Dementia Working Group Research Sub-Group UK
-
Scottish Dementia Working Group Research Sub-Group UK. Core principles for involving people with dementia in research: innovative practice. Dementia (London). 2014;13(5):680-5.
-
(2014)
Dementia (London)
, vol.13
, Issue.5
, pp. 680-685
-
-
-
11
-
-
85045884208
-
Developing a core outcome set for people living with dementia at home in their neighbourhoods and communities: Study protocol for use in the evaluation of non-pharmacological community-based health and social care interventions
-
Harding AJE, Morbey H, Ahmed F, Opdebeeck C, Wang YY, Williamson P, Swarbrick C, Leroi I, Challis D, Davies L, et al. Developing a core outcome set for people living with dementia at home in their neighbourhoods and communities: study protocol for use in the evaluation of non-pharmacological community-based health and social care interventions. Trials. 2018;19(1):247.
-
(2018)
Trials
, vol.19
, Issue.1
, pp. 247
-
-
Harding, A.J.E.1
Morbey, H.2
Ahmed, F.3
Opdebeeck, C.4
Wang, Y.Y.5
Williamson, P.6
Swarbrick, C.7
Leroi, I.8
Challis, D.9
Davies, L.10
-
12
-
-
85021661906
-
Core outcome measures for interventions to prevent or slow the progress of dementia for people living with mild to moderate dementia: Systematic review and consensus recommendations
-
Webster L, Groskreutz D, Grinbergs-Saull A, Howard R, O'Brien JT, Mountain G, Banerjee S, Woods B, Perneczky R, Lafortune L, et al. Core outcome measures for interventions to prevent or slow the progress of dementia for people living with mild to moderate dementia: systematic review and consensus recommendations. PLoS One. 2017;12(6):e0179521.
-
(2017)
PLoS One
, vol.12
, Issue.6
, pp. e0179521
-
-
Webster, L.1
Groskreutz, D.2
Grinbergs-Saull, A.3
Howard, R.4
O'Brien, J.T.5
Mountain, G.6
Banerjee, S.7
Woods, B.8
Perneczky, R.9
Lafortune, L.10
-
13
-
-
39749188052
-
A European consensus on outcome measures for psychosocial intervention research in dementia care
-
1:STN:280:DC%2BD1c7jslClsg%3D%3D
-
Moniz-Cook E, Vernooij-Dassen M, Woods R, Verhey F, Chattat R, De Vugt M, Mountain G, O'Connell M, Harrison J, Vasse E, et al. A European consensus on outcome measures for psychosocial intervention research in dementia care. Aging Ment Health. 2008;12(1):14-29.
-
(2008)
Aging Ment Health
, vol.12
, Issue.1
, pp. 14-29
-
-
Moniz-Cook, E.1
Vernooij-Dassen, M.2
Woods, R.3
Verhey, F.4
Chattat, R.5
De Vugt, M.6
Mountain, G.7
O'Connell, M.8
Harrison, J.9
Vasse, E.10
-
14
-
-
0034534375
-
Defining the outcomes of community care: The perspectives of older people with dementia and their carers
-
Bamford C, Bruce E. Defining the outcomes of community care: the perspectives of older people with dementia and their carers. Ageing Soc. 2000;20(5):543-70.
-
(2000)
Ageing Soc
, vol.20
, Issue.5
, pp. 543-570
-
-
Bamford, C.1
Bruce, E.2
-
16
-
-
85006093284
-
Choosing important health outcomes for comparative effectiveness research: An updated review and identification of gaps
-
Gorst SL, Gargon E, Clarke M, Smith V, Williamson PR. Choosing important health outcomes for comparative effectiveness research: an updated review and identification of gaps. PLoS One. 2016;11(12):e0168403.
-
(2016)
PLoS One
, vol.11
, Issue.12
, pp. e0168403
-
-
Gorst, S.L.1
Gargon, E.2
Clarke, M.3
Smith, V.4
Williamson, P.R.5
-
17
-
-
84946403771
-
Articulating the strategies for maximising the inclusion of people with dementia in qualitative research studies
-
Murphy K, Jordan F, Hunter A, Cooney A, Casey D. Articulating the strategies for maximising the inclusion of people with dementia in qualitative research studies. Dementia (London). 2015;14(6):800-24.
-
(2015)
Dementia (London)
, vol.14
, Issue.6
, pp. 800-824
-
-
Murphy, K.1
Jordan, F.2
Hunter, A.3
Cooney, A.4
Casey, D.5
-
18
-
-
85021166684
-
The COMET Handbook: Version 1.0
-
Williamson PR, Altman DG, Bagley H, Barnes KL, Blazeby JM, Brookes ST, Clarke M, Gargon E, Gorst S, Harman N, et al. The COMET Handbook: version 1.0. Trials. 2017;18(Suppl 3):280.
-
(2017)
Trials
, vol.18
, pp. 280
-
-
Williamson, P.R.1
Altman, D.G.2
Bagley, H.3
Barnes, K.L.4
Blazeby, J.M.5
Brookes, S.T.6
Clarke, M.7
Gargon, E.8
Gorst, S.9
Harman, N.10
-
19
-
-
85015753619
-
A review of patient and carer participation and the use of qualitative research in the development of core outcome sets
-
Jones JE, Jones LL, Keeley TJ, Calvert MJ, Mathers J. A review of patient and carer participation and the use of qualitative research in the development of core outcome sets. PLoS One. 2017;12(3):e0172937.
-
(2017)
PLoS One
, vol.12
, Issue.3
, pp. e0172937
-
-
Jones, J.E.1
Jones, L.L.2
Keeley, T.J.3
Calvert, M.J.4
Mathers, J.5
-
20
-
-
84977606781
-
The use of qualitative methods to inform Delphi surveys in core outcome set development
-
Keeley T, Williamson P, Callery P, Jones LL, Mathers J, Jones J, Young B, Calvert M. The use of qualitative methods to inform Delphi surveys in core outcome set development. Trials. 2016;17(230):1-9.
-
(2016)
Trials.
, vol.17
, Issue.230
, pp. 1-9
-
-
Keeley, T.1
Williamson, P.2
Callery, P.3
Jones, L.L.4
Mathers, J.5
Jones, J.6
Young, B.7
Calvert, M.8
-
21
-
-
0035315843
-
A critical review of the Delphi technique as a research methodology for nursing
-
1:STN:280:DC%2BD3M3mvFehsg%3D%3D
-
Keeney S, Hasson F, McKenna HP. A critical review of the Delphi technique as a research methodology for nursing. Int J Nurs Stud. 2001;38(2):195-200.
-
(2001)
Int J Nurs Stud
, vol.38
, Issue.2
, pp. 195-200
-
-
Keeney, S.1
Hasson, F.2
McKenna, H.P.3
-
22
-
-
85042143905
-
Survey indicated that core outcome set development is increasingly including patients, being conducted internationally and using Delphi surveys
-
Biggane AM, Brading L, Ravaud P, Young B, Williamson PR. Survey indicated that core outcome set development is increasingly including patients, being conducted internationally and using Delphi surveys. Trials. 2018;19(1):113.
-
(2018)
Trials
, vol.19
, Issue.1
, pp. 113
-
-
Biggane, A.M.1
Brading, L.2
Ravaud, P.3
Young, B.4
Williamson, P.R.5
-
25
-
-
85059588037
-
Safe and inclusive research practices for qualitative research involving people with dementia: A review of key issues and strategies
-
1471301217701274
-
Novek S, Wilkinson H. Safe and inclusive research practices for qualitative research involving people with dementia: a review of key issues and strategies. Dementia (London). 2017:1471301217701274. https://doi.org/10.1177/1471301217701274.
-
(2017)
Dementia (London)
-
-
Novek, S.1
Wilkinson, H.2
-
28
-
-
85049809079
-
Cognitive functioning and quality of life: Diverging views of older adults with Alzheimer and professional care staff
-
Dewitte L, Vandenbulcke M, Dezutter J. Cognitive functioning and quality of life: Diverging views of older adults with Alzheimer and professional care staff. Int J Geriatr Psychiatry. 2018;0(0):1074-81.
-
(2018)
Int J Geriatr Psychiatry.
, pp. 1074-1081
-
-
Dewitte, L.1
Vandenbulcke, M.2
Dezutter, J.3
-
29
-
-
84959452197
-
Perceptions of self-defined memory problems vary in south Asian minority older people who consult a GP and those who do not: A mixed-method pilot study
-
Giebel C, Challis D, Worden A, Jolley D, Bhui KS, Lambat A, Purandare N. Perceptions of self-defined memory problems vary in south Asian minority older people who consult a GP and those who do not: a mixed-method pilot study. Int J Geriatr Psychiatry. 2016;31(4):375-83.
-
(2016)
Int J Geriatr Psychiatry
, vol.31
, Issue.4
, pp. 375-383
-
-
Giebel, C.1
Challis, D.2
Worden, A.3
Jolley, D.4
Bhui, K.S.5
Lambat, A.6
Purandare, N.7
-
30
-
-
0037384933
-
Patients and clinicians have different perspectives on outcomes in arthritis
-
12672220
-
Hewlett SA. Patients and clinicians have different perspectives on outcomes in arthritis. J Rheumatol. 2003;30(4):877-9.
-
(2003)
J Rheumatol
, vol.30
, Issue.4
, pp. 877-879
-
-
Hewlett, S.A.1
-
31
-
-
33748788543
-
Medication adherence in schizophrenia: Exploring patients', carers' and professionals' views
-
Kikkert MJ, Schene AH, Koeter MW, Robson D, Born A, Helm H, Nose M, Goss C, Thornicroft G, Gray RJ. Medication adherence in schizophrenia: exploring patients', carers' and professionals' views. Schizophr Bull. 2006;32(4):786-94.
-
(2006)
Schizophr Bull
, vol.32
, Issue.4
, pp. 786-794
-
-
Kikkert, M.J.1
Schene, A.H.2
Koeter, M.W.3
Robson, D.4
Born, A.5
Helm, H.6
Nose, M.7
Goss, C.8
Thornicroft, G.9
Gray, R.J.10
-
32
-
-
79951635914
-
Using the Delphi technique to determine which outcomes to measure in clinical trial: Recommendations for the future based on a systematic review of existing studies
-
Sinha I, Smyth R, Williamson PR. Using the Delphi technique to determine which outcomes to measure in clinical trial: recommendations for the future based on a systematic review of existing studies. PLoS Med. 2011;8(1):e100039.
-
(2011)
PLoS Med.
, vol.8
, Issue.1
, pp. e100039
-
-
Sinha, I.1
Smyth, R.2
Williamson, P.R.3
-
33
-
-
0034669456
-
Factors considered important at the end of life by patients, family, physicians, and other care providers
-
1:STN:280:DC%2BD3M%2FktFyksg%3D%3D
-
Steinhauser AE, Christakis NA, Clipp EC, McNeilly M, McIntyre L, Tulsky JA. Factors considered important at the end of life by patients, family, physicians, and other care providers. Jama-J Am Med Assoc. 2000;284(19):2476-82.
-
(2000)
Jama-J Am Med Assoc
, vol.284
, Issue.19
, pp. 2476-2482
-
-
Steinhauser, A.E.1
Christakis, N.A.2
Clipp, E.C.3
McNeilly, M.4
McIntyre, L.5
Tulsky, J.A.6
-
36
-
-
37249001738
-
Ethical issues in social research involving people with dementia
-
Sherratt C, Soteriou T, Evans S. Ethical issues in social research involving people with dementia. Dementia. 2016;6(4):463-79.
-
(2016)
Dementia
, vol.6
, Issue.4
, pp. 463-479
-
-
Sherratt, C.1
Soteriou, T.2
Evans, S.3
-
37
-
-
85059550566
-
-
Mental Capacity Act 2005 Accessed 13 June 2018
-
Mental Capacity Act 2005. http://www.legislation.gov.uk/ukpga/2005/9/pdfs/ukpga-20050009-en.pdf. Accessed 13 June 2018
-
-
-
-
38
-
-
85059581237
-
-
Social Research Association: Ethics Guidelines Accessed 13 June 2018
-
Social Research Association: Ethics Guidelines. http://the-sra.org.uk/research-ethics/ethics-guidelines/. Accessed 13 June 2018
-
-
-
-
39
-
-
85059585235
-
-
British Sociological Association: Statement of Ethical Practice Accessed 13 June 2018
-
British Sociological Association: Statement of Ethical Practice. https://www.britsoc.co.uk/media/24310/bsa
-
-
-
-
40
-
-
61349174049
-
Researching sensitive topics: Qualitative research as emotion work
-
Dickson-Swift V, James EL, Kippen S, Liamputtong P. Researching sensitive topics: qualitative research as emotion work. Qual Res. 2009;9(1):61-79.
-
(2009)
Qual Res
, vol.9
, Issue.1
, pp. 61-79
-
-
Dickson-Swift, V.1
James, E.L.2
Kippen, S.3
Liamputtong, P.4
-
41
-
-
85041930524
-
Researcher self-care in emotionally demanding research: A proposed conceptual framework
-
Kumar S, Cavallaro L. Researcher self-care in emotionally demanding research: a proposed conceptual framework. Qual Health Res. 2018;28(4):648-58.
-
(2018)
Qual Health Res
, vol.28
, Issue.4
, pp. 648-658
-
-
Kumar, S.1
Cavallaro, L.2
-
42
-
-
85019070981
-
The emotional challenges of conducting in-depth research into significant health issues in health geography: Reflections on emotional labour, fieldwork and life course
-
McGarrol S. The emotional challenges of conducting in-depth research into significant health issues in health geography: reflections on emotional labour, fieldwork and life course. Area (Oxf). 2017;49(4):436-42.
-
(2017)
Area (Oxf)
, vol.49
, Issue.4
, pp. 436-442
-
-
McGarrol, S.1
-
43
-
-
84893860259
-
The experiences of therapy from the perspectives of carers of people with dementia: An exploratory study
-
Elvish R, Cawley R, Keady J. The experiences of therapy from the perspectives of carers of people with dementia: an exploratory study. Couns Psychother Res. 2013;14(1):56-63.
-
(2013)
Couns Psychother Res
, vol.14
, Issue.1
, pp. 56-63
-
-
Elvish, R.1
Cawley, R.2
Keady, J.3
-
45
-
-
85059570309
-
-
New Economics Foundation 2014. Retrieved 5 March
-
New Economics Foundation. Wellbeing at Work. 2014. Retrieved 5 March 2018.
-
(2018)
Wellbeing at Work
-
-
-
46
-
-
85052027626
-
-
Cambridge: RAND Corporation
-
Guthrie S, Lichten C, van Belle J, Ball S, Knack A, Hofman J. Understanding mental health in the research environment: a rapid evidence assessment. Cambridge: RAND Corporation; 2017.
-
(2017)
Understanding Mental Health in the Research Environment: A Rapid Evidence Assessment
-
-
Guthrie, S.1
Lichten, C.2
Van Belle, J.3
Ball, S.4
Knack, A.5
Hofman, J.6
-
47
-
-
85056970720
-
-
Department of Work and Pensions and Department of Health London: Her Majesty's Stationery Office
-
Department of Work and Pensions and Department of Health. Improving Lives: The Future of Work, Health and Disability. London: Her Majesty's Stationery Office; 2017.
-
(2017)
Improving Lives: The Future of Work, Health and Disability
-
-
-
48
-
-
85048975973
-
-
Department of Work and Pensions and Department of Health Retrieved 5 March 2018
-
Department of Work and Pensions and Department of Health. Thriving at work: a review of mental health and employers. 2017. Retrieved 5 March 2018.
-
(2017)
Thriving at Work: A Review of Mental Health and Employers
-
-
-
49
-
-
79956223259
-
Culture, consent, costs and care homes: Enabling older people with dementia to participate in research
-
Goodman C, Baron NL, Machen I, Stevenson E, Evans C, Davies SL, Iliffe S. Culture, consent, costs and care homes: enabling older people with dementia to participate in research. Aging Ment Health. 2011;15(4):475-81.
-
(2011)
Aging Ment Health
, vol.15
, Issue.4
, pp. 475-481
-
-
Goodman, C.1
Baron, N.L.2
Machen, I.3
Stevenson, E.4
Evans, C.5
Davies, S.L.6
Iliffe, S.7
-
50
-
-
85044463133
-
A roadmap to advance dementia research in prevention, diagnosis, intervention, and care by 2025
-
Pickett J, Bird C, Ballard C, Banerjee S, Brayne C, Cowan K, Clare L, Comas-Herrera A, Corner L, Daley S, et al. A roadmap to advance dementia research in prevention, diagnosis, intervention, and care by 2025. Int J Geriatr Psychiatry. 2018;0(0). https://doi.org/10.1002/gps.4868.
-
(2018)
Int J Geriatr Psychiatry.
-
-
Pickett, J.1
Bird, C.2
Ballard, C.3
Banerjee, S.4
Brayne, C.5
Cowan, K.6
Clare, L.7
Comas-Herrera, A.8
Corner, L.9
Daley, S.10
|