Registered nurses’ provision of end-of-life care to hospitalised adults: A mixed studies review

Nurse Education Today

Volumn 71, Issue , 2018, Pages 60-74

  Karbasi, C ^a   Pacheco, E ^a   Bull, C ^b   Evanson, A ^c   Chaboyer, W ^b  

^a UNIVERSIDAD COMPLUTENSE DE MADRID   (Spain)

^b GRIFFITH UNIVERSITY   (Australia)

^c Mount Isa Base Hospital   (Australia)

Author keywords

Clinical competence; End of life care; Mixed study review; Palliative care; Patient advocacy; Reflective practitioner; Systematic review

Indexed keywords

ADULT; CINAHL; CLINICAL COMPETENCE; COCHRANE LIBRARY; DATA EXTRACTION; EXPECTATION; FEMALE; HUMAN; INTERVIEW; MALE; MEDLINE; OCCUPATION; PALLIATIVE THERAPY; PATIENT ADVOCACY; PHYSICIAN; QUALITATIVE RESEARCH; QUALITY CONTROL; QUANTITATIVE ANALYSIS; REGISTERED NURSE; REVIEW; SCOPUS; SYSTEMATIC REVIEW; TERMINAL CARE; UNITED STATES; WEB OF SCIENCE; NURSE; NURSE ATTITUDE; PROCEDURES; PSYCHOLOGY; STANDARDS;

ADULT; HUMANS; NURSE'S ROLE; NURSES; TERMINAL CARE;

EID: 85053519291     PISSN: 02606917     EISSN: 15322793     Source Type: Journal    
DOI: 10.1016/j.nedt.2018.09.007     Document Type: Review

References (76)

1. Abarshi, E.A., Papavasiliou, E.S., Preston, N., Brown, J., Payne, S., Euro, I., The complexity of nurses’ attitudes and practice of sedation at the end of life: a systematic literature review. J. Pain Symptom Manag. 47:5 (2014), 915–925 e911 https://doi.org/10.1016/j.jpainsymman.2013.06.011.
2. Albinsson, L., Strang, P., Differences in supporting families of dementia patients and cancer patients: a palliative perspective. Palliat. Med. 17:4 (2003), 359–367, 10.1191/0269216303pm669oa.
3. Allsop, M.J., Kite, S., McDermott, S., Penn, N., Millares-Martin, P., Bennett, M.I., Electronic palliative care coordination systems: devising and testing a methodology for evaluating documentation. Palliat. Med. 31:5 (2017), 475–482, 10.1177/0269216316663881.
4. American Nurses Association, Jent, S., Saxton, K., Wurzbacher, E., (eds.) Nursing: Scope and Standards of Practice, 2nd ed., 2010 (Silver Spring, MD).
5. Arantzamendi, M., Addington-Hall, J., Saracibar, M., Richardson, A., Spanish nurses’ preparedness to care for hospitalised terminally ill patients and their daily approach to caring. Int. J. Palliat. Nurs. 18:12 (2012), 597–605, 10.12968/ijpn.2012.18.12.597.
6. Arbour, R.B., Wiegand, D.L., Self-described nursing roles experienced during care of dying patients and their families: a phenomenological study. Intensive Crit. Care Nurs. 30:4 (2014), 211–218, 10.1016/j.iccn.2013.12.002.
7. Arveklev, S.H., Wigert, H., Berg, L., Burton, B., Lepp, M., The use and application of drama in nursing education - an integrative review of the literature. Nurse Educ. Today 35:7 (2015), e12–e17, 10.1016/j.nedt.2015.02.025.
8. Beck-Friis, B., Strang, P., The organization of hospital-based home care for terminally ill cancer patients: the Motala model. Palliat. Med., 7(2), 1993, 8, 10.1177/026921639300700202.
9. Beckstrand, R.L., Kirchhoff, K.T., Providing end-of-life care to patients: critical care nurses’ perceived obstacles and supportive behaviors. Am. J. Crit. Care 14:5 (2005), 395–403.
10. Beckstrand, R.L., Smith, M.D., Heaston, S., Bond, A.E., Emergency nurses’ perceptions of size, frequency, and magnitude of obstacles and supportive behaviors in end-of-life care. J. Emerg. Nurs. 34:4 (2008), 290–300, 10.1016/j.jen.2007.09.004.
11. Beckstrand, R.L., Moore, J., Callister, L., Bond, A.E., Oncology nurses’ perceptions of obstacles and supportive behaviors at the end of life. Oncol. Nurs. Forum 36:4 (2009), 446–453, 10.1188/09.ONF.446-453.
12. Beckstrand, R.L., Collette, J., Callister, L., Luthy, K.E., Oncology nurses’ obstacles and supportive behaviors in end-of-life care: providing vital family care. Oncol. Nurs. Forum 39:5 (2012), E398–E406, 10.1188/12.ONF.E398-E406.
13. Brogaard, T., Neergaard, M.A., Sokolowski, I., Olesen, F., Jensen, A.B., Congruence between preferred and actual place of care and death among Danish cancer patients. Palliat. Med. 27:2 (2013), 155–164, 10.1177/0269216312438468.
14. Calvin, A.O., Kite-Powell, D.M., Hickey, J.V., The neuroscience ICU nurse's perceptions about end-of-life care. J. Neurosci. Nurs. 39:3 (2007), 143–150.
15. Cant, R.P., Cooper, S.J., Simulation-based learning in nurse education: systematic review. J. Adv. Nurs. 66:1 (2010), 3–15, 10.1111/j.1365-2648.2009.05240.x.
16. CareSearch, Principles of Good End-of-life Care. Retrieved from https://www.caresearch.com.au/Caresearch/tabid/738/Default.aspx, 2017.
17. Choi, P.P., Patient advocacy: the role of the nurse. Nurs. Stand. 29:41 (2015), 52–58, 10.7748/ns.29.41.52.e9772.
18. Cooke, A., Smith, D., Booth, A., Beyond PICO: the SPIDER tool for qualitative evidence synthesis. Qual. Health Res. 22:10 (2012), 1435–1443, 10.1177/1049732312452938.
19. Costa, V., Earle, C.C., Esplen, M.J., Fowler, R., Goldman, R., Grossman, D., You, J.J., The determinants of home and nursing home death: a systematic review and meta-analysis. BMC Palliat. Care, 15(1), 2016, 8, 10.1186/s12904-016-0077-8.
20. Cox, K., Moghaddam, N., Almack, K., Pollock, K., Seymour, J., Is it recorded in the notes? Documentation of end-of-life care and preferred place to die discussions in the final weeks of life. BMC Palliat. Care, 10, 2011, 18, 10.1186/1472-684X-10-18.
21. Delgado, C., Upton, D., Ranse, K., Furness, T., Foster, K., Nurses’ resilience and the emotional labour of nursing work: an integrative review of empirical literature. Int. J. Nurs. Stud. 70 (2017), 71–88 https://doi.org/10.1016/j.ijnurstu.2017.02.008.
22. Department of Health, End of Life Care Strategy: Promoting High Quality Care for All Adults at the End of Life. Retrieved from https://www.gov.uk/government/publications/end-of-life-care-strategy-promoting-high-quality-care-for-adults-at-the-end-of-their-life, 2008.
23. Department of Health and Children, Chapter one: historical background. Report of the National Advisory Committee on Palliative Care, 2001, 20–27 Retrieved from http://hospicefoundation.ie/wp-content/uploads/2012/07/Report-of-the-National-Advisory-Committee-on-Palliative-Care-2001.pdf.
24. Efstathiou, N., Walker, W., Intensive care nurses’ experiences of providing end-of-life care after treatment withdrawal: a qualitative study. J. Clin. Nurs. 23:21−22 (2014), 3188–3196, 10.1111/jocn.12565.
25. Ekman, I., Swedberg, K., Taft, C., Lindseth, A., Norberg, A., Brink, E., Sunnerhagen, K.S., Person-centered care - ready for prime time. Eur. J. Cardiovasc. Nurs. 10:4 (2011), 248–251, 10.1016/j.ejcnurse.2011.06.008.
26. Espinosa, L., Young, A., Symes, L., Haile, B., Walsh, T., ICU nurses’ experiences in providing terminal care. Crit. Care Nurs. Q. 33:3 (2010), 273–281, 10.1097/CNQ.0b013e3181d91424.
27. Etkind, S.N., Bone, A.E., Gomes, B., Lovell, N., Evans, C.J., Higginson, I.J., Murtagh, F.E.M., How many people will need palliative care in 2040? Past trends, future projections and implications for services. BMC Med., 15, 2017, 10.1186/s12916-017-0860-2.
28. Ferrell, B., Connor, S.R., Cordes, A., Dahlin, C.M., Fine, P.G., Hutton, N., National Consensus Project for Quality Palliative Care Task Force Members, The national agenda for quality palliative care: the national consensus project and the national quality forum. J. Pain Symptom Manag. 33:6 (2007), 737–744, 10.1016/j.jpainsymman.2007.02.024.
29. Forero, R., McDonnell, G., Gallego, B., McCarthy, S., Mohsin, M., Shanley, C., Hillman, K., A literature review on care at the end-of-life in the emergency department. Emerg. Med. Int., 2012, 2012, 486516, 10.1155/2012/486516.
30. Foronda, C., Liu, S.W., Bauman, E.B., Evaluation of simulation in undergraduate nurse education: an integrative review. Clin. Simul. Nurs., 9(10), 2013, 8, 10.1016/j.ecns.2012.11.003.
31. Guo, Q., Jacelon, C.S., An integrative review of dignity in end-of-life care. Palliat. Med. 28:7 (2014), 931–940, 10.1177/0269216314528399.
32. Hansen, L., Goodell, T.T., Dehaven, J., Smith, M., Nurses’ perceptions of end-of-life care after multiple interventions for improvement. Am. J. Crit. Care, 18(3), 2009, 9, 10.4037/ajcc2009727.
33. Henoch, I., Carlander, I., Holm, M., James, I., Sarenmalm, E.K., Hagelin, C.L., Ohlen, J., Palliative care research - a systematic review of foci, designs and methods of research conducted in Sweden between 2007 and 2012. Scand. J. Caring Sci. 30:1 (2016), 5–25, 10.1111/scs.12253.
34. Holms, N., Milligan, S., Kydd, A., A study of the lived experiences of registered nurses who have provided end-of-life care within an intensive care unit. Int. J. Palliat. Nurs. 20:11 (2014), 549–556, 10.12968/ijpn.2014.20.11.549.
35. Hopkinson, J.B., Hallett, C.E., Luker, K.A., Caring for dying people in hospital. J. Adv. Nurs. 44:5 (2003), 525–533, 10.1046/j.0309-2402.2003.02836.x.
36. Ingwu, J.A., Nwaiku, L., Ohaeri, B., Knowledge and practice of end-of-life care among nurses in a teaching hospital in Nigeria. Int. J. Palliat. Nurs. 22:4 (2016), 194–199, 10.12968/ijpn.2016.22.4.194.
37. International Council of Nurses, The ICN Code of Ethics for Nurses. Retrieved from http://www.icn.ch/images/stories/documents/about/icncode_english.pdf, 2012.
38. Kirchhoff, K.T., Spuhler, V., Walker, L., Hutton, A., Cole, B.V., Clemmer, T., Intensive care nurses’ experiences with end-of-life care. Am. J. Crit. Care 9:1 (2000), 36–42.
39. Kiyanda, B.G., Dechene, G., Marchand, R., Dying at home: experience of the Verdun local community service centre. Can. Fam. Physician 61:4 (2015), e215–e218.
40. Kruse, B.G., Melhado, L.W., Convertine, L., Stecher, J., Evaluating strategies for changing acute care nurses’ perceptions on end-of-life care. Am. J. Hosp. Palliat. Care 25:5 (2008), 389–397, 10.1177/1049909108322368.
41. Mak, Y.W., Chiang, V.C., Chui, W.T., Experiences and perceptions of nurses caring for dying patients and families in the acute medical admission setting. Int. J. Palliat. Nurs. 19:9 (2013), 423–431, 10.12968/ijpn.2013.19.9.423.
42. McCallum, A., McConigley, R., Nurses’ perceptions of caring for dying patients in an open critical care unit: a descriptive exploratory study. Int. J. Palliat. Nurs. 19:1 (2013), 25–30, 10.12968/ijpn.2013.19.1.25.
43. McCormack, B., A conceptual framework for person-centred practice with older people. Int. J. Nurs. Pract. 9:3 (2003), 202–209, 10.1046/j.1440-172X.2003.00423.x.
44. McCormack, B., McCance, T.V., Development of a framework for person-centred nursing. J. Adv. Nurs. 56:5 (2006), 472–479, 10.1111/j.1365-2648.2006.04042.x.
45. McMillen, R.E., End of life decisions: nurses perceptions, feelings and experiences. Intensive Crit. Care Nurs. 24:4 (2008), 251–259, 10.1016/j.iccn.2007.11.002.
46. Moorhead, S., Johnson, M., Maas, M., Swanson, S., 1307 dignified life closure. Moorhead, S., Johnson, M., Maas, M., Swanson, S., (eds.) Nursing Outcomes Classification (NOC), 5th ed., 2012, Mosby Elsevier, St. Louis: MO, 201.
47. Morgan, S., Yoder, L.H., A concept analysis of person-centered care. J. Holist. Nurs. 30:1 (2012), 6–15, 10.1177/0898010111412189.
48. Moss, A.H., Demanelis, A.R., Murray, J., Jack, J., Barriers to quality end-of-life care in West Virginia ICU units: physicians’ and nurses’ prospectives. W. V. Med. J. 101:5 (2005), 200–204.
49. Nagaviroj, K., Anothaisintawee, T., A study of the association between multidisciplinary home care and home death among Thai palliative care patients. Am. J. Hosp. Palliat. Care 34:5 (2017), 397–403, 10.1177/1049909116631550.
50. National Cancer Institute, End-of-Life Care for People Who Have Cancer. Retrieved from http://www.cancer.gov/about-cancer/advanced-cancer/care-choices/care-fact-sheet, 2012.
51. National Consensus Project for Quality Palliative Care, Clinical practice guidelines for quality palliative care. 3rd ed., 2013 (Pittsburgh).
52. National Health Service England, End of Life Care. Retrieved from http://www.nhs.uk/Planners/end-of-life-care/Pages/what-it-involves-and-when-it-starts.aspx, 2015.
53. Neergaard, M.A., Jensen, A.B., Sondergaard, J., Sokolowski, I., Olesen, F., Vedsted, P., Preference for place-of-death among terminally ill cancer patients in Denmark. Scand. J. Caring Sci. 25:4 (2011), 627–636, 10.1111/j.1471-6712.2011.00870.x.
54. Negarandeh, R., Oskouie, F., Ahmadi, F., Nikravesh, M., Hallberg, I.R., Patient advocacy: barriers and facilitators. BMC Nurs., 5(1), 2006, 3, 10.1186/1472-6955-5-3.
55. Negarandeh, R., Oskouie, F., Ahmadi, F., Nikravesh, M., The meaning of patient advocacy for Iranian nurses. Nurs. Ethics 15:4 (2008), 457–467, 10.1177/0969733008090517.
56. Nursing and Midwifery Board of Australia, Registered Nurse Standards for Practice. Retrieved from http://www.nursingmidwiferyboard.gov.au/Codes-Guidelines-Statements/Professional-standards/registered-nurse-standards-for-practice.aspx, 2016.
57. Nursing and Midwifery Council, The Code: Professional Standards of Practice and Behaviour for Nurses and Midwives. Retrieved from https://www.nmc.org.uk/globalassets/sitedocuments/nmc-publications/nmc-code.pdf, 2015.
58. Oberle, K., Hughes, D., Doctors’ and nurses’ perceptions of ethical problems in end-of-life decisions. J. Adv. Nurs. 33:6 (2001), 707–715, 10.1046/j.1365-2648.2001.01710.x.
59. O'Shea, E., Timmons, S., Kennelly, S., de Siun, A., Gallagher, P., O'Neill, D., Symptom assessment for a palliative care approach in people with dementia admitted to acute hospitals: results from a national audit. J. Geriatr. Psychiatry Neurol. 28:4 (2015), 255–259, 10.1177/0891988715588835.
60. Pace, R., Pluye, P., Bartlett, G., Macaulay, A.C., Salsberg, J., Jagosh, J., Seller, R., Testing the reliability and efficiency of the pilot Mixed Methods Appraisal Tool (MMAT) for systematic mixed studies review. Int. J. Nurs. Stud. 49:1 (2012), 47–53, 10.1016/j.ijnurstu.2011.07.002.
61. Pastrana, T., Jünger, S., Ostgathe, C., Elsner, F., Radbruch, L., A matter of definition – key elements identified in a discourse analysis of definitions of palliative care. Palliat. Med. 22:3 (2008), 222–232.
62. Pluye, P., Hong, Q.N., Combining the power of stories and the power of numbers: mixed methods research and mixed studies reviews. Annu. Rev. Public Health 35:1 (2014), 29–45, 10.1146/annurev-publhealth-032013-182440.
63. Porock, D., Pollock, K., Jurgens, F., Dying in public: the nature of dying in an acute hospital setting. J. Hous. Elder., 23(1–2), 2009, 19, 10.1080/02763890802664521.
64. Radbruch, L., Payne, S., White paper on standards and norms for hospice and palliative care in Europe: part 1. Eur. J. Palliat. Care, 16(6), 2009, 11.
65. Shepperd, S., Wee, B., Straus, S.E., Hospital at home: home-based end of life care. Cochrane Database Syst. Rev., 7, 2011, CD009231, 10.1002/14651858.CD009231.
66. Slatyer, S., Pienaar, C., Williams, A.M., Proctor, K., Hewitt, L., Finding privacy from a public death: a qualitative exploration of how a dedicated space for end-of-life care in an acute hospital impacts on dying patients and their families. J. Clin. Nurs. 24:15–16 (2015), 2164–2174, 10.1111/jocn.12845.
67. Sorenson, C., Bolick, B., Wright, K., Hamilton, R., Understanding compassion fatigue in healthcare providers: a review of current literature. J. Nurs. Scholarsh. 48:5 (2016), 456–465, 10.1111/jnu.12229.
68. Swerissen, H., Duckett, S., Dying Well. Retrieved from https://grattan.edu.au/wp-content/uploads/2014/09/815-dying-well.pdf, 2014.
69. Teitelbaum, H.S., Travis, L.D., Heilig, D.L., Neslund, S.E., Menze, A.K., Baker, C.D., Risner, E.K., The epidemiology of hospice and palliative care. Dis. Mon. 59:9 (2013), 309–324, 10.1016/j.disamonth.2013.05.002.
70. Thompson, G., McClement, S., Daeninck, P., Nurses’ perceptions of quality end-of-life care on an acute medical ward. J. Adv. Nurs. 53:2 (2006), 169–177, 10.1111/j.1365-2648.2006.03712.x.
71. Todaro-Franceschi, V., Critical care nurses’ perceptions of preparedness and ability to care for the dying and their professional quality of life. Dimens. Crit. Care Nurs. 32:4 (2013), 184–190, 10.1097/DCC.0b013e31829980af.
72. Valiee, S., Negarandeh, R., Dehghan Nayeri, N., Exploration of Iranian intensive care nurses’ experience of end-of-life care: a qualitative study. Nurs. Crit. Care 17:6 (2012), 309–315, 10.1111/j.1478-5153.2012.00523.x.
73. White, K.R., Coyne, P.J., Nurses’ perceptions of educational gaps in delivering end-of-life care. Oncol. Nurs. Forum 38:6 (2011), 711–717, 10.1188/11.ONF.711-717.
74. White, K.R., Coyne, P.J., Patel, U.B., Are nurses adequately prepared for end-of-life care?. J. Nurs. Scholarsh. 33:2 (2001), 147–151, 10.1111/j.1547-5069.2001.00147.x.
75. Wion, R.K., Loeb, S.J., CE: original research: end-of-life care behind bars: a systematic review. Am. J. Nurs. 116:3 (2016), 24–36, 10.1097/01.NAJ.0000481277.99686.82 quiz 37.
76. World Health Organization, WHO Definition of Palliative Care. Retrieved from: http://www.who.int/cancer/palliative/definition/en/, 2018.