Experiences of non-specialist nurses caring for patients and their significant others undergoing transitions during palliative end-of-life cancer care: A systematic review

JBI Database of Systematic Reviews and Implementation Reports

Volumn 15, Issue 6, 2017, Pages 1711-1746

  Thorn, Hronn ^a,b   Uhrenfeldt, Lisbeth ^b,c  

^a HORSENS REGIONAL HOSPITAL   (Denmark)

^b AALBORG UNIVERSITY   (Denmark)

^c NORD UNIVERSITY   (Norway)

Author keywords

End of life care; existential; experience; non specialist nurses; psychosocial; transition

Indexed keywords

CANCER PALLIATIVE THERAPY; CANCER PATIENT; EXISTENTIALISM; FRIEND; HUMAN; NURSING CARE; PATIENT CARE; PSYCHOSOCIAL CARE; QUALITATIVE RESEARCH; REGISTERED NURSE; RELATIVE; REVIEW; SPOUSE; SYSTEMATIC REVIEW; TERMINAL CARE; TRANSITIONAL CARE; WORK EXPERIENCE; EMOTION; HEALTH CARE QUALITY; JOB SATISFACTION; META ANALYSIS; NEOPLASM; NURSE; NURSING; PALLIATIVE THERAPY; PSYCHOLOGY; WORKLOAD;

EMOTIONS; HUMANS; JOB SATISFACTION; NEOPLASMS; NURSES; PALLIATIVE CARE; QUALITY OF HEALTH CARE; TERMINAL CARE; WORKLOAD;

EID: 85051281436     PISSN: None     EISSN: 22024433     Source Type: Journal    
DOI: 10.11124/JBISRIR-2016-003026     Document Type: Review

References (44)

1. World Health Organization. Cancer 2014. Available from: http://www.who.int/mediacentre/factsheets/fs297/en/index.html#. [Accessed December 9, 2014].
2. Clark D. From margins to centre: a review of the history of palliative care in cancer. Lancet Oncol 2007;8(5):430-8.
3. Wallerstedt B, Andershed B. Caring for dying patients outside special palliative care settings: experiences from a nursing perspective. Scand J Caring Sci 2007;21(1):32-40.
4. Dunne K, Sullivan K, Kernohan G. Palliative care for patients with cancer: district nurses' experiences. J Adv Nurs 2004;50(4):372-80.
5. Gill F, Duffy A. Caring for patients on non-specialist wards. Br J Nurs 2010;19(12):761-7.
6. Pusa S, Persson C, Sundin K. Significant others' lived experiences following a lung cancer trajectory-from diagnosis through and after the death of a family member. Eur J Oncol Nurs 2012;16(1):34-41.
7. Ferell BR, Virani R, Smith S, Juarez G. The role of oncology nursing to ensure quality care for cancer survivors: a report commissioned by the National Cancer Policy Board and Institute of Medicine. Oncol Nurs Forum 2003;30(1):E1-11.
8. Skilbeck J, Payne J. Emotional support and the role of clinical nurse specialists in palliative care. J Adv Nurs 2003;43(5):521-30.
9. Skilbeck JK, Payne S. End of life care: a discursive analysis of specialist palliative care nursing. J Adv Nurs 2005;51(4): 325-34.
10. Mulvihill C, Harrington A, Robertson A. A literature review of the role of the specialist palliative care community nurse. Int J Palliat Nurs 2010;16(4):163-72.
11. McWilliams CL, Burdock J, Namsley J. The challenging experience of palliative care support-team nursing. Oncol Nurs Forum 1993;20(5):779-85.
12. Husband J. The evolving role of the community nurse specialist in palliative care. Br J Community Nurs 2008; 13(1):26-30.
13. Krishnasamy M, Corner J, Bredin M, Plant H, Bailey C. Cancer nursing practice and development: understanding breathlessness. J Clin Nurs 2001;10(1):103-8.
14. McCaughan E, Parahoo K. Medical and surgical nurses' perceptions of their level of competence and educational needs in caring for patient with cancer. J Clin Nurs 2000; 9(3):420-8.
15. Wood C, Ward J. A general overview of the cancer education needs of non-specialist staff. Eur J Cancer Care 2000;9(4): 191-6.
16. Mohan S, Wilkes LM, Ogunsiji O, Walker A. Caring for patients with cancer in non-specialist wards: the nurse experience. Eur J Cancer Care 2005;14(3):256-63.
17. Udo C, Melin-Johansson D, Danielson E. Existential issues among health care staff in surgical cancer care-discussions in supervision sessions. Eur J Oncol Nurs 2011;15(5): 447-53.
18. Steinhauser KE, Clipp EC, McNeilly M, Christakis NA, McIntyre LM, Tulsky JA. In search of a good death: observations of patients, families, and providers. Ann Intern Med 2000;132(10):825-32.
19. Söderberg I, Trevena I, Fridolfsson A. Transitions during the cancer trajectory. The supportive role of the nurse. Theoria. J Nursing Theory 2006;15(1):16-24.
20. Badger JM. Factors that enable or complicate end-of-life transitions in critical care. Am J Crit Care 2005;14(6):513-22.
21. Meleis Al. Theoretical nursing: development and progress. 2nd ed. Philadelphia: J.B. Lippincott; 1991; 42.
22. Drevdahl DJ, Dorcy KS. Transition, decision, and regret. Order in chaos after a cancer diagnosis. ANS Adv Nurs Sci 2012;35(3):222-35.
23. Carlson LE, Bultz VD. Benefits of psychosocial oncology care: improved quality of life and medical cost offset. Health Qual Life Outcome 2003;1:8.
24. Cohen RS, Mount BM, Tomas JJN, Mount LF. Existential wellbeing is an important determinant of quality of life. Cancer 1996;77(3):576-86.
25. Burge GI, Lawson B, Critchley P, Maxwell D. Transitions in care during end of life: changes experienced following enrolment in a comprehensive palliative care program. BMC Palliat Care 2005;4(1):1-7.
26. Reinke LF, Engelberg RA, Shannon SE, Wenrich MD, Vig EK, Back AL, et al. Transitions regarding palliative and end-of-life care in severe chronic obstructive pulmonary disease or advanced cancer: themes identified by patients, families, and clinicians. J Palliat Med 2008; 11(4):601-9.
27. Uhrenfeldt L, Aagaard H, Hall EOC, Fegran L, Ludvigsen MS, Meyer G. A qualitative meta-synthesis of patients' experiences of intra-And inter-hospital transitions. J Adv Nurs 2013;69(8):1678-90.
28. Persson C, Sundin K. Being in the situation of a significant other to a person with inoperable lung cancer. Cancer Nurs 2008;31(5):380-8.
29. El-Jawarhi A, Greer JA, Temel JS. Does palliative care improve outcomes for patients with incurable illness? A review of the evidence. J Support Oncol 2011;9(3):87-94.
30. Sutherland N. The meaning of being in transition to end-oflife care for female partners of spouses with cancer. Palliat Suppor Care 2009;7(4):423-33.
31. Meleis AI, Sawyer LM, Im EO, Hillfinger M, DeAnne K, Schumacher K. Experiencing transitions: an emerging middle-range theory. ANS Adv Nurs Sci 2000;23(1):12-28.
32. Boston P, Bruce A, Schreiber R. Existential suffering in the palliative care setting: an integrated literature review. J Pain Symptom Manage 2011;41(3):604-18.
33. Rustoen T, Schjolberg TK, Wahl AK. What areas of cancer care do Norwegian nurses experience as problems? J Adv Nurs 2003;41(4):342-50.
34. Costello J. Dying well: nurses' experiences of 'good and bad' deaths in hospital. J Adv Nurs 2006;54(5):594-601.
35. Madsen R, Uhrenfeldt L. Palliative patients and their significant others' experiences of transitions concerning organizational, psychosocial and existential issues during the course of incurable cancer: a systematic review protocol. JBI Database of System Rev Implement Rep 2014;12(2): 9-25.
36. Thorn H, Uhrenfeldt L. Experiences of non-specialist nurses with patients and their significant others undergoing transitions during palliative end-of-life care: a systematic review protocol. JBI Database of System Rev Implement Rev 2014;12(11):19-30.
37. Mehnert A, Koch U. Psychosocial care of cancer patients-international differences in definition, healthcare structures, and therapeutic approaches. Support Care Cancer 2005; 13(8):579-88.
38. Frankl VE. The unheard cry for meaning. Psychotherapy and humanism. New York: Touchstone; 1978; 22-8.
39. Kvale S. Interviews. An introduction to qualitative research interviewing. California: Sage Publication; 1996; 38-9.
40. Sneeuw KC, Aaronson, Osoba D, Muller MJ, Hsu MA, Yung WK, et al. The use of significant others as proxy raters of the quality of life of patients with brain cancer. Medi Care 1997;35(5):490-506.
41. The Joanna Briggs Institute. Joanna Briggs Institute Reviewers' Manual: 2014 edition. Adelaide: The Joanna Briggs Institute; 2014.
42. Ludvigsen MS, Hall EOC, Meyer G, Fegran L, Aagaard H, Uhrenfeldt L. Using Sandelowski and Barroso's meta-synthesis method in advancing qualitative evidence. J Adv Nurs 2005;50(2):204-11.
43. Tobin GA. Breaking bad news: a phenomenological exploration of Irish nurses' experiences of caring for patients when a cancer diagnosis is given in an acute care facility (part 1). Cancer Nurs 2012;35(6):E21-9.
44. Iranmanesh S, Abbaszadeh A, Dargahi H, Cheraghi MA. Caring for people at the end of life: Iranian oncology nurses' experiences. Indian J Palliat care 2009;15(2): 141-7.