The meaning of being in transition to end-of-life care for female partners of spouses with cancer

Palliative and Supportive Care

Volumn 7, Issue 4, 2009, Pages 423-433

  Sutherland, Nisha ^a  

^a School for Health and Life Sciences   (Canada)

Author keywords

Anticipatory grief; Female partners; Hope; Meaning making; Transition to end of life

Indexed keywords

ADAPTIVE BEHAVIOR; AGED; ARTICLE; ATTITUDE TO DEATH; CAREGIVER; FAMILY RELATION; FEMALE; GRIEF; HUMAN; MENTAL STRESS; MIDDLE AGED; NEOPLASM; PSYCHOLOGICAL ASPECT; QUALITATIVE RESEARCH; SOCIAL SUPPORT; SPOUSE; TERMINAL CARE;

ADAPTATION, PSYCHOLOGICAL; AGED; ATTITUDE TO DEATH; CAREGIVERS; FAMILY RELATIONS; FEMALE; GRIEF; HUMANS; MIDDLE AGED; NEOPLASMS; QUALITATIVE RESEARCH; SOCIAL SUPPORT; SPOUSES; STRESS, PSYCHOLOGICAL; TERMINAL CARE;

EID: 74249113910     PISSN: 14789515     EISSN: 14789523     Source Type: Journal    
DOI: 10.1017/S1478951509990435     Document Type: Article

References (62)

1. Allen, S. (1994). Gender differences in spousal caregiving and unmet need for care. Journal of Gerontology, 49, S187-S195.
2. Attig, T. (2000). Anticipatory mourning and the transition to loving in absence. In Clinical Dimensions of Anticipatory Mourning: Theory and Practice in Working with the Dying, Their Loved Ones, and Their Caregivers, Rando, T. (ed.), pp. 115-134. Champaign, IL: Research Press.
3. Attig, T. (2001). Relearning the world: Making and finding meanings. In Meaning Reconstruction and the Experience of Loss, Neimeyer, R.A. (ed.), pp. 33-53. Washington, DC: American Psychological Association.
4. Baider, L., Kaufman, B., Peretz, T., et al. (1996). Mutuality of fate: Adaption and psychological distress in cancer patients and their partners. In Cancer and the Family, Baider, L. et al. (eds.), pp. 173-186. Toronto: JohnWiley & Sons.
5. Baider, L., Koch, U., Esacson, R., et al. (1998). Prospective study of cancer patients and their spouses: The weakness of marital strength. Psycho-Oncology, 7, 49-56.
6. Benzein, E., Norberg, A. & Saveman, B. (2001). The meaning of the lived experience of hope in patients with cancer in palliative home care. Palliative Medicine, 15, 117-126.
7. Carey, P., Oberst, M., McCubbin, M., et al. (1991). Appraisal and caregiving burden in family members caring for patients receiving chemotherapy. Oncology Nursing Forum, 18, 1341-1348.
8. Cassileth, B., Lusk, E., Strouse, T., et al. (1985). A psychological analysis of cancer patients and their next-of-kin. Cancer, 55, 72-76.
9. Chekryn, J. (1984). Cancer recurrence: Personal meaning, communication, and marital adjustment. Cancer Nursing, 491-498.
10. Clayton, J., Butow, P., Arnold, R. & Tattersall, M. (2005). Fostering coping and nurturing hope when discussing the future with terminally ill cancer patients and their caregivers. Cancer, 103, 1965-1975.
11. Corr, C. & Corr, D. (2000). Anticipatory mourning and coping with dying: Similarities, differences, and suggested guidelines for helpers. In Clinical Dimensions of Anticipatory Mourning: Theory and Practice in Working with the Dying, Their Loved Ones, and Their Caregivers, Rando, T. (ed.), pp. 223-252. Champaign, IL: Research Press.
12. Creswell, J.W. (1998). Qualitative Inquiry and Research Design: Choosing among Five Traditions. Thousand Oaks, CA: Sage.
13. Davies, B., Remier, C. & Martens, N. (1990). Families in supportive care: The transition of fading away: The nature of the transition. Journal of Palliative care, 6, 12-20.
14. Doka, K. (2000). Re-creating meaning in the face of illness. In Clinical Dimensions of Anticipatory Mourning: Theory and Practice inWorking with the Dying, Their Loved Ones, and Their Caregivers, Rando, T. (ed.), pp. 103-114. Champaign, IL: Research Press.
15. Duke, S. (1998). An exploration of anticipatory grief: The lived experience of people during their spouses' terminal illness and in bereavement. Journal of Advanced Nursing, 28, 829-839.
16. Ey, S., Compas, B., Epping-Jordan, J., et al. (1998). Stress responses and psychological adjustment in patients with cancer and their spouses. Journal of Psychosocial Oncology, 16, 59-77. (Pubitemid 29063051)
17. Firestone, W. (1993). Alternative arguments for generalizing from data as applied to qualitative research. Educational Researcher, 22, 16-23.
18. Fleming, V., Gaidys, U. & Robb, Y. (2003). Hermeneutic research in nursing: Developing a Gadamerian-based research method. Nursing Inquiry, 10, 113-120.
19. Folkman, S. (1997). Positive psychological states and coping with severe stress. Social Science & Medicine, 45, 1207-1221.
20. Folkman, S. & Greer, S. (2000). Promoting psychological well-being in the face of serious illness: When theory, research and practice inform each other. Psycho-oncology, 9, 11-19.
21. Fulton, G., Madden, C. & Minichiello, V. (1996). The social construction of anticipatory grief. Social Science & Medicine, 43, 1349-1358.
22. Gadamer, H. (1975). Truth and Method (2nd ed.), Weinsheimer, J. & Marshall, D.G. (trans.). New York: Continuum (original work published in 1960).
23. Geanellos, R. (1998). Hermeneutic philosophy. Part 1: Implications of its use as methodology in interpretive nursing research. Nursing Inquiry, 5, 154-163.
24. Germino, B., Fife, B. & Funk, S. (1995). Cancer and the partner relationship. What is its meaning? Seminars in Oncology Nursing, 11, 43-50.
25. Gilbar, O. (1999). Gender as a predictor of burden and psychological distress of elderly husbands and wives of cancer patients. Psycho-Oncology, 8, 287-294.
26. Gillies, J.&Neimeyer, R. (2006). Loss, grief, and the search for significance: Toward a model of meaning reconstruction in bereavement. Journal of Constructivist Psychology, 19, 31-65.
27. Gray, R., Fitch, M., Phillips, C., et al. (2000). Managing the impact of illness: The experiences of men with prostate cancer and their spouses. Journal of Health Psychology, 5, 531-548.
28. Halliburton, P., Larson, P., Dibble, S., et al. (1992). The recurrence experience: Family concerns during cancer chemotherapy. Journal of Clinical Nursing, 1, 275-281.
29. Hawes, S., Malcarne, V., Ko, C., et al. (2006). Identifying problems faced by spouses and partners of patients with prostate cancer. Oncology Nursing Forum, 33, 807-814.
30. Jansen, C., Halliburton, P., Dibble, S., et al. (1993). Family problems during cancer chemotherapy. Oncology Nursing Forum, 20, 689-694.
31. Jo, S., Brazil, K., Lohfeld, L., et al. (2007). Caregiving at the end of life: Perspectives from spousal caregivers and care recipients. Palliative and Supportive Care, 5, 11-17.
32. Jones, R., Hansford, J.&Fisk, J. (1993). Death from cancer at home: The carers' perspective. British Medical Journal, 306, 249-256.
33. Kalayjian, A. (1989). Coping with cancer: The spouse's perspective. Archives of Psychiatric Nursing, 3, 166-172.
34. Kehl, K. (2005). Recognition and support of anticipatory mourning. Journal of Hospice and Palliative Nursing, 7, 206-211.
35. Keller, M., Henrich, G., Sellschopp, A., et al. (1996). Between distress and support: Spouses of cancer patients. In Cancer and the Family, Baider, L. et al. (eds.), pp. 187-222. Toronto: John Wiley & Sons.
36. Klemm, P. & Wheeler, E. (2005). Cancer caregivers online: Hope, emotional rollercoaster, and physical, psychological responses. CIN: Computers, Informatics, Nursing, 23, 38-45.
37. Lewis, F. & Deal, L. (1995). Balancing our lives: A study of the married couple's experience with breast cancer recurrence. Oncology Nursing Forum, 22, 943-953.
38. Mahon, S., Cella, D. & Donovan, M. (1990). Psychosocial adjustment to recurrent cancer. Oncology Nursing Forum, 17, 47-54.
39. Morse, J. (2000). Determining sample size. Qualitative Health Research, 10, 3-5.
40. Morse, J. & Doberneck, B. (1995). Delineating the concept of hope. Image, 27, 277-285.
41. Morse, S. & Fife, B. (1998). Coping with a partner's cancer: Adjustment at four stages of the illness trajectory. Oncology Nursing Forum, 25, 751-760.
42. Nadeau, J. (2001). Family construction of meaning. In Meaning Reconstruction and the Experience of Loss, Neimeyer, R.A. (ed.), pp. 95-112. Washington, DC: American Psychological Association.
43. Neimeyer, R. (2001). Meaning Reconstruction and Loss. Washington, DC: American Psychological Association.
44. Northouse, L., Dorris, G. & Charron-Moore, C. (1995). Factors affecting couples' adjustment to recurrent breast cancer. Social Science & Medicine, 41, 69-71.
45. Northouse, L., Mood, D., Templin, T., et al. (2000). Couples' patterns of adjustment to colon cancer. Social Science & Medicine, 50, 271-284.
46. Osse, B., Vernooij-Dassen, M., Schade, E., et al. (2006). Problems experienced by the informal caregivers of cancer patients and their needs for support. Cancer Nursing, 29, 378-388.
47. Patton, M. (2003). Qualitative Research and Evaluation Methods (3rd ed.). Thousand Oaks, CA: Sage.
48. Pistrang, N. & Barker, C. (1995). The partner relationship in psychological response to breast cancer. Social Science & Medicine, 40, 789-797.
49. Porter, L., Keefe, F., Hurwitz, H. & Faber, M. (2005). Disclosure between patients with gastrointestinal cancer and their spouses. Psycho-oncology, 14, 1030-1042.
50. Proot, I., Abu-Saad, H., Crebolder, H., et al. (2003). Vulnerability of family caregivers in terminal palliative care at home: Balancing between burden and capacity. Scandinavian Journal of Caring Science, 17, 113-121.
51. Quinn, M., Fontana, A. & Reznikoff, M. (1986). Psychological distress in reaction to lung cancer as a function of spousal support and coping strategy. Journal of Psychosocial Oncology, 4, 79-91.
52. Rando, T. (2000). Clinical Dimensions of Anticipatory Mourning: Theory and Practice in Working with the Dying, Their Loved Ones, and Their Caregivers. Champaign, IL: Research Press.
53. Sandelowski, M. (1986). The problem of rigor in qualitative research. Advanced Nursing Science, 16, 1-8.
54. Sandelowski, M. (1995). Focus on qualitative methods: Sample size in qualitative research. Research in Nursing and Health, 18, 179-183.
55. Schulman-Green, D., McCorkle, R., Curry, L., et al. (2004). At the crossroads: Making the transition to hospice. Palliative and Supportive Care, 2, 351-360.
56. Spiegel, D., Bloom, J. & Gottheil, E. (1983). Family environment as a predictor of adjustment to metastatic breast carcinoma. Journal of Psychosocial Oncology, 1, 33-44.
57. Stajduhar, K. (2003). Examining the perspectives of family members involved in the delivery of palliative care at home. Journal of Palliative Care, 19, 27-35.
58. Waldrop, D., Kramer, B., Skretny, J., et al. (2005). Final transitions: Family caregiving at the end of life. Journal of Palliative Medicine, 8, 623-638.
59. Winterling, J., Wasteson, E., Glimelius, B., et al. (2004). Substantial changes in life: Perceptions of patients with newly diagnosed advanced cancer and their spouses. Cancer Nursing, 27, 381-388.
60. Wolf, Z. (2003). Exploring the audit trail for qualitative investigations. Nurse Educator, 28, 175-178.
61. Wright, K. & Dyck, S. (1984). Expressed concerns of adult cancer patients' family members. Cancer Nursing, 7, 371-374.
62. Wright, M. & Leahey, M. (2000). Nurses and Families: A Guide to Family Assessment and Intervention (3rd ed.). Philadelphia: F.A. Davis.